Author Topic: Official Desensitization plan Begins!  (Read 213806 times)

vetrofragile79

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Re: Official Desensitization plan Begins!
« Reply #120 on: March 15, 2012, 09:19:30 PM »
Thanks for the report, here in Italy no doctor wants to take responsibility, I'd like to come to holland but it is a therapy too long unfortunately. If you can, you may ask the professor if he knows someone willing to be in Italy this therapy? Thank you.

Egordon

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Re: Official Desensitization plan Begins!
« Reply #121 on: March 19, 2012, 08:40:32 PM »
Good news guys! I found a sympathetic allergist in Northern California and am going in to begin testing and treatment in about 15 days. I have one question, though. Do you guys take anything to keep you from getting symptoms after O-ing in the doctor's office. I know for my test i've been told not to take any anti-histamines for 5 days prior and, if Dr. Waldinger is correct in theorizing that Niacin works because it depletes histamine stores, I imagine that I'm also not to take Niacin. Is this always going to be the case? Will I be allowed to take Niacin once I begin treatment? And, if not, what should I do so I don't get BAD POIS symptoms?
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #122 on: March 20, 2012, 07:39:51 AM »
Egordon, for the first skin pr.ick test you should not take anything. No anti-histamines and no Niacin. Anti-histamines could have a small effect on the red spot after the injection. The bigger the red mark, the more the doctor gets convinced that you have this allergy. I do the desens for almost a year. And after the first time I always used anti-histamines. And the last months I also use Niacin, but for me this doesn't help much. Great to hear that you can do the desens treatment. Good luck!
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Observer

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Re: Official Desensitization plan Begins!
« Reply #123 on: March 20, 2012, 08:22:22 AM »
Good news guys! I found a sympathetic allergist in Northern California and am going in to begin testing and treatment in about 15 days. I have one question, though. Do you guys take anything to keep you from getting symptoms after O-ing in the doctor's office. I know for my test i've been told not to take any anti-histamines for 5 days prior and, if Dr. Waldinger is correct in theorizing that Niacin works because it depletes histamine stores, I imagine that I'm also not to take Niacin. Is this always going to be the case? Will I be allowed to take Niacin once I begin treatment? And, if not, what should I do so I don't get BAD POIS symptoms?

You can try what i have done before. While on POIS, wait for an empty stomach to repeat the niacin procedure and then have an Orgasm. That kicks off my brain fog. You could try and share with us!

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #124 on: April 02, 2012, 08:33:49 AM »
Today I had an injection of 1/2. The max now is 1/1. I think next time I will get 1/1,75 or 1/1,5.

The first group of desens patients is NOW finished with the injections. Two of them are total POIS free.
« Last Edit: April 02, 2012, 05:41:16 PM by Vandemolen »
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Limejuice

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Re: Official Desensitization plan Begins!
« Reply #125 on: April 02, 2012, 02:03:29 PM »
Vandemolen, congrats!

Does the 1/2 injection mean one part semen too two parts water?

Two POIS patients are cured!  How many patients are in that first group?

Ccconfucius

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Re: Official Desensitization plan Begins!
« Reply #126 on: April 02, 2012, 02:59:58 PM »
Today I had an injection of 1/2. The max now is 1/1. I think next time I will get 1/1,75 or 1/1,5.

The first group of desens patients is not finished with the injections. Two of them are total POIS free.

why  can't those two come here and share their experience, dr waldinger already released his papers. it is been six months and am starting to loose hope.
And did those two change to fresh semen.
« Last Edit: April 02, 2012, 03:22:42 PM by Ccconfucius »

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #127 on: April 02, 2012, 03:57:05 PM »
Thanks Limejuice! In the first group there were 4 patients. Yes 2 parts dilution (water? Or something else) and 1 part semen.
And what I mean is that they are finished with the program!

