I think overall that it would be a good idea if the community can use Wiki, along with search engine strategies and other methods, to bring people to POIS forum.
Like others, I would contribute to writing content / blogs to help the forum to be found on google etc.
Having the site found under POIS would have limited value, as I know most who somehow find this forum, are NOT searching under those terms.
For years, I periodically searched under everything except Post Orgsasmic Illness, and never found anything either, even though this and Naked Science forum (NSF) were there.
Additionally, I am wondering if it is better to do this when we have more real help to offer, rather then just a community or are actually closer to a real cure.
No disrespect to anyone and I genuinely appreciate the great efforts that have gone on to get this community so far and fund the research of course.
Unfortunately, it also becomes a very frustrating experience when you find this forum and realise how long it takes to get valid research going. And then there will probably be more needed after that.
As the digestion and dietary theories unfold, would it somehow be better to try and assess a way of having a nutritional scientist or some other credible medical nutrition person to look through all of the many many supposed cures / symptom reduction methods, and to bring it down to a core of 3 - 5 methods of symptom management with POIS sufferers.
There are so many hundreds of credible posts and so much conflicting information, and of course everyone has a different makeup.
But it was interesting the mini survey that seems to suggest we are all possibly experiencing mineral absorption issues, and don't seem to have much obesity in our group, as a tendency.
The vision is a Cure of course, but if that is some way off, it'd be great to have more defined credible valid strategies for symptom reduction. For me, Niacin started well, but then had some effects that scared me away from it. Would a nutritional scientist work with ideas and areas like Niacin and validate how can we use it and be sure it won't damage a person.
Like many poisers, I am probably not thinking clearly here, but thinking outside the box is needed, and when I read the recent poster who met Waldinger - whom he said does not believe in the vagal nerve theory, you wonder why (maybe cause he wants to own his own cure) and then you wonder what next after vagal MRI's, if it does no more than rule it out as a contributor.
If we get more hundreds of men online here, without any way of analyzing their experiences in trying things, then it becomes a more frustrating journey on the community forum, unless someone can analyze what works / what doesn't work.
Do we need to think outside the box more, like if we did get more hundreds to the site and had more visibility / publicity, can we get access to funds to validate nutrition / absorption theories and other theories.
