Author Topic: Chemo brain test may work for POIS  (Read 3869 times)

Defsync

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Chemo brain test may work for POIS
« on: December 29, 2012, 12:41:16 PM »
CertainlyPOIS on Nakescientists

http://www.thenakedscientists.com/forum/index.php?topic=6576.msg402389#msg402389

brought up some recent research that they MAY have a legitimate test for Chemo Brain using brain scanning equipment. For years Ive drawn parallels between Chemo Brain and POIS mental symptioms.

So I went and found the leading researcher's email: pganz@ucla.edu

Here is the article: http://www.usatoday.com/story/news/2012/12/06/studies-revive-debate-over-chemo-brain/1751841/

I encourage everyone who can type to email Patricia Ganz and ask if she would take POIS subjects to undergo the same testing she is performing on the patients with chemo brain.

I think email is our most powerful weapon. The more emails from SEPARATE people, written intelligently and respectfully, the better chance we ahve of getting a response. I would also mentioned this site, the wiwki site, Dr Waldinger and how this condition is recognized by the medical communty, to add some legitimacy to the mail. Now I asked her to check out this site. If she reads this post (Hello Doctor!) as well as the rest of this site I believe she will see a bunch of guys who are willing to go the extra mile in order to nail down a cure. I even offered to sign a waiver to be cut open for biopsies, even my brain. *I* will do this if it helps all you get closer to a real solution.


Egordon

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Re: Chemo brain test may work for POIS
« Reply #1 on: December 29, 2012, 04:01:33 PM »
I'd just like to say that I don't think email-bombing an esteemed researcher's professional email is the best way to go about this. Sending, maybe, three emails is appropriate. Anything more than that will make us look crazy.
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

Ccconfucius

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Re: Chemo brain test may work for POIS
« Reply #2 on: December 29, 2012, 06:57:58 PM »
the moment she knows about forums she will know where all the emails are coming from so there is no point in bombing.
we should wait to send after mails from excited cancer patients die down.

Daveman

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Re: Chemo brain test may work for POIS
« Reply #3 on: December 29, 2012, 08:58:29 PM »
Bombing will just get us on the black-list as SPAMMERs.
« Last Edit: December 29, 2012, 09:02:24 PM by Daveman »
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Defsync

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Re: Chemo brain test may work for POIS
« Reply #4 on: January 02, 2013, 02:34:23 PM »
well i emailed her.

so if she gets a zillion emails about cancer thats not spam, but if she gets what, ten or twenty about something specific non-cancer related thats bombing? i guess im lost in the math here =)

Daveman

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Re: Chemo brain test may work for POIS
« Reply #5 on: January 02, 2013, 03:27:46 PM »
well i emailed her.

so if she gets a zillion emails about cancer thats not spam, but if she gets what, ten or twenty about something specific non-cancer related thats bombing? i guess im lost in the math here =)

Technically SPAM is unsolicited bulk Email. Most often, those who do it mail in bulk indiscriminately.

So technically we wouldn't be SPAMing. But the keyword is Unsolicited, and a receiver sees it as SPAM becasue he/she doesn't know or see that it is not bulk and indiscriminate.

These people, because they are "famous", receive a lot of unsolicited EMail. They hope their fame of course would attract desired contacts, but, as is the case with most exposed internet   media, they attract 10 to 1 spamm compared to the desired contacts.

Often, these people are also very busy, and so they develop screening methods to filter out the "unsolicited". Some of those are SPAM filters.

But if it is not filtered and somehow gets by, it has to compete with 100's or  more other EMails.

Trying to do do business on a daily basis without spending hours filtering EMails means that most will get missed or whized over.

Anything sent, needs to have JUST the right content in the title and as few words as possible int the body of the message. Each word counts and should be directed at attracting the interest of the reader.

"Please help us", for instance is dropped faster than it can be read.


Also we have found that people who are investigating a specialty like this are MOST interested in the specialty. The desease itself or whatever. If there's anything at all in what we may be suggesting that could "dirty" their project. They avoid it.

We are in POIS. What if someone comes to us with some sexually deviate endeavor (I don't know, as an example)  that has similar neurochemical malfunctions, and wants us to get involved to help them.

We're probably not interested. We're interested in POIS.

« Last Edit: January 02, 2013, 03:32:24 PM by Daveman »
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Stef

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Re: Chemo brain test may work for POIS
« Reply #6 on: January 02, 2013, 07:32:49 PM »
CertainlyPOIS on Nakescientists

http://www.thenakedscientists.com/forum/index.php?topic=6576.msg402389#msg402389

brought up some recent research that they MAY have a legitimate test for Chemo Brain using brain scanning equipment. For years Ive drawn parallels between Chemo Brain and POIS mental symptioms.

So I went and found the leading researcher's email: pganz@ucla.edu

Here is the article: http://www.usatoday.com/story/news/2012/12/06/studies-revive-debate-over-chemo-brain/1751841/

I encourage everyone who can type to email Patricia Ganz and ask if she would take POIS subjects to undergo the same testing she is performing on the patients with chemo brain.

I think email is our most powerful weapon. The more emails from SEPARATE people, written intelligently and respectfully, the better chance we ahve of getting a response. I would also mentioned this site, the wiwki site, Dr Waldinger and how this condition is recognized by the medical communty, to add some legitimacy to the mail. Now I asked her to check out this site. If she reads this post (Hello Doctor!) as well as the rest of this site I believe she will see a bunch of guys who are willing to go the extra mile in order to nail down a cure. I even offered to sign a waiver to be cut open for biopsies, even my brain. *I* will do this if it helps all you get closer to a real solution.



Hello, Defsync and All,

"Chemo-brain" is a very real phenomenon! Breast cancer survivors have talked about it for years -- but it was dismissed by medical science until only recently (but it's not unique to breast cancer treatment or females who have undergone chemotherapy -- men and children also get it). 

So like you men, many cancer/chemotherapy survivors have been suffering brain fog and real cognitive changes that weren't taken seriously by the medical community -- it was thought to be chemo-induced fatigue, rather than possible neurological damage induced by chemotherapy.

I am hoping that "chemo brain" and POIS brain fog are not related -- because it's a serious condition that doesn't always heal.  But there may be some similarities as far as what happens durng POIS brain fog.

Here's a link to a 2012 article abstract on "chemo brain" in children, six years after receiving successful chemo and radiation as leukemia treatment.  Apparently, the thinking is that some chemotherapy and/or radiation therapy destroys parts of the white matter (insulation of the nerves in the brain) -- http://www.ncbi.nlm.nih.gov/pubmed/23154429. The experiments were carried out on lab mice, but the elevated levels of "Tau protein" in the spinal fluid of treated mice were also present in the children six years after chemotherapy.  (Tau protein is produced by the white matter in the brain.)  fMRIs were not used in this study.

Defsync -- it's an interesting theory you've brought up!  Dr. Ganz may have no clue about the cause of brain fog in POIS, as her specialization is cancer inflammation and cancer-related fatigue. But -- she might be able to recommend a colleague (not oncology-related!!!) who has an interest in the cognitive issues of POIS. I hope she replies back to you with some helpful insights.

Stef