Adjunct discussion area for POIS
link here:
http://www.reddit.com/r/POIS/You can also join the POIS skype group. PM me your skype name or add me on skype. my name is:
gilman201
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Hi and I hope that everyone is doing well. Like many others of you I'm still trying to find good treatment for my POIS, and this forum is one of the best/only places to find such information. But again, like many of you here, I deal with very heavy, daily fatigue and I find it quite hard to sift through all of the forum posts. There are 13 categories with a bunch of threads in each, and then within that, pages of individual posts.
Again I think this forum is an amazing resource for getting together and sharing info and organizing, I'm only bringing this up because for me personally it's very, very difficult to go through all of this information post by post and find the info most relevant to me to help me make headway in curing my POIS and get my life back together, as I'm sure everyone else on here is trying to do. I just want to make this easiest on everyone as this is so important to all of us of course. I sure we would all read every single post if we could to find that gold nugget of information that might help up cure our POIS, but we can't especially with the fatigue that many of us share.
So what I'm suggesting is maybe having a secondary discussion area of our own on reddit.com where people can get a quicker, easier to read, digested version of the activity on the forum. When you make your own section on reddit it's called a "subreddit". All of the posts are in one single easy to read stream so people can get the most important information quickly.
Another useful function is the upvote and downvote function, so POIS sufferers can push the posts that they think are most helpful to the top and give them the most visibility. Users can post both links and text posts, and there is a comment section for each post where users can even upvote the comments that they find most helpful. I think this would be great for us so users could very quickly find helpful information to help them best cure their POIS and help others do the same.
As a reminder reddit.com is website that hosted user mellivora's AMA (online Q&A session about POIS) which helped not only raise more awareness about POIS, but it also pushed us to and above the $33,500 donation threshold for the NORD grant and made the exciting research that's happening today possible.
http://www.reddit.com/r/IAmA/comments/rge55/i_am_a_guy_with_a_rare_sexual_illness_its_so/ It was also where I did a 2nd POIS AMA a couple years later.
http://www.reddit.com/r/IAmA/comments/2go51d/iama_guy_with_post_orgasmic_illness_syndrome_ama/I've already secured the URL
http://www.reddit.com/r/POIS/ which is obviously not active yet, but you can check out how reddit works by clicking through and going to the homepage, or checking out one of the subreddits such as this one,
http://www.reddit.com/r/medicine. Obviously I would add all the current mods here as moderators there, and probably remove myself as one.
What do you guys think? Again I don't want to replace this forum completely and of course I appreciate everyone who made the poiscenter forum happen, it's just a suggestion as an addition resource for POISers.