Author Topic: Tally of NORD Donations  (Read 65916 times)

Daveman

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Re: Tally of NORD Donations
« Reply #20 on: October 24, 2011, 03:01:18 PM »
Thank you very much Willem.

We'll do our best to get it displayed soon.
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

B_Daniel

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Re: Tally of NORD Donations
« Reply #21 on: October 29, 2011, 12:23:09 AM »
Thanks for the update Daveman.  Please put me down for a $1,000 pledge.  Look forward to seeing the DB.  

That's awesome Willem!

Habibou

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Re: Tally of NORD Donations
« Reply #22 on: December 15, 2011, 12:38:19 PM »
Thank you Willem, it is amazing ! Even if you seem to be on a good way to cure, you are willing donate : fantastic  :)
Brain fog 90%  + tired all the time ,sport intolerance, fast heartbeat, colon inflammation

aalkaff

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Re: Tally of NORD Donations
« Reply #23 on: January 02, 2012, 06:32:30 AM »
Hi,

I made a recurring donation of $500 for 13 months starting from November 2011.

Daveman

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Re: Tally of NORD Donations
« Reply #24 on: January 02, 2012, 09:14:19 AM »
Thanks Ali.

You are an inspiration to us ALL. I'll add it to the list.

BTW, I am working right this minute on a more formal Pledges Database Manager program that will help to pledge, visualize, and help to manage pledges more formally.
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Willem

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Re: Tally of NORD Donations
« Reply #25 on: January 02, 2012, 03:16:20 PM »
Hi,

I made a recurring donation of $500 for 13 months starting from November 2011.

Wow.  That is fantastic.  Thank you Ali. 

mellivora

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Re: Tally of NORD Donations
« Reply #26 on: January 02, 2012, 03:37:13 PM »

Hi,

I made a recurring donation of $500 for 13 months starting from November 2011.


Thank you for pushing to forward our cause Ali! This is a fantastic contribution.

Every pledge is valued and I hope others will be inspired to give what they feel they can, however big or small their donation. Research is the way forward to improve our lives and those of future sufferers and increase awareness of POIS.

Habibou

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Re: Tally of NORD Donations
« Reply #27 on: January 02, 2012, 09:42:16 PM »
WOAW, that is amazing ALI !!! Thank you very much  :)
Brain fog 90%  + tired all the time ,sport intolerance, fast heartbeat, colon inflammation

badgerstripe

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Re: Tally of NORD Donations
« Reply #28 on: January 11, 2012, 04:51:40 AM »
I will pledge to give $100 before the end of March 2012

Observer

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Re: Tally of NORD Donations
« Reply #29 on: January 11, 2012, 09:47:18 AM »
Hi,

I made a recurring donation of $500 for 13 months starting from November 2011.

Thank you very much Ali. You are a brave soul.

Daveman

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Re: Tally of NORD Donations
« Reply #30 on: January 11, 2012, 10:17:17 AM »
More than that, I think he has a true perspective of the value of donating!

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Ccconfucius

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Re: Tally of NORD Donations
« Reply #31 on: January 11, 2012, 12:15:41 PM »
Daveman i think you should send another mass mail out, with new pledge amount maybe it will change some of the skeptics minds.

Daveman

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Re: Tally of NORD Donations
« Reply #32 on: January 11, 2012, 01:27:47 PM »
Daveman i think you should send another mass mail out, with new pledge amount maybe it will change some of the skeptics minds.

Yes,good idea thanks CC.

Although we don't see much activity right yet, we are putting together a complete plan for the year, which will involve, not only mail-outs to the members, but complete campaigns through magazines,  and media that will likely even end up with reuters. We are creating many new tools and activities on the site as well to help promote confidence in both reaching the goal and end results of the research.

As soon as we get a free minute we will be sending out another mailout.

