Jmari,
I for one am very dissolusioned by doctors. I have the same doctor for 30 years. He is generally a good guy, but limited like many general practitioners by the reality that they can't know of every disease. Even the NORD website lists so many rare ones including ours that are being researched.
I am so happy that finally this condition will receive the research it deserves. 3 months back, I had an appointment with my GP for a check up related to an ear problem. I decided to mention POIS. I had previously explained to him and asked for help - about 15 years previously - for exploring these symptoms and their impact on my life, also having previously explained to him in my 20's. That led to my 3 months hospitalization in the 80's with a nervous breakdown in my early 20's. (My heart goes out to guys in their 20's with this. At least I could avoid "O" more as I got older.)
15 years back, my GP agreed to have me referred to a general physician who found nothing physically wrong. They suggested it was depression, but I know that because 3/4 days after "O", my health had always improved significantly, that it wasn't a depression lead, it was depression because of something else happening.
When I then mentioned POIS 3 months back, he pretty much brushed over what I was saying, and I didn't push, as I realise, without evidence, most GP's aren't interested. My prior history of being hospitalized with depression had me boxed off in his mind.
That is what is potentially great about what you have all created through this forum. We are going to hopefully have some evidence for what happens to us at what should be one of the most enjoyable parts of life, but it has had the reverse effect.
Ps, sorry if I am rattling on a bit too much here, but it means a lot to be able to share with folks who understand, when I'd assumed I was alone with this crap. Peace and wellness for the holidays gents!
