A note from Nordnurse!!
Hi All,
*(1) Tweet NORD at @rarediseases. Always end with, Please RT!* *NORD will
re-tweet, as will NORD's tweeters re-tweet. :-)*
(You are members of the whole rare disease community -- a community that
truly supports each other.)
*
(2) If you have a Face Book page, go to NORD's Face Book page and post
about your Indiegogo fund raiser. NORD's FB page is
NationalOrganizationforRareDisorders.* (You need a FB page of your own to
do this.)
If you go to NORD's Face Book page, you'll see that there's a post by me.
(I have admin privileges, so it won't show up as me -- which is actually
better for all of you.) My post says, " These men are raising funds at
NORD for their first research grant. They are about 1/3 of the way to their
goal!"
It has already been "liked" by a woman from an unrelated rare disorder
group.
Do the same -- especially mention the fund raising for a NORD grant on the
FB page!!!!
My post on our FB page accompanies the MarketWire press release -- there's
a comment by FB -- 1,161 people saw this
post<http://www.facebook.com/NationalOrganizationforRareDisorders#>.
Click on that link now -- see what it says! :-)
It's just the push of a few buttons on your keyboard. Do it, then do it
again, and then again -- at least daily --* especially tweeting!!!!!*
Tweet to blank open space also -- you can tweet to no one in particular.
And follow your fearless tweeting leader, Daveman, at @indiego_POIS with
your tweets also.
Someone is out there who has the funds -- may also have POIS -- or have a
loved one with POIS. Just do it!
Stef
