Author Topic: Official Desensitization plan Begins!  (Read 150693 times)

Hoping

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Re: Official Desensitization plan Begins!
« Reply #30 on: May 15, 2011, 08:47:31 PM »
Fresh semen is much better for the desensitization. That's what the doctor said. For me it would be easier if they used frozen semen. Then I only had to produce it twice a year. My next appointment is about 5 weeks. The big red spot is very clear.

I totally agree with that. fresh semen seems to be important. are they not able to freeze it for you?
Experienced POIS since 2002.
My symptoms include: brain fog, depression, physical and mental fatigue, memory problems, social anxiety, concentration problems, myalgia, inflammation.

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #31 on: May 16, 2011, 03:07:37 AM »
I totally agree with that. fresh semen seems to be important. are they not able to freeze it for you?
I think they are. But the next time the semen will not be fresh. The injections are once a month. So I don't mind. If it was twice a month then it would be hard.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #32 on: May 17, 2011, 04:48:36 AM »
If you do the Desensitization I was wondering what is the best. To do have no O.'s (beside before the injection). Or to have a lot's of O.'s to confront your prostate and bladder. Or will be the prostate and bladder be damaged?
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Daveman

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Re: Official Desensitization plan Begins!
« Reply #33 on: May 17, 2011, 07:26:35 AM »
If you do the Desensitization I was wondering what is the best. To do have no O.'s (beside before the injection). Or to have a lot's of O.'s to confront your prostate and bladder. Or will be the prostate and bladder be damaged?

My personal case is that the prostate swells in the 5 days post orgasm. Along with most of the equipment down there.

The vas travels up through the abdominal cavity alongside the penis on each side. These too for me swell and tend to harden suring POIS. At night it is even uncomfortable when I sleep on my side with the legs tegether.

I can't sleep on my back, so I sleep one my side, but with one leg a little behind and the other with the knee out at 90 deg to the body. A little more comfortabe.

Your doctors haven't put any restrictions on your sex? If you jave more or less, does it have any effect over the desensitization?

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Habibou

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Re: Official Desensitization plan Begins!
« Reply #34 on: May 19, 2011, 05:02:13 AM »
I think this whole desensitization plan is based on very thin evidence. The allergy is a theory and not a fact yet. There was only mild improvement with desensitization in 1 patient and no improvement in the other. That to me is not very good evidence.  I'm playing devil's advocate here, but I think it's important to keep this in perspective. I'm not saying it shouldn't be tried, but we need to challenge it too. If it's true it will survive the challenge.

No, according to his paper, it was :
-90% improvement after 15 months in a case.
-60% improvement after 36 months in the other case who got PE.

That is not the same at all compare to mild/no improvement !
Brain fog 90%  + tired all the time ,sport intolerance, fast heartbeat, colon inflammation

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #35 on: May 22, 2011, 04:59:43 AM »
My personal case is that the prostate swells in the 5 days post orgasm. Along with most of the equipment down there.

The vas travels up through the abdominal cavity alongside the penis on each side. These too for me swell and tend to harden suring POIS. At night it is even uncomfortable when I sleep on my side with the legs tegether.

I can't sleep on my back, so I sleep one my side, but with one leg a little behind and the other with the knee out at 90 deg to the body. A little more comfortabe.

Your doctors haven't put any restrictions on your sex? If you jave more or less, does it have any effect over the desensitization?
Yes I noticed too that the prostate swells a few days.

No restrictions. I will ask next time.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #36 on: May 22, 2011, 05:16:56 AM »
I think this whole desensitization plan is based on very thin evidence. The allergy is a theory and not a fact yet. There was only mild improvement with desensitization in 1 patient and no improvement in the other. That to me is not very good evidence.  I'm playing devil's advocate here, but I think it's important to keep this in perspective. I'm not saying it shouldn't be tried, but we need to challenge it too. If it's true it will survive the challenge.
The research didn't stop. But for now desensitization is the best proven medication. Yes it's true not everybody had a big improvement. But if for me there is 50% improvement I would be happy. Better 50 % then nothing. Of course I hope that the improvement will be 90 or 100 %. But I don't count on anything. Thought the patienst who did desensitization and had not a huge improvement this were patients with PE. And I don't have PE.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #37 on: May 25, 2011, 06:01:43 AM »
Yesterday I had an O. Today is day 1. And I feel better than normal. I think I have 25 % less POIS. But I don't know in how far this is the effect of injections. Because I was eroused a very long time and then I had the O. In this case there is always less seed in the sperm. That could be a reason. And the other thing is that I just came back from a holiday from Asia (lot's of vitamin D). I will try it about a week with a quick O. I will let you know. But I can't wait to get my new injection about 3 weeks.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Willem

