Author Topic: My story, my hypothesis, and blood test question  (Read 6180 times)

Simulacruma

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My story, my hypothesis, and blood test question
« on: October 27, 2014, 11:32:16 PM »
I'm a twenty year old male who has dealt with symptoms of pois since I was 16, just a month or so before my 17th birthday. I feel more confident than I've ever felt before about my ailments, what's been causing it, and how to treat it.

I had three traumatic injuries in my life (in my opinion anyway), all three involve some form of black out, ranging from almost blacking out with vision becoming very dark, to where I'm literally passed out. I remember something always happening as a result, and that mixed with my constant anxiety as a child posed a lot of problems for me in the near future. I did have an MRI though things were considered unremarkable. Prolactin is difficult to detect through an MRI, but regardless.I combatted stress with ejaculation. I put a lot of stress on myself. I had been ejaculating almost four or five times a day at one point, and them I was sidelined and almost blacked out. I fought the urge to faint, but I never reay recovered. This injury caused my more prominent, irritating problems- all of which are present only when I have ejaculated in some way. Even if I don't ejaculate, I do still feel rather lethargic so I do have concentration problems.


I had been diagnosed with subclinical hypothyroidism (high tsh, normal t3 and t4 levels), as well as early stages of adrenal fatigue. I have concentration problems, joint pain, probably on the verge of osteoporosis with the feeling of random bone splints,  my muscles are deteriorating no matter what I do, and because I have joint pain around my arms everything is a little difficult to do especially at long periods. I have with issues, or at least fat that centers around the stomach area and the thighs- that was after my first major injury when I was seven and had blacked out completely after falling from a swingset. In my rentire family, I was the only one that had weight issues. I've always had an androgynous, 'in between look' about me, been mistaken for a girl many times without my choice, and I've always hated it. I think I've had low testosterone since I was a child, and I haven't ever been able to recover. I have symptoms of andropause- literally every underlying symptom. 17 was going to be the year that my life would suddenly fall apart.


Had neurotransmitter tests done a couple weeks ago, and it stated that my norepinephrine, epinephrine, GABA, pea, glutamate, dopamine, and serotonin were all low and below the normal 'feel good' range, with my serotonin being the absolute lowest. This actually made me happy, seeing that there were results that absolutely made sense.  I know that low testosterone can have a horrendously drastic effect on neurotransmitters.

I believe my injuries caused my testosterone (or dht or androgen or whatever) issues, and that itself caused my anxiety problems, which in turn caused me to suffer from symptoms of pois. I am using adderall which helps, but works wonderfully when combined with vitamin b complex. I know that vitamin b has a powerful effect on testosterone, so when I had some today and noticed the improvements, I decided to check if there was a connection between vitamin b and testosterone. Turns out there is.

I'm not dead set on it being low testosterone, it could be high prolactin levels, but I know it's something along those lines. Does any of what I said sound familiar to anyone? Anyway, I do have a question, and I hope someone can answer this.

When should I stop taking vitamin b when I do the blood tests? I want it to be as accurate as it can be without any helper in my system. I'll be off all medication when I'm  to do the tests, but I'm curious if I should stop a week before, or something along those lines.
« Last Edit: October 28, 2014, 12:06:03 AM by Simulacruma »

Scary sheep

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Re: My story, my hypothesis, and blood test question
« Reply #1 on: October 28, 2014, 03:43:57 AM »
I had blood tests run twice while not taking vitamins, and both times my testosterone levels were normal. One time, the only thing that stood out was a slightly high prolactin level. I think they tested about ~12 things each time. Thyroid: normal, Cortisol: normal, etc. I wish I had a copy of the complete tests, but I'm at school and can't really retrieve them right now. My point is, I don't think POIS is something you can easily test blood for. Also, people are so different, many results can be inconclusive, and normal for one person may be very high for another. In fact, the only test that actually yielded a result was a sitting/standing blood pressure test, which revealed that my pressure drops when I stand up.

Your type of case interests me the most, since you developed POIS later, and suggests there may be a direct and specific cause.

Don't let my comment discourage you from getting your blood tests, though. As for your question, doctors will tell you to fast something like 10 hours before the test, but I would suggest being off the vitamins for at least a couple days before.
« Last Edit: October 28, 2014, 03:45:42 AM by Scary sheep »
Symptoms last 6-7 days. Onset of muscle weakness after 30 seconds. Symptoms include: brain fog, fatigue, depression, pale skin/dark circles under eyes,  digestive problems, difficulty taking a full breath, irritability. NONE of these are present out of POIS.

Simulacruma

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Re: My story, my hypothesis, and blood test question
« Reply #2 on: October 28, 2014, 09:57:45 AM »
I had blood tests run twice while not taking vitamins, and both times my testosterone levels were normal. One time, the only thing that stood out was a slightly high prolactin level. I think they tested about ~12 things each time. Thyroid: normal, Cortisol: normal, etc. I wish I had a copy of the complete tests, but I'm at school and can't really retrieve them right now. My point is, I don't think POIS is something you can easily test blood for. Also, people are so different, many results can be inconclusive, and normal for one person may be very high for another. In fact, the only test that actually yielded a result was a sitting/standing blood pressure test, which revealed that my pressure drops when I stand up.

