Author Topic: Official Desensitization plan Begins!  (Read 151035 times)

Egordon

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Re: Official Desensitization plan Begins!
« Reply #315 on: July 07, 2013, 10:29:53 AM »
FYI
I have had the semen skin prick test (in london by the government hospital) but I found it was not done in accordance with Waldingers method. They simply did a prick (not injection) through undiluted semen. The skin prick was barely through the surface of the skin. When I look at Waldergers POIS vid I can see they inject diluted semen right under the skin. When I can find someone who will do the skin prick test in the right way I will provide them the detailed requirements in Waldergers second paper. The type of semen allergy test I had, as they told me was the same as how they test woman for the potential fatal semen allergy they can have. I have never heard of any male having this type of reaction but I saw an article (in Chinese) explaining that this type of semen allergy is the RAREST condition know. Above even allergy to water, allergy to sunlight and also the elephant man syndrome. On this basis, I would guess that the chance of a male testing positive from the way I had the semen test would be EXTREMELY rare.
FB

Interesting, FB. I'm sorry about that. Well, my doctor tested me for the "allergy" the same way he would've tested anyone else with a different allergy/autoimmune reaction. (There were 3 pricks (no injections): 1 control, 1 histamine, and one semen; we started out at something like 1 : 30,000 but i didn't (unequivocally) test positive until about 1:10.) I'm not sure whether this is in accordance with Waldinger's papers or not.

(As a side note: that's a pretty scientifically scrupulous test. And it tests for one's reaction to histamine, so if we were just having a typical, histamine-release oriented reaction to semen (rather than an abnormal or allergic one) I have a fair amount of confidence my doctor would be able to see as much. I'm not sure that the anti-desens folks are aware that mechanisms like this are already in place to ensure that POIS is an allergy, not just an irritation.)

What test did he make to differentiate between histamine release reaction / abnormal allergic one? Increasing slowly to the point of reaction is NOT enough.

A normal person will react equally, or could. It is no proof positive!

Is your doctor an allergist?

If so, please provide his data. If he is real, and if he knows what he is doing, we could use him.

Name, credentials and contact information. Please don't keep it private. It doesn't lend confidence.



The typical allergy test in America involves 3 pricks all at the same time: 1) the antigen (at a given dilution); 2) histimine; and 3) a "control" solution. The doctor compares the reaction that the antigen produces to that of the histimine and control to identify whether or not the reaction is abnormal. I think the idea is that a positive reaction will be significantly larger (and look different) than the mere injection of histimine, but it's been over a year since i got the test and i no longer remember.

Yes, my doctor is an allergist. Unfortunately, though, he's made clear that until he's done treating me he's not willing to take on any other POIS patients. (I've tried to refer him to someone in the past.) I think it's because the therapy is fairly novel and experimental for him.

 What were you hoping to use him for?
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

fidalgo

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Re: Official Desensitization plan Begins!
« Reply #316 on: July 08, 2013, 04:04:02 PM »
FYI
I have had the semen skin prick test (in london by the government hospital) but I found it was not done in accordance with Waldingers method. They simply did a prick (not injection) through undiluted semen. The skin prick was barely through the surface of the skin. When I look at Waldergers POIS vid I can see they inject diluted semen right under the skin. When I can find someone who will do the skin prick test in the right way I will provide them the detailed requirements in Waldergers second paper. The type of semen allergy test I had, as they told me was the same as how they test woman for the potential fatal semen allergy they can have. I have never heard of any male having this type of reaction but I saw an article (in Chinese) explaining that this type of semen allergy is the RAREST condition know. Above even allergy to water, allergy to sunlight and also the elephant man syndrome. On this basis, I would guess that the chance of a male testing positive from the way I had the semen test would be EXTREMELY rare.
FB

Interesting, FB. I'm sorry about that. Well, my doctor tested me for the "allergy" the same way he would've tested anyone else with a different allergy/autoimmune reaction. (There were 3 pricks (no injections): 1 control, 1 histamine, and one semen; we started out at something like 1 : 30,000 but i didn't (unequivocally) test positive until about 1:10.) I'm not sure whether this is in accordance with Waldinger's papers or not.

(As a side note: that's a pretty scientifically scrupulous test. And it tests for one's reaction to histamine, so if we were just having a typical, histamine-release oriented reaction to semen (rather than an abnormal or allergic one) I have a fair amount of confidence my doctor would be able to see as much. I'm not sure that the anti-desens folks are aware that mechanisms like this are already in place to ensure that POIS is an allergy, not just an irritation.)

