Author Topic: Official Desensitization plan Begins! (Read 227351 times)

b_jim · « **Reply #100 on:** December 31, 2011, 04:01:53 AM »

Starsky started a topic about SLIT. You started in november so maybe you may have first improvements at the beginning of 2012 year. SLIT seems to be easy compared to injections therapy.

Yeah, nobody want to take any risk. In theory there is a few risk of anaphylactic shock. But probably for the strongest cases. I think the number of Pois days is a quite good indicator of Pois.

1-2 days : light cases
3-5 days : average
6 or > : heavy .

Willem · « **Reply #101 on:** December 31, 2011, 12:24:49 PM »

Quote from: b_jim on December 31, 2011, 04:01:53 AM

Yeah, nobody want to take any risk. In theory there is a few risk of anaphylactic shock. But probably for the strongest cases. I think the number of Pois days is a quite good indicator of Pois.

1-2 days : light cases
3-5 days : average
6 or > : heavy .

I think that's a very apt description. I had a severe case (> 7 days) and most of my heavy reactions have been pois-like. In one case though, I was in a hurry and blowing on the frozen semen trying to get it to thaw out faster. I inhaled the air at close range and started having some shortness of breath and a bit of an anxiety attack (I never get either of those). So be careful.

Vandemolen · « **Reply #102 on:** January 02, 2012, 06:35:31 PM »

Quote from: Daveman on January 02, 2012, 09:36:39 AM

I haven't taken this member up on the connection with the desens yet.

I'm still waiting for more affirmative results of desens. I am not really sure that it is a "cure" type solution, and while I am doing fantastic with niacin, I'm sticking with that until something a little more affirmative comes up.

I was surprised to find that it is available here, and following the results anxiously. It is good to have someone else locally with which to communicate.

The doctor here is following Dr. Waldinger's format very strictly, and if I have to be honest, I think our regime is advancing better. This doctor won't deviate from Dr. W.'s scheme.

I don't want to screw up Ali's topic. So I copied your reaction about desensitization.

Does the doctor in Chile knows about the new dillutions? In the paper the max was 1/20. Now the max is 1/2.

Hoping · « **Reply #103 on:** February 11, 2012, 05:06:59 PM »

I see it's been a couple months since anyone has posted on this topic. Are there any updates as far as desensitization goes? Is it proving successful??

Daveman · « **Reply #104 on:** February 11, 2012, 05:56:08 PM »

Quote from: Vandemolen on January 02, 2012, 06:35:31 PM

Quote from: Daveman on January 02, 2012, 09:36:39 AM
I haven't taken this member up on the connection with the desens yet.

I'm still waiting for more affirmative results of desens. I am not really sure that it is a "cure" type solution, and while I am doing fantastic with niacin, I'm sticking with that until something a little more affirmative comes up.

I was surprised to find that it is available here, and following the results anxiously. It is good to have someone else locally with which to communicate.

The doctor here is following Dr. Waldinger's format very strictly, and if I have to be honest, I think our regime is advancing better. This doctor won't deviate from Dr. W.'s scheme.
I don't want to screw up Ali's topic. So I copied your reaction about desensitization.

Does the doctor in Chile knows about the new dillutions? In the paper the max was 1/20. Now the max is 1/2.

It's been mentioned that they're going stronger, but if there's nothing officially written, she doesn't want to go off of the plan.

Vandemolen · « **Reply #105 on:** February 16, 2012, 07:15:22 PM »

Today I had another injection. Last time I had 1/5. Normally today I would go to 1/4 or maybe 1/3. But because I was sick the last 4 weeks the doctor decided to give me a shot of 1/5. He said that it's normal that I get sick (not because of POIS, I didn't have an O.). He said that we have 2 immune systems and 1 was very challenged because of the intense injections.

They will have a new frequency of the shots. Normally it is once in 5 weeks. Now it will be once in 7 weeks. My doctor talked with a group of allergists and they said once in 7 weeks is the best. This group will do the injections too. And my doctor wants that everywhere in The Netherlands there will be the same method.

b_jim · « **Reply #106 on:** February 20, 2012, 03:36:39 PM »

The next thing I will try is petasites (butterbur). It's a plant with anti histamine effects.

Habibou · « **Reply #107 on:** February 24, 2012, 10:49:32 AM »

Quote from: Vandemolen on December 19, 2011, 05:32:12 PM

I am back at the turn of the tide. I come with good news.

Desensitization plan works for me. I have 40-50% less symptoms. I used to have 4 days of POIS. Now it is 2 days. And sometimes only 1 day. I began with a dillution of 1/10.000. Then 1/1000, 1/200, 1/70, 1/50, 1/30, 1/15. And today it was 1/5. The good news is that the max was 1/20. Now there was a meeting with allergists in The Netherlands. They said the dillution can be lower. Now the max is 1/2. Almost pure semen. When I went from 1/50 to 1/30 I had pain in my arms for 6 weeks. And I had a red mark on my arm and under my armpit. I thought it was blood-poisoning, because at another hospital an intern took some blood from my arm and she couldn't do it with 1 shot. But the doctor said this was just the reaction of the desensitization. Last time I had no reaction at all from the injection, no little red mark. So that's why today we went to 1/5. And today my arm really hurts again.

