Post Orgasmic Illness Syndrome (P.O.I.S.)

POIS Life Style => Lifestyle Diary and POIS Summaries => Topic started by: emi_b on April 17, 2011, 06:55:07 AM

Title: Personal POIS Summaries and Histories.
Post by: emi_b on April 17, 2011, 06:55:07 AM
Topic purpose:
   To collect personal summaries and histories regarding POIS.

Posted cases (in the order of posting date):
 1. cornelius (http://poiscenter.com/forums/index.php?topic=81.msg710#msg710)
 2. Bulls eye (http://poiscenter.com/forums/index.php?topic=81.msg1657#msg1657)
 3. Egordon (http://poiscenter.com/forums/index.php?topic=81.msg2065#msg2065)
 4. Daveman (http://poiscenter.com/forums/index.php?topic=81.msg2077#msg2077)
 5. ...

Note:
Title: Re: Personal POIS Summaries and Histories.
Post by: Bulls eye on June 28, 2011, 07:33:06 AM
I want to start by saying i cant believe that i actually met people with the same problems that i have i thought i was alone , it sure is helpful to know that the problem has some form of acknowledgment  , I hope you all the best

It all started right after puberty at age 15 , my symptoms are strictly cognitive ,  i remember before pois all my teachers used to say  that am the smartest kid they've seen , i never actually had to study for my exams and have always been the top of my class , i remember the symptoms started at the first year of what you call high school , i managed to get by a B average , which was very hard for me to achieve during my first experience with pois , i am still very depressed , the most valuable asset i had was my IQ , till now i dont really care if i live or die  , i feel that i have nothing to achieve. i have no self esteem .

The symptoms are almost exactly like Cornelius , especially the part about full night sleep would worsen the severity of  pois .

I'm currently 23 ,  i'm afraid to get in a relationship for the obvious reasons, i'm having trouble trying to find a job that suites my condition , am also having problems writing about this in details currently because of pois
 
Title: Re: Personal POIS Summaries and Histories.
Post by: emi_b on June 28, 2011, 08:08:20 AM
Hi Bulls eye, and welcome to this forum.

Yes you are not alone, that's what I also felt when I found this disease, and that there is a forum to discuss this.
I also felt that one of mine abilities was affected (to think), and for a person who relies on this, it is like a sportsman having a injury, which make him unable to do sport for some time.
Good things are happening now in the world of POIS more than anytime, stay close to this community, and also try to find a doctor whom is willing to listen and understand you. This is a curable condition, a recent study proves, and doctors are begining to to more resarch on to this

Best wishes.
Title: Re: Personal POIS Summaries and Histories.
Post by: Bulls eye on June 28, 2011, 08:29:57 AM
Thanks emi_b , well i'm very much willing seeking any professional  help , but i dont think there are doctors who are understanding of new illness where i live (middle-east) , currently  my best hope is staying close to this wonderful community  :)
Title: Re: Personal POIS Summaries and Histories.
Post by: Bulls eye on June 28, 2011, 06:21:52 PM
Does anyone know any medical tests that i can have ?
Title: Re: Personal POIS Summaries and Histories.
Post by: Observer on June 28, 2011, 06:46:13 PM

I'm currently 23 ,  i'm afraid to get in a relationship for the obvious reasons, i'm having trouble trying to find a job that suites my condition , am also having problems writing about this in details currently because of pois
 

All i can say to you is that the remedies to alleviate the symptoms that i have found here have allowed me to enter in a relationship; this would have been impossible if i wouldn´t find this page. I wish you the best.  :)
Title: Re: Personal POIS Summaries and Histories.
Post by: Samir on June 29, 2011, 12:21:28 AM
Topic purpose:
   To collect personal summaries and histories regarding POIS.
Note:
  • Eeach summary should have only one post
Do you have a suggested format for each summary?  I think all of us should do this, so we have a complete record of our condition.
Title: Re: Personal POIS Summaries and Histories.
Post by: Egordon on July 24, 2011, 09:56:55 AM
Hi Guys,

Intro:  I’ve had POIS for about the last 6 – 7 years. I’m 26 now and since graduating from university I’ve become more interested in diagnosing and finding a cure for this disorder, as it’s become something of a barrier to my professional development. I’m sure many of you can relate. My symptoms have been pretty intense for the past few years as I generally have a very active libido and spent much of them orgasm-ing once or twice a day. Fortunately, my symptoms aren’t especially severe – I have fairly intense “brainfog” and fatigue but very little in the way of pain, insomnia, swelling, etc. It takes me about 4 days to recover from orgasm.

Symptoms:

Cognitive issues: I’m a very intellectually engaged dude and regularly participate in the sorts of activities that typically allow one to develop a strong memory (reading, analysis, writing, some puzzles, etc.) but for years have had trouble remembering JUST ABOUT EVERYTHING. This problem is especially severe for me: I used to have trouble remembering things as simple as my birthday, what my “life story” is, or what I was saying/thinking of a few seconds ago. When suffering from POIS I also have a lot of trouble recalling the correct words and organizing my thoughts – which is a huge problem because my writing ability is really my only marketable skill. In turn, the difficulties I’ve had thinking have made me somewhat socially anxious, as it’s hard for me to recall the sorts of things that make for normal and interesting casual conversation when suffering from intense brainfog.  This anxiety is reduced by about 70% when I’m able to think clearly – when I’m not under POIS, that is.

Fatigue: When suffering from POIS I lack motivation completely and performing the most basic mental functions wears me out. (I’m especially interested in this symptom, as it (-- like many of my cognitive-related symptoms --) doesn’t go away entirely even once POIS has subsided, which leads me to think that I may have Chronic Fatigue Syndrome and that POIS exacerbates the problems that I normally have to a slighter degree. I’ll start a separate thread for this, but how do you guys feel about this theory? Do you retain traces of your symptoms when not suffering from POIS?)

Head/Eye pressure: After orgasm I get a great deal of pressure in my head and especially my eyes. The pressure is so intense that it leads to the partial closure of my left eye for about 2 days after O. I’m a little photosensitive then too. This makes seeing things slightly more difficult but I still retain 20/20 vision (I’ve been tested multiple times) (I’ve also had my ocular pressure tested and been told that it’s completely normal). It’s mainly just incredibly uncomfortable. When I was a teenager, on the other hand, my eye problems used to be incredibly severe. After O, as I was lying in bed trying to fall asleep my eyes would squeeze the pressure or inflammation or whatever out of themselves for about a half hour. This would happen every night (ah, teenage hormones) and was incredibly painful. It was later diagnosed by a clearly nonplussed doctor (wrongly, I believe) as a migrane…

When under POIS this head pressure also gives me a weird, congested feeling in my head. I just feels like my sinuses and all the other chambers, pockets and passages in my head that should be open, have been closed up.

Muscle Tightness: After O muscles in my neck and shoulders remain tight for about 3 days. They used to be so tight that it would cause pain and require constant stretching but (as I’ll discuss in a minute) breathing exercises have significantly alleviated this problem.     

Things that help:

Diet: Cognitive dysfunction has always been my biggest difficulty and diet has helped some. I’ve found that it’s really important to ensure that you’re getting enough water and enough iron as water REALLY impacts your mental clarity and iron-levels are a major determinant of energy-levels. Again, these haven’t made my POIS go away, they’ve only made some of the symptoms less severe. I want to experiment with diet more, as it seems a fruitful and somewhat unexplored aspect of this disorder – especially if you believe, as I do, that there may be a link btwn Chronic Fatigue Syndrome (which many people say is caused by yeast-levels and mitigated by elimination diets) and POIS.  (I should also mention that I think my POIS 1st began to get bad after I stopped using antibiotics to eliminate acne.)

Meditation: Let me start by saying that I’ve been addicted to porn since I was about 17. As a result, I’ve had really disruptive POIS just about every other day since my teen years. Recently, though, I’ve begun to meditate and found that it helped my POIS in a few MAJOR ways. First off, the relaxation and focus associated with meditation has really allowed me to control my mind a lot better and veer away from sexual thoughts. This, naturally, has allowed me to significantly reduce orgasm and POIS. If there are any other individuals that have struggled with hyper-active sex drive and porn-addiction out there, I really cannot say enough about the benefits meditation! You all should try it! Furthermore, I’ve found that breathing meditations – which require the meditator to focus exclusively on her/his breathing for a significant amount of time – have really helped reduce the mental clutter and achieve better focus.  This, in turn, helps with motivation and workplace productivity. Lastly, I’ve found that meditation more or less eliminates the neck/shoulder pain and tension I was experiencing, probably by helping me relax. (As I said, I’ve become kind of anxious because of my difficulty with memory and articulating my thoughts when under POIS. Meditation helps A LOT with this.)

..so essentially I’m a meditation freak now.

Things I’ve tried that haven’t really helped:

-Anti-inflammatories: Although these help somewhat with the head/eye pressure, they don’t do much for my other symptoms

-Marijuana: Yep, as a long-time Californian I can say that I’ve “self-medicated” with this quite a few times. It too made my head/eye pressure and muscle pain less noticeable but (obviously) made cognitive problems way worse.

-Muscle relaxers: Was prescribed these by that doctor that diagnosed my head pressure as a migrane. They did very little for me.

-Claritin-D: This is a histimine-blocker and as many people seem interested in them on this site I feel obliged to address my experiences with them. I took Claritin-d for about 1.5 years after a sympathetic doc diagnosed my pressure as sinus congestion. I remember it helping somewhat – probably because when I get POIS I feel like all the chambers in my head close up. So the Claritin probably helped my sinuses open up a little. The gains weren’t especially large though (and only the congested/tight head feeling was impacted) and I ultimately discontinued use.


Sorry for writing so gosh darn much and thanks for accepting me as a member of your board!
Title: Re: Personal POIS Summaries and Histories.
Post by: Green on July 24, 2011, 12:45:44 PM
It's extremely invigorating to see how similar we all are in terms of personality, when I read some of the posts above it felt as though I'd typed them, myself.

I'll also do a write up very soon, once I'm out of this POIS haze.

Thank you for the above writeups, it truly makes me feel I'm not alone with this.
Title: Re: Personal POIS Summaries and Histories.
Post by: Daveman on July 24, 2011, 06:42:52 PM
POIS Summary Daveman

Intro

Well, I feel like I'm repeating, but all the more reason to put our summary here. We can come here if we want to know if someone is "in the same POIS group", or when we need to tell someone about our history, instead of repeating it in a million parts of the forum, we can refer to this post.

My POIS started late, maybe about 6 years ago, I'm 62 now, although I really only came to understand that the symptoms were related to orgasm in the last 2 or 3 years.

I believe my POIS started as a result of a vasectomy reversal about 10 years ago. I had a vesectomy when I was about 22.... I had had my two daughters and my wife (EX) had a difficult time with both, needed induction and had bleeding and stuff.. so I decided to shut down the factory.

No problem, in fact had a great time!!

Then with THIS marriage, my wife was still young enough to have children, and really wanted them so we tried a reversal. I was 50 ish, so had had the vasectomy for about 30 years. The urologist that did the reversal told me that my chances of having children would be quite low, the main reason was that I had developed antibodies to sperm and once I had the reversal, that these anitbodies would destroy the sperm.

He indicated that the autoimmune battle could also probably effect the vas and epydidimis, therefore closing the pathway that he would be opening with microsurgery.

But after the operation, and for a good 4 years, although I was still sterile, I was healthy. Sperm counts showed sperm, but they said it looked like a war zone. Most were DOA, many crippled and the rest were few.

But the autoimmune battle took it's toll.

I am certain, that each orgasm releases the sperm into the beaten up tubes, another battle begins, and the type I reaction leads to the type IV reaction, just as Dr. Waldinger suggests.

Symptoms

Physical

I have mostly physical symptoms.


Next day - Day 1

Day 2 to Day 4:
Physical problems give way to cognitive problems

Day 5 and beyond, can vary from 5 to 10 days
Title: Re: Personal POIS Summaries and Histories.
Post by: Vincent M on December 15, 2011, 07:14:32 AM
                                Vincent M POIS Treatment Summary

Age: 28 Height: 5'6" Weight: 130 to 145 lbs Ethnicity: 50% caucasian(German-English), ~40% Hawaiian, some japanese, bit of hispanic.

I learned how to ejaculate at the late age of 17 years old. Prior to this age I was in excellent physical condition and was a formidable athlete. 

Ejaculation frequency: Once a night. Without using willpower I have about 3 or 4 ejacs a day.

I believe my POIS symptoms are most likely caused by inflammation due to an allergic/autoimmune reaction to some component of my semen triggered by ejaculation or from hormonal/neurotransmitter imbalances. Could also be an immune reaction to an infection of the prostate or something else in the seminal fluid.

POIS symptoms: My symptoms include burning eyes, back pain, extreme physical & mental exhaustion, joint pain, weaker skin(cut/bleed easier shaving), dry skin, bloating, fat/puffy face (feels like my face is falling off my skull sometimes and as if there's a film of plastic between my flesh and bone), itchy anus, pain during urination and bowel movements, general and social anxiety, weak blood circulation (limbs get cold fast and fall asleep easily), increased sensitivity to any pain or irritation including noise & temperature, decreased memory, decreased thought speed, and decreased ability to hold multiple thoughts in my mind simultaneously, thinning hair, premature ejaculation, unstable emotions, feels like not enough blood is getting to my head,  and probly a few others I haven't noticed yet.

Symptom onset is immediate after ejaculation and lasts for approximately a week.

These symptoms caused me to drop out of college and become almost completely bed-ridden (before I found the following meds/treatments).

Wheat Intolerance: Cutting out wheat improved my symptoms more than any other remedy. When my symptoms first began I noticed some bloating. I now believe this was inflammation of my intestines, which lead to impaired digestion and malabsorption of nutrients. Since I cut out wheat(perhaps gluten) my symptoms improved greatly, but I developed a flatulence problem. Then I cut out most fiber and animal products, which helped decrease the gas. Now I eat mostly potatoes, white rice, oatmeal, beer, and most fruits and veggies.

Ginger Tea: I boil ginger in a tea pot for 20 minutes and then drink it. It is the second most beneficial thing for my POIS after cutting wheat out of my diet.

Fenugreek(crushed seeds)+Garlic/Tea: Also known as methi seeds. For fenugreek I've found two different brands to work for me so far: Solaray and Nature's Way. Those are the only two brands I've tried so far. I take three 620mg fenugreek capsules every morning with tea to further help me reduce the POIS inflammation from the orgasm I usually have every night. Taking the fenugreek with tea or garlic seems to be the only way fenugreek really works. Drinking green or black tea right after taking the herb works better than garlic for me. I take the fenugreek in the morning, because if I take it at night I won't be able to fall asleep due to the energy enhancement it gives me. This has been reliably improving my symptoms for over a year and has been my most effective treatment. I've recently ordered 1 pound of crushed fenugreek seeds to save money and have been taking about 1/4 of a teaspoon with green tea every morning. Seems to work just as well as the capsules.

Saw Palmetto: The saw palmetto (swansan brand) reduces POIS inflammation in a similar way to fenugreek, but I take one 540mg capsule about 15min before my orgasm since it doesn't affect my sleep. Saw Palmetto helps my lower body and joint/muscle inflammation mostly while fenugreek helps my facial and brain inflammation more. I believe saw palmetto helps stop the inflammation at the point of the initial allergic/autoimmune reaction since it is well known to reduce inflammation in the groin region. I also think this because after I started taking saw palmetto I no longer had any pain during urination or bowel movements. In this way it is best taken 30min to 15min before an ejac. This is my second most effective treatment.

Huperzine: Been taking two 100microgram tabs for the past weeks every morning with green tea, a bit of fenugreek powder, and green tea. I've noticed a steady improvement in my memory, cognitive function, and both cognitive and physical energy-The effect is small, but noticeable. While taking this I remember my dreams in more detail than I have since getting POIS and going by this measure I would say it improves my memory more than any other treatment I've tried except concerta and coffee.
If I take 200 micrograms a day of huperzine I'll notice the effect in 3 or 4 days in the form of more vivid dreams and improved memory. One odd thing that happened was a couple days after a week of somewhat heavy alcohol drinking I tried taking 200mcg of huperzine, but it caused nausea and a bad headache for a whole day.

Chocolate: After a few days of eating semi-sweet chocolate chips my energy levels skyrocketed. I know some of this was from the small amount of caffeine in chocolate, but I regularly drink tea and coffee so there is something else in chocolate that has a dramatic effect on my POIS symptoms. Under ingredients these are listed: Chocolate Liquor, Sugar, Soy Lecithin(as emulsifier), and Vanilla.

Cod liver oil capsules: Great source of vitamin D, which is why it's different than normal fish oil capsules. The vitamin D is probably more bioavailable than the tablets. Good if you don't get much sunlight and/or have darker skin.

Peppermint/ginger/fennel oil capsules: Aids digestion a lot and makes my burps and farts smell less.

Cannabis: For the past few months I've been smoking marijuana before my nightly orgasm and it seems to relieve a lot of my physical symptoms. It also aids digestion, but makes me more horny the next day.

Phosphatidylserine: One 500mg Source Naturals brand capsule relieves some cognitive impairment from POIS.

Nutmeg: Remember nutmeg can cause death in higher doses. Tried it for 3 days and it reduced my POIS significantly although it is not as effective as my other meds. I take 1/4 or 1/2 of a teaspoon of ground nutmeg in the morning with milk and that protects me from the worst of the physical and cognitive symptoms, but it also seems to make me sleepy and unmotivated. I find that it works well if I have nothing to do and if I have time to just sit around the house for a few days surfing the web.

Claritin: (An antihistamine). For about a month I took the generic version of Claritin (Loratadine) to reduce my POIS symptoms. One 10mg pill would protect me from a good amount of my physical symptoms and maybe some of my cognitive symptoms from an ejac for about 3 nights. Since I have an orgasm every night this meant I could take one pill and be protected for 3 nights. If I took another pill the second night I would get a headache the day after.

Benadryl: (An antihistamine). I take the generic version of benadryl (diphenhydramine) just cuz it's cheaper than the brand version. I picked some up at at my local pharmacy for like $5 for 20 pillls 25mg each just to try it out. I find taking a single 25mg benadryl pill about an hour before an orgasm prevents much of my physical POIS and some of the cognitive symptoms of POIS. I recently tried taking three 25mg benadryl pills and I believe I felt even better the day after the waking up from the nightly orgasm. However I now think that much of the benefit I get comes from better sleep quality after taking this.

Clonazepam: Warning-High potential for tolerance and addiction. Vaporizes social anxiety within 1 hour after taking a dose. I take 2 to 3mg about an hour before work and it makes going to work just about bearable. The only side effect I've had is that if I overwork my body while on it my pain will be worse after it wears off than previously. It actually gives me more energy and increases my cognitive and motor functions and reduces physical pain to a significant extent.

Niacin: I can get a flush with 200mg of plain nicotinic acid if I don't eat anything about 10hrs before. If I orgasm about an hour after taking the niacin as the flush is starting to die off then go to sleep I'll wake up the next day with vastly less physical symptoms than normal. It eliminates about 70 to 90% of my physical POIS symptoms. I'm still unsure of its affect on my cognitive symptoms. Capsules lose potency within weeks/months, perhaps not as quickly if stored extra carefully.

Concerta: This is extended release Ritalin. Took it for ADD, but I found it to enhance my cognitive energy and ability only if I took it about once a week.

Coffee: Improves energy and cognitive function, but makes me urinate too much to use if leaving the house and irritates my stomach lining.

Mucuna Pruriens: 350mg. Improves energy and cognition slightly and improved my eye burning moderately. Noticed stronger heart beats after about a week daily and taking that into account it's possible that the beneficial effects for me are from improved blood circulation. This increased heartbeat lasts for roughly another week and is annoying because when I lay down I can feel my heart beating in my chest without putting my hand to the area. Due to this I now think that tyrosine might be a better option to increase dopamine levels. If I took it again I'd take only 350mg daily for three days and monitor my heart for the following week before taking any more just to make sure. I've never had any problems with my heart before so it made me sort of concerned.

Cayenne pepper: Improves all symptoms to a similar extent to garlic.