You are mixing the two types of tests.  The first, the one that FB had done, is the prick test which is done in the surface of the skin. The one, with the injection, is the intradermal test.

I' ve done the two test. The prick I done too 1: 100 and is negative. The intradermal I was positive in 1: 10.000 . In the video, for a remember, Waldinger did the intradermal test. This confusion happens because Waldinger mix the name of the two tests in his survey (my doctor told me that. He thinks it happens because Waldinger isn't a allergist).

Daveman

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Re: Official Desensitization plan Begins!
« Reply #317 on: July 09, 2013, 06:15:42 AM »
FYI
I have had the semen skin prick test (in london by the government hospital) but I found it was not done in accordance with Waldingers method. They simply did a prick (not injection) through undiluted semen. The skin prick was barely through the surface of the skin. When I look at Waldergers POIS vid I can see they inject diluted semen right under the skin. When I can find someone who will do the skin prick test in the right way I will provide them the detailed requirements in Waldergers second paper. The type of semen allergy test I had, as they told me was the same as how they test woman for the potential fatal semen allergy they can have. I have never heard of any male having this type of reaction but I saw an article (in Chinese) explaining that this type of semen allergy is the RAREST condition know. Above even allergy to water, allergy to sunlight and also the elephant man syndrome. On this basis, I would guess that the chance of a male testing positive from the way I had the semen test would be EXTREMELY rare.
FB

Interesting, FB. I'm sorry about that. Well, my doctor tested me for the "allergy" the same way he would've tested anyone else with a different allergy/autoimmune reaction. (There were 3 pricks (no injections): 1 control, 1 histamine, and one semen; we started out at something like 1 : 30,000 but i didn't (unequivocally) test positive until about 1:10.) I'm not sure whether this is in accordance with Waldinger's papers or not.

(As a side note: that's a pretty scientifically scrupulous test. And it tests for one's reaction to histamine, so if we were just having a typical, histamine-release oriented reaction to semen (rather than an abnormal or allergic one) I have a fair amount of confidence my doctor would be able to see as much. I'm not sure that the anti-desens folks are aware that mechanisms like this are already in place to ensure that POIS is an allergy, not just an irritation.)

What test did he make to differentiate between histamine release reaction / abnormal allergic one? Increasing slowly to the point of reaction is NOT enough.

A normal person will react equally, or could. It is no proof positive!

Is your doctor an allergist?

If so, please provide his data. If he is real, and if he knows what he is doing, we could use him.

Name, credentials and contact information. Please don't keep it private. It doesn't lend confidence.



The typical allergy test in America involves 3 pricks all at the same time: 1) the antigen (at a given dilution); 2) histimine; and 3) a "control" solution. The doctor compares the reaction that the antigen produces to that of the histimine and control to identify whether or not the reaction is abnormal. I think the idea is that a positive reaction will be significantly larger (and look different) than the mere injection of histimine, but it's been over a year since i got the test and i no longer remember.

Yes, my doctor is an allergist. Unfortunately, though, he's made clear that until he's done treating me he's not willing to take on any other POIS patients. (I've tried to refer him to someone in the past.) I think it's because the therapy is fairly novel and experimental for him.

 What were you hoping to use him for?

For our members. If he is authorized, willing and knows what he is doing, it's better than our people doing the treatment themselves or going to someone that will just take them for their money.

I still don't see the validity of his tests:
1) Sperm, semen, shouldn't be on the other side of the blood barrier. It is likely to react with anyone, not just someone with POIS. We have seen some with POIS for whom it does not react. I am positive we would see people without POIS for whom it would react. An allergist should really know that. I suppose he is going on Dr. Waldinger's word!!
2) Semen contains many substances. Testing with sperm is like testing with "soup". You can't say you are allergic to chicken because you tested positive to chicken soup. And if you use chicken soup to desensitize with, you are potentially creating antibodies to things that you didn't have before like potatoes, onions, pepper, whatever!
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Egordon

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Re: Official Desensitization plan Begins!
« Reply #318 on: July 09, 2013, 07:34:16 AM »
For our members. If he is authorized, willing and knows what he is doing, it's better than our people doing the treatment themselves or going to someone that will just take them for their money.

