Im not waiting for results. They said they would contact me back in September of 2014 so that I could participate in the study. I live in NJ so I am right near them. They never contacted me like the doctor said he would.
The symptoms I had 20 years ago have gotten progressively worse and for the last 5 years ago I am completely disabled by them. I am home bound and only go out for doctors appts. If I am pois-ing then I must stay in bed for a day or two hardly able to stand. In the last 5 years I have been disagosed with Sjogren's Syndrome, autonomic neuropathy and a bunch of dysautonomias. My main problems is breathing. And I have been to urologist, nephrologist, endochronoligist, 4 neurologists, 8 pulmonologists, 2 geneticists, ent, 4 gastroenterologist (i have ibs, gastroparesis and pancreatitis), and 6 cardiologist.
After POIS is get what almost everyone gets but balls feel like I have a 20lb weight tied to them (after they are numb for a day) (and yes I have had ultrasounds), my brain feels swollen, I can't walk on my feet because my veins are all puffed out and swollen and hard to walk on, i get extremely painful stomach pains, my eyes are swollen like glaucoma, i am too weak to get out of bed, my breathing gets worse, i am cranky as hell for a week, the veins in my inner thighs are sore, my back becomes fragile to the point I can throug it out my sneezing (my whole spine is inflamed and degenerative), my whole immune system is weak and I can get sick very easily. Then of course I get all the usual allergy/flu like feeling too. Im sure I am skipping over a lot like all my dysautonomia are much much worse and if you know about it, it is help