Your type of case interests me the most, since you developed POIS later, and suggests there may be a direct and specific cause.

Don't let my comment discourage you from getting your blood tests, though. As for your question, doctors will tell you to fast something like 10 hours before the test, but I would suggest being off the vitamins for at least a couple days before.

It makes sense, though it is also unfortunate that everyone has different results and even causes. My doctor recommended to me that I do have symptoms of low testosterone- I entered puberty really when I was 16. Shot from 5'4 to 6 ft in a couple months time. I'm basically tall, lanky, really long arms, but my fat distribution is very 'feminine'. My hips are rather wide, and this is all really unsettling- it made me think I had klinefelters, and then by eye view from my doctor she feels as though I have symptoms of andropause... Everything I have had to deal with relates to my hormones, though in honesty I don't think I would have thought much of it if I hadn't have done those neurotransmitter tests.

I really do hope everyone here finds peace and clarity in their problems- I feel rather confident, more so than I've felt in a long time, because I am seeing charts and tests that make sense to how I've been feeling for the past few years.

Simulacruma

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Re: My story, my hypothesis, and blood test question
« Reply #3 on: November 14, 2014, 07:47:37 PM »
Hi, so, first, I hope someone sees this and maybe feels as though my results relate to them somewhat, because I really am freaking out.

Last week I had my total testosterone, free testosterone, and estradiol checked. My total testosterone and free testosterone are all significantly low, and I am estrogen dominant. I apparently have the same range as a female, so that's great. No, it's really good news I think, let's me know the next step. I am afraid though- I don't like the thought of testosterone replacement therapy, or any kind of hormonal therapy- I feel like I will change in more ways than one. I'm mostly concerned with my voice, because I do sing, and I know that My timber can change, I'll have more resonance, etc. it's not a bad thing, but I'm.. I don't know how explain it, but nowadays change scares me. What if I can't adapt? I always have that fear loom in my head.

I talked to my doctor about checking my pituitary gland, specifically prolactin. I'll have that done, but I have the option of starting testosterone gel, at this present time. Has anyone given that a chance, and how effective was it? Did it help with your pois symptoms? Did you notice any changes regarding your appearance?

I'm not a fan of being hairy btw, so friggin... Using a razor- gah. Not a fan.

demografx

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Re: My story, my hypothesis, and blood test question
« Reply #4 on: November 15, 2014, 02:08:01 AM »
After 30+years of POIS agony, TRT finally ended it. But it's not for everyone as my signature below hints at!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

FloppyBanana

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Re: My story, my hypothesis, and blood test question
« Reply #5 on: November 17, 2014, 02:51:26 AM »
Hi Simulacruma,

For what it's worth; I noticed a big change in my physical appearance when I stopped eating wheat. I lost the man boobs (breasts) and belly after 6 months. Wheat stimulates Oestrogen which is a mainly female hormone which is not too good to stimulate in men. Nowadays there are many foods around which have this effect. for example; they pump hormones in chickens then we eat the meat and the hormones. Actually there is a global phenomena of mens sperm count dropping I heard.

FB
30 years of POIS. Mytelase after O with Iceman breathing technique.

Simulacruma

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Re: My story, my hypothesis, and blood test question
« Reply #6 on: November 23, 2014, 01:01:18 PM »
I appreciate the replies everybody, and I'm relieved to know that get can make a worlds difference. I suppose the only thing about that that bothers me, and really it's only aesthetic, is the possibility of balding. My family doesn't possess that 'gene' or however your classify it, that I know of- every one of my family has a full head of hair which I'm thankful for, though I do not know of anyone in my family that has had to have hormonal therapy, so I don't know if it'll affect me drastically or not at all.

I'm fine with some changes with the hairline, it's just not a good motivator for me.

In regards to nutrition, it's funny you mentioned that. I started, not too long ago, a regimen of being dairy and almost carb free. I'm sure that I have benefitted from that, though I don't really have a clue- I've  been thin for a while now on account of me actually exercising, but I think I feel healthier knowing that I'm consuming healthy things. A doctor I occasionally see has recommended following a diet based on your blood type, which I feel can actually help, especially when people get older. I don think about dieting I much, because I do have breads from time to time, and milk with coffee, but I'm a bit more conscious of it at least.

One of the reasons why I've still stayed back from hormonal therapy is that I'm afraid of treating something that is being affected by something else. Where I live, I am seeing a doctor that suggests I should do an MRI or something that covers the pituitary gland. I mentioned to him something about prolactin (I found some documents on this forum about it such is why I thought of it), so I am to have a scan in the near future.

I realize I might be obsessing about some things a little too much, such as having definite answers to my never ending complaints, it's just, when you find some connection to what you're going through, like an actual term that doctors use and not just a circle of friends going through similar but still different medical problems, you want to make sure this procedure, treatment, etc., actually relates to you and not because it sounds like it can.

I have to try it to find out, and maybe I'm over complicating things in my head- that does happen a lot. I'm just tired of taking risks and getting hurt, because it just sucks when that happens.