I still don't see the validity of his tests:
1) Sperm, semen, shouldn't be on the other side of the blood barrier. It is likely to react with anyone, not just someone with POIS. We have seen some with POIS for whom it does not react. I am positive we would see people without POIS for whom it would react. An allergist should really know that. I suppose he is going on Dr. Waldinger's word!!
2) Semen contains many substances. Testing with sperm is like testing with "soup". You can't say you are allergic to chicken because you tested positive to chicken soup. And if you use chicken soup to desensitize with, you are potentially creating antibodies to things that you didn't have before like potatoes, onions, pepper, whatever!

[/quote]

Your second point is a very good one, but it's also one that I think my doctor has probably considered. While I'm his first POIS patient, he has desensitized a number of women to the semen of their partners (with no complications), so I don't think he's especially worried about creating innapropriate antibodies. (You guys sometimes talk as though doctors haven't been desensitizing people to semen for decades. This isn't the case.) But I'll ask him. Perhaps they've been able to isolate the allergic compound with that disorder.

Your first point, though, is something you've long been asserting, and which i've long disagreed with. POIS patients get fairly peculiar symptoms upon being injected with semen. I, for instance, get general redness, strong stinging at the injection site, a tiny bit of swelling, and some of my cognitive symptoms. It's not clear to me how one could think these reactions are consistent with mere localized irritation rather than an allergic response. And what (scientific) evidence do you have for thinking as much?

Also, why does the fact that we've seen some ( -- many, really --) POISers that don't react to the skin-prick test make you think that there are non-POISers that would react. If anything, I think it's reasonable to draw the opposite inference. If semen is so irritating and causes this universal reaction, as you say, wouldn't all of our members react? I don't think there's much support -- scientific or speculative -- for your first contention.

I do appreciate your raising the first point, though, and intend to ask my doctor about it soon. And, although I haven't always agreed with the substance or means of your criticism, I hope you know that I respect your concern for the POIS community and your healthy skepticism of received wisdom.
« Last Edit: July 09, 2013, 07:44:16 AM by Egordon »
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

Egordon

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Re: Official Desensitization plan Begins!
« Reply #319 on: July 09, 2013, 07:50:16 AM »
FYI
I have had the semen skin prick test (in london by the government hospital) but I found it was not done in accordance with Waldingers method. They simply did a prick (not injection) through undiluted semen. The skin prick was barely through the surface of the skin. When I look at Waldergers POIS vid I can see they inject diluted semen right under the skin. When I can find someone who will do the skin prick test in the right way I will provide them the detailed requirements in Waldergers second paper. The type of semen allergy test I had, as they told me was the same as how they test woman for the potential fatal semen allergy they can have. I have never heard of any male having this type of reaction but I saw an article (in Chinese) explaining that this type of semen allergy is the RAREST condition know. Above even allergy to water, allergy to sunlight and also the elephant man syndrome. On this basis, I would guess that the chance of a male testing positive from the way I had the semen test would be EXTREMELY rare.
FB

Interesting, FB. I'm sorry about that. Well, my doctor tested me for the "allergy" the same way he would've tested anyone else with a different allergy/autoimmune reaction. (There were 3 pricks (no injections): 1 control, 1 histamine, and one semen; we started out at something like 1 : 30,000 but i didn't (unequivocally) test positive until about 1:10.) I'm not sure whether this is in accordance with Waldinger's papers or not.

(As a side note: that's a pretty scientifically scrupulous test. And it tests for one's reaction to histamine, so if we were just having a typical, histamine-release oriented reaction to semen (rather than an abnormal or allergic one) I have a fair amount of confidence my doctor would be able to see as much. I'm not sure that the anti-desens folks are aware that mechanisms like this are already in place to ensure that POIS is an allergy, not just an irritation.)

You are mixing the two types of tests.  The first, the one that FB had done, is the prick test which is done in the surface of the skin. The one, with the injection, is the intradermal test.

I' ve done the two test. The prick I done too 1: 100 and is negative. The intradermal I was positive in 1: 10.000 . In the video, for a remember, Waldinger did the intradermal test. This confusion happens because Waldinger mix the name of the two tests in his survey (my doctor told me that. He thinks it happens because Waldinger isn't a allergist).

This is really interesting, FB. I didn't realize that intradermal tests were being performed. (I've never seen the video you mentioned.) As many of our members have had trouble getting positive reactions to the skin-prick test, perhaps this alternative should be advertised to people inclined towards the autoimmune theory.
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

Daveman

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Re: Official Desensitization plan Begins!
« Reply #320 on: July 09, 2013, 11:14:30 AM »

For our members. If he is authorized, willing and knows what he is doing, it's better than our people doing the treatment themselves or going to someone that will just take them for their money.