Highly Bio-Available Vitamin B Complex: Seems to improve physical pois symptoms and muscle strength slightly. See this post for specifics about the B complex I took: http://poiscenter.com/forums/index.php?topic=468.msg8715#msg8715

Acetyl L-Carnitine: Helped a little less than the b complex. Starts working after several days at 500mg twice daily.

Carrots: Eating one carrot a day improves my cognitive function a barely noticeable amount. Doesn't work as well as the other supplements.

Boswellia Resin: Improves scalp itching and perhaps joint pain.

Fish Oil Capsules: Decreases eye burning slightly.

Salt Water: Relieves a tiny bit of my eye pain and may improve cognitive function. A small spoon of iodized salt mixed into a glass of water.

Ginkgo: Seemed to improve cognition slightly on a few occasions, but I need to test it more to be certain.

Vaseline, tiger balm, pain relieving creams, olive oil- Helps joint pain and eye burning (via moisturization)

Leave-in-Conditioner- Helps scalp irritation

Mid-day Nap/ Meditation- Helps fatigue later in day.

Avoiding electronic entertainment or any activities that cause high pleasure spikes: Helps balance my emotions. For example if I watch a movie early in the day I will be less motivated to perform chores or less pleasurable productive activities because those activities will seem much less enjoyable compared to the movie.

Avoiding any computer screen 2 hrs before bed: Helps induce sleep. Reading over boring material during these 2 hrs helps induce sleep.

Bread & butter: Right before bed, helps induce sleep.

Milk: Right before bed, helps induce sleep.

Walking/Light exercise: If done early or mid-day helps induce sleep later that night.

Brief Cold exposure: Walking outside in winter in a t-shirt for 10-15min or taking a cold shower can induce alertness and reduce libido. It might also reduce inflammation cuz alternating hot/cold is known to have that effect.

Method used to stop pulling hair out of head: Stretching my toes apart & massaging my feet is equally pleasurable to pulling hair out of my head and keeps my hands busy.

These meds/treatments have transformed me from a bed-ridden near-vegetable in constant pain into a fairly capable person with a high energy demanding convenience store job(which I've since quit after working there for 2 months).   If you have any further questions I'd be more than happy to help out any fellow POIS sufferer.

Elevation?For the past 11 months I've been working at a place that is at an elevation of 10 meters, while I've been living at an elevation of 306 meters for the past 7 or 8 years. I work 8 hour shifts 5 days a week and over this time I've been working there I've noticed a steady improvement in my health. At my previous job located closer to home I only lasted 2 months due to developing unbearable back pain. My current job isn't any easier on my back except that we stand on cushioned mats, but I doubt that would make such an extreme difference.
Throughout highschool I was at 131 meters and an hour further north than where I now live. The first few years after I moved to a higher altitude my health worsened and then seemed to balance.
First college was 79 meters. I didn't live on campus there, but I noticed I felt a little healthier while I was attending classes there. At the time I thought the ~40 minute drive was somehow good for me.
College was 500 meters. While I lived on campus there my health noticeably worsened a lot. It was also a few hours further north though.
http://veloroutes.org/elevation/

Unhelpful Treatments:
Fluoxetine(Prozac): Just made me tired and lose hair. Increased all POIS symptoms slightly.
Venlafaxine(Effexor): Caused fatigue, bone pain, heart pain, and knee pain. The other side effects resolved, but my knees still hurt years later.
Neem: Took one capsule for almost 2 months with no effect.
SLIT: Lazy version in which I just held pure semen under tongue for 5 min and swallowed. About 3 months almost every night. No effect.
NSAIDS/Tylenol: Zero effect.
Valerian: Didn't decrease my anxiety or help me sleep. No effect.
L-theanine: No effect. ~10 separate occasions.
Sublingual Gaba: No effect, but only tried a few pills.
Zinc Gluconate: No effect. About ten separate occasions.
Kava: No effect. Only tried a few times.
Gotu kola: No effect. 16 day trial of 100mg-200mg daily.
Damiana leaf: No effect, but only tried a few caps.
N-acetylcysteine(NAC): No effect. 14 day trial of 600mg-1200mg daily.
Vitamin D3: No effect. ~1-2 month trial.
Methionine: 500mg once a morning for 6 days seemed to make symptoms slightly worse.

Look for further updates in the future.
Title: My Treatment So Far..
Post by: Jon on January 08, 2012, 02:14:02 AM
Hey guys, If there is already a topic for this post pleast feel free to move it. I did look and couldn't find it so thats why I'm making this a new topic.

Thanks to fellow member on the Naked Scientists Forum, Kurtosis, i have experienced some relief and for the first time in a couple of years I have felt alive. Mind you my problem is constant, Mainly cognitive but the physical is there. Here's what I'm taking:


Before sex:
200mg Niacin

After sex:
1000 mg chlorella
1000mg Vitamin C

Every day:
1 multivitamin every morning
Fish oil throughout every day
Vitamin C - 1000mg every day
ZMA - Before bed

Once a week:
Chlorella - 1000 mg

I have only taken these products for a few days but I have felt alive for the first time in years. My ocgnitive functioning was so bad that psychiatrists thought I was a schizoprenic. Couldnt even go to the store without extreme confusion and paranoia. I have been able to start to get active in the past few days and it feels great.

I also ordered Lecithin, Folic Acid, Spirulina, Olive Leaf Extract, And Saw Palmetto in pill form but have yet to try them. If anybody has had positive effects from these and thinks that may be worth taking please let me know.

I am hoping that this is not just placebo and that this continues !
Title: Re: Personal POIS Summaries and Histories.
Post by: fsol on January 08, 2012, 02:04:05 PM
Hey guys, this is my POIS diary. Some of this is a repetition from another post but I thought I might as well post it here.

Introduction:

I'm a 33 year old male from Denmark. I have a pretty normal sex life, with many different partners over the years. I have no medical conditions otherwise and never had either. For years I've felt this very strong fatigue after having an "O" but I always figured that was just how it was. Who could I ask about this anyway? Someone told me that having an O is like running a 10k race.. But for me it's not just a saying, it's literally how I feel.

The last year I've started to become more and more aware of it. I've had a partner for the last year and every time we've had sex I've been totally drained the next day. If I had a bad sleep (which you can often have, sleeping next to someone else), it's been even worse. Some people here describe it as being hit by a bus. For me it's more like being hit by a minivan.. I have a heavy brain-fog and I look really tired. The muscles around my eyes and my cheeks are for some reason relaxed so I have almost saggy eyes often with a slight dark area underneath them. My muscles are also sore, mostly in the lower part of my body, my hips, lower back and my thighs being hit the hardest.

Energy-wise I feel that I have very limited energy for the whole day. In my mind I'm trying to conserve that energy by making plans like - should I drive all the way there or not? Then I might not have enough energy for the way back.. and so on. And when my energy is about to go in the red, things get really bad. Especially because I can get a bit irritable, so I often just pretend that everything is fine and try to make it through the day without my partner noticing. She sometimes comments that I look tired though, and I know I do.

The same goes for when I have an O by myself. I can literally decide if tomorrow is going to be a crap day or not, by deciding to have an O or not. If I do, I can be sure to wake up without any energy at all, and my head in a light to medium brain fog..

My symptoms mostly only last for a day, but I can definitely feel them stronger if I have O's two days in a row. With abstinence the symptoms disappear.

Treatment:

After finding this forum, I've read a lot about different kinds of supplements and I've received a lot of great advice from fellow members. I'm very thankful for all this help. Here is what I've tried so far. I will keep updating this post in the future as my experiments progress, it might be useful to someone.

1st time:
Took 10mg Claritin 10 Mins before O at night. Slept 8 hours, bad sleep. No effect on POIS at all the next day.

2nd time:
Took 2 x 10mg Claritin and 50mg of Suhagra (similar to Viagra) at night on full stomach. Felt a little drowsy as it said on the Claritin package I would. Had O around 30 mins later. Slept 10 hours, average to good sleep. Next day, POIS was around 40% less.

3rd time:
Next evening took 2 x 10mg Claritin 5 mins after O. The day after, 40% less POIS. Maybe it was the Claritin of the previous night that was still working.

4th time:
Took 2 x 100 mg niacin. Waited until flush and then 10 mins more before O. Bad sleep, 7.5 - 8 hours. No noticeable effect the day after.

5th time:
Took 2 benadryl, 3 fenugreek and 1 saw palmetto. Waited 1 hour and then had O. This was daytime and I was not able to rest after that. Felt very tired after that and had to sleep a few hours later in the day. Later that night, O again, without taking anything. Next day was very heavy, brain fog and tired but not quite as bad as in the past where I didn't take anything.

So as you can see, so far I haven't had any real breakthrough. Claritin has worked somewhat for me, but I will keep experimenting with Niacin, since a lot of people have had a good results with that.
Title: Re: Personal POIS Summaries and Histories.
Post by: Suppertime on January 25, 2012, 01:04:32 PM
Introduction

I'm a 23 year old chinese male, who just recently became a man/lost his virginity. I've had girlfriends, don't get me wrong, but after masturbating since I was 13, and had symptoms since I was 16. Back then, I didn't know what was causing my malfunction. I always suspected it was something I was or wasn't doing spiritually, I was a strange kid. I never suspected that ejaculating was causing it. Just recently I found out this forum and the term. So thank you.


Symptoms

Almost 30 minutes after ejaculating, I would feel a large overwhelming warmth, yet it's a hollow warmth - almost like I'm a tiny and and someone is putting a jar over me. Pain overwhelms me in the stomach area, possibly my Prostate. With the pain occurring in my abdominal area, it would give me a slight migraine. But piercing enough that it limits my cognitive abilities. I would have a hard time concentrating in a conversation, recalling memories, and even thinking of words. I felt like a poor 10 year old trying to talk to the King. So this took a toll on my confidence for many many years.

Relationships

Because of those symptoms, I lost many girlfriends. I wouldn't be able to tell them how I felt about them. I would become irritable and angry, but because of my personality, I wouldn't tell them that I was angry. I would hold it inside until the point where I couldn't look at them anymore. I avoided them, they avoided me, it was a high school mess (actually, that was in hs).

Treatment

I went to my urologist, had a prostate exam: the exam itself was painful, especially when he came in contact with my prostate. There shouldn't be any pain.

He prescribed me:

Ciproflaxacin, an antibiotic. It didn't help.

Flomax. Used for enlarged prostate. At the time I was using B Vitamins and I think it helped a little. It initially helped A LOT, but I think that was placebo, as it doesn't work anymore.

Stopped seeing him for a while. Mostly because I've given up.
Title: My own experience
Post by: anon80 on March 04, 2012, 10:52:10 AM
Hi,

I've been suffering from POIS symptoms (90% on the list) for over 15 years. I somehow always suspected it was linked to O, but this just didn't make any sense, so I've never mentioned this to doctors. I've finally googled today my symptoms + O and realised that there's something called POIS. Wow! This really explains a lot now, especially that I've gone through extremely extensive tests with everything NEGATIVE and I'm in overall perfect health.

I thought maybe I'll share some experience in dealing with symptoms. I've found that the following seems to help me:
- Vitamin supplement complex really helps (someone mentioned Centrum, which also works for me), but so far I haven't tracked it to one specific Vitamin that helps,
- Getting more sun seems to help - probably linked to Vitamin D,
- Isoprinosine, seems to work extremely well, but I never took it for too long - this would also link the POIS to issues with immune system;
- Humid air - I actually permanently moved from Europe to tropical country as I could not stand dry winter weather, my eyes would feel terrible and nose could even bleed; I feel much better if humidity is over 70% and I try to avoid air conditioning
- Sunglasses - POIS really affects my eyes

I'll surely try some of the remedies mentioned here.

Thanks!
Title: Re: My own experience
Post by: Daveman on March 04, 2012, 03:01:08 PM
Great anon80. Welcome. Sure hope we can help.

Although we haven't found a cure, we get closer day by day. We have begun a program to do some real medical research through NORD, the National Organization for Rare Disorders.

We have two main treatments that help greatly, but not for everyone. I myself consider myself practically POIS free now with niacin. You can see lots of stuff about that in the Xanthiol Nicotinate (http://poiscenter.com/forums/index.php?topic=174.0) thread. Xanthiol Nicotinate is an injectable and enhanced form of niacin, but we have since found that niacin by itself is just as effective, doesn't require injection and much more available.

Our co-moderator Demografx has very good success with testosterone. It's a little more difficult to get perscriptions for "T", and there are certain precautions that need taking, it's not for everyone, but both of these methods provide more insite into what POIS is, and may eventually lead to an ultimate cure.

You'll see lots of other stuff here as well so dig in. Feel free to tell your story, share your ideas and become part of the group.

Title: Re: Personal POIS Summaries and Histories.
Post by: anon80 on March 04, 2012, 10:36:18 PM
Thanks for the info!
Title: Re: Personal POIS Summaries and Histories.
Post by: b_jim on March 23, 2012, 02:03:14 AM
Introduction :
I'm a 33 old year male from France, caucasian.
I started masturbation at 14 years (1 a day at least). My symptoms started before 15 years but not after each orgasm, mainly cogntive. At 16, I get the symptoms after each orgasm and I get some flu-like symptoms (mainly warmth, knee pains/joint pains years later)
Now my orgasm frequency is once a week.

Symptoms :
Before 2008 : 3 or 4 days after ejaculation.
In 2008 year, a french friend give me an important advice. I stopped to eat sugar and I reduce bad carbohydrates. I try to eat more healthy and to avoid glucose spikes.
It make a HUGE difference in my Pois. 4 years later I can conform it was the most important thing in my Pois by far. No placebo effect.
I had especially strong typical diarrheas 3 or 4 hours AFTER each ejaculation during 15 years. Now, this symptoms is 100% by diet. Out-of-pois, sugar give me normal diarrheas and hypoglycemia. The diet improved these symptoms by 90-95%.
Day 2 is the worst.

After 2008 :
10 minutes after ejaculation, I feel cold and I'm sensible to cold. I really think orgasm cause something linked to bloodvessels.
After 3-4 hours and especially 30 minutes after the meal : I feel a warmth. I feel a  fever state. This flu-like symptoms is very dependent of diet. Junk food and carbohydrates have an huge influence of this symptoms.
During the next hours, my cognition is bad. I can't concentrate. I feel like sleeping. I feel tired and I have poor general energy.
Stress has an huge influence on my Pois.


Supplments/meds :
Diet is the only thing that improved my Pois.

Possible help : niacin, magnesium, salmon.

No help with :
Ibuprofen/Aspirin, St-John's Wort, L-Glutamine, L-Arginine, Carnitine, Multi-Enzymes, Bromelain, Fenugreek, Harpogophytum, Coco Oil, High dose of vitamin B5, multi vitamins, omega-3 oils, curcuma/garlic...

Need to test :
Anti-histamine, Testosterone.
Title: Re: Personal POIS Summaries and Histories.
Post by: BarcelonaMan on May 23, 2012, 03:00:20 AM
Hello everyone. I knew  about POIS and about this forum for the first time past Friday, reading an article in a spanish paper. Has been a great discovery for me, thanks a lot for this you have built. Also I don?t want to forget to thank "Observer" his welcome  ;)
 
I?m 40 years old. I feel bad after an "O" too:
My level of energy drops. Memory and mental agility decrease. I loose flexibility in my body, I feel heavy. Sometimes I get headache. Intense light disturbes me. Suddenly I feel thirsty and specially need to relieve a "dry point" that appears in my throat. Just one minute after the ejaculation that point in my throat appears and asks to be sated urgently with a lot of water. If I don?t, I feel drowning.
Also I feel more irascible and negative thoughts arise in my mind. In general I feel empty, I feel less live.
 
Those symptoms last for hours. Twentyfour hours later I feel good again. If I wait for 48, much better.
Usually I have arround six "O"?s a week. Sometimes more. If I have 2 in a day I?m in the hole during 3 days.
I have read some post in the forum and I?ve seen people with more severe and lasting symptoms. In fact what it happens to me I don?t consider it as an illnes. I think it?s normal, I?ll try to explain my point of view:
I don?t feel as an ill, I feel like a junkie. I?m addict to a drug named sex. You don?t need a dealer to get it, your body generates it naturally, but the behavior of this natural drug is exactly the same to any illegal drug. As any illegal drug it gives to you a while of pleasure, but later you have to pay a price for those moments of pleasure. Price to pay is a kind of hangover more or less intense and lasting. For me, that "hangover" is manifested throght the symptoms I described above.

For now is all, friends. Later I?ll share with you other thoughts and experiences I have about POIS

Regards

 
Title: Re: Personal POIS Summaries and Histories.
Post by: tantalus on June 27, 2012, 09:02:02 AM
                              Dear fellow  'lads'with P.O.I.S.

Hello dear  pois community


 Like to introduce myself here as new 'Dutch languaged' member. Did only read a view posts since 2006, but will be here now on weekly basis. Like to help document p.o.i.s treatment, monitor the psychological aspects of integrating the syndrome in social live, sharing insight in progress as well  back-fall. Radiate a critical eye over my own process as well the opinion of others that will ask or tell here whatever comes up.

My P.o.i.s.  was Official diagnosed in 2004 by its 'inventor' prof M. Waldinger. I am one of the about 40  patients that is described in  Waldingers article in 2011, that undergo the subcutaneous test. [to test/prove if its an allergy or just a newage neurosis ;) ] If you are new to the allergy hypothesis  [which I still approve,but*....], see also his article written  2011  in witch he describer 2 patients  who go successfully a desensitization therapy http://www.thenakedscientists.com/forum/Smileys/default/icon_smile_shy.giftp://www.tandfonline.com/doi/abs/10.1080/009262302760328280

I did undergo the desentization also, and am  almost at the end of it ....[and with it ;>) ]

Treated with dedesentization, partially progressed but still in  therapy. My therapy takes now about 4 years. Not finished yet. Later on I will describe the effects of the therapy and its side effects during time between the injections. Content with actual state of progress? Sorry, NO**. Of course  much lesser days sick and lesser outlaw of society but still 1 or 2 days  frustratingly under influence of  cognition symptoms and therefore  wiser  hiding for certain social contacts those days. The progress is also waving***

The treatment policy was to keep treatment quiet for the world until first results were published.  Also the goal was not to interfere with other treatments, to keep results objective. Now the end of desensitization cums near [I went from 1 to 40.000 tot 1 to 3], I like to consider adding some help of complementary therapy. Of course I cannot read backwards all 367 posts here before I say /ask needless things, but I hope not to miss alternative healing methods or  tips to help my body accept his own sperm. Need your help to inform me postpone what i can do.

you know already (see my post on naked scientist 24/6/2012) my sidekick  to progesteron became a disappointment .postpone addition:I just removed my former post in which I described the exerience , it would be to much for you to read, wil add an other day.......  Whether 2x 5 mg was to less to work, or even enough to interfere negative if of later discussion, If  the skin itches so badly for 3 days it worked in any case!! ...my advise keep your hands of it till all  experienced are bundled here later.   I did read here before already  and in Wiki that a patient was cured!?? with progesteron supletion. Others on pois fora about 6 ? do experiments with it. At the moment i dont have info how the patients react on the progesterone. My first opinion is that the claims are dangerously vague and paradox. but have to read everything over again to 'shoot on it' successfully.

Have no clue if there are complimentary treatment methods. At the moment I get vitamin D supletion, since that is done for now on for all sufferers of all kinds of allergies. My specialist   will monitor progress with  the already started vit D supletion.


