My POIS may be effectively cured

[Going less Crazy]

***** refer to diet that cured my pois post... Currently "diet that 100% manages my pois" post.

This post is confusing and it resembles the beginning stages of figuring out my food problem.

****sixth update.  Grains and eggs are definitely a no go.  Dairy is still pending but I recommend to avoid.  Had 5 OS last weekend and another group of O's without symptoms.  Did not take anything at all beforehand or afterwards.  Just remained on the diet.  Head is still very clear.

**fifth update.. Grains,eggs and dairy I must avoid to be POIS free. Head is as clear as ever.  Seems like my pois is all related to food intolerances.  Check my latest post 3/8/2016
 

**** fourth update... I cannot tolerate grains.  I am having reactions to Brown rice causing inflammation.  So right before this I eliminated eggs and dairy (both known to F up your gut) and felt much better, eyes started clearing.  Than had a reaction to Brown rice from rice chex (believe it was the Brown rice instead of the bht).  So I am most definitely eliminating all grains, milk and eggs.  I am leaning towards leaky gut/celiac/inflammational theory of POIS (gluten free is bs for me...all grains have prolamines that irritate your gut and could cause immune reactions, search prolamines on Google).  Silent inflammation in your gut spreads when we O.  Normally the brain is protected, but after O your brain is compromised and the inflammation from your intestines spreads throughout the body, and especially for my POIS, my brain.  I am hoping the eggs and dairy that i stopped consuming (large amounts each day since I went completely grain free) will put any other flames out for the inflammation, causing me to be POIS free again and actually BE ABLE TO SLEEP.  I am also hoping I can heal my gut, diminish food intolerances and reintroduce foods since I was never on a true gut healing protocol (involves removal of especially grains and dairy, eggs are bad too).  But if I have to remain on the meat and potatoes diet to beat POIS I will.  Also for those of you trying this Grain Free diet I've found chickpea pasta to be especially good, supplying much needed carbs and protein.  Also white rice and almond milk (coconut milk supposedly better) is good.  I will update in the future.

And btw, I had no idea my POIS was caused by this, it took 7 or 8 years for me to associate grain and inflam foods intolerance with POIS.  The only way to know is take the food out and see if you feel better.  The small intestine is literally the bridge from our body to the outside world.  Again I will update and hope my POIS can be resolved... Again.

So to recap, I was grain free, with some Brown rice and almond milk in the summer and was POIS free.  Noticed a reaction to brown rice from rice chex and than I went completely grain free, added milk and a lot of eggs in the morning, POIS came back.  Added rice chex to sleep, worked a few times but noticed a bad inflammatory reaction again.  Than I eliminated Brown rice, all milk and eggs and am in the early stages but have reason to believe I will be POIS free again.  Fingers crossed

**** third update..  For some reason I cannot sleep at all on a grain free diet.  I've tried adding white rice even after eating lots of potatoes before in the diet and still have trouble sleeping.  For some reason after I eat rice chex I can fall asleep.  I've tried vitamins as well and they don't work.  This almost tells me it's some type of immune problem, possibly my bodies immune system gets distracted with the Brown rice (I'm intolerant to) and allows me to sleep.  Very weird.  Rice chex is Brown rice and right now I'm doing one bowl in the morning.

*** second update... I am on a complete grain free diet and I don't even eat gluten free versions.  Brown rice does cause a reaction so I believe I only can eat white rice as the only grain tho I haven't tried it yet... Head is as clear as ever...I no longer take monolaurin or cats claw tho they probably won't hurt... Read my bio

*** This thread should be that my POIS is 100% manageable as long as I eat as I explain below.

Since the beginning of June I've undergone some experimentation.  First, a completely gluten and corn free diet, 2nd Monolaurin, 3rd Cat's Claw.  The monolaurin and cat's claw were from my own thoughts of having some other "virus" or something that my body couldn't handle.  But I believe the number one cause of my healing was from a gluten free diet.  I will go into it here.

First I eliminated all "gluten" from my diet, includes white flour, many other kinds of flour, even sorghum flour (which is in gluten free foods).  In fact the only type of "flour" I believe I can have is brown rice flour.  To clear that up is I can definitely have brown rice flour, I just am not sure if that is the only one I can have or if there is others I can tolerate.  Beware if you buy gluten free foods make sure that you still look at the ingredients.  If it says "sorghum flour" as an ingredient, go onto buy another GF food with just brown rice flour.  Now this sounds skeptical as a "food" issue but stick with me, I had terrible POIS I believed to be caused by "O" (even though that caused the symptoms, something else caused that problem to happen).  I also do not have "gut" issues, didn't get cramps as a celiac or something... It may be all on intolerance meaning you digest it, but it causes other reactions in the blood.  I am typing this as if I am writing a note to my younger self, you may not be as intolerant to these or your pois could be completely different.  But I am telling you I had 0% thought that food could be possibly causing this issue that was ruining my life.