The other good news is that the Dutch health insurance are willing to pay for their clients. So that's why a few allergists are willing to do the desensitization. Next week there will be a test of 2 patients of 2 different allergists at the clinic where I go. So hopefully all the POIS-patients in The Netherlands can be helped in 2012 immediately!

Could it be possible to have a recap of your desensitization program with each date / mL injected/ concentration and time between each injections?
Thank you very much in advance

I started the injections and my doctor would like to get it !

Vandemolen · « **Reply #108 on:** February 24, 2012, 07:29:20 PM »

Quote from: Habibou on February 24, 2012, 10:49:32 AM

Could it be possible to have a recap of your desensitization program with each date / mL injected/ concentration and time between each injections?
Thank you very much in advance I started the injections and my doctor would like to get it !

I will ask the doctor when I go there the next time (april).
Good for you that you started with desens.

Habibou · « **Reply #109 on:** March 05, 2012, 06:28:05 PM »

Thank you very much

Do you have any idea what was your starting dilution ? 1:40 000 or 1 : 10 000?
I practice the injections in the fat of the belly by the way...

For the moment, I did 2 injections 1:40 000 and 1:35 000 with 10 days between each one.

Vandemolen · « **Reply #110 on:** March 05, 2012, 07:57:21 PM »

Quote from: Habibou on March 05, 2012, 06:28:05 PM

Thank you very much Do you have any idea what was your starting dilution ? 1:40 000 or 1 : 10 000?
I practice the injections in the fat of the belly by the way...

For the moment, I did 2 injections 1:40 000 and 1:35 000 with 10 days between each one.

The first injection was 1/10.000. The injection go into my arm.

Habibou · « **Reply #111 on:** March 07, 2012, 08:00:35 PM »

Thank you ! My latest was 1: 20 000.. I preferred to start slowly... My spot was 2 cm with 1:40 000 at the intradermal own semen test. I guess your second injection was made 7 days later with 1: 5 000 Vandemolen??

Vandemolen · « **Reply #112 on:** March 08, 2012, 07:05:35 AM »

Quote from: Habibou on March 07, 2012, 08:00:35 PM

Thank you ! My latest was 1: 20 000.. I preferred to start slowly... My spot was 2 cm with 1:40 000 at the intradermal own semen test. I guess your second injection was made 7 days later with 1: 5 000 Vandemolen??

I had injections once in 5 weeks. From now on once in 7 weeks. About the dillution: I can't remember, but if you read this whole topic you can find everything.

Habibou · « **Reply #113 on:** March 08, 2012, 07:50:33 PM »

Ok, I will ! Thank you very much

Habibou · « **Reply #114 on:** March 11, 2012, 11:04:04 AM »

My doctor analyzed the program : 1/10 000 , 1/1 000 , 1/200 and the time between was too much careful ! He said I could do it easily with 1/10 000 , 1/5000 , 1/2000 with only 2 weeks between each...

What do you think about it?

Vandemolen · « **Reply #115 on:** March 11, 2012, 06:49:50 PM »

Quote from: Habibou on March 11, 2012, 11:04:04 AM

My doctor analyzed the program : 1/10 000 , 1/1 000 , 1/200 and the time between was too much careful ! He said I could do it easily with 1/10 000 , 1/5000 , 1/2000 with only 2 weeks between each...

What do you think about it?

Yes the second scheme is better. You can take big steps in the dillution scheme. When you reach a point that your immune system is chalenged to hard, then you should slow down and take a break. Untill then you can speed it up. But it's great that you are in the desens program too.

Habibou · « **Reply #116 on:** March 13, 2012, 10:59:44 AM »

Ok, thank you very much for your support Vandemolen !! I will do 1/10 000, 1/5000, 1:2000 ... with only 10 days between each injections and then see when I arrive at 500 how I feel

Limejuice · « **Reply #117 on:** March 13, 2012, 04:16:42 PM »

Hi V, your dilution ratio is very high. Have you any progress in your pois symptoms? Thanks.

Starsky · « **Reply #118 on:** March 13, 2012, 04:51:24 PM »

Vandemolen, can you describe more clearly your improvement? Which symptoms for how long last, which symptoms disapeared completely...

Vandemolen · « **Reply #119 on:** March 13, 2012, 06:52:02 PM »

Habibou, it takes a wile before you can notice the improvement. But because you get an injection every 10 days about 3 months you should feel the difference.

Limejuice and Starksky, yes there is a smaller dillution. I hope one day the semen will not be dilluted but concentrated. Then you can speed up the programm.
The big difference is the flu like symptoms. That was my major symptom before desens. Now I almost don't have that flu like symptoms. I have 1 day of light POIS. The same as it was before on day 3 or 4. And I am less tired. Sometimes I have even more energy on day 2. And I don't feel so down.

My major symptoms now are:
1. My Eustachian tube seems to be infected for a few weeks. But maybe this is not all POIS, because in a period I didn't have an O. but still have these problems with nose, throat and ears.
2. Acne
3. troubled bowels

And I also have UTI. Normally I could have an O. 1 day, next day not, next day O. and so on. But when I do this I get UTI. So I think it's better to give myself a rest of 2 or 3 days. Then the chance of UTI is smaller.

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Author Topic: Official Desensitization plan Begins! (Read 227351 times)

Willem