My allergist  ( keep him anonymous), tested hormones etc
for further future use/research
Vit D [normal nmol/l >50] ?........= 25.6. wich is to low, testosteron, [nmol/l 12-35] ?..?.=19.0) is ok
progesteron, [nmol/l 0.89-3.88]     =  <0.64)......[this result made me giving the progesteron  the benefit  of the doubt ]......so its intresting it did not help but even 'harm' to get it on normal level  (0.89)
FSH U/l 3-15                               =7.0
sex HBG, nmol/l 20-70 ?............=42
LH, U/l 1-8...................................=5,8blood.....
Hemoglobine , nmol/l 8.5-11.......=8.8
Ige ku/l <114....... ?.....................=9
My Ige before desensblstn Was 12 now 9  this looks intresting  , but does not ?say?  a lot. ****
since patients can experience  strong reactions with Ige levels that indicate opposites.Thats exactly so interesting with our allergy. It does not follow the usual  Ige interpretation strategy. For exact explanation of this paradox ask your own specialist.

again about progesterone:
> WIKI ?Dexters patient was completely treated (COMPLETELY TREATED ??!!) By 5 to 10 miligrames norethisterone Well?.: treated for sex related headaches or pois??  And in witch intervals the tablets are taken. And also in the days without sex? What is the effect on the organism on the long term?   Is there anybody that has spoken to dr. Dexter or his  patient, and !!! how  the present situation is of that patient. Is there any administrator of any poisforum that keeps monitoring the others progesteron  adepts.
> ?Certainly POIS Sr. member of poiscenter writes in
poiscenter.com/forums/index.php?topic=74.msg476#msg476   Dosage 5-15 mg about 1.5. Hours before orgasm but no longer as 12 hrs.
Others, (cant remember the source, sorry)?.do take a tablet also after the sex, but how long after is not mentioned.
Dear  pois fellows?Please let us document this experiments more precise from now on.  I and you and we are walking  complete in the dark now.

Pois and isolation even in the own group: I like to take advantage to come in contact with other dutch patients . In the start to therapy 2004/6 I was promised to be united with the others, but during the cure never an attempt is done to unite the ones who wanted this. A lot did not dare to face the others  was the awnser, i doubt if all of  the dutch are so shy even for their own pois mates. Maybye also other  research convenient reasons will be the cause I never brought in contact with a nother.
Dus jongens, mannen  meldt je [weer] bij me . Kan iemand mijn herinnering dat we een keer samen uitgenodigd zouden wordeN bevestigen? Zie mijn diplomatieke antword op een vraag hierover op naakte wetenschappers,

...about this forum ......disapointingly, to me being on this site is   almost nobody did effort to ad a biography part  in his/her profile. May I invite you to change this, and add some info who you are , why not even your hobbies, and the way you got the clue about your pois, single or not, books who helped you sublimate, what keeps you happy against all odds. Our cause to be here could do it with some prettier info too to digest the serious subject better, and makes us feel recogniced also in nicer side of live. :) ^

my own biography:

    Dutch,Virgo (25 august),age >45,  profession paramedical, study philosophy, Pois diagnosed  with links to recurrent herpes  hs2.  I am set free from job obligation, so all time for  hobby's: pipe organ (www.Hauptwerk.com) massage, hi end, Bach,  esspresso making, parfume,cosmology ,facebook, I am Dutch NVVE (exit) member, accepted for assisted fulfilled live, Am glad with every love i get from people around and am never depresst, dissapointed YES but lingeing in depression is a masogistic habit. Not my style. Becouse I have POIS, I am extremely happy with all small gifts in Live, One of them are open people that can give! I meet them often because I am open too. I  like friendly irony, my hero's...Voltaire, David hume, Dame Edna, movy's: Bad day at black rock, Lemming, Arteficial intelligence, the Virgin Queen, I am single, for those it matters I am gay, and had 2 relationships which were nightmares for my partners, the last partner 'engaged' me with prof Waldingers theory, and immediately emigrated far away;>)reading/writing   ironic tekst/literature   is my mental food, speak german , my escape from pois is the typical Freudian, enjoy food like   Apfelstrudl mit  Schlagsahne, and other grate German  pasty. Favoured place: the Alps, work as volunteer for  people that had a stroke, my favorite friends: emphatic aspergers.....honest people you never get a chance to get bored.

* start to doubt if an allergy itself could not again be a result of other precursor [ design errors in our dna,genes,might we have 2 dna profiles like is already proven in other cases in the the forensic  science....but that is only my intuition/wild guess  8)

(will work out  the other asterisks in later posts)

Dutch p.s.
 M. ( van de propellorfirma), ik kan je niet meer bereiken, Vond je onlangs terug, kon niet meer reageren (je gegevens kwijt)na crash pc. Neem  weer kontaky met me op alsjeblieft.

i look curious forward to your comment, glad to re back  

read allso my 'gunshoot'on Progesterone  see the topic elsewhere here  "hormonal causes'




Title: Re: Personal POIS Summaries and Histories.
Post by: Deranged Nasat on December 08, 2012, 04:24:43 AM
Hello, all. I thought I'd briefly try and explain my own case here. I'm 22 years old, and I've had the symptoms of what I'm now certain is POIS since my mid-teens. The effects come on immediately after ejaculation (if I manage not to carry all the way through to orgasm but still become aroused I experience reduced symptoms). I have both physical and mental ailments - the physical being a general sense of burning pain or tingling throbbing over much of my body, the feeling that I'm hot and buzzing with electricity, as if a warm fog has entered my body and is now under my skin. I have stabbing pains in my knees and back, really stiff muscles and a sore throat that makes it difficult to speak clearly. My eyes burn and I become really, heavily fatigued. Mentally, the fog leaves me totally unable to think with any degree of clarity, which is frightening to someone like myself. I'm a Cambridge graduate and my favoured activities always involved concentration, memory, intellect - all of which are disrupted when I experience this. I feel spaced out and unable to handle even simple tasks. I can't find the words to speak effectively and my short-term memory is useless. Either as a direct result or due to the stress of living with this disorder, I have severe depression and mood swings. I'm also almost always tired; I need to "sleep it off" after an incident but even when I'm reasonably recovered the fatigue doesn't go away.

No matter how many times I say "never again" after masturbating, I still end up doing it every other week or so, and the shame of it really gets to me. My entire life is just one long string of illness and recovery only to know I'll be ill again very soon. Even if I manage not to masturbate, I'll eventually ejaculate in my sleep; there's seemingly no escape. I've been suicidal and desperate not to ejaculate, but I can't get out of the pattern. I heard another sufferer compare it to drug addiction - you know what it's doing to you, but the urge is just so strong. And when I'm very anxious - free-floating anxiety being another symptom of my depression - I have the urge to masturbate more as a relief. It's a terrible circle.
Title: Re: Personal POIS Summaries and Histories.
Post by: Prancer on December 08, 2012, 12:29:36 PM
No matter how many times I say "never again" after masturbating, I still end up doing it every other week or so, and the shame of it really gets to me. My entire life is just one long string of illness and recovery only to know I'll be ill again very soon. Even if I manage not to masturbate, I'll eventually ejaculate in my sleep; there's seemingly no escape. I've been suicidal and desperate not to ejaculate, but I can't get out of the pattern. I heard another sufferer compare it to drug addiction - you know what it's doing to you, but the urge is just so strong. And when I'm very anxious - free-floating anxiety being another symptom of my depression - I have the urge to masturbate more as a relief. It's a terrible circle.

I completely agree with this and with those symptoms you mentioned DN. Welcome!  :)
Title: Re: Personal POIS Summaries and Histories.
Post by: Brainfog on December 14, 2012, 12:29:20 AM
I am a 52 year old male who has been plagued by post orgasm symptoms for most of the past 30-40 years. In recent years/months the symptoms have become simply unbearable.  Following orgasm I experience 7-10 days of lethargy, EXTREME hair-trigger temper and internal aggressive impulses. I snap at family members in very short order, my entire mood is dark and extremely agitated and angry. I can feel every nerve in my body in what can best be described a s a supercharged angst and unease.  I experience a kind of "brainfog" and my general cognitive ability is dramatically lessened.  It makes it REALLY hard to work and stay focussed.  Once I've had one orgasm, I am usually driven to have one or two more until I'm quite literally drained, at which point all of these severe symptoms kick in to high gear and hang around for 7-10 days before wearing off. I feel like a TOTALLY different person when this fog takes over with the intense anger, agitation and wound up feeling of every nerve in my body for days on end can be/IS just unbearable. I'm not at all suicidal, but these symptoms have become absolutely unbearable. I can't continue to go on in this way without some kind of solution. The symptoms seem to have been getting worse and worse over time to the point where I now pay dearly for every single orgasm. I usually can go a week or two or three or sometimes a month or more without any orgasm before my body, at some point, rebels and yearns for a sexual release, which is ALWAYS followed by this same awful cycle - for decades now!  Prometheus had it good! I can't overstate just how much this sucks - the life out of me.
Title: Re: Personal POIS Summaries and Histories.
Post by: rock27 on December 14, 2012, 06:23:54 PM
Brain Fog,
I recognize all your symtoms; the extremely dark mood, feeling angry and agitated, lack of focus, at unease, for no reason.
You are not alone, but it is a rare disease.

We are trying to get research done on this, it's the only way to get answers.
Amongst forum members we now have collected 24,735, we need about 9,000 more.
I have donated 1,000 dollars and preparing a new one before the end of this year.

The link is:
https://rarediseases.org/about/support/research-donations/fg_base_view_p3
In the spot for "Research Fund," hit "Please Select a Research Fund."  It's an alphabetical drop down -- go to P and find Post Orgasmic Illness Syndrome (POIS)

Please donate and get this research started!!
Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on December 14, 2012, 10:34:19 PM
:) THANKS, ROCKY! :)
Title: Re: Personal POIS Summaries and Histories.
Post by: poisioq on December 15, 2012, 07:58:18 AM
I have an idea.
you have 1000 to donate.
You could put a condition: you donate 1000 only if the members of the forum make an effort to collect 500 by the end of this month (mainly from the new ones that have not yet contributed).
Maybe with small campaigns like this we can make it
Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on December 15, 2012, 04:19:15 PM
Excellent, boissioq!

Let's keep the ideas and ACTION coming!
Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on December 17, 2012, 01:10:53 AM
I strongly urge you to fire this doctor QUICKLY. And find an empathetic one. QUICKLY.
Title: Re: Personal POIS Summaries and Histories.
Post by: Vincent M on February 21, 2013, 07:23:27 AM
New POIS member at nsf.

romies: "My typical symptoms:

onset: 1-2 hrs after orgasm, typically it takes 4-5 days to resolve. the first 2 days can be paralyzing

Very sleepy during the day, even with 10+ hrs of sleep (I normally sleep 8 hrs)
immediately tired after breakfast.

Cognitative:
very poor working memory

ADHD behavior,
Example:I cannot finish unloading a dish-washer under POIS without switching to something else in the middle of it.

Socially withdrawn
      
Emotional
Negative thoughts, low self-esteem, lots of self-criticism
Very Irritable

Low physical energy
max weight reduced by 40-50% in weight training
headache during physical exertion (e.g. running)

Blurred vision

Mild-Flu-like symptoms
     sore throat
     sneezing
     cough

My current daily supplement routine.
upon wake-up: Now-brand NADH 10mg (rocket fuel indeed). no eating for 25-30 mins.
after breakfast: Fish oil, Ginkgo 120mg, Vitamine D 2000IU, Methyl-Guardx1 capsule
            Wellbutrin 100mg SR (being taking this for a year before I discovered the POIS thread)
after lunch: Ginkgo 60mg, Vitamin C, Multi-vitamin
before sleep: Now-brand Arginine+Ornithine 500/250mg x 2 (to reduce ammonia)
                  Loratadine 10mg, ZMA(1 capsule only: 10mg zinc, 5mg Pryidoxine HCL, 150mg Mg), p5p 50mg.

additional Ginkgo, VC and 1 Methyl-Guard after orgasm

I would say this routine eliminated 90% of the cognitive symptoms."
Title: Re: Personal POIS Summaries and Histories.
Post by: urano75 on March 08, 2013, 01:35:43 PM
Hi,
I'm new to this group and found it while googling around about problems I can't really find and answer and a solution to...

I'm a 38 years old guy from Italy, my name is Andrea.

The specific problem is that after an orgasm I have the following symptoms aggravated for 2-3 days, the day after being the worst: muscular/joints/tendons weakness and pains (flu-like), fatigue, light headed, lack of initiative, apathy, lethargy, sense of void in the lower abdomen, sore throat (increased probability to catch viral infections), hard getting out of bed the morning after and dragging myself the entire day, feeling cold.

I say "aggravated" because most of this symptoms are already present to a smaller degree independently from sexual activity, as I'm currently dealing with problems of adrenal fatigue and hormone thyroid resistance at tissues level (hypothiroidism).
Hypoadrenia/Hypothyoridism give me CFS/Fybromyalgia like symptoms. An orgasm just seems to make this much worse for at least a couple of days, the day after being the worst. Sex is definitively the most powerful trigger for these symptoms, but they can somewhat increase after overexercising, excessive sun exposure or sauna, lack of sleep.

I've probably always thought that it was "normal" to feel exhausted to some degree after an O, but as I've been solving issues lately and feeling better in many ways I've realized that this isn't normal at all. It's probably been like this since my puberty, just gradually got worse in a way that couldn't be perceived, but I've taken consciousness of the specific POIS problem only recently.

I also have a history of depression, and I responded decently to SSRI (fluoxetine) which I used for 11 years with few breaks and relapses, until I was able to get rid of it 2 years ago.

I suffer of allergies (pollens, dut mites, molds), and also food sensitiveness (gluten, casein - not celiac).
I am currently following a protocol with T3 thyroid hormone called CT3M (T3 cyrcadian method), plus adrenal support (pregnenolone, adaptogenic herbs) and lots of supplements (vitamins, minerals, aminoes...), see end of post.

My sex hormones are OK (total/free testosterone, SHGB, estradiol, progesterone).
My prolactin is in range last labs (<20)
Currently the main hormonal lab issue is low salivar DHEA, cortisol is almost normal but could ideally be a little higher.

I believe my symtpoms are somehow related to a dopamine depletion, but neither DLPA nor L-Tyrosine seem to make a big difference. I'm going to try Mucuna Pruriens (L-DOPA) to see if that helps.

In Chinese Traditional Medicine post-sex fatigue is related to kidney weakness, so again adrenals. I get some acupuncture sessions to work on kidneys points with no big results for this particular problem.

I try not to have sex more often than once a week and the symptoms occur nonetheless, clearly this is not normal for a 38 years old guy, and this has been happening for years now.
When I am low energy obviously sex drive is not on top of my thoughts. But as soon as I have some energy libido increases and creates a kind of tension that calls for being released. This currently might happen once a week, but it changes depending on the general condition. Unfortunately that also causes the side effects I described in the post and brins me again to ground zero for awhile.

I've also tried semen retention techniques but stopped them, both because they actually didn't help much (it seems that orgasm and not ejaculation aggravate symptoms), and because I felt they were a bit unnatural and possibly unhealthy.

I've been practicing tai chi chuan and various meditation techniques for years, this all helped coping better with the many challenges life offers (health and more).

I've come across here now searching for some fresh ideas besides the adrenal fatigue paradigm I've become familiar with.
Glad to find some friendly and helpful people on NSF, and eventually here.

This is my current protocol, but it continuously change based on my needs;

- Thyroid Hormones (T3):

35mcgT3@4AM+20mcgT3@11AM+20mcgT3@6PM (total 75mcg per day)

- Adrenal support:

Pregnenolone 50mg
Ashwagandha/Phytisone complex (adaptogenics herbs) complex 3*2cps
Adrenergize (adrenal cortex extract) 2cps

- Aminos:

L-Tyrosine 2*3g (AM, noon)
5-HTP 100mg
MSM 3*3000mg
N-Acetyl-Cysteine 1000mg
L-Lysine   2*1g
L-Methionine 500mg

- Minerals:

Magnesium (citrate) 1000mg
Zinc (gluconate) 2*50mg
Copper (gluconate) 4mg
Chromium (picolinate) 500mcg
Selenium 200mcg
Humic & Fulvic Acids (liquid organic minerals)

- Vitamins:

B Complex - 2 cps, each one containing:

   Thiamin (as Thiamin HCl) 110 mg.
   Riboflavin (as Riboflavin 5'-Phosphate Sodium) 10 mg.
   Niacin (130 mg as Niacinamide and 10 mg as Niacin) 140 mg.
   Vitamin B6 (as Pyridoxal 5'-Phosphate) 10 mg.
   Folate (as L-5-Methyltetrahydrofolate from L-5-Methyltetrahydrofolic Acid, Glucosamine Salt) 400 mcg.
   Vitamin B12 (as Methylcobalamin) 400 mcg.
   Biotin 400 mcg.
   Pantothenic Acid (as Calcium Pantothenate) 110 mg.
   Choline Citrate 80 mg.


Vit. B5 3*3000mg
P-5-P 3*50mg

Vit. A 10000UI
Vit. C 3*1000mg + Citrus bioflavonoids
Vit. D3 5000UI
Vit. E (mixed tocopherols) 400mg
Vit. K2 (MK-7) 2*100mcg

- Others:

Ubiquinol 2*50mg
Lipoic Acid 2*300mg
Fish Oil 2*1000mg
Krill Oil 2*1000mg
Curcumin+Bioperine 3*1000mg
Stinging Nettles root extract 2*500mg
Quercetine 2*1g

Probiotics (as needed)
Digestive enzymes (every meal)

Zeolite (for chelating heavy metals)

- Things I'm going to add soon:

Niacin (when needed)
TMG
Mucuna Pruriens
Fenugreek+Garlic?

- Things I used to take in the last couple of years and not using now or dropped for several different reasons:

DLPA (DL-Phenylalanine)
Isocort
7-Keto-DHEA
Seriphos (Phosphatidylserine)
Deer Antler Velvet
Melatonin
AKG-Arginine
Iodine (liquid)
Coral Calcium
Megafood Bloobuilder (iron+C+B12+folate+beetroot)
Kelp tablets
Cat's claw
Berberine
Bentonite clay
...

- Meds used when necessary:
fexofenadine (the least effective dose for calming seasonal allergy)

- Meds I used in the past (and hopefully won't need anymore):
fluoxetine (for 11 years with few breaks, up to a couple of years ago)

I hope we can exchange valuable information and help making our lives better.

Thank you!
Title: Re: Personal POIS Summaries and Histories.
Post by: Chris on March 09, 2013, 08:31:20 AM
Urano75: How do you take all these supplements..I mean dont you eat normal food ? Dont you think you are taking too much and that they may harm you ? I read all these things that you take and i 'm wondering myself what the heck should i start taking too ? I mean is it normal too take so much ? For me even taking one supplement is strange and i have qualms ..I 've also read from many other users the huge amount of supplements they are taking..I mean is this normal ? For me its like doping yourself..I cant understand this technique..
Title: Re: Personal POIS Summaries and Histories.
Post by: urano75 on March 09, 2013, 08:48:41 AM
Urano75: How do you take all these supplements..I mean dont you eat normal food ? Dont you think you are taking too much and that they may harm you ? I read all these things that you take and i 'm wondering myself what the heck should i start taking too ? I mean is it normal too take so much ? For me even taking one supplement is strange and i have qualms ..I 've also read from many other users the huge amount of supplements they are taking..I mean is this normal ? For me its like doping yourself..I cant understand this technique..

Chris, I can understand your perplexity. If you don't feel comfortable with supplements, don't take them.
If I could solve my health problems just eating "normal food" I wouldn't spend my time and money in supplements and doctors, or looking for solutions around...
I don't know if it's "normal", it's just one of the ways I'm trying. It sounded strange to me as well in the beginning. I got used to it.
What is your approach to solve POIS and other health issues instead?
Title: Re: Personal POIS Summaries and Histories.
Post by: poisioq on March 10, 2013, 09:17:18 AM
it also looks to me too much.
nothing against taking supplements, but i 'd try to find out which are the 3-4 ones that make the diference
Title: Re: Personal POIS Summaries and Histories.
Post by: Bulbo on April 06, 2013, 07:10:29 AM
hello everyone I am bulbo
I was bright and very active when i was a child. As i grew up whenever i thought about girls i lose the ability to think clearly.So i started to mug up concepts instead of understanding them. At that age i thought i was studying in a proper way. As i grew up i found out that i can understand concepts but cannot retain them in my mind and also i am slow at understanding.But i dont have adhd. Then i searched in google and found that i had pois.
              The day following nocturnal emission will be very hard.there will be occassional sneezing and nasal discharge. My muscles all over the body are weak.I have reduced appetite.  I dont have muscle pain. I have reduced taste perception. I have cognitive impairment (cannot understand what i hear, cannot comprehend things from a textbook, cannot store new facts and i forget what i have learned earlier), my eyeballs protrude out. But on that day if i sleep for half an hour in the afternoon, then my pois goes away. Then i am able to study very well, muscles are strong, no protrusion of eye ball.
              On a day without pois, if i think that a girl likes me, then pois sets in even before pre ejaculate is released or erection occurs. Cognition is impaired, eyes protrude out, muscles are weak. I am very lean. But if i sleep for some time pois goes away.
              At 19 yrs of age i had post void dribbling. Urine gets collected somewhere between bladder and penis. If i press below the base of penis, the collected urine is forced out. I think i have cowper's syringocoele. I have pois after every urination.
               If i masturbate, I have very severe pois. This pois dont go away even if i sleep for half an hour in the afternoon. It last for one day. i feel fresh on the next day.
            