I also eliminated all corn from my diet.  I did this after I had a meal with corn and immediately felt its negative effects on my mind.  Corn has a protein very similar to that of gluten and it is very possible to be intolerant or allergic to it.  I recently eliminated doritos which is GF but has corn.  I noticed it wasn't as bad as having corn itself but was still having negative effects on me.  I could probably have doritos once in a while, but it won't be beneficial.

Second is monolaurin.  At first when I started taking it every day, it left me almost hyper.  It is good for bacteria and viruses which is why I took it.  Now I only take it the DAY AFTER I have an orgasm... but I really don't think it is necessary.  I usually just take it for my "viral" beliefs but now I don't believe in that as much as I did.  I will go into doses at the end.

Third is Cat's Claw.  This is a really good immune system stimulator (from what I've read).  I usually take it for the same thought that POIS is a "viral" issue which I disbelieve in currently.  I also take this the DAY AFTER I have an orgasm.

So why do I think I am cured?  After doing this (dosage in last paragraph) I can freely have an orgasm on any day that I choose.  I do not even have to take anything beforehand and I don't have to worry about POIS the next day.  My only warning is to make sure that if you do take monolaurin and/or cat's claw that it is the NEXT DAY.  Because I believe it might cause problems if you take it before orgasm from early results in my experimentation.  I began to feel relief and no symptoms probably anywhere from 1-3 weeks into the diet.  And now I've been POIS free for 3 months after 8-9 years of POIS agony!  I had about 6-7 orgasms last weekend!! no POIS!!

Why do I think this is?  I really don't know.  Probably an intolerance causing imbalance in neurotransmitters.  Or I've even read how gluten and such can mimic a certain neurotransmitter and even replace it for the time being in your brain.  I can go on and on but my fingers are getting tired.  I also try to eat as best as I should and try not to eat as much candy and ice cream as I used to.  I included monolaurin and Cat's Claw because I wanted to put everything that I was doing for the time being even though those two probably aren't necessary.  I no longer take Olive Leaf Extract, but occasionally I'll take it the day AFTER orgasm just because I have it hahah.

So Monolaurin and Cat's Claw might make you feel a little hyper and again may not totally be necessary (quite frankly I feel worse taking Monolaurin and Cat's Claw but it still may be beneficial) but here is what I do now:

1) Totally corn and gluten free diet and a better diet (limit candy and ice cream etc.) (info in paragraphs above)
2) 1/4 of a pill of "Ecological Formulas" Monolaurin the day AFTER orgasm (75 mg ingested)
3) 1 pill "GNC" Cat's Claw the day AFTER orgasm (500 mg ingested)

I am 150 pounds

Again, sometimes I even skip on the Monolaurin and Cat's Claw as I believe they are not completely necessary.  So I'll be done typing this.  Have a good day and hope y'all solve your POIS's.

[Quantum]

Gratz for your success, GLC !   :-D

I will be interested to know, eventually, if monolaurin and Cat's claw are still useful or not for you, on the long run.  I have recently bought cat's claw, because it has NMDAR blocker properties, and those blockers tend to be beneficial for me.  I did not tried it yet, however.

I do believe that the gluten free diet may be central for you.  I personally never noticed any problem with gluten, at least not as fast and as clearly as you do, but I do have problem with other ingredients, and have eliminated them from my diet.  However, I sometime buy GF foods, because they tend to have good, natural ingredients in them. 

You may want to update your forum signature, as it still refers to niacin, olive leaf extract and Benadryl  :-)

Keep us updated on your current success!

[Going less Crazy]

Gratz for your success, GLC !   :-D

I will be interested to know, eventually, if monolaurin and Cat's claw are still useful or not for you, on the long run.  I have recently bought cat's claw, because it has NMDAR blocker properties, and those blockers tend to be beneficial for me.  I did not tried it yet, however.

I do believe that the gluten free diet may be central for you.  I personally never noticed any problem with gluten, at least not as fast and as clearly as you do, but I do have problem with other ingredients, and have eliminated them from my diet.  However, I sometime buy GF foods, because they tend to have good, natural ingredients in them. 