Thanks
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

aalkaff

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Re: Tally of NORD Donations
« Reply #33 on: January 13, 2012, 12:01:10 PM »
Individual efforts are (variably) valuable for alleviating the symptoms but I have no doubt a more methodical research is invariably better if the goal is to identify/confirm the causes and develop "truer" cures.

I'm sure all of us have financial obligations, most of which seem more important than this research fund. It's not my place to ask you to re-evaluate those obligations, but I highly recommend that you perhaps commit to a recurring, automatic donation of small payments, an option NORD offers. Otherwise, I suggest you set up a recurring reminder in your calendars or smartphones (weekly, monthly, bi-monthly, etc.) to manually make a small donation.

Daveman

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Re: Tally of NORD Donations
« Reply #34 on: January 13, 2012, 12:14:21 PM »
Ali, reading your profile information at the bottom of your posts solicits a comment, which I will post here:

http://poiscenter.com/forums/index.php?topic=22.0
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: Tally of NORD Donations
« Reply #35 on: January 13, 2012, 02:52:44 PM »

CC, thanks for the mailing reminder!

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Jon

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Re: Tally of NORD Donations
« Reply #36 on: January 18, 2012, 02:28:37 AM »
Daveman and demografx, I would like to pledge $1,000 dollars to the research fund although I am not sure how long it will take me do have it. Thank you guys.
My cognitive symptoms started suddenly during an orgasm when I was 16. I then developed my POIS and cognitive/physical symptoms became very severe. Had to leave work and school. This year I had 60% success with regimen. Recently the symptoms have gotten worse again. Let's help each other.

Daveman

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Re: Tally of NORD Donations
« Reply #37 on: January 18, 2012, 12:35:57 PM »
Daveman and demografx, I would like to pledge $1,000 dollars to the research fund although I am not sure how long it will take me do have it. Thank you guys.

Thank you very much Jon.

We ARE going to make it.
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: Tally of NORD Donations
« Reply #38 on: January 18, 2012, 12:59:37 PM »

Daveman and demografx, I would like to pledge $1,000 dollars to the research fund although I am not sure how long it will take me do have it. Thank you guys.





     


                                Jon, Thank You!
daveman                                           demo





« Last Edit: January 18, 2012, 02:43:59 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

mellivora

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Re: Tally of NORD Donations
« Reply #39 on: January 20, 2012, 01:01:17 PM »
I don't want to wait until late 2013 or 2014 before we can get dedicated (NORD-funded) POIS research under way. At the moment, that is the best we are heading for.  
We've got 2 months to get to our NORD target this year and save ourselves from waiting this long.

We've had some very generous donations recently but some of these are to be made over a period of months. I'm certainly no less grateful to the donors for this fact but it does mean the current NORD pledge tally can be misleading as it uses the total that will be donated by 2013, not by March this year. We are still currently not in a good position to make the March deadline this year. To me it looks like we're half way at best.

After we reach our $33500 target, it'll likely be some months before a researcher is appointed to work on POIS through NORD. It may be some time after this that work finally begins. I believe I'm right in saying that we really need to make the March 2012 deadline (2 months time) if we're going to see any benefits from NORD funded research within the next two years. There isn't a quick fix. But it'll be quicker if we begin now. Also, things will cost more in years to come. $33500 might not be the minimum required in future years, it might be more.

 We have some things that help some of us (eg. Niacin, immunotherapy) at the moment. But these are not cures so far or 100% effective treatments. And we still don't know what causes POIS. We have much better theories than we used to and even evidence for some of them but all POIS sufferers are not the same and what works for some doesn't work for others. We need to push this if we're going to help everyone. We need to know what POIS is, what causes it, what varieties of POIS there are and use this to  get as close as possible to being cured/ being POIS-free. For us and for future sufferers.

2 months is all we have. So far I have pledged $500. On the condition that we make the March 2012 deadline, I'm upping my pledge to $1500 (seriously, no clappy applause gifs for this please, lets just get that total)
« Last Edit: January 20, 2012, 02:59:33 PM by mellivora »