I still don't see the validity of his tests:
1) Sperm, semen, shouldn't be on the other side of the blood barrier. It is likely to react with anyone, not just someone with POIS. We have seen some with POIS for whom it does not react. I am positive we would see people without POIS for whom it would react. An allergist should really know that. I suppose he is going on Dr. Waldinger's word!!
2) Semen contains many substances. Testing with sperm is like testing with "soup". You can't say you are allergic to chicken because you tested positive to chicken soup. And if you use chicken soup to desensitize with, you are potentially creating antibodies to things that you didn't have before like potatoes, onions, pepper, whatever!


Your second point is a very good one, but it's also one that I think my doctor has probably considered. While I'm his first POIS patient, he has desensitized a number of women to the semen of their partners (with no complications), so I don't think he's especially worried about creating innapropriate antibodies. (You guys sometimes talk as though doctors haven't been desensitizing people to semen for decades. This isn't the case.) But I'll ask him. Perhaps they've been able to isolate the allergic compound with that disorder.

Your first point, though, is something you've long been asserting, and which i've long disagreed with. POIS patients get fairly peculiar symptoms upon being injected with semen. I, for instance, get general redness, strong stinging at the injection site, a tiny bit of swelling, and some of my cognitive symptoms. It's not clear to me how one could think these reactions are consistent with mere localized irritation rather than an allergic response. And what (scientific) evidence do you have for thinking as much?

Also, why does the fact that we've seen some ( -- many, really --) POISers that don't react to the skin-prick test make you think that there are non-POISers that would react. If anything, I think it's reasonable to draw the opposite inference. If semen is so irritating and causes this universal reaction, as you say, wouldn't all of our members react? I don't think there's much support -- scientific or speculative -- for your first contention.

I do appreciate your raising the first point, though, and intend to ask my doctor about it soon. And, although I haven't always agreed with the substance or means of your criticism, I hope you know that I respect your concern for the POIS community and your healthy skepticism of received wisdom.

There's a big difference between a woman's reaction to her husbands semen, and a man's reaction to his own semen.

The latter case involves one's own dna and is subject to differing mechanism. This material should not be on the other side of the blood barrier, especially if it is one's own!

I defy ANY of the allergists who are practicing desensitization for POIS to test non-POIS patients. If they all prove negative this would have a great impact on my (our) perception..... and probably many allergists' perception as well. This is the biggest stumbling block, WHY isn't someone working on it? Could it be that it is too risky, or prohibited? I don't know, just asking? But ask yourself. Doesn't it strike you as strange that it is not being done or hasn't been done?

Ask your allergist about this too? Why does he think it hasn't been done?


WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

FloppyBanana

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Re: Official Desensitization plan Begins!
« Reply #321 on: July 09, 2013, 12:54:12 PM »
FYI
I have had the semen skin prick test (in london by the government hospital) but I found it was not done in accordance with Waldingers method. They simply did a prick (not injection) through undiluted semen. The skin prick was barely through the surface of the skin. When I look at Waldergers POIS vid I can see they inject diluted semen right under the skin. When I can find someone who will do the skin prick test in the right way I will provide them the detailed requirements in Waldergers second paper. The type of semen allergy test I had, as they told me was the same as how they test woman for the potential fatal semen allergy they can have. I have never heard of any male having this type of reaction but I saw an article (in Chinese) explaining that this type of semen allergy is the RAREST condition know. Above even allergy to water, allergy to sunlight and also the elephant man syndrome. On this basis, I would guess that the chance of a male testing positive from the way I had the semen test would be EXTREMELY rare.
FB

Interesting, FB. I'm sorry about that. Well, my doctor tested me for the "allergy" the same way he would've tested anyone else with a different allergy/autoimmune reaction. (There were 3 pricks (no injections): 1 control, 1 histamine, and one semen; we started out at something like 1 : 30,000 but i didn't (unequivocally) test positive until about 1:10.) I'm not sure whether this is in accordance with Waldinger's papers or not.

(As a side note: that's a pretty scientifically scrupulous test. And it tests for one's reaction to histamine, so if we were just having a typical, histamine-release oriented reaction to semen (rather than an abnormal or allergic one) I have a fair amount of confidence my doctor would be able to see as much. I'm not sure that the anti-desens folks are aware that mechanisms like this are already in place to ensure that POIS is an allergy, not just an irritation.)