You may want to update your forum signature, as it still refers to niacin, olive leaf extract and Benadryl  :-)

Keep us updated on your current success!

Seems like you typed this right as I was updating it lol.  Honestly I never noticed it either, only from pasta, until abstaining healed my POIS.  I mean I will continue to update its actually been more than 3 months but I don't think much more will change.  Good Luck on your POIS!

[Prancer]

Huge congrats to GoingLessCrazy!

Food definitely seems to play a part in the severity of my symptoms too. I just haven't narrowed it down to any specific foods like you have (yet).
I'm so glad you feel better. I felt so bad before, when reading how awful you were feeling because I also felt something similar. What a great post and success story!
If anything changes or if you find out something else, or whatever, please update us! We love having you here and reading your posts.
Also, I think it's okay to snack on corn chips/doritos, just once in a while, unless it makes you feel sick. I like them too and would hate giving up stuff like that. :]

And I just learned 'GF foods' means gluten-free foods. I initially thought it was 'girlfriend' foods. I was like "what the heck is that!".

[Going less Crazy]

Huge congrats to GoingLessCrazy!

Food definitely seems to play a part in the severity of my symptoms too. I just haven't narrowed it down to any specific foods like you have (yet).
I'm so glad you feel better. I felt so bad before, when reading how awful you were feeling because I also felt something similar. What a great post and success story!
If anything changes or if you find out something else, or whatever, please update us! We love having you here and reading your posts.
Also, I think it's okay to snack on corn chips/doritos, just once in a while, unless it makes you feel sick. I like them too and would hate giving up stuff like that. :]

And I just learned 'GF foods' means gluten-free foods. I initially thought it was 'girlfriend' foods. I was like "what the heck is that!".

Thanks and yes Prancer, it is very hard to narrow down the foods because they'll put so many chemicals into a single slice of bread or anything!  Sorry for the GF I should have spelt it out every time haha.

And I'd also like to clarify something regarding the brown rice flour as I am still in the process of figuring out stuff that I can eat.  That is what it is all about for me, eating things that I can eat after i try them, and building up that list.  I did have a reaction to a new experiment regarding brown rice pancake mix made with brown rice flour, white rice flour, tapioca starch and arrowroot powder.  I am not sure exactly which one I cannot handle, causing negative mental affects/insomnia/cold sweats, but I am hoping it is not the brown rice flour or white rice flour. 

So I was looking at bread I can eat and they do have brown rice flour.  Here is the link to the exact bread I can have.


http://www.walmart.com/ip/Udi-s-Florence-Street-Bakery-Farmhouse-White-Bread-16.7-oz/40843084

This is the bread that I can have at least 8 slices of and feel good (had french toast a couple of times with it)
It's really all about what you know you can handle.

[Prancer]

Sorry for the GF I should have spelt it out every time haha.

It's great how it is, no changes necessary!! Now I know! :-)
Thanks for the pic! Overall it sounds like a very great diet to try. It's gluten free, and it really sounds delicious.
(The food you like always sounds very delicious to me actually when you list it.) I think I may try the same or at least a similar diet because it's helping you a lot. TY!

[kuba]

nah. even when i am on raw vegan i still have symptoms from pois. most of the time im vegan and it doesnt work too.

[less_fogged]

For me it probably took about 3 to 4 weeks to slowly start seeing improvements with eliminating starch and bad oils but increase fruit and veg intake with also higher consumption of greek yogurt. If I have too many O’s (weekly) I will have cognitive symptoms re-appear though.

Inflammation keeps persisting though….effecting low morale.

Especially enough rest and sleep is also important to me.

I seem to tolerate some brown rice.
I think being vegaterian and POISer is not compatible. Eating a bit of liver for the B's and omega 3 is also important.

[Mr Raba]

Been gluten free  17 years. But the key I think is all grains. I read somewhere tha all grains are pro nflammatory. So I will try all grain free diet now.

[Going less Crazy]

Yes mirraba strange I didn't see ur post and I adopted a grain free diet and literally its like I don't have POIS and the lingering fog has cleared in my mind and I actually have energy.  White rice might be the only suitable grain.  I'm hoping as I explained in another post that it will heal my small intestines, whether it's a celiac or gluten sensitivity based problem, and thus begin to heal my POIS.  Than I might be able to reintroduce grains in a couple months or so. 

I should say again that I don't have severe pain or diarrhea upon ingestion of grains, just completely neurological symptoms with very very minor pains if any.  Thus is why i think i have ncgs over celiac.

