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Author Topic: This is debilitating  (Read 2495 times)

Disaster

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This is debilitating
« on: June 11, 2013, 12:48:28 AM »
I don't know what to do I've had this for around 20 years. At first it was just soreness and fatigue and caused me to have a degenerative back and never play sport again. Now it is causing me a crazy amount of testicle soreness, fatigue, irritability, stomach pain, leg and heel pain, chest pain and breathing problems. I found out I have autonomic neuropathy with a skin biopsy and might have Sjogren's syndrome as I had a positive lip biopsy for it. But I also have major breathing problems.

Nothing is helping me and I don't know what to do anymore.

Are there any specialist in the ny,nj or philly area? I have been to a local urologist a few times and they have no clue. My psa was normal. Had 3 testicle ultrasounds which were normal. Idk what to do. Insurance keeps denying me IVIG..
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POIS sufferer for over 3 decades. Has progressively gotten worse over the years and I became completely disabled around 2011. My case of POIS is very severe.

Vincent M

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  • Physical overshadows cognitive symptoms. 10yrs.
Re: This is debilitating
« Reply #1 on: June 11, 2013, 12:30:51 PM »
I think there were one or two doctors in that area who were willing to treat POIS, but I'm having difficulty finding our list of POIS doctors. The member named "demografx" may know.
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Taking ginger tea, no wheat, fenugreek+green tea/garlic, saw palmetto, niacin, boswellia, huperzine, B complex and nutmeg. See my treatment summary post for more info: http://poiscenter.com/forums/index.php?topic=81.msg3513#msg3513
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