       Niacin works for me.I think it is due to its anti inflammatory action.
       Etoricoxib also works for me. (etoricoxib can cause gastric ulcer, altered taste sensation, congestive heart failure). I tried it only once . I will never eat etoricoxib again in my life, never.
      
Title: Re: Personal POIS Summaries and Histories.
Post by: Balourd on May 03, 2013, 06:30:57 PM
hello everyone I am bulbo
I was bright and very active when i was a child. As i grew up whenever i thought about girls i lose the ability to think clearly.So i started to mug up concepts instead of understanding them. At that age i thought i was studying in a proper way. As i grew up i found out that i can understand concepts but cannot retain them in my mind and also i am slow at understanding.But i dont have adhd. Then i searched in google and found that i had pois.
              The day following nocturnal emission will be very hard.there will be occassional sneezing and nasal discharge. My muscles all over the body are weak.I have reduced appetite.  I dont have muscle pain. I have reduced taste perception. I have cognitive impairment (cannot understand what i hear, cannot comprehend things from a textbook, cannot store new facts and i forget what i have learned earlier), my eyeballs protrude out. But on that day if i sleep for half an hour in the afternoon, then my pois goes away. Then i am able to study very well, muscles are strong, no protrusion of eye ball.
              On a day without pois, if i think that a girl likes me, then pois sets in even before pre ejaculate is released or erection occurs. Cognition is impaired, eyes protrude out, muscles are weak. I am very lean. But if i sleep for some time pois goes away.
              At 19 yrs of age i had post void dribbling. Urine gets collected somewhere between bladder and penis. If i press below the base of penis, the collected urine is forced out. I think i have cowper's syringocoele. I have pois after every urination.
               If i masturbate, I have very severe pois. This pois dont go away even if i sleep for half an hour in the afternoon. It last for one day. i feel fresh on the next day.
            
       Niacin works for me.I think it is due to its anti inflammatory action.
       Etoricoxib also works for me. (etoricoxib can cause gastric ulcer, altered taste sensation, congestive heart failure). I tried it only once . I will never eat etoricoxib again in my life, never.
     I am a MBBS student. Because of pois , i think i wont complete the course

I beleive you should stick with niacin and reduce orgasms.I had quit masturbation for 90+ days as a test and i was somewhat better but got  hudge depression etc because i had less fog and realized how behind i was in my life. (most of my friends have completed their studies but i couldnt because of POIS).
Then since last week i started masturbation and generally i felt WORSE.

What people say here match my problems.Especially this concentration problem ,slow thinking and like some dude said he felt that he is going to be homeless if left alone with no family support.
I have all these cognitive symptoms! But i am afraid if this is normal am i just dont try hard or correctly..
I am going to quit again masturbation (wasnt  difficult) and take niacin before sex..
I hope some day to find a cure.
Title: Re: Personal POIS Summaries and Histories.
Post by: Bulbo on May 04, 2013, 12:12:33 PM
Thanks for replying.
Though POIS makes my studies difficult, I am not going to give up. If I give up, then my life will become miserable.
If POIS is a medical condition that cannot be treated, then we will have to accept that everyone cannot be winners. What if the world contained only doctors, scientists, engineers, and no people who produce the basic needs of a human. So we should become those people who produce the basic needs of a human. We should accept that as a privilege.
Title: Re: Personal POIS Summaries and Histories.
Post by: Balourd on May 04, 2013, 01:01:18 PM
i believe that masturbation isnt healthy when done excessivly. See reddit.com/r/nofap people there report similar symptoms .Dont give up studies etc but you should try be as much healthy as possible
Title: Re: Personal POIS Summaries and Histories.
Post by: sameer7777 on May 05, 2013, 04:28:28 AM
Contact me on email

Take vitamin b injections
U will get the diff !!!
Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on May 06, 2013, 05:02:38 PM
Please don't blindly promote _any_ injectables!

Thank you.
Title: Re: Personal POIS Summaries and Histories.
Post by: Poisitive on June 22, 2013, 10:07:34 AM
Hi everyone.

I'm poisitive (positive to POIS but with a positive attitude to fight it) and I'm new to this forum. I thought it was the best place to introduce myself. Might take a few updates to complete it

I'm a 37 year old french man and have been suffering of POIS since puberty I believe

I found out about POIS a 3 weeks ago and it's been a REAL REVELATION for me : after all these years of mental solitude, I've found people who live what I live, have the same questionings, express sufferings that I can so well understand, people I can relate to !

I live it like a rebirth, having again faith in possible improvements in my social life.

My POIS symptoms are :

- important tiredness
- important body temperature variations : most of the time, my body is hot (lot of sweating if asleep after) but sometimes it can be followed but high coldness of extremities that is very long to recover from. And when cold stops, it's to get back to hot (instead of normal)
- consecutively I assume, dryness  of my skin (wrinkled on wakeup), itchy-eyes. I wear contact lenses and I believe that the bad oxygenation of the eyes due to dry lenses is what causes my headaches
- impact on the digestion speed : either acceleration causing urge and diarrhea or lock and constipation
- and of course foggy mind, difficulty to find my words, short-memory pbs

But the symptom that makes me suffer the most is that when I'm on POIS, I'm socially rejected. I still can't identify exactly what causes this rejection but this is how I gradually understood that something was going wrong with me. Because, at first, I was aware of nothing and always caught by surprise by this rejection.
So I have two me: the cool one out of POIS and the POIS.

I still find it difficult to identify what people see different in my behavior between the cool me and the POIS me. Because all I see is the rejection.
With time and mostly recently, I've been able to understand that I paid less attention, was more impatient in conversations, cutting other's turn, let's say more selfish.

To be able to cope with the POIS me, I had to adopt the avoidance strategy that you all know: planning ejaculation when the followings days (2-3 for me) are with as little stakes as possible.

Have to go, will update later


Title: Re: Personal POIS Summaries and Histories.
Post by: sameer7777 on June 22, 2013, 12:06:01 PM
it looks like me that i am writing we are so common in pois ..... very close ....
pls contact me on chat pls
Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on June 26, 2013, 03:15:59 AM
Poisitive, welcome to POIScenter!

Please visit our resource list page:
http://poiscenter.com/forums/index.php?topic=1.msg1#msg1
Title: Re: Personal POIS Summaries and Histories.
Post by: Pony on June 27, 2013, 09:25:19 PM
Hey,

Seems like this might be the place to put an introduction. I've been lurking for a year or more. I actually first searched for my malady as Post Ejaculatory Depression a number of years ago and discovered a rock band. You can still Google that string and see my post on TaoBums from back then. So, it's not new to me.

Even then the first diagnosis was guilt. And, that's what I thought it was for years and years until I started becoming more self-aware -- and enjoying my sexuality more.

So, what happens with me? My symptoms come purely from ejaculation -- not orgasm, not arousal, not porn, not fantasy. Thank God, because I enjoy them all. I enjoy intercourse with orgasm and no ejaculation. I also enjoy a lot of masturbation without ejaculation and occasional orgasm. I enjoy erotica and I write about sexuality.

When I ejaculate, though, in from 12-24 hours I'll drop into an ugly POIS state. I lose my absolutely winning social skills, have difficulty stringing coherent sentences together, recalling simple facts and focusing on a task. I want to do little but withdraw. I have little desire to do anything to help myself feel better. I experience irrational feelings and thoughts of paranoia.

It will last from 24-48 hours and end abruptly. Then in about two weeks I'll experience another, similar day.

The only thing that seems to work well for me is abstinence from ejaculation. I've tried fish oil, fenugreek, garlic, niacin, antidepressants, etc. with no noticeable improvement. I've had some success with masturbation within the 12-24 hour period before symptoms begin. That sometimes lessens the effect. I also once tried ejaculating every single day -- that was a cure I dreamed up with my psychiatrist. I lasted about three weeks -- couldn't sustain it.

I used to elaborately plan my ejaculations, considering what I may be responsible for 1-2 days following my thrill so as not to mess up my relationships too terribly or even worse, lose my job. And, since ejaculation is so rare, it's worthy of special consideration to be savored and remembered.

Now, I'll abstain from ejaculation anywhere from a couple weeks to over three months. That's how I manage for now.

Fortunately, my quest to feel better has led me to an absolutely enjoyable fascination with sexuality as a whole. I've discovered a lot of ways to express my sexuality in my life, alone and with my partner beyond genital expression. While I still often think about how nice a really messy ejaculation would be, I find pleasure in learning to play sexually in a multitude of other ways.

I am, however, considering another "ejaculate every day" test to just see how it goes. There may be a hefty price to pay My constants are: a diet low in grain, dairy and non-organic foods and high in veggies, fruits, great meat and healthy fats; outdoor exercise (I bike a lot); laughter; supplements (fish oil, magnesium, D, C, and B-complex) and artistic expression. I have some symptom-reducing ideas I'd like to try.

Thanks, everybody, for your great posts, openness, vulnerability and collaboration!

Title: Re: Personal POIS Summaries and Histories.
Post by: Daveman on June 28, 2013, 06:42:53 AM
Hi Pony. Thanks for your input. Similar but different. If I ejaculated every day, I'd probably die, even WITH niacin. It's strange how MORE ejaculation makes it better.

Also orgasm without ejaculation is usually a retrograde ejaculation, going into the bladder instead out. Also this for me is worse.
So we come in different flavors, which certainly complicates the matter.

Still I feel there is a common etiology.

Thanks again for your report, and I'm glad you have found a way to reduce your POIS to some extent. Your supplements diet and exercise probably help a lot too.
Title: Re: Personal POIS Summaries and Histories.
Post by: Freedom4everyone on July 16, 2013, 09:51:07 PM
We should all contribute info towards a standardized medical survey of symptoms.  That would develop easily visible patterns.
Title: Re: Personal POIS Summaries and Histories.
Post by: firmspear on July 18, 2013, 01:41:24 PM
I've given-up too, nothing works except to abstain from sex. I tried edging, thinking that if I didn't have an orgasm I'd be ok, but those experiences have only brought on more difficulties with trying to get to sleep. Basically, I am aware that if I have sex I will lose sleep for next night or two, it will affect my mood, and makes me anxious and irritable. So now that I know what I was experiencing for much of my life, I try to keep my sexual gratification on a need basis. Now I can generally go eight to ten days without sex, more if I consider the alternatives, although after ten days my mind becomes preoccupied with getting off. Last night I had another sleepless night and so decided to come to the site to see if anything new for me to consider. The forums don't look very optimistic, and so I am feeling hopeless, and resolute.
Title: Re: Personal POIS Summaries and Histories.
Post by: Going less Crazy on July 18, 2013, 07:43:58 PM
I've given-up too, nothing works except to abstain from sex. I tried edging, thinking that if I didn't have an orgasm I'd be ok, but those experiences have only brought on more difficulties with trying to get to sleep. Basically, I am aware that if I have sex I will lose sleep for next night or two, it will affect my mood, and makes me anxious and irritable. So now that I know what I was experiencing for much of my life, I try to keep my sexual gratification on a need basis. Now I can generally go eight to ten days without sex, more if I consider the alternatives, although after ten days my mind becomes preoccupied with getting off. Last night I had another sleepless night and so decided to come to the site to see if anything new for me to consider. The forums don't look very optimistic, and so I am feeling hopeless, and resolute.

You really need to find something safe that works for you.  I could have an orgasm every day if I chose to, the problem is that I would have to be on the herb that I am taking every single day, which I choose not to do because it makes me a "bit" tired, relaxed and unmotivated.  But this feeling is 100x better than POIS.  Don't give up, you will find something that works for you just as I had.

As for the abstinence thing... I cannot abstain for longer than two weeks or the sexual urge becomes so overwhelming that I have to ejaculate or else I will lose sleep.  The male body is meant to have these releases.
Title: Re: Personal POIS Summaries and Histories.
Post by: joe on October 22, 2013, 10:06:33 PM
Hi everyone.  Here's my POIS tale:

I'm 29 and married.  For me, the issue of sex always brings about a lot of tension.  Because of POIS, my wife and I don't have a regular sex life.  She is very patient and understanding, but the issue of POIS continues to be a big stress to both of us.  With POIS it seems there's always the dilemma between choosing to sacrificing sex and keeping your mental state together or to be intimate with your loved one and "lose yourself" mentally.

My POIS started right around puberty, looking back I spent all of my teen years in perpetual brain fog and confusion because of it.  Orgasm brings on a really bad brain fog, like a part of my brain shut off or stopped working, and in that time I'm unable to think or do anything beyond the simplest of tasks, no matter how hard I try.  The ability to focus, concentrate, and remember things is gone, I'm unable to visualize or piece together anything in my mind.  I'm unable to write clearly, to come up with words and thoughts.  Working memory is totally absent, I forget something right after I see it or listen to it, and I always forget to do something right after I think about it.  It also feels somewhat like a change in personality where my mood completely changes.  Physical fatigue is also a part of it, like a burned out feeling throughout the body from the mind on down.  These symptoms would regularly last for at least 3 days and I would start to recover on day 3 (orgasm on day 0) with a few more days to fully recover.

On top of POIS I also have chronic fatigue and brain fog that's constantly present, some days it's better and some days it's worse.  I wake up with the brain fog every morning, but I'm able to lift it somewhat by walking 30 minutes every morning.  It's the same routine every morning, I have to get out and go for a walk in order to get rid of the brain fog and feel like myself again.  I get burned out easily doing anything that requires lots of energy, whether it's vigorous exercise or tasks where I push myself or tasks that require handling stress.

The chronic fatigue and POIS have slightly improved in recent weeks with a combination of vitamins and supplementation.  Nowadays after orgasm, I can spend one day with bad POIS and start to recover on day 2.  To fully recover 100% still takes about a week.  The chronic fatigue is always present but it's somewhat better now than it was before.

I also have a genetic disorder that may or may not have something to do with POIS and all the other problems above.  I have a 45,X/46X,(idic)Y karyotype, I was born with an abnormal Y-chromosome which didn't replicate properly so there are some cells in my body with an abnormal Y-chromosome and some cells without a Y-chromosome.  As a result, I'm hypogonadal and infertile and I'm on TRT, which helps somewhat with the POIS but doesn't prevent it.  I also feel like I have some traits which resemble those of asperger's syndrome but I've never been officially diagnosed.

Hopefully future research will shed some light on all of this.  Thanks to all of you for your efforts to bring this out into the open.   
Title: Re: Personal POIS Summaries and Histories.
Post by: Daveman on October 23, 2013, 06:41:27 AM
Good to see you here Joe.

There could be a very tight relation between your abnormal Y-chromosome problem and your POIS, which at some point may help to shed light on reasons for our POIS.

Anyways, we are closing in on the begining of prefessional research on the condition. Late November or so the finalist for our research grant will be chosen.

Once the finalist is chosen, we will know more about the direction of their investigation, and if they will be needing anything from us as a group.

I am married as well, fortunately, niacin, and more recently viagra has all but eliminated my POIS. But I know what it is to "do one for the wifey". One would think that it would be easy. But  you know you have to bite the bullet and surrender.

As with all of us, we are faced regularly with the tradeoff between fighting the temptation and feeling normal, or giving in and facing "the monster"!

Sigh.

Title: Re: Personal POIS Summaries and Histories.
Post by: hardy on January 18, 2014, 01:39:05 PM
Took atomoxetine , an ADHD non stimultant drug . It takes almost tew weeks to show it's effects .HAd ejaculation , but had no pois symptoms.

No cognitive symptoms
No energy lack
No joint Pain

Feeling no POIS.

Have anyone Here tried atomoxetine ?
Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on January 18, 2014, 01:42:15 PM

Hi everyone.  Here's my POIS tale:


Welcome, joe! Please visit our Welcome Page if you haven't yet.
http://poiscenter.com/forums/index.php?topic=1.msg1#msg1

Demo
Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on January 18, 2014, 01:45:23 PM

As with all of us, we are faced regularly with the tradeoff between fighting the temptation and feeling normal, or giving in and facing "the monster"!


I'm stealing this it's such an excellent statement! ;D

(Really!!)

(http://i858.photobucket.com/albums/ab143/demografx/71D0CF6B-6E37-49B3-9472-4171C8489491.jpg)

(Maybe after Rutgers? :) )



Title: Re: Personal POIS Summaries and Histories.
Post by: Nightingale on January 18, 2014, 06:41:36 PM
Hey,

Seems like this might be the place to put an introduction. I've been lurking for a year or more. I actually first searched for my malady as Post Ejaculatory Depression a number of years ago and discovered a rock band. You can still Google that string and see my post on TaoBums from back then. So, it's not new to me.

Even then the first diagnosis was guilt. And, that's what I thought it was for years and years until I started becoming more self-aware -- and enjoying my sexuality more.

So, what happens with me? My symptoms come purely from ejaculation -- not orgasm, not arousal, not porn, not fantasy. Thank God, because I enjoy them all. I enjoy intercourse with orgasm and no ejaculation. I also enjoy a lot of masturbation without ejaculation and occasional orgasm. I enjoy erotica and I write about sexuality.

When I ejaculate, though, in from 12-24 hours I'll drop into an ugly POIS state. I lose my absolutely winning social skills, have difficulty stringing coherent sentences together, recalling simple facts and focusing on a task. I want to do little but withdraw. I have little desire to do anything to help myself feel better. I experience irrational feelings and thoughts of paranoia.

It will last from 24-48 hours and end abruptly. Then in about two weeks I'll experience another, similar day.

The only thing that seems to work well for me is abstinence from ejaculation. I've tried fish oil, fenugreek, garlic, niacin, antidepressants, etc. with no noticeable improvement. I've had some success with masturbation within the 12-24 hour period before symptoms begin. That sometimes lessens the effect. I also once tried ejaculating every single day -- that was a cure I dreamed up with my psychiatrist. I lasted about three weeks -- couldn't sustain it.

I used to elaborately plan my ejaculations, considering what I may be responsible for 1-2 days following my thrill so as not to mess up my relationships too terribly or even worse, lose my job. And, since ejaculation is so rare, it's worthy of special consideration to be savored and remembered.

Now, I'll abstain from ejaculation anywhere from a couple weeks to over three months. That's how I manage for now.

Fortunately, my quest to feel better has led me to an absolutely enjoyable fascination with sexuality as a whole. I've discovered a lot of ways to express my sexuality in my life, alone and with my partner beyond genital expression. While I still often think about how nice a really messy ejaculation would be, I find pleasure in learning to play sexually in a multitude of other ways.

I am, however, considering another "ejaculate every day" test to just see how it goes. There may be a hefty price to pay My constants are: a diet low in grain, dairy and non-organic foods and high in veggies, fruits, great meat and healthy fats; outdoor exercise (I bike a lot); laughter; supplements (fish oil, magnesium, D, C, and B-complex) and artistic expression. I have some symptom-reducing ideas I'd like to try.

Thanks, everybody, for your great posts, openness, vulnerability and collaboration!



You seem like a very well balanced person. I'm glad you lead a healthy lifestyle, that includes things like laughter :) 

Now, as far as orgasm without ejaculation... how? I have found that most explanations to be pseudo-mystical, with lots of people just saying you need to acheive a certain state of mind and body relationship. Is there a way this can be explained in a naturalistic, reduced, step by step fashion? I've talked with a few people, I was turned off when they were not able to tell me how they did it, just that they acheived it. Couldn't help but feel like they were bragging!