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Re: Official Desensitization plan Begins!
« Reply #38 on: May 25, 2011, 11:16:19 AM »
I think this whole desensitization plan is based on very thin evidence. The allergy is a theory and not a fact yet. There was only mild improvement with desensitization in 1 patient and no improvement in the other. That to me is not very good evidence.  I'm playing devil's advocate here, but I think it's important to keep this in perspective. I'm not saying it shouldn't be tried, but we need to challenge it too. If it's true it will survive the challenge.
I agree with you.  There are multi-billion dollar industries involving millions of people based on medicine with thin evidence, and in our case we only have a handful of cases.  Every effective treatment case is more like a hypothesis.  Does seem like desensitization is the best non-invasive candidate with a scientific basis. 

It would be great to have a battery of tests for our condition to determine if we really are allergic.  Since sperm is immunogenic, simply confirming an allergic response can be complicated. 

Animus

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Re: Official Desensitization plan Begins!
« Reply #39 on: May 26, 2011, 09:31:41 PM »
I think this whole desensitization plan is based on very thin evidence. The allergy is a theory and not a fact yet. There was only mild improvement with desensitization in 1 patient and no improvement in the other. That to me is not very good evidence.  I'm playing devil's advocate here, but I think it's important to keep this in perspective. I'm not saying it shouldn't be tried, but we need to challenge it too. If it's true it will survive the challenge.

No, according to his paper, it was :
-90% improvement after 15 months in a case.
-60% improvement after 36 months in the other case who got PE.

That is not the same at all compare to mild/no improvement !

I'm sorry! I wish I hadn't worded it like that... 90% improvement is quite good. And this is very significant.
« Last Edit: May 26, 2011, 09:37:41 PM by Animus »

biocentric

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Re: Official Desensitization plan Begins!
« Reply #40 on: May 27, 2011, 04:49:16 PM »
van,
sorry to be a pain but could you list the stages/injection strengths so far and how long you had at each stage
THANKS!!

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #41 on: May 28, 2011, 06:02:05 AM »
Yesterday I had an O. Today is day 1. And I feel better than normal. I think I have 25 % less POIS. But I don't know in how far this is the effect of injections. Because I was eroused a very long time and then I had the O. In this case there is always less seed in the sperm. That could be a reason. And the other thing is that I just came back from a holiday from Asia (lot's of vitamin D). I will try it about a week with a quick O. I will let you know. But I can't wait to get my new injection about 3 weeks.
An O. again. And again I think 25% less symptoms. Mainly less rash in my mouth and nose.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #42 on: May 28, 2011, 06:06:04 AM »
van,
sorry to be a pain but could you list the stages/injection strengths so far and how long you had at each stage
THANKS!!
I didn't had the normal procedure. Because I made in 1 time a step in the plan. Normally you begin with 1/10.000. After 5 months it's 1/1.000. I don't know the scheme between those 4 months.
« Last Edit: May 28, 2011, 06:23:57 AM by Vandemolen »
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

biocentric

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Re: Official Desensitization plan Begins!
« Reply #43 on: May 29, 2011, 07:17:02 AM »
van,
sorry to be a pain but could you list the stages/injection strengths so far and how long you had at each stage
THANKS!!
I didn't had the normal procedure. Because I made in 1 time a step in the plan. Normally you begin with 1/10.000. After 5 months it's 1/1.000. I don't know the scheme between those 4 months.

but what have you had? what did you begin with? where you at now? thanks

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #44 on: May 29, 2011, 05:14:10 PM »
but what have you had? what did you begin with? where you at now? thanks
First time: 1/10.000. Second time 1/1000. I had 2 injections.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.