CC: I don't know these patients. Maybe they never heard about this website. Never lose hope!
« Last Edit: April 02, 2012, 05:43:05 PM by Vandemolen »
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

pois1

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Re: Official Desensitization plan Begins!
« Reply #128 on: April 06, 2012, 11:39:19 AM »
Do we have a list of doctors who are performing desensitization therapy and accepting new patients?  From browsing the forum I see there's one in California and Chile.  Can someone please post this information and are there any other doctors?  I haven't had any luck finding someone who will perform SLIT.

LAPOISSE

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Re: Official Desensitization plan Begins!
« Reply #129 on: April 07, 2012, 05:22:35 AM »
Hi everybody, i'm a Newbi in here, but unfortunately, not in experiencing POIS. I believe a place like this can help all of us if we share informations...

Why don't we make a topic with every praticians/specialist aware of POIS in every countries ?

I'm in France and every doctor I explain my symptoms to explained me it was no relations between sexual activity and such symptoms...they really did't take it seriously


Daveman

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Re: Official Desensitization plan Begins!
« Reply #130 on: April 07, 2012, 03:38:52 PM »
LAPOISSE,

Yep, that's the story of our problem.

Think they know it all.....

We have a database that has tried to collect information of all the medical "collaborators".

http://www.poiscenter.com/db/collaborator_list.php

It's basic and getting people to put information into it hasn't been all that successful, but at least we have around a half a dozen names.

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #131 on: April 30, 2012, 06:16:29 AM »
I did an experiment again. I let my sperm for a few hours on my hand. I did this a year ago also. Then my hand was totally red with a lot of marks. Now no redness and no marks at all. My hand only feels a little bit iritated. So for me this is another proof that the injections are working for me.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Hoping

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Re: Official Desensitization plan Begins!
« Reply #132 on: April 30, 2012, 10:02:24 AM »
I did an experiment again. I let my sperm for a few hours on my hand. I did this a year ago also. Then my hand was totally red with a lot of marks. Now no redness and no marks at all. My hand only feels a little bit iritated. So for me this is another proof that the injections are working for me.

Awesome! You said you're finishing treatment soon, right? Please keep us all posted. I'm considering desensitization.
Experienced POIS since 2002.
My symptoms include: brain fog, depression, physical and mental fatigue, memory problems, social anxiety, concentration problems, myalgia, inflammation.

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #133 on: April 30, 2012, 05:26:50 PM »
No I am not finishing treatment. I almost reached the maximum of dillution. After that I will get a maintenance dose. Maybe for 2 years.
I will.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Ccconfucius

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Re: Official Desensitization plan Begins!
« Reply #134 on: April 30, 2012, 06:43:38 PM »
i got my doctor to go to 1:5, i snuck it in on him, when i he was doing dilution i asked to go higher.
I dont think am going higher than that though. 

good hearing that you are getting benefits.

Daveman

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Re: Official Desensitization plan Begins!
« Reply #135 on: May 01, 2012, 02:22:43 PM »
How's your POIS these days Van?

What percentage reduction and how long does it last?

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #136 on: May 01, 2012, 04:40:49 PM »
Great CC, 1/5 is ok. Maybe your doctor will go further when he/she reached 1/5.

Daveman, without the UTI and the friction burn I think I have 60 to 70 % less POIS. Only the first hours of day 1. At the evening POIS is already almost gone.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Habibou

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Re: Official Desensitization plan Begins!
« Reply #137 on: May 03, 2012, 04:18:44 PM »
Great hearing that Van ! I started in February and I am now at 1:350. For the moment, I did not notice any improvement but I guess it is normal...
What was the concentration you started to feel the POIS began to decrease?
Brain fog 90%  + tired all the time ,sport intolerance, fast heartbeat, colon inflammation

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #138 on: May 03, 2012, 06:14:15 PM »
That's great Habibou. I felt a little better after 1/200.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Ccconfucius

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Re: Official Desensitization plan Begins!
« Reply #139 on: May 04, 2012, 07:55:25 PM »
i got 1;10 shots multiple times at same ml before increasing  to 1;5, when i was getting those 1;10 shots my reaction to the shots never really went down Those shots have been in fridge for months. So i think when you get to higher concentration  and get enough shots you stop reacting to higher concentration you will start noticing differences.