I'm encouraged though, as you definitely dont seem like you are bragging here. How did you learn it? Or do you not know how?
Title: Re: Personal POIS Summaries and Histories.
Post by: Prancer on January 18, 2014, 06:50:03 PM
I was wondering the exact same thing, so I asked him a while back and here was his response:


Prancer, you asked
Quote
how do you have an orgasm without ejaculating?
. It's pretty much how I enjoy sex (and sex is really important to me) and avoid POIS symptoms as much as possible. Of course, I ejaculate occasionally and suffer symptoms, but mostly I enjoy sex, and just don't ejaculate and avoid POIS symptoms.

First, Prancer, you need to separate the notions of orgasm and ejaculation in your head. They are not the same thing. They are not interchangeable terms. Neither is evil to us, they're just different experiences, that's all.

Separating the two helps you to reframe sexuality for yourself. Most people see sex as an event with a beginning and an end with orgasm with ejaculation being the end. If -- as for us POIS guys -- orgasm or ejaculation presents a problem, that thinking causes a serious problem for the entire event because it can't end.

So, you simply remove the obligatory end-piece and reframe sexuality as a continuous journey. No part of sex needs to be there at any given time. Orgasm or ejaculation or foreplay or kink or porn or erection or fantasy have to occur at any time and in any order. Just be sexual and enjoy it.

This lightening up about sex, has for me transformed my POIS. I still have symptoms from time to time, but way less obsessive about it. I just enjoy what comes and do what I want to do. If I wish to ejaculate, I just think ahead a little and do what I can to lessen a couple down days.

If you want to know practically how you can orgasm without ejaculating, I can write more about that. It's really not that hard and changes how you approach sex. Again, much much lighter -- less seriously, more just for fun.

Peace,

I didn't find my answer in there, but he seems like a great person and I like the way he thinks.
Title: Re: Personal POIS Summaries and Histories.
Post by: Nightingale on January 22, 2014, 10:42:38 PM
I'm sorry, but I just can't believe it works like that. The same kind of logic Pony is using is what the doctors and psychologists would say to me when they started to think my POIS was a psychosomatic (read: psychological) issue. They would say I need to relax and not worry so much, and my psychologists would try to find some kind of hidden block or trauma that was causing me to induce my POIS symptoms...

I am far from a doubter on holistic, alternative medicine in general. I have practiced mindfulness and meditation for years, and have spent much of my life deconstructing my preconceived notions about who I'm supposed to be or how things are supposed to feel. To become reality based, in short. And I just don't see any matchup with Pony's explanation and my abilty to realistically have an orgasm without ejaculation.

I fear that this is all a post-hoc explanation, something that was made after the fact. It doesn't sound, Pony, like this was a plan you followed that resulted in your separation of orgasm and ejaculation. And on those days that you do ejaculate, are you surprised and disappointed that it happened even though you were doing exactly what worked before?

I'm sorry if I come off as harsh or too critical here, but I really find it frustrating when someone posts about how they claim that, if we only convinced ourselves that ejaculation and orgasm don't need to happen at the same time, that we can achieve this separation. What's so different about you Pony that allowed you to achieve that? The fact that you offer some kind of explanation is polite I guess, but honestly I'm not really sure if you know how it happened in the first place? How do you know it isn't something different about you physically? And not in a place like the brain, were psychological approaches can in fact change our brains?

I just think it is very important to be careful here because it can make people feel disappointed. If you try and try and try, (or as many Eastern philosophies propose, stop striving or trying so much) and yet you ejaculate and orgasm together no matter what, then that is disappointing, a painful thing to feel. And I don't want anyone here to feel the pain of getting their hopes up and trying to achieve something that may be impossible for them.

I think you are a rare person, Pony. And I would do anything to be able to have the ability you have, even if it doesn't work all the time. It's hard to know that I am unable to orgasm without ejaculation. You know how much time we men spend playing around with things.......... =/
Title: Re: Personal POIS Summaries and Histories.
Post by: Daveman on January 23, 2014, 05:35:49 AM
I'm sorry, but I just can't believe it works like that. The same kind of logic Pony is using is what the doctors and psychologists would say to me when they started to think my POIS was a psychosomatic (read: psychological) issue. They would say I need to relax and not worry so much, and my psychologists would try to find some kind of hidden block or trauma that was causing me to induce my POIS symptoms...

I am far from a doubter on holistic, alternative medicine in general. I have practiced mindfulness and meditation for years, and have spent much of my life deconstructing my preconceived notions about who I'm supposed to be or how things are supposed to feel. To become reality based, in short. And I just don't see any matchup with Pony's explanation and my abilty to realistically have an orgasm without ejaculation.

I fear that this is all a post-hoc explanation, something that was made after the fact. It doesn't sound, Pony, like this was a plan you followed that resulted in your separate orgasm and ejaculation. And on those days that you do ejaculate, are you surprised and disappointed that it happened even though you were doing exactly what worked before?

I'm sorry if I come off as harsh or too critical here, but I really find it frustrating when someone posts about how they claim that, if we only convinced ourselves that ejaculation and orgasm don't need to happen at the same time, that we can achieve this separation. What's so different about you Pony that allowed you to achieve that? The fact that you offer some kind of explanation is polite I guess, but honestly I'm not really sure if you know how it happened in the first place? How do you know it isn't something different about you physically? And not in a place like the brain, were psychological approaches can in fact change our bodies?

I just think it is very important to be careful here because it can make people feel disappointed. If you try and try and try, (or as many Eastern philosophies propose, stop striving or trying so much) and yet you ejaculate and orgasam together no matter what, than that is disappointing, a painful thing to feel. And I don't want anyone here to feel the pain of getting their hopes up and trying to achieve something that may be impossible for them.

I think you are a rare person, Pony. And I would do anything to be able to have the ability you have, even if it doesn't work all the time. It's hard to know that I am unable to orgasm without ejaculation. You know how much time we men spend playing around with things.......... =/

On a physical note, and which is somewhat non-ralated to what Pony is saying, speaking to a doctor, he confirmed that there is no orgasm (technically) without ejaculation. Physically speaking. One may have an orgasm, therefore ejaculating, but retro-ejaculation, with control goes to the bladder. There's a lot to say about this, for some, retro is worse, and for others retro is better.

But Pony is talking about "conceptual orgasm" I think. That "termination" concept or lack of it.
There's a similar phenomenon with eating. You can put something delicious in your mouth and savor it, swish it around.... the SPIT it out. Uuuff. There's something
missing. I can't do that, I have to swallow.

But I suppose one can learn to deeply savor the moments prior to termination. Tantric sex is all about that. Once you complete, the energy dissipates and is gone.
I guess for the majority (??) of us, if we don't complete, we don't get POIS, or at least it's drastically reduced. So the point becomes how much can we enjoy the preceedings (the journey if you will). Most of us can't get to where we appreciate this.

It's the same in meditation etc. Many express interest, but when pressed to "excercise" and practice, they can't find the balance point where the effort is worth the return.

It's a long and difficult path. We are tuned to the immediate response.

It's not a long term solution for us either. It requires a "religious" effort, constant and unrelenting. A moment of stress and we break.

But it could be a temporary relief until we resolve this thing.


My 2c

Title: Re: Personal POIS Summaries and Histories.
Post by: Nightingale on January 23, 2014, 12:48:30 PM
Thanks for the input Daveman. I thought lots of things after reading what you wrote, but I won't go into it right now. But ultimately I am happy Pony can get relief from POIS through this method, it's really amazing. Actually, I would love it if you, Pony, would get to be studied by Dr. Komisurak under fMRI to see if he can figure out what is going on when you don't ejaculate with an orgasm. Perhaps there is a novel treatment that can be found after looking at how your brain works???
Title: Re: Personal POIS Summaries and Histories.
Post by: Prancer on January 24, 2014, 12:38:12 AM
I wouldn't worry about it too much.

The main question is why do we POISers get symptoms, whether from orgasm, ejaculation or both, and other people don't. That's fantastic Pony has found a way to avoid symptoms by not ejaculating, but it still doesn't solve the main POIS mystery. Hopefully, our answer will come soon though, now that the research is about to begin.

Also, it says Pony hasn't been active since July so I doubt he's reading any of this right now.

Still interesting yes, and Pony seems like a very, very cool person, but the main question is why do we even get symptoms in the first place.
Title: Re: Personal POIS Summaries and Histories.
Post by: Chris on January 24, 2014, 08:07:14 AM
He might not get symptoms with orgasm (without ejaculation) but in my experience many POISers, including me, do get some slight symptoms if they masturbate but not ejaculate.Even though Pony doesn't ejaculate, he still masturbates, right ?
Well masturbation for me even without orgasm means symptoms (even slight).I can't ''play'' with my penis and don't feel a slight POIS attack afterwards.
Title: Re: Personal POIS Summaries and Histories.
Post by: Daveman on January 24, 2014, 12:41:54 PM
I wouldn't worry about it too much.

The main question is why do we POISers get symptoms, whether from orgasm, ejaculation or both, and other people don't. That's fantastic Pony has found a way to avoid symptoms by not ejaculating, but it still doesn't solve the main POIS mystery. Hopefully, our answer will come soon though, now that the research is about to begin.

Also, it says Pony hasn't been active since July so I doubt he's reading any of this right now.

Still interesting yes, and Pony seems like a very, very cool person, but the main question is why do we even get symptoms in the first place.

Yes, it's THE question.

Sure hope we can find answers soon.

Title: Re: Personal POIS Summaries and Histories.
Post by: Labyrinth on September 21, 2014, 09:23:36 AM
Hello Cornelius , i think we have reached a common thing between poisers u have said that u had allergy before and then after antihistamine the immune system started tolerating it , well that is impressive cuz i had the same story mosqito bite eczema , and am kind of know the allergen " hous dust mite " skin prick test reavealed dust mites are cause of my allergy and am still having it , i am going to do desensetization therapy for my allergy and treat it , what i sufer from is only head manifestationbut no any physical problems on other parts of body , have any one underwent desensitiZation therapy for his allergies
Title: Re: Personal POIS Summaries and Histories.
Post by: less_fogged on October 02, 2015, 08:56:34 AM
Hello Cornelius , i think we have reached a common thing between poisers u have said that u had allergy before and then after antihistamine the immune system started tolerating it , well that is impressive cuz i had the same story mosqito bite eczema , and am kind of know the allergen " hous dust mite " skin prick test reavealed dust mites are cause of my allergy and am still having it , i am going to do desensetization therapy for my allergy and treat it , what i sufer from is only head manifestationbut no any physical problems on other parts of body , have any one underwent desensitiZation therapy for his allergies

Allergies have also been a frustration for me. And also allergic to "house dust mite", so far the best quick and easy technique I managed to find is a method called "acar up".
You put this textile fabric over your mattress, then you spray it and after 2 hours it will have attracted all those mites into it so you can thereafter just chuck it in washing machine and wash at 60deg with the idea that it kills them... It's pretty good but not cheap.
Title: Re: Personal POIS Summaries and Histories.
Post by: less_fogged on October 02, 2015, 11:08:09 AM
The basics of how I see my POIS but also POIS in general (sorry for the long story...it's rather more informative for a medic professional who'd want to understand a "POIS'er")

In my case after O I feel this inflammation staying in "my system" for seven days. Sometimes on rare occasions even 8. The majority agree that on day 2 it's usually the worst day, so do I. For me day 3 is usually only a fraction worse than day 1. Something is obviously slowly creeping into our system that is probably pumped into our "blood stream / nervous system" till at least the end of the second day. Thereafter it slowly gets cleaned out of our system. So gradually after day 7 I normally have fully recovered from this plague causing inflammation. Most of us realise that if we managed to abstain for at least a full month before, the severity usually will be less. It's like as if something gets disrupted and weakened after each O but only manages to fully recover if not disturbed for a few weeks. If it was so simple we could just have an O once every 4 or 6 weeks. NOW: This was just a standard explanation. So normally from day 3 the intensity of symptoms start reducing but then why do we for example sometimes still feel worse on day 6 than day 5 or day 5 than day 4, etc..... In my opinion, because we don't necessarily live with the same routine as in what we do, etc. We realise that external factors can also influence the intensity of our symptoms at any time during those days such as lack of sleep (daily rest, tiredness), allergies (internal or external), fitness (daily exercise), food (avoid starch and sugar), probiotics (better with yogurt and some cheese), stress (put under pressure, sudden expectations, rushing), supplements (daily recommended vitamins and supplements), other additional illnesses, meditation and yoga (psychotherapy), routine (waking up earlier or going late to bed), some of you can probably come up with a few more... So that would explain the change in severity over the seven days. Also it might feel like we sometimes have day 1 reasonably well under control. Why? Probably because we kept a good diary of those external factors in the days prior to O and simultaneously we also took our personal pre-pack which sometimes works for us ("some of us"). But sometimes while getting to day 2 or day 3, etc... we seem to lose control!!! So what's going on? Either we lost control in the routine in one of the external factors (obviously more difficult once inflammation started) or our system is short of one or more of our supplements from our pre-pack that's asking for more. We obviously don't have some device plugged in us that just tells us what it is!!! So let's hope that we've built up enough experience and managed to learn listening to our bodies to figure it out ourselves. After-all we all different in how our body reacts and our age is probably also playing a role here. At this point touch wood that at least you did your diet duty (healthy diet, avoiding sugar, bad/processed foods,bad oils and especially starches) that may help in leaving your IQ reasonably intact to know what exactly is the best you can do.

Now earlier on I said that if we had an O at the most once every month or so we would be reasonably well off regarding POIS because with our control method especially regarding those external factors taken into consideration but we know it's not so simple. Why? Because once we had an O our prostate or a disorder in our arousal pattern or just call it sexual frustration is usually also in action mode. You don't want to have another O shortly after you just had one because the severity of your symtoms will increase to the next level but your sex organs are rumbling and telling you to just keep on having another O. (Lycopeen as example seems to partly help with alleviating this) So what happens? You "probably" manage to abstain as you know what you dealing with and you don't have another O for at least about a week thereafter and then 2 weeks after that one and then hopefully keep it up for a month after that. In short it's like as if you unwinding yourself!!! But yes not even that is so simple because you just might have a sudden erection in the middle of a night between those O's or you get back stabbed with a nocturnal emission even though some of these emissions did not even show a sign of a drop of sperm ejaculation, though sometimes you can notice it simultaneously when you urinate in the morning if you look carefully. This would especially give me/"us" a feeling of knocked out fatigue when awakening if this happened. Obviously when in a sexual relationship or even due to frustration from those rumbling sex organs it can all add extra pressure on us. That sudden unexpected knocked out feeling of fatigue after a nocturnal emission can be very overwhelming when you had managed to prevent an O on a longer term. This is usually when let's say your bucket is full and you might as well empty it. If you don't you will start noticing something else going on depending how your body is wired. Examples are that you will feel swelling of prostate or you could feel pressure building up probably in area just before your sperm is about to reach the urethra or you're suddenly starting to have an increased feeling of tension in one of your ears or you simply feel like your body is under pressure. Like I said we all wired differently and are unique so this will decide how this type of situation will affect us. It would be quiet typical to simultaneously feel symptoms starting up in your forehead.

And then we have our sleeping patterns with all this. Sleeping while inflammation is at its peak is never easy and even while inflammation is increasing in those 1st two days or reducing the days thereafter it can still cause additional frustration and especially disturbance of adrenaline in your sleep which can also easily and regularly keep you awake. You can sense that it can even start frustrating you and affect you psychologically as sometimes you start going through a cycle of repetitive negative thoughts. So there goes another set of pills. Some will go straight for the sleeping tablets, others will bite it out probably feeling exhausted the following day or will try a more natural approach such as valerian or curcuma or together with green tea supplement. Sometimes a drop or two of "Lavandula angustifolia biover" on your neck can also help a little, or trying mind control techniques or meditation before sleep. I also think that feeling as calm as possible especially in that last hour before sleep is important, driving with your car shortly before bedtime is not a good idea (that's my case at least). Also doing a job with late shifts will make it difficult. Not drinking too much before bedtime is usually also better. Alcohol is out of the question because it will probably knock you out for the first 2 or 3 hours but will not be able to sleep or with a lot of difficulty for the rest of the night. Just drinking too much of anything will also unnecessarily wake me up even more often at night than already necessary. This is probably also due to sometimes feeling added pressure at prostate area or near urethra. Also especially if I did not get to sleep well at night in the morning or even from halfway through the night I usually feel that inflammation going right down from upper chest to stomach. I am also ultra-sensitive to frequent urination when in cold temperatures. One thing that's a fact is that I need more sleep/rest than the average person to feel more refreshed during day time.

Another thing, I'm not sure if I'm having an illusion here but sometimes I get the impression that I only have 4 days of POIS instead of 7 but I think I've come to realise that in fact the 7 days are pretty much still there. I think it might be because sometimes I manage to discipline myself so well in avoiding those external factors kicking in. Because I've had it that on day 5 and 6 I felt pretty good thinking I can just permit to give myself a bit more freedom but if I suddenly go overboard on day 7, I can then clearly still seem to feel a degree of inflammation re-appearing. This is something I happened to notice recently!!! Strange but think it seems to be true other-ways it would be a coincidence. Then again most of us realise that we all have a different measured base line in how long and severely POIS affects us.

Then I should normally also still mention about my muscle or joint pains but in my case as mentioned on NSF, I probably can count myself lucky as in the last decade this seems to have almost disappeared, so I only get it to come back occasionally or even rarely. After-all this part usually only bothers me for 2 days max when present. Though I can confirm that before it used to be severe enough to feel like as if I was partly paralysed and did not even want to move at times. Every once in a while when joint pains come back they seem to drag longer than muscle pain.

Now on top of all this on the non POIS days when I'm supposed to feel great. Something is still going on inside me that I'm not happy about. I will call it adrenaline fatigue. Why? because it?s still important to me that I keep all those external factors on a daily basis under control because they can easily either interrupt my sleep or lose control of let's call it "daily feel good factor", especially when I'm into a busy routine. I think that even though if it's not necessary for me to have an O and if these external factors are abused they can still get me in trouble. It almost seems like as if sometimes if you take a big step forward you will have to take a step back soon after!!! I still seem to be particularly vulnerable to sudden brain fog in certain situations such as when rushing, anxiety kicking in, general stress, some fatigue, etc... Sometimes I wonder if non POIS problems could be one of the initial problems that caused us to have POIS in the first place or whether I've gradually developed them in a worsening state over the years due to POIS. Confusing!!! Although simultaneously I also think it's possible that the use of antibiotics (mentioned on NSF) during early childhood may have contributed or caused something to start it off. Another thing I also wonder about sometimes is that if I had realised all this writing here in more detail at an earlier age... then would I have been at least better off during non-POIS times today? I guess that will still take a long time to know if it makes any sense. Though we all know that all our issues can only be resolved at a slow rate regarding how complex things are.
 
Additional external factors mentioned recently (G-Man, Quantum and Prancer) are probably also "trying to socialise and being around the people that I really like (calm and peaceful situations) also helps take mind off the symptoms and make me feel a lot better". I agree that this can also reduce that vulnerability of getting into those depressive feelings especially after a difficult O turn. Something which I am also vulnerable with especially when I feel like my entire nervous system is affected by POIS. When I have allowed myself to have an O on 3 occasions spaced out with one week between each of them while simultaneously losing control of one of the external factors, not only will I have inflammation on the highest alert but I guarantee to also experience anxiety levels at a high level of intensity. Naturally my sense of humour will also drop considerably after one of these episodes. Gaining control again is difficult once I go beyond my personal border line.

Note: Personally I also want to mention that for me since I'm on this healthy diet option (wheat, maize, sunflower oil and sugar - free). I do feel like as if the intensity of inflammation in throat and chest area has intensified while as said at least 75% of inflammation has reduced on mental level. It's like as if the inflammation has shifted from my head to chest. Although it's also possible that I was not aware of this before as my forehead was probably also inhibiting me of knowing what was going on. As soon as I lose track of my eating habits, for example if I'm on the road or I go eating out, I am then vulnerable to eating something that will interfere with my symptoms. The symptoms will not necessarily appear right away but it's like as if my body is building up bad stock regarding food ingredients but if I need to O within one of the next days after then my symptoms are already inclined to be more intense.

