Author Topic: Looking for people to chat with  (Read 5295 times)

serotonergic

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Looking for people to chat with
« on: November 03, 2014, 01:08:32 AM »
Would anyone like to talk about POIS/offer each other support through a chat service? I feel like it would be really beneficial.

Colm

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Re: Looking for people to chat with
« Reply #1 on: November 03, 2014, 04:47:31 PM »
There were a few other posters here who were discussing this idea recently, but don't know if it went any further. I just tried to search through some posts to see if I could find it, but can't.

Perhaps someone else who knows about this can contribute something here.

Nightingale

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Re: Looking for people to chat with
« Reply #2 on: November 03, 2014, 05:34:41 PM »
I'm looking into a way to do this that makes sense. There are ways I know to make it happen, but we would all have to agree to meet at a preset time. I'm searching for a way that people can use popular software/websites that have a group function where you can see who is online and who isn't. Then also be able to prompt everyone online at once to come join.

I'm looking at Google right now, and asking on Reddit
Turmeric and Rosemary 30-45 minutes before orgasm for anti-inflammatory and immune support has helped me a lot. Faster and easier than niacin approach.

Stef

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Re: Looking for people to chat with
« Reply #3 on: November 05, 2014, 03:51:56 PM »
I'm looking into a way to do this that makes sense. There are ways I know to make it happen, but we would all have to agree to meet at a preset time. I'm searching for a way that people can use popular software/websites that have a group function where you can see who is online and who isn't. Then also be able to prompt everyone online at once to come join.

I'm looking at Google right now, and asking on Reddit

Nightingale, Yahoo Groups has a private chat room function. I know of a few rare disease groups that utilize a Yahoo group specifically for the private chat room. You might want to check it out also -- https://info.yahoo.com/privacy/us/yahoo/groups/details.html.

Stef

sameer7777

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  • pls send what ever working pls thankyou
Re: Looking for people to chat with
« Reply #4 on: November 08, 2014, 07:16:10 PM »
yes we must chat !!!
pls don't expose me.
AFTER SEX/MASTERBATION (FLU LIKE SYMPTOMS)
1)BACK NECK PAIN GOES TO DOWN SPINE
2)NERVES LIKE SQUEEZED OUT
3)MORNING FEET NERVES PAIN
4)NASAL INFLAMMATION
5)BRAIN FOG
6)DEPRESSION
7)HIGH SUGAR LEVELS (TRIED INSULIN FOR 1 YEAR MAKE ME MORE SICK

Nightingale

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Re: Looking for people to chat with
« Reply #5 on: November 12, 2014, 10:11:23 PM »
I'm looking into a way to do this that makes sense. There are ways I know to make it happen, but we would all have to agree to meet at a preset time. I'm searching for a way that people can use popular software/websites that have a group function where you can see who is online and who isn't. Then also be able to prompt everyone online at once to come join.

I'm looking at Google right now, and asking on Reddit

Nightingale, Yahoo Groups has a private chat room function. I know of a few rare disease groups that utilize a Yahoo group specifically for the private chat room. You might want to check it out also -- https://info.yahoo.com/privacy/us/yahoo/groups/details.html.

Stef

Thanks Stef,

A variety of tools might be needed. There are 4 of us on Skype so far, perhaps we can talk this weekend. Need to consider we are a global community, too! Time zones :)
Turmeric and Rosemary 30-45 minutes before orgasm for anti-inflammatory and immune support has helped me a lot. Faster and easier than niacin approach.

Nightingale

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Re: Looking for people to chat with
« Reply #6 on: November 13, 2014, 08:07:48 PM »
I've sent out the message to my contacts to see if 11/16, Sunday, would that be a good day to talk.

Please send me a private message, or find me on Skype. Search for "thomasslowikowski"

 I think it would be good to moderate the talk (without getting in the way too much). We have a lot to talk about, and that ends up with arguments sometimes especially when it comes to what WE think the cause of POIS is. I think this should be avoided during a friendly exchange, which is what I and I'm sure everyone else is looking towards :)

Any thoughts?
« Last Edit: November 13, 2014, 08:09:46 PM by Nightingale »
Turmeric and Rosemary 30-45 minutes before orgasm for anti-inflammatory and immune support has helped me a lot. Faster and easier than niacin approach.

