I am loosing hope now guys , thinking to do something stupid , i have children..

[sameer7777]

I am loosing hope guys i have been a member here .... What should i do ..... Looosing hope ..... Brain fog is too much ..... Sometimes forget names ........ I cant abstain more than a week ..... Guys i love my kids alot ..... I am loosing hope guys pls do something .......
Pls pls pls
GOD HELP ME AND US ......

[Yaniv]

Hi Sameer, be strong man and don't ever loose your hope. I haven't encountered with a problem that did have a solution.
We are all together in this situation, I'd recommend you to be positive and proactive, change any parameter that you can in your day to day life and see how it affects you: Nutriation, sport, sleep... try to keep looking for a good doctor that can lead you to some way for easing you pains as well as alternative treatments and psychological help for how to deal with your family, work, people when you are in POIS.

Hope that helps,

Good luck man !

Yaniv

[FornicationDENIED]

Look for dopamine supplementation and see if it helps with your brain fog. Try to test yourself for testosterone dopamine and prolactin levels after O, for example, to see what could be wrong and what to do.Also, for me, testosterone works better than Niacin with the brain fog, perhaps it will with you. If that does not work, you need abstinence, and for that  there is Dopamine antagonists.  It is used to control the symptoms of hypersexuality and increased orgasmic activity. Sex behaves like a drug addiction, it rewards you with dopamine and therefore you will always want more. In theory, a dopamine antagonist could help with abstinence.  You could go to a doctor and demand hypersexuality treatment with dopamine antagonists or try the desensitazion. Have you tried antihistamines and IgE blockers?

Please do not give up until you try everything, and report if anything has helped you.

[sameer7777]

ok i try to do exercise like walking from tommorow lets hope it can make diffrence ......
thankyou soo much u are my family guys .................

[Stef]

ok i try to do exercise like walking from tommorow lets hope it can make diffrence ......
thankyou soo much u are my family guys .................

Hi Sameer,

I hope you don't mind my posting here --  I consider myself an "outsider"  but I'm also a registered nurse -- and I've had eight years of experience with rare disorders. 

I'm so sorry that you're going through so much anguish! Your misery reflects the misery of the entire rare disease community  as a whole.

But you are definitely not alone in this POIS anguish!!

POIS is still a poorly defined disorder -- and there is apparently a broad spectrum of symptoms and severity.  That's how it is with ALL rare disorders -- especially one like POIS -- which so far remains a complete mystery.

THAT WILL CHANGE WITH YOUR RESEARCH GRANT -- I am very happy to say!!

Definitely -- listen to your extended family on this forum. They are your brothers, and many have been through the same tormenting symptoms.  And many of your POIS brothers have found ways to survive it -- with some even thriving. 

You are very courageous and smart to reach out in this forum!!!!

Demografx is an excellent example! He endured those symptoms for more than 30 years -- with no forum members to support him.  He's living proof that POIS isn't hopeless, that there is relief until more is understood through research.

You've got some truly wonderful supporters here -- lean on them!

Stef

[demografx]

I am loosing hope guys i have been a member here .... What should i do ..... Looosing hope ..... Brain fog is too much ..... Sometimes forget names ........ I cant abstain more than a week ..... Guys i love my kids alot ..... I am loosing hope guys pls do something .......
Pls pls pls
GOD HELP ME AND US ......

Sameer, we are not equipped to help you 100% with desperation and depression (which ALL OF US have experienced!)

There are BETTER resources equipped to deal with the EMOTIONAL TORMENT that is POIS!

Here's one I think looks good:
International:
http://www.samaritans.org/
"People talk to us anytime they like, in their own way, and off the record - about whatever’s getting to them.
They do not have to be suicidal."

Patron: HRH The Prince of Wales. Founded in 1953 by the late Prebendary Dr Chad Varah CH CBE."


Best wishes for success! I held on for 30+ years of POIS torture simply by NOT GIVING UP ( and also....I adopted a FIGHTING mentality to POIS -- not a "victim stance").

It worked for me...what do you have to lose?

FIGHT!!!!!!!

[sameer7777]

Thankyou all really i m blessed to have you guys with me !!!

Actually i was a successfull business man ........ But now everything is going out of my hands i am loosing everything step by step because of pois ....... I dont like to meet people i am afraid to make meetings .......to much negative thoughts ........no confidence ..... I am too much worried ......should i take a anti depressent ? But have taken many nothing works .....

Thankyou soo much again

[FornicationDENIED]

Thankyou all really i m blessed to have you guys with me !!!