Now to explain this inflammation a bit further. It gives me an uncomfortable feeling of warmth inside my body, especially upper-chest and thyroid area, it seems to interfere with my breathing pattern and especially if too active or rather stressed it also interferes more intensely with adrenaline. It also gives me feelings of cramps. If for example I'd get on a bicycle and cycle hard while in non POIS I'd normally and eventually just end up short of breath. But while in POIS mode it's different. I can sometimes feel pain in chest like as if there are needles inside my chest it would feel like as if there is a small knife giving me stabs wounds spaced out with short intervals or another way of explaining sometimes can also feel like as if there is something that's trying to rip out wiring inside my body. I can still cycle hard though but it will force me to slow down every so often and makes me feel like as if I'm harming or putting my body under unnecessary pressure. There's obviously a confusing side to this because sometimes I feel like as if it's better to be on the move than to sit down and relax. A moderate continuous tempo would help me ease that pressure. Sometimes it's a necessity to work on breathing in and out to adjust what's going wrong inside me. But sometimes when inflammation is too strong it's better to do work out exercise when I can permit myself because if I need to communicate with someone shortly after this exercise I will temporarily be in brain fog mode. Then same thing happens when I'd rush myself going somewhere. I believe this illness has also had extensive repercussion on my mind because I can get very sensitive to increased level of anxiety. I am simultaneously convinced that this anxiety has changed the mechanics in my brains thinking pattern which is hard work for me to reverse back to normal. Though my diet strategy has already reduced this a lot. I only believe that by entirely having my POIS cured could fully reverse this permanently.

The Physical signs that are visible on me is that the skin under my eyes often gets darker or one of my nostrils (usually left side) would get blocked while in POIS mode. The blockage was especially a usual occurrence while on previous diet. My skull usually also tends to get very dry from the 2nd day onwards. While on non-POIS sometimes the tip of my penis can also tend to get red which is probably a signal that it's time to O. If in POIS-mode and even just had a thought or saw a sexy woman, sometimes even a picture together with being outside shortly after in cold air or wind blowing in my face then my eyes tend to get moist, fogged up or even start to seemingly just start crying without asking for it. At times if I lose complete control I can appear to be looking tired while I can actually feel like I am in burnt-out mode.

Another thing to mention, I've noticed some people talking about PE on the forum. I don't have this problem but must admit that I also used to have it. But it just gradually went away. I especially had this in my teens and 20's. So if you lucky that problem could hopefully fade away too for others.

When I feel good I can be full of motivation but when things start going wrong I feel like I have to get around with a loaded backpack with all my tools and tricks, like even a cushion (rest) to cope. Then again POIS-mode or not I'm usually better off with my custom food when on the road therefore I still need my "backpack" with some of my emergency tricks. While in POIS mode I have to be in a continuous fight/alert mode to not allow the illness preventing me doing what I need to do!!!

Note: My way of writing this text would have been quiet different if I had writen this before I discovered that a healthy diet could have had such a positive influence regarding my previous cognitive dysfunction situation. For this reason I have now been less focused on that part of POIS.
Title: Re: Personal POIS Summaries and Histories.
Post by: Quantum on October 03, 2015, 05:50:22 PM
Hi Less_fogged,

Thanks for having taken the time to share your POIS history.

I totally agree with you that a healthier diet lowers the duration and severity of POIS symptoms. It has been and is still the case for me as well.

Have you filled the Rutgers survey yet ?  I am sure it is still time to fill it and send it to the research team.  See at http://poiscenter.com/forums/index.php?topic=2079.0

Title: Re: Personal POIS Summaries and Histories.
Post by: less_fogged on October 04, 2015, 02:23:17 PM
Hi Quantum

Yes I've done the survey, shortly after it was out. I also encouraged POISers looking at NSF to do it.
From previous posts and from what I remember and if not mistaken....you are self-employed and work as chemist/pharmacist, so that would explain why are well educated when it comes to medical terminology. Members are obviously grateful to have someone like you participating here.
Though I must admit I've been quiet stunned upon the discovery of this site with some of the terminology the guys come up with here. Previously I never imagined POISers with this anguish could have enough capacity left to defend their cause. Their sure been a lot of determination and fight here to have a better life. I'm sure this site will go on and on till we get what we want even if some of us die on the way.
I think you must be a very rare case with POIS who is capable of being self-employed with such background. I must admit though I was also once self-employed but in a partnership though and some financial aid from folks. Though I was becoming successful in business I eventually lost out by forced selling as my POIS was too interruptive resulting in conflicts with partner. Though partner was not of easiest type to work with either.
If you don't mind me asking you at what age did your POIS start? I presume it started after you completed your studies.
Title: Re: Personal POIS Summaries and Histories.
Post by: Quantum on October 04, 2015, 06:48:22 PM
Hi less_fogged,

Thanks for your appreciation about my contribution here, I try to keep a scientific and practical approach vs POIS.

To answer your question about when my POIS has begun, you have to know that my subtype of POIS is not the most current one, as I do not have any cognitive symptoms - I never had any brain fog, any memory problems, any speech impairment, any problem solving capacity impairment, and the like.  When I do not use my prevention method ( described in this post (http://poiscenter.com/forums/index.php?topic=2090.msg16604#msg16604)  ) , my symptoms are hypotension, extreme fatigue, and a lot of emotional symptoms, like anxiety, emotional intensity, mood swings, irritability, low self-esteem, lack of motivation, dysphoria, and the like.  So, even if my POIS as started at puberty, at the very start, I have been able to study, and been able to found and run my own business.  It has sometimes been difficult because of the fatigue, but I had to time my releases, and things got easier to manage as my prevention and control method got better through the years.

When I have first discovered this forum nearly a year ago, I was surprised, first, to see that I wasn't the only one with this problem, and have been also surprised about how each and every poiser had a very specific and "custom" set of symptoms, but that overall, the "choice" of symptoms was not infinite.  The fact that I didn't have any cognitive symptoms have led me to understand that POIS symptoms could be regrouped in four clusters of symptoms, and that some POIS sufferers could suffer symptoms from one or two clusters, or three, or from all four of them ( my grouping of symptoms in clusters can be found here (http://poiscenter.com/forums/index.php?topic=2027.msg15927#msg15927) , along with some other observations about POIS subtypes and POIS cycles )

Needless to say, I am very happy that my POIS had spared my cognitive faculties.  In fact, it is because of a very good memory and ease at learning that I could have gone through university despite POIS.  I was sometime totally out of whack for a few weeks, but could manage to emerge from emotional chaos a week or so before the exams, and succeed with excellent grades. However, because I was not functional on a regular basis, and was aware of it, I have chosen not to attend a more demanding program like medicine - those 24 hours of non-stop duty were absolute impossibilities for me.  And, at the beginning of my career as a pharmacist, when i had to work for others, it happened that a boss or two have noticed that I was doing great some days, and wasn't really myself on other days ( I have never disclosed the reason or try to explain it ).  I had to cope with that, and one or two times, I had to change job because the boss had become not so enthusiastic about my unstable performance.  But after a few years, and with more experience,  I came to be able to "hide" my POIS with more ease, in particular by using green tea and magnesium.  Finally, when I have started my own pharmacy 18 years ago, it became a lot more easier, because I was accountable only to myself.

 
Title: Re: Personal POIS Summaries and Histories.
Post by: less_fogged on October 07, 2015, 10:03:05 AM
Hi Quantum....thanks for your reply

There is such a broad range of symptoms being reported that some of us don't even think of and obviously a good thing you've given it a thought on dividing them into clusters. This can clarify things further for some and would not surprise me for scientists to categorise this further. It probably all comes down to how differently we wired but one thing that's a fact is that the root of our problem from how it starts off is basically same for all. I also believe the practical side to be equally important for discussion as the scientific part, as I think practical side could be a real eye opener for those concerned who decide how important our case is. We know a POISer could fall within just one cluster but mostly end up with most clusters as we can tell from forum posts.
At this stage we also know that we don't need all known symptoms to be a POISer. Going into science to ultimately find a cure is a long process and that is what we all want (cure part LOL). But what about high severity cases? If there are POISers who fall in cluster with high severity who have not even been discussed yet when he himself can almost not even come forward on this forum. These cases could be even more rare but could be of even higher importance. Example of a very well possible scenario: The guy simply has a low IQ and his POIS symptoms are purely cognitive based (He is possibly also affected by additional external factors we know can affect us simultaneously). It is very well possible that mentally he is programed to have none or almost no interest in any form of intellectual progress. We know that in times of suffering some of us additionally get a form of chemical imbalance in our brain that influences our motivational progress. Imagine that the guy, due to these circumstances also has been in a situation where he has little room to advance into work skills. He mentions to his doctor that he suffers from some type of mental trauma, he even eventually mentions a suspicion that his problem could be orgasm based but confused with external factors as a smaller degree of similar symptoms regularly crop up. As much as the guy is confused with his situation simultaneously his doctor has no idea or knowledge of POIS. After many consultations he abandons to figure out what his illness is. Over the years the POISer manages to find a job that suits him and becomes a "truck driver/taxi driver/courier". He may even have had a lot of difficulty to obtain the drivers licence as he especially had difficulty to pass the theoretical part. But managed to find a way in doing the test orally. (I know in some countries this gets done). Now that he obtained his licence we suspect he could be a real danger on the road. I'm sure even mild POISer with cognitive symptoms could agree how we sometimes feel like a donkey on the road with eye patches on. Now imagine he's in a serious car accident. And many have died. If he survived do you think he will tell the journalist on live television that his orgasm caused him to be in this accident? Don't think so!!! But if his dead and even if his doctor managed to figure out he might have POIS, I can't imagine his doctor will want to get involved in a situation where things are becoming juridical now, as people want to sue someone as their family members have died. Forensics probably concluded that he was a perfectly healthy driver but was simply distracted for whatever reason. Noise, phone call, weather conditions, etc. Even if the guy realises he has POIS and the fact that it's still a taboo to speak about sexual issues, it's well possible that the guy never disclosed anything to anyone and he died and so none will ever know the real cause of accident. It seems that the importance of this illness is still highly underestimated. The word needs to get out there and these guys of the most dangerous type of POISers need to be found and put on a simulation test or something to prove our cause. I think it's is the WHO's responsibility to take responsibility here. Madness
I sure can confirm that when I previously was at my worse times cognitively I could feel a similarity to possibly being drugged. Narrow or busy roads would force me to slow down but if I'd simultaneously be hyperactive I would not necessarily slow down regardless my POIS state. I realise this would somehow be difficult for you to relate to seeing these type of symptoms don't affect you, but as we find techniques I think we probably getting closer to end up with similar symptoms to yours.

My curiosity: The fact that your situation is different regarding cognitive symptoms. I would presume that inflammation after O in your thyroid is not as severe but rather more in chest area, or am I wrong?
Title: Re: Personal POIS Summaries and Histories.
Post by: Quantum on October 07, 2015, 10:20:01 PM
Hi Quantum....thanks for your reply

My curiosity: The fact that your situation is different regarding cognitive symptoms. I would presume that inflammation after O in your thyroid is not as severe but rather more in chest area, or am I wrong?

Hi less_fogged,

I have no inflammation, neither in the throat area/thyroid nor in the chest area.  As I said, when no prevention, my POIS symptoms are fatigue, hypotension, and many emotional symptoms.  I wouldn't say "and nothing else", because that have been already way too much, but, for example, I have no allergy symptoms, no cognitive symptoms, no muscle weakness.

My set of symptoms have been steadily the same for 37 years now, only the level of severity and duration would vary from one POIS episode to the other. 
Title: Re: Personal POIS Summaries and Histories.
Post by: The Drone on March 27, 2016, 04:35:21 AM
Hi

I'm new to the forum but have been reading and following posts for a few years now

Intro

I'm in my mid 40's, in a long term stable relationship, family, kids, work, sports, etc. I've been experiencing POIS for about 20 years.
It's been a pretty constant pattern, whether it's an O or NE, with heavy symptoms lasting always 1 day
I am fit, exercise regularly, eat healthy and lead a healthy lifestyle in general

My main method of controlling POIS has been abstinence, trying not to have more than 1-2 O's per month, in order to save the energy, avoid POIS symptoms and keep NE's at a minimum, which would happen if abstaining for 4-6 weeks. Masturbation is an absolute no-no.

Day 0:
Usually will have an O at night before going to sleep

Right after O:
Feel very sleepy (Fall asleep within 5 minutes, whilst already feeling some pressure and throbbing in the head)
May wake up in the middle of the night with some POIS symptoms, but generally sleep ok

Day 1:
Symptoms are evident since waking up

* Cognitive:
Brain-fog
Difficulty concentrating, speaking, finding words
Irritable

* Physical
Tired
Heavy heart beat
Heavy head (pressure and throb around back and top of the head)
Relaxed muscles around eyes and cheeks
I avoid most heavy physical activities on day 1

Day 2:
Generally ok if I've had a really good night's sleep
Feel exactly the opposite to day 1. Mood, concentration and creativity at their very best.

Things I've tried

* Vitamins and minerals: I regularly take vitamin C, zinc, vit b complex, magnesium, fish oil and probiotics because of demanding physical and intellectual activities. I don't think they have any impact on POIS.

* Niacin: tried it a few times. It definitely helps with day 1 symptoms if having an O after feeling the flush, but it'll make recovery longer, I mean I am not fully physically recovered by day 2, but it seems to take 2-3 days of mild symptoms instead. I prefer 1 bad day followed by immediate 100% recovery instead of 3 days of feeling 60%-70%.

* NSAID: I've had to take some anti-inflammatories in the past for different reasons and they seem to alleviate the symptoms by 25-50%. However, this is
not something you want to be on for long periods of time.

* Strong pain killers: had to take Tramadol once for same reason as NSAID's, this is probably the best I've felt. Unbelievable feeling during O and nearly 100% POIS-free on following day. Shame that you don't want to be on tramadol either !

* Getting myself upside down (yoga, etc) seems to help with temporarily relieving head symptoms on day 1

* Nap: In the very unlikely event I manage to get a nap on day 1 because I've done some exhausting task in the morning, I can wake up fully refreshed as if it was day 2, full of energy and creativity. This has happened maybe 3-4 times over the last 15 years. The fact that either a nap on day 1 or the first full night's sleep seem to fix it, makes me lean towards the serotonin/neurotransmitter imbalance theory, somehow restored during sleep, in my particular case.

I am about to try some of Quantum's prepack ingredients, particularly the 5-htp / green tea extract combination effect on serotonin.

Looking forward to it and to sharing the results with the forum

The Drone
Title: Re: Personal POIS Summaries and Histories.
Post by: b_jim on March 27, 2016, 04:57:30 PM
Welcome !
Title: Re: Personal POIS Summaries and Histories.
Post by: Prancer on March 27, 2016, 05:03:47 PM
Hey Drone,

Glad you discovered poiscenter. Thanks for sharing your experience with us. Though I'm younger than you, our symptoms are very similar. My main method of controlling my symptoms is also abstinence (though I don't like it). If you haven't already, go ahead and poke around the forum to see what's helped other poisers, and to gather more info about people's situations and about the research. I very much enjoy seeing new poisers come and find other people with similar symptoms and seeing so much great information all in one place. When someone feels alone or scared and confused about their symptoms, I can't think of anything better.

Prancer
Title: Re: Personal POIS Summaries and Histories.
Post by: Quantum on March 27, 2016, 05:38:05 PM
Hi The Drone,

Thanks for your POIS summary, it is very detailed, and can surely be of help to other POIS sufferers.

I feel many similarities between what I do and your way of managing POIS:  abstinence as much as possible in a relationship situation, regular exercise, healthy diet, ....

I am intrigued by the effect niacin has on your POIS symptoms pattern, and wonder if anything can be learned from this.

Looking forward for your results with HTP / Green tee extract !
Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on March 27, 2016, 10:35:13 PM
Welcome to our forum, The Drone.
Title: Re: Personal POIS Summaries and Histories.
Post by: The Drone on April 04, 2016, 04:41:58 AM
Hi & thanks to everyone for the welcome and support messages.

Prancer: I know... abstinence sucks and I don't like it either. Although saving the energy lost in normal O's is a good practice (i.e. recommended by tantric or other health and wellbeing practitioners ) , I'd still like to experience 1-2 O's a week, but unfortunately that'd leave me crawling for most of the time !! Like you said, when I first found this forum I few years back, it was a great relief to feel I wasn't alone out there !


Quantum: don't take the effects of niacin on me too seriously. I have mostly taken it at night, which allows me for a max of 1-2 hours after dinner, I believe making the flush and its effects on O far from ideal. I have noticed if I take niacin in the morning on an empty stomach or just after tea, the effects are amplified by 2 or 3x, but because of my lifestyle and my partner's, I would mostly have the chance of an O at night.

Will keep you posted on my progress
The Drone



Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on April 04, 2016, 12:46:30 PM
Thanks for posting, The Drone!

I was concerned that my forum-experimenting was distracting from posting/discussion here :)
Title: Re: Personal POIS Summaries and Histories.
Post by: ZombieRehab on May 30, 2016, 04:01:09 PM
I want to post my history on here, in case it is relevant.

I have experienced POIS consistently since hitting puberty at age 14; I'm 34 now, am a professional living in NC.

Symptoms: Last for about two to four days after O., usually beginning about 2 or 3 hours after O. I feel progressively better with each passing hour after around 24 hours after O.

1. Exhaustion, severe brain fog (I would say 6 or 7 out of 10 on severity scale)
2. Unable to focus, read, retain information.
3. Grinding teeth, tension in my body, cold hands and feet as if adrenaline were in my system
4. Pain in my eyes; extreme sensitivity to bright lights that can amplify into migraine headaches in the couple days after O, always in the evening.
5. Sense of aching in (mostly left) epididymis that comes and goes since around age 16.
6. I have been experiencing a recession of my gum line in spite of excellent dental hygiene. I am suspecting some sort of inflammation possibly relating to POIS.
7. Depressed, dull, lifeless mood that is difficult to shift when I'm in POIS.
8. Having to plan my O's around my schedule so I have enough vibrancy to fulfill my roles, or in the past, to have enough mental clarity to do well on tests.
9. Sometimes a sense of burning in my urethra (I test negative on STI's, by the way.)

These symptoms disappear completely if I avoid ejaculation. I never have NE's (maybe once every few years?), and rarely have dreams with sexual content.

I have gone up to 45 days without masturbation, and in those longer weeks of celibacy, I notice my symptoms mostly disappear, with occasional days (around every 7 days) when I feel more moody but still fairly clear-minded. However, I would optimally have an O. every two days to correspond with my libido.

I have been mostly single, but in most of the 20 or so times I've engaged in sex (with other men) my POIS symptoms are less severe afterwards than they are when I masturbate.

Treatments:

I have yet to find anything that solves this, but am just starting to try things. Some things that help partially improve symptoms:

1. Exercise at least every other day. Must involve cardio. This probably cuts my symptoms by 30%.
2. Cutting sugar, peanuts (mold allergy), from my diet.
3. I do find that some of the energy drinks with taurine and other supplements can fix my brain fog for a few hours (the zero calorie versions). I may try a taurine supplement and see if it actually helps on its own.
4. Benadryl appeared to help... but I am so sleepy the day after taking it that I gave up on that option after 4 or 5 times.

I have been trying things from this forum one by one... several things have not helped significantly:

1. B-Multivitamin supplements (only help if I'm deficient in them from eating poorly)
2. Cutting out wheat, gluten (no effect)
3. Caffeine does not seem to fix brain fog and increases the tightness in my jaw.
4. I have been consistently taking Cetirizine and Loratadine 24-hour tablets (Costco brand) for a couple months with no noticeable effects.
_____

What puzzles me even more is that occasionally, maybe 5% of the time, I will have an O. and feel better afterwards than I did before, with no POIS. I have not been able to isolate the difference, but those few occasions are more on sunny afternoons when I take a short nap afterwards. So I know it is possible to feel good afterwards!