You are mixing the two types of tests.  The first, the one that FB had done, is the prick test which is done in the surface of the skin. The one, with the injection, is the intradermal test.

I' ve done the two test. The prick I done too 1: 100 and is negative. The intradermal I was positive in 1: 10.000 . In the video, for a remember, Waldinger did the intradermal test. This confusion happens because Waldinger mix the name of the two tests in his survey (my doctor told me that. He thinks it happens because Waldinger isn't a allergist).

Thanks Fidalgo, for clearing that up!

Egordon - You can see in the below video that what is performed is definitely an intradermal test.

http://www.youtube.com/watch?v=1_kqIpGUYpI

Now I know what to ask for without creating a raft of confusion with these allergists/doctors.
FB (UK)
30 years of POIS. Mytelase after O with Iceman breathing technique.

rock27

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Re: Official Desensitization plan Begins!
« Reply #322 on: July 11, 2013, 01:54:53 PM »
There's a big difference between a woman's reaction to her husbands semen, and a man's reaction to his own semen.

The latter case involves one's own dna and is subject to differing mechanism. This material should not be on the other side of the blood barrier, especially if it is one's own!

I defy ANY of the allergists who are practicing desensitization for POIS to test non-POIS patients. If they all prove negative this would have a great impact on my (our) perception..... and probably many allergists' perception as well. This is the biggest stumbling block, WHY isn't someone working on it? Could it be that it is too risky, or prohibited? I don't know, just asking? But ask yourself. Doesn't it strike you as strange that it is not being done or hasn't been done?

Ask your allergist about this too? Why does he think it hasn't been done?




Research on this is needed but I don't believe sperm in normal males never comes in contact with their blood. When ejaculating the sperm travels and is not in the so called save (conclusive research on this?) testis.  It might meet an infection or injury and the whole penis feels very connected to blood vessels anyway. If we can proof there is contact between sperm and blood in normal males, we don't have to worry about injecting sperm and ethics can never be used as an excuse again.

And maybe when the sperm is broken down (when unused) it also somehow enters the bloodstream.  When I am fully loaded and not having ejaculated I already feel a bit more tired than usual. I think you mentioned this as well Daveman?



b_jim

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Re: Official Desensitization plan Begins!
« Reply #323 on: July 12, 2013, 12:23:51 AM »
Seriously, I want to make the desensitization myself.
What do I risk  ?
A mistake in dilution ? It doesn't seem more difficult than dillutions I made at school...
A mistake with syringue ? Just find a vein, no air bubble and hop.... subcutaneous
Anaphylactic shoke ? I already put pure semen on bloody scare to test. The reaction is not so powerfull. in my Pois.

« Last Edit: July 12, 2013, 09:36:26 AM by b_jim »
Taurine = Anti-Pois
Suffering from lyme disease

Daveman

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Re: Official Desensitization plan Begins!
« Reply #324 on: July 12, 2013, 08:33:43 AM »
Seriously, I want to make the desensitization myself.
What do I risk  ?
A mistake in dilution ? It doesn't seem more difficult than dillutions I made at school...
A mistake with syringue ? Just find a vein, no air bubble and hop....
Anaphylactic shoke ? I already put pure semen on bloody scare to test. The reaction is not so powerfull. in my Pois.



Not in the veins, NEVER. See that's the problem!

We don't know what we are doing? We just might THINK we do.

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

b_jim

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Re: Official Desensitization plan Begins!
« Reply #325 on: July 12, 2013, 09:33:45 AM »
Hmm yes sorry. I mean injections under the skin (subcutaneous) not in veins  :-[  :P
I will ask my doctor if I can get "the little tool" to pr1ck the skin (dont find the word) to the pharmacy.

Anyway I tried once again to rub pure semen on my forearm with the same result : red spots appear after 15-20 min.
After a meal rich in carbohydrates, I had flush all the afternoon.
I'm as convinced by insuline role in my Pois as you are convinced by role of niacine.


Taurine = Anti-Pois
Suffering from lyme disease

rock27

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Re: Official Desensitization plan Begins!
« Reply #326 on: July 12, 2013, 12:05:50 PM »
Seriously, I want to make the desensitization myself.
What do I risk  ?

It would be crazy to do desenz yourself. You would never know at what dilution you would get a heavy reaction and if your dilution is right what you think it is.
I have not heard about fatalities but I did hear about people doing it and having more reactions than in normal POIS, making their POIS worse and reactions that lasted more than 3 months. So it is Russian roulette to do it really. This is NOT a whisper campaign.
POIS can be caused by different things.
We really need a good diagnostic tool to know which one is your case.