Actually i was a successfull business man ........ But now everything is going out of my hands i am loosing everything step by step because of pois ....... I dont like to meet people i am afraid to make meetings .......to much negative thoughts ........no confidence ..... I am too much worried ......should i take a anti depressent ? But have taken many nothing works .....

Thankyou soo much again

Perhaps you should ask for an antidepressant that kills libido as a secondary effect, if you haven't already.

[Starsky]

http://www.thenakedscientists.com/forum/index.php?topic=6576.msg402577#msg402577

Do the tests and send it to gboludev. If you dont tolerate vitamins it means something and i think Herman knows what to do. If you are from India you could go to this doctor who helped Nathan cure his POIS, write nathan123 a PM: http://www.thenakedscientists.com/forum/index.php?action=profile;u=33848

[demografx]

Thankyou all really i m blessed to have you guys with me !!!

Actually i was a successfull business man ........ But now everything is going out of my hands i am loosing everything step by step because of pois ....... I dont like to meet people i am afraid to make meetings .......to much negative thoughts ........no confidence ..... I am too much worried ......should i take a anti depressent ? But have taken many nothing works .....

Thankyou soo much again

Perhaps you should ask for an antidepressant that kills libido as a secondary effect, if you haven't already.

FD, exactly right! Not only is this documented by the pharmaceuticals, but my own personal experiences have always been reduced libido, especially with higher doses of antidepressants. I saw this when I took Prozac.

[sameer7777]

I am trying homeo meds today i went to see a great doctor here .... Lets see
I am giving a try to homeo shawabe meds for 10 days i think lets see

I will contact nathan

Thankyou all

[LAPOISSE]

Hi Sameer,

I really can understand you ; My job is challenging and when I'm in POIS, I can do nothing but avoid everything(cause i'm really weird, non profesional, non efficient, etc) and this impact a lot my career.

My advice :

-Avoid O as much as you can and avoid to think about it(because I pay really expensive for each, O, abstaining is not really a problem...Think that being in POIS for 3 to 7 days is a big price for 3 sec of pleasure
-Take vit B(the multi B make me sick but just B3/6/12 works just perfect for me) ; The B12 is probably the most important...you can take 1mg/day
-Dont' eat junk food and sugar(POIS is very probably a matter of inflamamtion)
-Try NSAIDS(Its the only thing that works when I'm symtomatique ; I get 50% relief after 2 hours)
-Do a lot of sport(like everyday) ; that makes the diference for me and it helps keeping the stress away...which could be a problem when you dont' O
-Omega 3 is also good

Try all that for 2 weeks and see what happens

[sameer7777]

Lapoise i understand thanks !!!
I took homeo but not feeling ok .....so i will stop it

Yes b1 b6 b12 works but that was before insulin i think for me how u take these .....
Nsaid if u mean naproxen sodium than yes it works for me thats the only thing working it shows it some where inflamation is happening .....


I can abstain for 5 days but the cycle than continues ......
I will start exercise walk tommow

Thankyou all ......

[sameer7777]

Demo email not working

demografx@poiscenter.com

[Daveman]

http://www.thenakedscientists.com/forum/index.php?topic=6576.msg402577#msg402577

Do the tests and send it to gboludev. If you dont tolerate vitamins it means something and i think Herman knows what to do. If you are from India you could go to this doctor who helped Nathan cure his POIS, write nathan123 a PM: http://www.thenakedscientists.com/forum/index.php?action=profile;u=33848

Starsky, there is no know cure for POIS. gboludev´s cure are completely unfounded and unsupported. Don't give false hopes to
people who are so desperate to find a cure that they will do and believe anything they are told.

As long as you all hold to false an unsubstantiated leads, you will go nowhere. And please, don't lead our members down dead end streets.

[demografx]

http://www.thenakedscientists.com/forum/index.php?topic=6576.msg402577#msg402577

Do the tests and send it to gboludev. If you dont tolerate vitamins it means something and i think Herman knows what to do. If you are from India you could go to this doctor who helped Nathan cure his POIS, write nathan123 a PM: http://www.thenakedscientists.com/forum/index.php?action=profile;u=33848

Starsky, there is no know cure for POIS. gboludev´s cure are completely unfounded and unsupported. Don't give false hopes to
people who are so desperate to find a cure that they will do and believe anything they are told.

As long as you all hold to false an unsubstantiated leads, you will go nowhere. And please, don't lead our members down dead end streets.

Thank you, Daveman!

[demografx]

Demo email not working

demografx@poiscenter.com

I do not use that address.

My PM works.

[sameer7777]

Pla remove email option sir !!!