_____

Theories:

I relate to the recent discussions of vagal tone... it is as though my O's trigger some sort of lingering adrenaline cascade in my body. I also relate to the theories of it being some sort of semen allergy. Not sure. On other days it feels more like something is deficient (especially on cloudy days), but yet, multivitamins don't seem to help.

__

I hope this is useful to someone. I appreciate that this forum exists.
Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on May 30, 2016, 06:19:44 PM
Hi ZombieRehab. Welcome to the forum. Thanks for the kind words.
Title: Re: Personal POIS Summaries and Histories.
Post by: Quantum on May 30, 2016, 06:55:23 PM
Thanks for the very detailed profile, ZombieRehab.  I am sure it will be useful.
Title: Re: Personal POIS Summaries and Histories.
Post by: COLM_2 on May 31, 2016, 04:16:06 AM
Hi Zombiehead,

Thanks for sharing your information, and your symptoms will ring true with a lot of the guys.

The fallout from O as you have seen varies from time to time. Your treatments make sense in their application toward treating a possible inflammatory process that kicks on after "O". There was a mini-poll among forum members some time back, that (while far from validated) indicated that 80% approx of POISers sense the inflammatory aspect of the syndrome.

Keep up your research as there is so much here to potentially impact even further on reducing your duration of symptoms.

One of the Forum Admins Quantum who has contibuted to your post here, put up a very detailed description some time back of the four clusters of symptoms involved. I felt it might be worth re-posting this here in regard to your symptom list and for some newer members and recent "posters", in case it might help to deepen their awareness about this. It is visible at the link http://poiscenter.com/forums/index.php?topic=2027.0

All the best and as you rightly describe, POIS is still a "puzzle",
Colm
Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on May 31, 2016, 01:03:10 PM
GREAT summary, COLM!

And Thanks for the reminder of Quantum's clusters.


Title: Re: Personal POIS Summaries and Histories.
Post by: Quantum on August 01, 2016, 09:52:14 AM
crossed post from http://poiscenter.com/forums/index.php?topic=2335.msg19420#msg19420


Quantum, I have seen you asked few times for some description of symtpoms/remedy of poisers in order to make a chart and try to identify some predictable patterns accoridng to pois type. I believe it's a great idea so I will start here (not sure if it is the appropriate place though):

My symptoms:
psychological: concentration (always), memory (3 to 6 days), social skills (5 to 6 days), bad mood (3 to 4 days), stress (3 to 4 days)
physical: difficulty breathing (2 days), red eyes (4 to 5 days), intense fatigue (3 to 6 days), easily fatigue at sport (2 days), insomnia (always).

What is working for me:
complement: magnesium, zinc, b complex
meds: right after O mythelase + lecithin (get me rid of 90% of my symptoms). Then taking it once/day for 3 days.
Other: abstinence, sport, fasting, meditation.

I don't know if it is precise enough because I don't have any scientific methodology.
I strongly encourage mythelase + lectithin, it is working very well for me since 6 months.

Cheers,

POISse
Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on August 01, 2016, 10:47:02 AM

...POIS is still a "puzzle".


Even after nearly 10 years of intense forum scrutiny!
Title: Re: Personal POIS Summaries and Histories.
Post by: Spartak on August 17, 2016, 09:57:01 PM
Hi guys,I hope that you will be able to understand my English,I hope that you will not have anything against if I share in short  lines boring story abuot my life before I post about symptoms.

I am 1/4 of the century old(25) ,I notticed that I feel bad after O in 2011. . if I remember well,only because I started to expirience headaches after O,but when I think about other
symtoms,I belive  that I can track P.O.I.S for at least 10 years,back in 2006. I was quite often anxius,felt rejected without reason,started to losing interest for school etc,been without energy from time to time,and couldn't stop thinking about stupid things I belive that that was begining of my P.O.I.S,altough maybe it started earlier,just symtoms were too mild.
I lived quite normal without any idea that I have P.O.I.S ,but I knew that something is not ok with me,since I felt bad too often.
And after some time I started to feel constantly bad,I had O every day,many times more then once,and I can say that I lost plenty of time in constant P.O.I.S.  I was always among people,had great social life(altough I was very unhappy around people,and when among friends I couldn't stop analyzing stupid things),was bad in school and in general very problematic,since I always felt rejected.
In between I was into bodybuilding,I used bunch of supplements,which made me more outgoing,but unfortunatelly guite ignorant toward other people.
When I realised what is the problem (2011)I tried to quit masturbation and sex (due I guess good looks and fake confidence ,which I used to cover my poor self confidence,I had lot of  succes with girls,or to be more objective they had succes with me,I sufferd a lot)
and finally in (not sure)2013 or 2014,I avoid O for more then 2days,and finally after 3rd day without O,I felt great (almost)1st time after years of suffering.Life had meaning againg.Since then I am in war with need,but until recently(relief experiments) I was more good then bad(pois).
Then I spent a lot of time in clearing my mind from post P.O.I.S effects ,I observed other people,read phylogical ,motivational and many other  books
and finally after some time I built completly new personality,mindset,system of values,and in general became better person.Ofc POIS became  much harder to handle after that.

Before P.O.I.S I was very inteligent and motivated kid,the best sudent in class,curious about everything and with very wide spectrum of knowledge for average central European kid,in short kid with great future.(no narcisstic intenions)
Becase of P.O.I.S I haven't finnished any bigger schools,went to university(more then one) but haven't finnished any.Worked on various jobs with more or less (more less) succes
,because my P .O.I.S makes me pretty unfunctional for 2days.

And now finally about P.O.I.S,My POIS is not always the same,there are hudge variations in severity of the symptoms,or at least I have that impression ,but these are my impressions:

1.I think that the worst symptom for me is Anhedonia,beacause I simply can not feel pleasure or satstaftion durring P.O.I.S.
I found some things that gave me relief from some symptoms,but nothing really affected that.

So that is what makes me think that if I would only be able to feel positive emotions,POIS would be 1000x easier to handle.

2a.Anxiety(scared of people,constant guilt,low self confidence etc,depression,constant stupid thoughts usually very frustrating(maybe adhd symptoms in mix with nr1 ( Anhedonia ),Aphaty ,FATIGUE(especially that hopless feeling in cheast and throath),and all similar symptoms 2b low memory,poor concentration,simply I feel stupid,very sensitive mind to any stimilation,disconected,brain fog
3.Headache,no energy,weak

5 nightmares,claustrophobia ,sadness,suicidal thoughts,blurry visionb etc,those I used to ignore
 
Since I am not in Pois at the monent,I probably forgot some.Don't know for you guys but always after POIS ,I don't really have clear memory about POIS days.


POIS duration is 2 days( never less(and even with relief methods there is clear distiction between 1st and 2nd day symptoms,with some relief methods I tried it went really bj Anhedonia ad and last more,and after some I developed strange symptoms).

1st day is really bad,withou relief methods I can hardly speak,fatigue,weak,headache,mostly in bed,disconected
etc
2nd day more borring then fatigue like,mind is clearer ,but more sensitive ,since my emotions are comming back I feel wrong emotions and stilk can't feek pleasure as I will norally feel due sensitive mind I can't handle thoughts.
Both are quite anxious in differente ways,and in both I feel depersonalised.

In past two months I tried many relief methods,but since I recently quited with experiments,I will wait (3 weeks rule) few more days and then share what gave me some relief and what was harmful in my case.

I can say that almost all things I tried had side effects,and despite positive effects I was forced to stop taking them.
My main sympthom(1.),which is with brain fog(very positive improovent with relief methods) I belive are the main reason for de-personalisation and for general POIS feeling in my case,(1.)was not affected by any relief method,also as part of that subjective Pois feeling(like 1day feeling,2nd day feeling) and duration(except in a bad way).

With respect to all brothers in arms ,Spartak
Title: Re: Personal POIS Summaries and Histories.
Post by: Quantum on August 18, 2016, 07:16:21 AM
Thank you, Spartak, for this detailed account of your POIS history !  Thank you for having taken the time to write and share this on the forum.

I will stay connected to hear about what brings you some relief, and hope to be able to integrate some of your data in my POIS types chart.

I wish you to find a way to adapt to POIS, like abstaining for longer periods of time.  I know it is harder when younger, but for us, it sure has advantages.  What helps me to extend to a release once a week or once every two weeks is to find other significant source of pleasure in life, like playing sports or playing music.  I wish you to find something of this kind in your life, and enjoy more POIS-free days.



Title: Re: Personal POIS Summaries and Histories.
Post by: baseballplayer20 on August 18, 2016, 11:32:07 PM
Dear Fellow POISers,

I have been following the POIS Center forum for a while, and I am immensely grateful for all of the treatments, experiences, and stories you all have shared.  I feel that it is time to join you, and share my experience.  I have suffered from POIS since puberty, and my symptoms have progressively worsened from 1-2 days to a full 7 days after emissions.  I have less symptoms from nocturnal emissions, and most symptoms from an induced emission.  Being in medical school, I was able to manage with a strict abstinence routine, however recently after taking Tramadol for a month began to experience spontaneous fluid emissions (simply coming in contact with shorts, sheets, and in some cases from laughter or simply walking across the room).  These have not stopped even after stopping Tramadol, and I needed to take a leave of absence from school. 

I have read that Prozac (fluoxetine) can be very beneficial in terms of increasing ejaculatory latency time, in theory preventing spontaneous and nocturnal emissions.  I noticed that a few people have had mixed results with Prozac, anyone else tried it, or have any advice with regards to SSRI's/other medicines that reduce frequency of emissions?

My experience with Tramadol led me to broaden my perspective with regards to the autoimmune theories, as my condition moves from POIS to POIS + PGAD symptoms.  I am now very curious as to whether POIS Syndrome results from a spinal cord abnormality.  Dr. Komisaruk recently spoke on Tarlov cysts in Persistent Genital Arousal Disorder (https://www.youtube.com/watch?v=gJvfyTvqs38), and mentions that Tarlov cysts could cause other sexual disturbances given they take place in the region responsible for many sexual functions.  Looking further, there is some recent research on the way in which the GRP system in the spinal cord regulates ejaculation (http://www.ncbi.nlm.nih.gov/pubmed/25426011), and on the fact that there is possibly an independent itch driven mechanism from this system - raising the possibility that POIS is not a primary IgE allergy mediated process.  There is also research on the role of GRP in immune system activation (http://www.ncbi.nlm.nih.gov/pubmed/22735756).

In brief, this seems to raise the question for me as to whether POIS could be the result of neurological disease in the spinal cord (Tarlov cyst or other lesion), that is inflamed by ejaculation.  I have severe constipation, urinary retention, and pelvic pain after ejaculation, which can all be seen in Tarlov cyst disease.  I am going to have an MRI of my spine soon, and I'm curious to know if anyone else has had a spinal MRI? Or similar symptoms including pain with sitting down, hyper-sensitive feelings or decrease of sensation in the lower body.

I would like to end this post by emphasizing that my medical knowledge is rather limited, I am very naive in my medical training, and these are simply ideas that I had. 

Title: Re: Personal POIS Summaries and Histories.
Post by: notmythirdaccount on August 19, 2016, 10:48:57 AM
Dear Fellow POISers,

I have been following the POIS Center forum for a while, and I am immensely grateful for all of the treatments, experiences, and stories you all have shared.  I feel that it is time to join you, and share my experience.  I have suffered from POIS since puberty, and my symptoms have progressively worsened from 1-2 days to a full 7 days after emissions.  I have less symptoms from nocturnal emissions, and most symptoms from an induced emission.  Being in medical school, I was able to manage with a strict abstinence routine, however recently after taking Tramadol for a month began to experience spontaneous fluid emissions (simply coming in contact with shorts, sheets, and in some cases from laughter or simply walking across the room).  These have not stopped even after stopping Tramadol, and I needed to take a leave of absence from school. 

I have read that Prozac (fluoxetine) can be very beneficial in terms of increasing ejaculatory latency time, in theory preventing spontaneous and nocturnal emissions.  I noticed that a few people have had mixed results with Prozac, anyone else tried it, or have any advice with regards to SSRI's/other medicines that reduce frequency of emissions?

My experience with Tramadol led me to broaden my perspective with regards to the autoimmune theories, as my condition moves from POIS to POIS + PGAD symptoms.  I am now very curious as to whether POIS Syndrome results from a spinal cord abnormality.  Dr. Komisaruk recently spoke on Tarlov cysts in Persistent Genital Arousal Disorder (https://www.youtube.com/watch?v=gJvfyTvqs38), and mentions that Tarlov cysts could cause other sexual disturbances given they take place in the region responsible for many sexual functions.  Looking further, there is some recent research on the way in which the GRP system in the spinal cord regulates ejaculation (http://www.ncbi.nlm.nih.gov/pubmed/25426011), and on the fact that there is possibly an independent itch driven mechanism from this system - raising the possibility that POIS is not a primary IgE allergy mediated process.  There is also research on the role of GRP in immune system activation (http://www.ncbi.nlm.nih.gov/pubmed/22735756).

In brief, this seems to raise the question for me as to whether POIS could be the result of neurological disease in the spinal cord (Tarlov cyst or other lesion), that is inflamed by ejaculation.  I have severe constipation, urinary retention, and pelvic pain after ejaculation, which can all be seen in Tarlov cyst disease.  I am going to have an MRI of my spine soon, and I'm curious to know if anyone else has had a spinal MRI? Or similar symptoms including pain with sitting down, hyper-sensitive feelings or decrease of sensation in the lower body.

I would like to end this post by emphasizing that my medical knowledge is rather limited, I am very naive in my medical training, and these are simply ideas that I had.

I have a question regarding the Tarlov cyst. I've experienced POIS for at least 10 years and frequently try to remember anything that may help me connect the dots to this terrible condition.

What interests me about that cyst theory is that it has to do with the spine. I don't have any spinal pain unless I'm sitting for a while without much movement. However, as ridiculous as it sounds, when I was maybe 12 or 13 I vividly remember climbing up a tree (the height of a typical single-floor house) and falling. I came out unscathed, I think, but I do remember hitting the lower section of my back multiple times. I must have hit 3-5 medium branches on the way down, and what's weird is that I landed on my back as well. I remember having some tension through the middle and lower parts of my back, but nothing that I couldn't get better from.

Would this sort of event trigger any potential spinal issues down the road? Or are we talking about insane events like getting rear ended by a semi?
Title: Re: Personal POIS Summaries and Histories.
Post by: Quantum on August 19, 2016, 12:15:26 PM
Dear Fellow POISers,

I have been following the POIS Center forum for a while, and I am immensely grateful for all of the treatments, experiences, and stories you all have shared.  I feel that it is time to join you, and share my experience.  I have suffered from POIS since puberty, and my symptoms have progressively worsened from 1-2 days to a full 7 days after emissions.  I have less symptoms from nocturnal emissions, and most symptoms from an induced emission.  Being in medical school, I was able to manage with a strict abstinence routine, however recently after taking Tramadol for a month began to experience spontaneous fluid emissions (simply coming in contact with shorts, sheets, and in some cases from laughter or simply walking across the room).  These have not stopped even after stopping Tramadol, and I needed to take a leave of absence from school. 

I have read that Prozac (fluoxetine) can be very beneficial in terms of increasing ejaculatory latency time, in theory preventing spontaneous and nocturnal emissions.  I noticed that a few people have had mixed results with Prozac, anyone else tried it, or have any advice with regards to SSRI's/other medicines that reduce frequency of emissions?

My experience with Tramadol led me to broaden my perspective with regards to the autoimmune theories, as my condition moves from POIS to POIS + PGAD symptoms.  I am now very curious as to whether POIS Syndrome results from a spinal cord abnormality.  Dr. Komisaruk recently spoke on Tarlov cysts in Persistent Genital Arousal Disorder (https://www.youtube.com/watch?v=gJvfyTvqs38), and mentions that Tarlov cysts could cause other sexual disturbances given they take place in the region responsible for many sexual functions.  Looking further, there is some recent research on the way in which the GRP system in the spinal cord regulates ejaculation (http://www.ncbi.nlm.nih.gov/pubmed/25426011), and on the fact that there is possibly an independent itch driven mechanism from this system - raising the possibility that POIS is not a primary IgE allergy mediated process.  There is also research on the role of GRP in immune system activation (http://www.ncbi.nlm.nih.gov/pubmed/22735756).

In brief, this seems to raise the question for me as to whether POIS could be the result of neurological disease in the spinal cord (Tarlov cyst or other lesion), that is inflamed by ejaculation.  I have severe constipation, urinary retention, and pelvic pain after ejaculation, which can all be seen in Tarlov cyst disease.  I am going to have an MRI of my spine soon, and I'm curious to know if anyone else has had a spinal MRI? Or similar symptoms including pain with sitting down, hyper-sensitive feelings or decrease of sensation in the lower body.

I would like to end this post by emphasizing that my medical knowledge is rather limited, I am very naive in my medical training, and these are simply ideas that I had.


Welcome to the forum, baseballplayer20, and thanks for joining, and sharing your POIS history !

I am sorry to hear that Tramadol has worsened POIS problem and have caused you to put put your medical studies on hold.  You even mention to now have PGAD ( Persistent genital arousal disorder ), and I think it is the first time I hear of a POIS sufferer also having this condition.

You write about the possibility that POIS is not a primary IgE allergy mediated process.  Dr Waldinger, in his 2004 POIS study, have already mentioned that the IgE were normal in test subjects, and now, in his most recent review article ( see the link  to this article at http://poiscenter.com/forums/index.php?topic=2346.msg19517#msg19517 ), he states that " POIS is not associated with increased total serum IgE concentrations. On the contrary, there are indications that POIS is triggered by specific cytokines that are released by an auto-immune reaction to the man’s seminal fluid.".  Identifying the antigen, and also blocking those pro-inflammatory cytokines production and actions looks like the way to go.

Like I have expressed lately on the forum, I do think that there is more than one type of POIS.  Your local POIS symptoms ( urinary retention, constipation, pelvic pain) can for sure be linked to some neurological problem in your spinal cord.  But for other POIS sufferer like myself, symptoms are very different ( mostly psychological symptoms, fatigue and hyptension), and having none of those local symptoms, it would be surprising that I have any spinal cord issue in the lower back region.   However, we do have the same trigger, and same pattern for a POIS acute phase.  t Tarlow cys  may well be a contributing factor in your type of POIS, and learning anything about any type of POIS is a step further in solving the POIS overall puzzle.

About NE prevention, in case you did not already read it, see this thread: http://poiscenter.com/forums/index.php?topic=2151.msg17197#msg17197

I wish you find soon a way to control and relieve your symptoms, so you can resume your medical studies.  Even if you only are beggining your medical curriculum, you are for sure already at ease with medical terms and abbreviations, and your understanding of scientific articles will be of great value for this forum, so I am very happy that you have joined :)
Title: Re: Personal POIS Summaries and Histories.
Post by: Spartak on August 20, 2016, 01:28:23 PM
Thank you, Spartak, for this detailed account of your POIS history !  Thank you for having taken the time to write and share this on the forum.

I will stay connected to hear about what brings you some relief, and hope to be able to integrate some of your data in my POIS types chart.

I wish you to find a way to adapt to POIS, like abstaining for longer periods of time.  I know it is harder when younger, but for us, it sure has advantages.  What helps me to extend to a release once a week or once every two weeks is to find other significant source of pleasure in life, like playing sports or playing music.  I wish you to find something of this kind in your life, and enjoy more POIS-free days.
Hi,thank you Quantum!
,I.couldn't reply earlier,I am traveling a bit.

For me being among friends is the best way for abstaining.I have problem that if I am abstaining for more then few days I become calmless.I tried meditation but it wasn't helpful ,I simply can not relax.For example I play guitar only when in POIS because when I am ok I can not relax and enjoy,even people say that I am hyperactive. Recently I heard that it can be due depression.