[less_fogged]

For some reason white rice is my worst enemy, in particular Basmati the Golden Sun brand
I get full on blown brain fog with this one within a very short time
-------------------------------------------------------------------------------------------------------------------------
Edit: In the meanwhile my blood test for allergy on rice show that I'm not allergic to it!!!

[Quantum]

Hi Mrraba, GLC and Less-fogged,

What you share is a confirmation that avoiding the food that cause inflammation in the digestive tract is beneficial for at least a subset of POIS sufferers.  This may not be gluten and grains for everyone, but I think that diet adjustment toward a healthier diet, more appropriate for ourself, is an important part of control and prevention of POIS symptoms.

In my case, gluten does not seem to be a major player, but cow milk is.  I had to stop it, my sinuses and throat would become full of secretions within 20 minutes of drinking a glass of milk ( let alone what I wasn't seeing in stomach and guts).  I have eliminated many other unhelathy ingredients too, like artificial colour and flavor, preservative, MSG, aspartame, and so on.

If anyone keeps an eye on any unwanted reaction occurring 20 minutes to 2 hours after a meal, it is possible this way to discover some food intolerance.  With time, and with a re-challenge test, we can get to know exactly what food are detrimental to our health and well-being.  it needs some patience and a structured approach, though, just like detective work.

[Going less Crazy]

That's interesting less fogged I thought white rice would be the easiest grain to digest... Right now I don't eat it but I'm pretty sure I can.  Quantum through much experimentation I found grains to cause my POIS symptoms.  Are you able to O without symptoms if you avoid cows milk?

[Quantum]

Quantum through much experimentation I found grains to cause my POIS symptoms.  Are you able to O without symptoms if you avoid cows milk?

Hi GLC,

No, avoiding cow milk has not been a fix in itself, but it has been a great step toward a better health in general.  Has my health becomes better, my POIS symptoms last less longer and are less severe.  However, letting go of cow milk had an immediate positive effect on my rate of cold, flu and sinusitis.  In fact, I think I did not have any other sinusitis afterward.  I still have colds from time to time, but they do not degenerate in sinus over-infections.  These secretions I was producing were sign of inflammation of my sinus, nasopharynx and throat mucosa, and that made me vulnerable to infections.

I am happy for you that your new, healthy diet got you rid of your POIS. It is possible that, before starting your gluten free and grain free diet, you had a lot of inflammation in your gut, and that was the cause for many unwanted reactions in your body, and many imbalances, that would lead to POIS, among other things.  There has been other case of POISers reporting improvement of their POIS symptoms after having started a healthier diet.   It is a good starting point for those who are clueless about what to do in order to lower their POIS symptoms.

In my case, the process has been longer and more complicated than just a healthier diet, and I still have to take my pre-E pack of supplements ( http://poiscenter.com/forums/index.php?topic=2090.msg16604#msg16604  ) in order to avoid POIS symptoms.  But it is already a great relief to avoid the severe symptoms I used to have, like 2 to 3 days of marked hypotension and extreme fatigue, and 3 days or so of personality change, becoming a real "grinch", avoiding others, irritable, anxious and negative.

[less_fogged]

That's interesting less fogged I thought white rice would be the easiest grain to digest... Right now I don't eat it but I'm pretty sure I can.  Quantum through much experimentation I found grains to cause my POIS symptoms.  Are you able to O without symptoms if you avoid cows milk?

Maybe for some but I can assure you that this particular rice messes me up big time, I don't know if it has anything to do with it.... but if you start to over boil it I noticed that it turns into a very porridge like state and when you drain away the water it almost looks like the water turned into some thick white liquid. I was starting to imagine that maybe this stuff is clogging my arteries or something but I can assure you this stuff messes me up big time but have not been eating it since several months now. And strictly refuse to eat it nowadays. The only difference with that photo I send is that the ver. I buy does not say "Authentic" on it so maybe there are more than one type.

About the milk I just don't drink milk since several years now...for some reason I prefer staying off milk but have a lot of plain white yogurt and cheese. But also still veg and fruit with meat or fish and boiled eggs and also tomatoes. I think I'm sometimes sceptical about certain spices

I now also daily eat a small mixed portion of wild forest berries (good anti inflamatory) (frozen ver. is cheaper) with yougurt or "fromage frais"

I'm still convinced that my body has been going through a process since my diet change which took time and is probably more stable now. It's like as if my body has been cleaning itself. I find it strange that POISers who say a change of diet does not help. I think it takes time and my symptoms have been greatly reduced. It asks a lot of discipline and cheating here and there is fine but does not help.

