Author Topic: Where did you find out about us?  (Read 13626 times)

Daveman

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Where did you find out about us?
« on: May 24, 2011, 10:28:54 AM »
I'm not going to put a graphic poll to this one, just the question. Help us to understand how best to connect to newcomers.

How did you find out about us?

Thanks.

« Last Edit: May 24, 2011, 05:03:00 PM by Daveman »
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

emi_b

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Re: Where did you find out about us?
« Reply #1 on: May 24, 2011, 10:40:35 AM »
Firstly I've found about POIS on the Wikipedia article about it (last year, 2010, in October, or so I think).
The rest is easy :). I then found the TNS forum.
I have cognitive, psychological and physical symptoms.
I am apologizing for my English if it is unclear.

Vincent M

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Re: Where did you find out about us?
« Reply #2 on: May 24, 2011, 10:43:56 AM »
I found out about the naked scientists forum from a google search for something related to "harmful effects of masturbation" or something along the lines dealing with masturbation. Or maybe it was a search for harmful effects of ejaculation. Something like that, but anyway it lead me to a forum where someone else had linked to the naked scientists forum.

I think google is definitely the best way to try and pull people in.
« Last Edit: May 24, 2011, 10:46:58 AM by Vincent Marcus »
Taking ginger tea, no wheat, fenugreek+green tea/garlic, saw palmetto, niacin, boswellia, huperzine, B complex and nutmeg. See my treatment summary post for more info: http://poiscenter.com/forums/index.php?topic=81.msg3513#msg3513

Ccconfucius

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Re: Where did you find out about us?
« Reply #3 on: May 24, 2011, 08:39:21 PM »
back when it was hard to find the forum  i fround through a a supposed french website on pois, i dont remeber where that website was took me five months, i use prhases fatigue,concentration problems and thinking problems after orgasm or sex on google.

b_jim

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Re: Where did you find out about us?
« Reply #4 on: May 25, 2011, 03:27:13 PM »
From the naked scientist forum, of course :)  ;D
« Last Edit: May 26, 2011, 12:33:39 AM by b_jim »
Taurine = Anti-Pois

Samir

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Re: Where did you find out about us?
« Reply #5 on: June 16, 2011, 10:03:12 AM »
Naked Scientists thread. :)

moe

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Re: Where did you find out about us?
« Reply #6 on: June 15, 2012, 04:50:14 PM »
Did a search to figure out my problem - found naked scientist forum - led me here.  :)

Mishlen

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Re: Where did you find out about us?
« Reply #7 on: July 17, 2012, 06:34:18 AM »
Seems that i got an email through Naked Scientist Forum. Someone decided that i needed to be on maillist?  ;D

Daveman

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Re: Where did you find out about us?
« Reply #8 on: July 17, 2012, 07:22:05 AM »
 ;D  ;D

The mail list will be quite handy as we enter the research phase.

We’ll be using it to get the news out to everybody.

There are almost 500 names on that list now! Probably 50 post, and 150 read the forum. So the mailist will be good for getting important stuff to the rest!
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: Where did you find out about us?
« Reply #9 on: July 17, 2012, 04:49:23 PM »
Seems that i got an email through Naked Scientist Forum. Someone decided that i needed to be on maillist?  ;D

As is standard with any organization, Mishlen, you can opt out of the list and choose to not receive any POIS newsletters and ads. (Your email, however, will never be used OUTSIDE POIS. It is held in strictest confidence).

But it is your decision if you wish to opt out. Just let us know if you want your email removed.
« Last Edit: July 17, 2012, 04:53:14 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Stef

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Re: Where did you find out about us?
« Reply #10 on: July 17, 2012, 09:28:19 PM »
I found out about it when I received an email at NORD about POIS -- from some guy named Demografx.

Stef

demografx

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Re: Where did you find out about us?
« Reply #11 on: July 18, 2012, 07:36:16 AM »
Stef, "demografx" ?? That just doesn't sound like a trustworthy or reliable name! ;D
« Last Edit: July 18, 2012, 07:38:57 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Stef

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Re: Where did you find out about us?
« Reply #12 on: July 18, 2012, 09:47:45 AM »
It was (and still is) a strange name.

And "The Naked Scientists" forum sounded like a prank -- no one at NORD had ever heard of it.

But you called, we spoke, and eventually everything seemed based in reality.

Still does. ;D


The TNS forum has been around for years, poiscenter.com for ~ one year.  I think that once the Indiegogo campaign gets launched (a BIG project to launch), poiscenter.com will receive a good deal of positive publicity.

Stef

Habibou

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Re: Where did you find out about us?
« Reply #13 on: July 19, 2012, 02:04:19 PM »
I wrote on google after many trials :  "exhaustion after orgasm" in french... and then found a forum talking about the name POIS.
I wrote then POIS on google and found the NSF. It was the 25th of October 2010. It changed my way to see myself from someone willingness and desperate for no reason, to someone fighting against everything and never believed while it was a real illness! My family got the same feeling towards me...
Brain fog 90%  + tired all the time ,sport intolerance, fast heartbeat, colon inflammation

demografx

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Re: Where did you find out about us?
« Reply #14 on: July 19, 2012, 03:20:59 PM »
Habibou, we are all very happy you found us!

Demo :)
« Last Edit: July 19, 2012, 03:23:04 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Prancer

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Re: Where did you find out about us?
« Reply #15 on: July 20, 2012, 02:38:23 PM »
Searched in the past for some of the symptoms I have, but did not find anything too valuable at the time. It wasn't until around April 2011 when I discovered an article about POIS. I then searched for "POIS" and found the NSF. I'm so glad I found it!  ;)

Egordon

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Re: Where did you find out about us?
« Reply #16 on: July 21, 2012, 01:42:45 PM »
Quite frankly, it's hard to remember now. I know that I had begun to understand that my symptoms were related to orgasm and had been googling them for the past year. I think I then came across a youtube video that called the condition POIS, and then googled that. And i think the forum was the first thing to pop up.
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

Hoping

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Re: Where did you find out about us?
« Reply #17 on: August 26, 2012, 10:47:30 PM »
from NSF in 2009. I think I came across that via a google search
Experienced POIS since 2002.
My symptoms include: brain fog, depression, physical and mental fatigue, memory problems, social anxiety, concentration problems, myalgia, inflammation.

kurtosis

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Re: Where did you find out about us?
« Reply #18 on: August 27, 2012, 02:44:21 AM »
I saw the youtube video. I had persistently written off the effects I was suffering as something I was imagining or the result of stress. I'd mentioned it to some doctors and they thought I was mad. Seeing that video and discovering the NSF was a revelation for me.

Andy451

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Re: Where did you find out about us?
« Reply #19 on: November 14, 2012, 03:37:22 PM »
I first discovered POIS, though my girlfriend who was watching Conan O'brian and he was discussing Dr. Waldinger's papers in his goofy news segment. Then I searched online finding the Naked Scientists Forum. I later discovered this one though Nick Cannone, FNP, who works with me on my desensitization treatment.
37 yo M- POIS for 25yrs (since age 12). Chronic POIS- always there

Tried desensitization for 1.5yrs & was unsuccessful (POIS worse at 1/1000)

 Exercising- (running/weights/situps) Low sugar diet. Supplements- limited success.Meds- Oxcarbazepine/Buspar (past-Depakote10yrs)