Nightingale

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Re: Looking for people to chat with
« Reply #7 on: November 16, 2014, 12:42:37 PM »
I wanted to write here briefly that we had our first successful meeting on Skype! There were a handful of us, but it's a start :)

It was great to get to know each other in a way that we really can't do just through writing! I know there were some who were not able to attend who wanted to, so I would appreciate feedback on when would be best for you to attend. Today we met at GMT 15:00. Is this a bad time for anybody? What time might be better? Is there a better day for you? Just say here!

I wanted to make a rule for the group before we got started, and those in attendance agreed it was a good one: We will not discuss what we think the cause of POIS is. There is a lot of controversy around this topic, and I don't think it's necessary or appropriate for our purposes of meeting together to support each other. Therapies and such are fine to talk about, and we shared some interesting ones (anyone find wild caught oysters to reduce their POIS symptoms??).

And just so it's known, I kicked a person from the group and blocked them. It may have been Kima. There was nothing this person added except their feelings that a certain researcher who is trying to help us is an "idiot". This will not be tolerated, and I'm glad I weeded this person out early. Grrr!

My Skype name: thomasslowikowski

Find me and I will add you to our contact list!
Turmeric and Rosemary 30-45 minutes before orgasm for anti-inflammatory and immune support has helped me a lot. Faster and easier than niacin approach.

demografx

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Re: Looking for people to chat with
« Reply #8 on: November 16, 2014, 09:05:09 PM »

And just so it's known, I kicked a person from the group and blocked them. It may have been Kima. There was nothing this person added except their feelings that a certain researcher who is trying to help us is an "idiot". This will not be tolerated, and I'm glad I weeded this person out early. Grrr!


Hurrah!!!

Great job on Skype AND on K The Fool! :)  :)
10 years of major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

Prancer

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Re: Looking for people to chat with
« Reply #9 on: November 16, 2014, 10:51:31 PM »
lol I dunno what that dude's (Kima's) problem is. We're all on the same team with the same goal: to cure POIS!

All of us want each other (including Kima) to get better. Please Kima behave properly. There's no reason to call names...esp. not to someone who's trying to cure you.
« Last Edit: November 16, 2014, 11:04:51 PM by Prancer »
Symptoms (mostly cognitive): brain fog/difficulty thinking, lack of motivation, fatigue, trouble finding the right words, racing thoughts, possible OCD, anxiety, social withdrawal, extreme frustration and irritability, general discomfort.

Born in 1989, and symptoms since I was 14.

serotonergic

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Re: Looking for people to chat with
« Reply #10 on: December 03, 2014, 12:19:17 AM »
Would you guys like to schedule another Skype meeting?  Perhaps within the next 2 weeks?  I'm Joe from the last meeting if anyone didn't know that.

Nightingale

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Re: Looking for people to chat with
« Reply #11 on: December 03, 2014, 10:16:37 AM »
Yes, lets schedule one! Been a busy few weeks, so I havn't been able to coordinate.

This Sunday, December 7th maybe?
Turmeric and Rosemary 30-45 minutes before orgasm for anti-inflammatory and immune support has helped me a lot. Faster and easier than niacin approach.

demografx

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Re: Looking for people to chat with
« Reply #12 on: December 03, 2014, 11:17:15 AM »

Please Kima behave properly. There's no reason to call names...esp. not to someone who's trying to cure you.


Doubtful he will.

Stef, Daveman and I have all confronted him -- including his choice post at NSF, calling Dr Komisaruk the "b----" word!

Sigh.

Many thanks for ejecting him!
10 years of major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

Prancer

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Re: Looking for people to chat with
« Reply #13 on: December 03, 2014, 10:17:18 PM »
Yeah, you're probably right demografx. It's unfortunate. [I didn't eject anyone though lol! I had nothing to do with that. It was 'prolly the right call though given his behavior.]
Symptoms (mostly cognitive): brain fog/difficulty thinking, lack of motivation, fatigue, trouble finding the right words, racing thoughts, possible OCD, anxiety, social withdrawal, extreme frustration and irritability, general discomfort.

Born in 1989, and symptoms since I was 14.

demografx

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Re: Looking for people to chat with
« Reply #14 on: December 04, 2014, 12:17:53 AM »
Sorry, Prancer, I wasn't clear; I was referring to Nightingale's ejecting him from the Skype session.
10 years of major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.