For the record: I really believe in allergy(like) theory, but we need to have the diagnostic tools to know if it applies to you. I hope the research will get us there.
Please don't let us be dependent of dr. Waldinger, who likes to keep things secret (and be the first one to publish) and doesn't answer critical questions of allergists.


Take care
All the best
Thanks Demo and Daveman for keeping the forum alive for so long!




« Last Edit: July 12, 2013, 12:17:58 PM by rock27 »

Daveman

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Re: Official Desensitization plan Begins!
« Reply #327 on: July 12, 2013, 12:51:03 PM »
Seriously, I want to make the desensitization myself.
What do I risk  ?

It would be crazy to do desenz yourself. You would never know at what dilution you would get a heavy reaction and if your dilution is right what you think it is.
I have not heard about fatalities but I did hear about people doing it and having more reactions than in normal POIS, making their POIS worse and reactions that lasted more than 3 months. So it is Russian roulette to do it really. This is NOT a whisper campaign.
POIS can be caused by different things.
We really need a good diagnostic tool to know which one is your case.

For the record: I really believe in allergy(like) theory, but we need to have the diagnostic tools to know if it applies to you. I hope the research will get us there.
Please don't let us be dependent of dr. Waldinger, who likes to keep things secret (and be the first one to publish) and doesn't answer critical questions of allergists.


Take care
All the best
Thanks Demo and Daveman for keeping the forum alive for so long!






Thanks Rock,

What really concerns me, especially if it IS allergy "like", or some other kind of auto-immune reaction but NOT desensitizable allergy, we may be preventing ourselves from benefiting from the REAL solution, just by doing desens. when it shouldn't be called for.

DESENS FOR POIS IS A FANTASY THAT WE ALL WANT TO BELIEVE. IT'S EASY TO BELIEVE. IS IT SAFE? WE BELIEVE SO!
WILL WE REGRET IT? WE DON'T CARE! UNTIL....


Sigh.....
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: Official Desensitization plan Begins!
« Reply #328 on: July 12, 2013, 07:01:17 PM »

Thanks Demo and Daveman for keeping the forum alive for so long!


You're more than welcome, Rocky! Thank you for your many forum contributions.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Stef

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Re: Official Desensitization plan Begins!
« Reply #329 on: July 12, 2013, 07:38:51 PM »
Re: Semen Desensitization Treatments --

When an allergist/immunologist administers desensitization treatments for allergies, the specific allergen has previosly been determined through skin prick and subcutaneous skin testing.

As an example, if there's a pollen allergy, skin-prick tests will show strong reactions ("wheals" that are a particular size) to very specific allergens (oak polllen, birch, grass, ragweed, etc).

With semen, no one knows yet what it is in the semen (if the problem is in the semen!) that anyone is reacting to -- the specific components of semen have not yet been identified as offending agents in POIS.

It's important to remember that an allergic reaction is not an autoimmune reaction. They are entirely different issues!

More than one immunologist has commented that there is a risk of actually inducing an autoimmune condition by SLIT or SCIT with one's own semen.

Daveman said it perfectly -- you are playing Russian roulette by trying to desensitize yourself with semen -- diluted or otherwise. 

If no one knows what the specific offending agent is in semen, then there can't be desensitization. It's illogical.  I do not mean to offend anyone -- it's the reality of desensitization treatments. They are used strictly for specific allergic conditions.  They are not used for autoimmune conditions.

For those of you who have not yet tried SLIT -- don't do it and try to be patient!  You are all so close to finding out what causes POIS. If semen contains an inflammatory agent that is somehow getting into your blood supply and causing POIS, you will learn about it via your research grant. And -- you'll learn if it's an allergic reaction or an autoimmune reaction.

My 28-y/o son is super intelligent (no, I really am not bragging -- he reads his biochemistry book at night to chill out -- with Sinatra playing in the background)  -- and is also extremely
open-minded and non-judgmental. He's a certified physician assistant, working in an urgent care center in So. Florida -- and has seen it all! You cannot imagine some of the medical problems he treats in So. Florida -- POIS does not hold a candle to this stuff! He see's patients with problems that you could not even begin to imagine. 

He's very sympathetic to POIS -- VERY SYMPATHETIC -- and he thinks that you are playing with fire with this desensitization.

Why risk inducing an autoimmune condition on top of POIS?

Please don't take offense from this post.  Try to hold on and be patient for a little while longer.

Stef