These days I realise more than ever that staying calm during POIS state is an absolute necessity. As long as I don't wind myself up or rush etc.... I seem to manage to keep my symptoms under control and even if I have too rush etc... I feel like physically my symptoms are less harsh. Staying calm will help to keep mental focus under control.

I sometimes also use taurine like b_jim uses, especially in first 2 days after O
A tablet or two of good quality curcuma and valerian root when sleep is interrupted
Magnesium during day is also great

Sufficient and quality daily sleep stays important.

I never thought it was possible before to be able to find a better way to manage this illness. I still think my life would have been looking a lot different these days if I knew all this from a young age.

I agree with Superfrancais that staying completely still at night while sleeping during POIS phase does feel like as if the inflammation is increasing or staying stuck somewhere in our bodies and interrupts our sleep that's when I would use curcuma to get back to sleep and sometimes also valerian depending what time it already might be. I'm sure my diet has also helped with the severity of POIS symptoms at night.

I think my depression during POIS phase also seems to have reduced significantly but must be careful. All part of the process. This illness has obviously greatly affected my psychology due to years of suffering from this illness.

My anxiety levels have also reduced greatly but somehow I'm hoping to reduce this even further.

In the last 6 years have still only worked 1 year. As said I decided that the only way forward is to put everything down and only concentrate on this illness as would have to figure it out myself as doctors know almost nothing about this. I know it's almost like as if I did a crime or something and was put in jail for a couple of years and now I need to sort out my life again. Got to admit that I don't have an easy time to pick up the rest to get my life back on track while missed out on a lot of wasted life.

I still can't believe that the WHO has bugger all to do with us.......shame on them......it's a disgrace......I still bet some with POIS ended up like a death sentence and don't have a clue why.......who is then responsible for this? Looks like the answer is in my question!!! The fact that this illness is not recognized I feel like it's assumed according to medical experts that its not a necessity to liberate yourself by having sex.

To the new guy....Dionis....sometimes i also felt like as if the wiring is messed up in our emotions or something....after all after sex we supposed to feel good but we fell like as if we on fire

[Going less Crazy]

I know exactly what you mean less fogged... Don't worry about the time it takes just focus on getting better.

Just recently I had a POIS episode, I ended up having heart palpitations because I feel like my body was adjusting to the no grain diet.  I've been doing this since December 1st.  After the heart palpitations I O'd and ended up having symptoms.  Now I either blame it on the vitamin c I took the day before or the stress and heart palpitations from adjusting to a grain free diet.  Both had the possibilities of increasing immune system response.

Sometimes my body recognizes the O and wants to fight it.  I remember before how one of my poises was caused by vitamin c before I went grain free.  So you can see it is a very fragile situation.

Now what has really helped me if you plan on Oing is taking claritin-d you must get the D with pseudoephedrine as regular claritin does nothing for me.  This is better than olive leaf for me and I have a timeframe of about 10 hours, to be safe, to have unlimited Os. I use the 12 hour version.  I recommend only taking it once a week because the D part can eventually make you wired but I can tolerate it perfectly at once a week and sleep.  I might try combining that with olive leaf just because I have some.  But claritin D is my new POIS lifesaver without POIS lifting its ugly head when the med wears off.

The no grain diet has healed any lingering brain fog that I had and is supposed to put autoimmune diseases into remission.  I'm hoping it'll heal my gut, if it is messed up, and than I can reintroduce foods later.

GLC out

[Prancer]

@GLC
[Gives you some hot chocolate with lots of whipped cream/sprinkles, some GF gingerbread, a candy cane, and a few mini red & green wrapper peanut butter cups.]
Lol I can't believe I just did that. I feel obliged to give you some virtual holiday treats (esp. with a username like Prancer). Plus I'm SO happy to be reading all the new developments with the POIS research (in your home state too). Have a good one GLC!

[Going less Crazy]

Yumyumyummy,  Thanks Prancer Claus I'll be sure to leave some milk and cookies out for you when you come visit

Prancer since we have similar symptoms I wonder if vitamin D could help you... Look at my recent post in "testosterone"

[Going less Crazy]

Just want to let you all know I've updated my original first post again, this time with hopefully promising results.  POIS free last summer and trying to get back to that plus better.

[demografx]

Yumyumyummy,  Thanks Prancer Claus I'll be sure to leave some milk and cookies out for you when you come visit

Prancer since we have similar symptoms I wonder if vitamin D could help you... Look at my recent post in "testosterone"

"Prancer Claus"!! Lol