Since I was taking these things long ago,I belive that is not against the rules to share it now.
Here is what was helpful(and not so helpfull) for me:

Niacin: Avoids full brain fog blast for for some time.For example if I have O before sleep,I will sleep better (with less nightamares),I will wake up more alerted ,but in the next few hours POIS will strike back.In my case it has positive effect mostly on brain fog.Other symptoms are not that differente.
So lest say:
Positive side:POIS related:
less brain fog (I don't like %,because they are subjective,but maybe 20% less in the next few hours,maybe 10%
up to 12 hours,then POIS strikes back.I took it in time when my POIS was longer(3 days),I also felt bit better in 3rd day.
Non POIS related:lowers my blood pressure and makes me more calm,also lowers my libido a bit,which seems to be  good thing for us :)

Negative side: related to POIS:none
non-POIS related : sometimes mild discomfort in liver and stomach.
I dount count flush,because I like it a lot :)

Dosage : 200+mg on emtpy stomach before O ,I notticee that I can have O after flush (up to hour I tried),durring flush and even a bit before flush effect is the same for me.

Fenugreek seeds and garlic:

Garlic - no effect at all

Fenugreek(took seeds):made.my POIS much worse,brought vommiting to my POIS,headache and brain fog were stronger
then ever,2nd day was rally bad as well.
Even when not in POIS I felt less creative after it. But THE MAIN SIDE EFFECT which I will in smaller strengh expirience with magnesium and tumeric later was constant strange simulation inside me,I am not sure is that prostate or something else.
But even minor sexual thing ,like beautiful girl on the street was enough for mini O without E (even without erection),but enough for mini POIS. It was impossible to cure that ,only after new O I felt less stimulation.

Only positive side(I guess due that over stimulation),I enjoid more in O and during masturbation/sex.

Xizal (anti-histamic) and

Diclofenac/Voltaren( nonsteroidal anti-inflammatory drug )

Both have similar negative effect,I had complety apathy for few days after,that felt really bad.

Tumeric/Cucurmin -1st thing that has positive effect on my mind.I felt more connected,I even flirted with girls online durrimg POIS,simply brain worked better.
Side effect :same over stimilation mentioned above,and stornger headache then usual.

Beta blocker (Propranol),primary for blood pressure,I am not takining it when in POIS because it many times gave me more brain fog and headache, before POIS (not directly,I should use it every 12 hours)no bigger effect except that I feel calmer

Gluten free diet (1,5 month) some effect on brain fog,se nothing scientific

I want to respect rulles ,so I will wait few more days before I share about few more things I tried and combo of those things,also because I want to check more are maybe some improvents permanent.
I think that is not wrong to say that with magnesium and zinc I expirienced hudge improvement,but also some really bad side effects.

*I mentioned above that my Pois was 3 days and also that I think that some improvments might be permanent,that maybe sounds confusing,so to explain.
Like I wrote in my prvious post,my POIS never felt stable.So over years I expirienced various severity of various symtoms.
Maybe I affected Pois somehow but I was not aware of,but anyway,for example around 1,5 year ago POIS went bad from itself,and I had for about year
3 days of symptoms.Few monts ago I notticed that I have again 2 days long POIS.Also once for a short period of time some symptoms last even a week after,it went better from itself.I had NE last night,and symtoms seems bit differente then usual,lot of improvent,very few seems bit worse.
So I just HOPE that some improvments might be permanets,but can't claim anything.Time will show,and I will share.

ps. Hot showers and hot weather are bad for my POIS,forgot to mention in previous POIS.

I hope that Quantum would not mind for paste his signature here:
Quote
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259
As always sorry for bad English.
With respect to all POISers
Spartak




Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on November 14, 2016, 07:46:58 PM
Dear Fellow POISers,

I have been following the POIS Center forum for a while...


Welcome, baseballplayer20!

Hope you've visited our Welcome Page:
http://poiscenter.com/forums/index.php?topic=1.msg19998#new
Title: Re: Personal POIS Summaries and Histories.
Post by: Dirkstar on November 17, 2016, 03:08:00 PM
[REPOST] POIS may have destroyed my life. As an engineer, the impact to my cognitive function alone is tangible and devastating. I have also developed early onset Parkinson's (at 46) without any family history, except my half-brother who seems to be going through the same thing. My major symptoms are: Brain fog including short term and long term amnesia, headache, nausea, sleeplessness, and hypersensitivity especially to sound. These symptoms onset gradually within 30 minutes of orgasm and to a lesser degree with "edging". Years ago it was clear that these symptoms gradually increased and peaked at 3 days after O and then declined over the next 5-10 days. These days I just feel like hell for 10 days. The effects are cumulative with each O. I've been experiencing these symptoms as a profound acute event for since my mid 30s but I suspect my poor performance at college is related. A (unusually insightful) neurologist 16 years ago suspected seminal fluid prostaglandins sensitizing spinal neurons to pain/sensation and prescribed Advil (COX-2 inhibitors) 20 minutes prior to sex. THIS IS 80-90% EFFECTIVE and thus validates his theory. Unfortunately COX-2 inhibitors are not practical for regular use. Recent use of Tylenol before bed clearly helps me sleep better, but that's not a long term solution either. I have a high sex drive and probably masturbate too much so I've blamed myself and tried to control the disease behaviorally. This hasn't worked very well.

Since the Parkinson's is developing rapidly, I am now aggressively pursuing formal diagnosis and treatment. I'm discovering the ugly side of the business of medicine (some natural due to the complexity of medicine and the need to make a buck, some probably forced on them by government cost pressures): Specialists are generally interested in conditions they understand and can monetize. The Austin Diagnostic Clinic, representing a large number of endocrinologists in Austin, told me categorically yesterday that they would not see me for POIS, without explanation. I spent $550 out of pocket last week for a world-famous neurologist in Houston that writes textbooks about Parkinson's and he never heard of POIS, hypersensitivity as I described it, or a link between this hypersensitivity and Parkinson's. He and his medical staff were not interested in investigating POIS further or finding the right doctor/researcher.

Thank you to the creators and maintainers of this forum. It is troubling though that there doesn't seem to be much recent activity. I encourage any sufferer/researcher/clinician/author to feel free to contact me.
Title: Re: Personal POIS Summaries and Histories.
Post by: FloppyBanana on November 19, 2016, 03:59:15 PM
Hi Dirkstar,

Welcome to forum. How advil do you take to get good results? When you say not practical for long term use how much per month were you taking?

Progesterone, Benadryl & Mytelase in combination work for me. Can hold down an OK job as a finance analyst. Shoot maybe once every ten days.

If you are in the US you won't be able to get Mytelase. I think Neostigmine will be the closest then Mestinon.

You have to know how to use these in combination. It took me about a year work out best and most reliable at low dosage. See these posts:

http://poiscenter.com/forums/index.php?topic=2149.0

Can achive 95% effective but most likley around 75%. Moderation of O is key!

Hope this helps.
FB
Title: Re: Personal POIS Summaries and Histories.
Post by: Dirkstar on November 19, 2016, 06:21:23 PM
Hey FB (lol),

Thanks.

The neurologist recommended 200mg x 2 = 400mg. I often take 800mg, esp. to take effect faster. This chews up my stomach (I had to go to the emergency room once for upper GI spasms).

Thanks for the advice. I'll take a look. Indeed moderation seems to be the most important thing.

Best regards,
Derrick
Title: Re: Personal POIS Summaries and Histories.
Post by: eccentricbipois on December 11, 2016, 06:10:06 AM
Greetings all! I've been lurking on and off for a few years now and finally registered on the forum. I'll give a rundown of my journey.

I've had POIS since as long as I can remember back into my early adolescence. For years I noticed I felt muscle weakness, strong irritability, ADD-like symptoms (problems focusing), difficulty with recalling words, short-term memory impairment, stuff that a lot of sufferers here are familiar with I'm sure. The symptoms would gradually fade, the only sure thing that helped was sleep; I'd feel 100% like garbage within the first 24 hours, then 50% the following day, then 25% the next day after that, symptoms were reduced by half each day since orgasm. I've tried abstaining from orgasms for 2-3 weeks at most, and I feel like I have a lot of energy and motivation when I do so, until I have the next O, back to square one. As crazy as this sounds, for a good portion of my life until about a few years ago I honestly thought these symptoms were normal but was too embarrassed to bring it up to anyone. I was able to function but I would just be not in a very good mood because I felt like a truck hit me within an hour after O.

At age 26 I had my first sexual partner, and finally someone to talk about these symptoms, upon describing she assured me that what I have is not normal, and that's when it struck me that I might have something. We did the Internet search for symptoms and in the results was the wikipedia page for POIS, and sure enough it sounded exactly what I've had. That's also when I discovered this forum and read several sufferer's stories and looked for ideas for treatment or at the very least relieving the symptoms to a manageable level. I tried the Niacin that seemed to work for some people here but it didn't really do anything for me. I also took Benadryl and Loratadine, which seemed to help with some of the flu-like stuff. When I was in college I actually tried taking Ibuprofen when I had the symptoms and it actually helped! I really should've seen a doctor earlier but wasn't sure if they'd believe me honestly, plus I'm too shy to be talking about orgasms to anyone.

A couple years ago I finally took initiative to see my doctor and explained the symptoms I suffered from. I first went to my primary care doctor who suggested seeing an allergy specialist, urologist, and then get tested for ADD/HD. I first met the allergy specialist who suggested taking Ibuprofen which seems to help with the aching/weak muscles, so I still do that today. Next I met the Men's Health specialist (urologist) at UW Medicine who had no idea what's going on and only saw one other case of this in his 20 years of practice. He then suggested seeing the neurologist who told me the same thing; "Sorry, we don't know what could be causing this or how to treat it." Great...

The psychiatrist at the ADD clinic determined that my ADD/HD was moderate based on the first test results and mild upon taking the exact same test visiting the office 5 days later. How could that be? Well POIS symptoms were in peak when I first took the test and then 5 days later when I visited the office in person, the symptoms subsided and I was back to "normal". Interesting...

So what does the psychiatrist believe is going on? It's likely related to dopamine, that fun fun neurotrasmitter that controls the reward and pleasure centers in the brain, among other things. What may be happening is that I generally have low-moderate levels and then incredible amounts of dopamine is released (in this case upon orgasm), then over time the withdrawal symptoms onset resulting in brain fog, irritability, cravings, seeking relief, classic example of a drug addict trying to get their fix. I immediately try to recall what other activities I engage in that release dopamine: drinking alcohol, socializing, playing video games, eating junk food... To me even these activities have always been highly pleasurable to a slightly overwhelming degree.

What the psychiatrist hypothesized made sense to me, but how could I treat this or reduce the severity of the 'dopamine withdrawal' symptoms? Well she suggested first trying something that would act as a dopamine agonist, not necessarily providing more dopamine release to the brain that would normally be prescribed to patients with Parkinson's but something to activate the receptors in the absence of dopamine, so when I actually get that dopamine rush it won't be so overwhelming. The psychiatrist prescribed Nuvigil (Armodafinil). On-label use is for people with sleep disorders but off-label use is for ADHD treatment and certain cognitive enhancements. Upon taking this daily I notice that my dopamine hits are much much less overwhelming, ie very manageable. Before it would be very exhausting just talking with friends.

POIS symptoms have been a detriment to my enjoyment of life, and has negatively impacted my work, studies, and relationships with family and friends. I've at least found a way to reduce the worst aspects of the symptoms by taking NSAIDs and dopamine agonists. Hopefully someone here finds this information useful.

This is a needlessly awful thing to have and through research hopefully we will soon discover what is causing POIS.

Also could someone message me the answer to "Which user is Admin"? I can never seem to answer that right.
Title: Re: Personal POIS Summaries and Histories.
Post by: Dirkstar on December 11, 2016, 11:53:26 AM
Hey eccentricbipois! Let me be the first to welcome you. I'm sorry for the suffering you've gone through. Nothing like having an illness that is devastating to your entire life, yet invisible, nobody has ever heard of, and is very embarrassing to talk about, eh? I hate talking to doctors about it, it is so humiliating.

I have speculated about the role of dopamine in my symptoms similarly to you. But more in the context of my addictive behavior and withdrawal symptoms that seemed to be different than the POIS symptoms (brain fog, headaches, nausea, sleeplessness, hypersensitivity). Different mainly because of the intense severity of the nausea and headache and a different feeling like crap and the fact that intense withdrawal symptoms has only happened rarely after (if I recall correctly) I went through long bouts of the most intense sexual activity. Perhaps "withdrawal" here is equivalent to a highly depressed dopamine system as your doctor suggests. However, I note again that I now have Parkinson's Disease, which is a destruction of dopamine producing cells in the motor center of the brain. So I have been taking pramipexole, which stimulates dopamine sensitivity, and carbidopa/levidopa, which is a synthetic dopamine. Neither of these seem to affect my POIS.

So I speculate that, for me, the dopamine aspect is separate from POIS proper, if you will, where the dopamine role is (1) an addiction and withdrawal process (very powerful and obvious to me; sex becomes all that matters), (2) part of the "normal" post-coital depression process that most males go through immediately after orgasm and possibly for a few days after that (I recall getting into trouble with girls more than once by not calling for a few days after sex (following intense attention of course), because I really had a very strong sense of well being and no *need* for companionship and sex), and (3) maybe a *reaction* to the hypersensitivity of POIS, i.e. like endorphins to pain. If (3) is true, then post-sex neural *hypersensitivity* may be normal to guys but just not to the degree where it causes illness and neural dysfunction.

So the dopamine aspect I (struggle to) address through moderation (yuck).

Then, as I stated above, I try to prevent the hypersensitivity itself, which, according to my neurologist, seems to be caused by high amounts of prostaglandins created in the prostate and released internally (mostly with ejaculation). So my neurologist prescribed Advil (NSAID COX inhibitor) 20 minutes *before* sex/ejaculation which has a *clear* benefit to me. NSAIDs or Aspirin or Tylenol *after* sex/ejaculation help a little, but just a little. I've discovered recently that taking Tylenol particularly before bed helps me sleep much better during POIS and may even help shorten the typical duration (1-2 weeks for me, though I rarely have been able to abstain from sex long enough to see if it goes away entirely). None of these are good for taking long term though, as I've had two emergency room visits that seem to be related (GI spasms and a kidney stone a few weeks ago).

Finally, we cannot dismiss the allergy to semen theory. I have other symptoms which may be explained by this.

I'm sure I speak for all of us in that I'm very grateful for your sharing and to know that I'm not alone. Your experiences with your doctors and treatments are very interesting and helpful. I look forward to your next post.

Dirkstar
Title: Re: Personal POIS Summaries and Histories.
Post by: Dirkstar on December 14, 2016, 01:26:09 PM
I'm not being successful finding an endocrinologist in the Austin area that will see me for "POIS" or "prostaglandin imbalance" (as my primary care physician is calling it in his referrals). It has been said here that there are clinicians that have heard of POIS in the U.S. and will see patients for it. Mind providing a list?

My primary care physician also thinks I should see a psychiatrist. Great. I have no doubt one would be happy to take my money.
Title: Re: Personal POIS Summaries and Histories.
Post by: Dirkstar on December 14, 2016, 01:45:18 PM
Can I get a copy of the 2010 Ashby and Goldmeier study (and not pay $30)?

Ashby J and Goldmeier D, CASE REPORT: Postorgasm Illness Syndrome ? A Spectrum of Illnesses, The Journal of Sexual Medicine May 2010; 7(5):1976-1981

They studied just two people, one of which had cultural issues, so not very impressive, but I'd like something to show my physicians. Sorry if I'm posting to the wrong place.

Title: Re: Personal POIS Summaries and Histories.
Post by: Quantum on December 14, 2016, 07:22:24 PM
Hi Dirkstar,

In order to keep this thread for POIS summaries, I have posted an answer here : http://poiscenter.com/forums/index.php?topic=2392.new#new
Title: Re: Personal POIS Summaries and Histories.
Post by: Akaliko on January 26, 2017, 09:16:53 AM
Hi all, I wanted to share a bit about the history that's landed me here as of last week.

In my early twenties, I began searching for a spiritual path, born out of many years of difficulty, unrelated to POIS.  I was fortunate to eventually encounter meditation, which revealed itself to be a compatible and effective discipline for me.  I threw myself into intensive practice, spending lots of time in meditation centers and monasteries, and like many other devoted meditators, worked to let go of all sexual activity.    It's difficult for me to remember any instance of voluntary sexual activity from 2009-2013.  And whatever involuntary, nocturnal emissions that may have happened during that time, my memory is that there were not followed by any symptoms.

In 2013, I began re-experimenting with self-sex, and was horrified to experience, for the first time, POIS-like symptoms; and for various reasons, it became impossible for me to return to abstinence.  So, I have trudged along with symptoms for the past 3.5 years - with confusion, upset, and mostly without consultation - unaware of this diagnosis and community.  It's a great relief to have arrived here after these 3.5 years of being alone in the misery. 

My self-determined hypothesis during that time, 2013-2017, was that I must have thrown something out-of-whack during my period of restraint from 2009-2013.  Having skimmed the forums this week, seems like that's not at all everyone?s experience.  So I wonder: has anyone else noticed (i.e. is there any record of ...) first onset of POIS symptoms following long periods of abstinence?

Title: Re: Personal POIS Summaries and Histories.
Post by: Dirkstar on January 26, 2017, 12:12:24 PM
Let me be the first to welcome you, leerichter, and also to say I'm very sorry you are suffering too. In addition to the devastating symptoms, this condition is very hard to talk about even with medical professionals.

I note that many here, including myself, suspect serious emotional and personality difficulties to be associated with POIS.

For me, the effects of POIS are cumulative. So the thing that limits the severity of the symptoms the most is moderation in sexual activity. This means fun things like porn and masturbation. I get symptoms these days with any arousal. At least a week between such fun events seems to clear 90% of the "brain fog" and other symptoms associated with that event. Moderation for me however does not seem to remove the effects associated with a single event. For a single event I take 800mg ibuprofen (buffered so it doesn't eat a hole in my stomach), at least 30 minutes before any fun, preferably an hour, and on a fairly empty stomach. Taking ibuprofen daily, and on an empty stomach, is potentially dangerous btw, especially if unbuffered. I went to the emergency room once because of it. Read up on ibuprofen (and COX-2 inhibitors) before taking it regularly.

Best wishes
Title: Re: Personal POIS Summaries and Histories.
Post by: taurusthree on August 20, 2017, 12:42:33 PM
Hey guys! Yet another POIS sufferer here.

Dirkstar and eccentricbipois shared very good ideas on two seemingly distinct aspects of POIS: the first one related to dopamine reward system and the second one related to hypersensitivity. I relate to both: I'm HSP (a highly sensitive person, an extreme case I guess) and also suffer from ADD.

In my observation, emotions and inflammation are tightly coupled. After any "more than average" emotional exposure I feel not only overwhelmed, but also the overall inflammation of my body increases. Even the color of my face changes. And I become more prone to my allergies; an instant allergic rhinitis and a bitter taste in mouth. And this is not only after "bad" emotions, the "good" ones manifest in the same way: any obsession easily gives the same soar throat and inflamed sinuses. Once, when I tried to force me to work during a POIS period with allergic rhinitis I got a SSHL (Sudden Sensorineural Hearing Loss). An inflammation of an ear nerve. Thanks to steroidal anti-inflammatories, I've recovered hearing of that ear after 2 weeks.

Also I have: dry eyes/ nose (especially during the "lows" of ADHD), POTS (postural orthostatic tachycardia syndrome), not the very best working/ long-term memory, fybromalgia (I've discovered that recently: I was just used to the constant pain, uncomfortable feelings from early childhood), unrefreshing sleep (this one also from early childhood; I always wanted to rest after the sleep), allergies (+ extremely elevated specific IgE levels to almost everything I've tested).

Before getting to the POIS part, I also want to share an observation about the extreme cases of nervous system sensitivity. After watching a movie, the world seems like a scene from that movie. Initially I thought everybody is like that, but recently discovered that only one of my friends experiences this. Same goes for gaming, but it escalates the symptoms much faster: play a computer game for 5 minutes, close your eyes and you're still driving that car. First time my parents bought me a computer, after few hours of exposure to the PC screen I went to bed and couldn't sleep. I was closing my eyes and seeing Windows XP icons, opening and closing windows, moving cursors...

About POIS: have the full range of symptoms. Starting from severe brain fog, ending with inflammation (sometimes in weird places). It usually decreases on day 2-3. And it makes my not-the-easiest life much worse. And it made my adolescence a total hell.

* * *

I always wanted to try ADD medication to see how it affects my concentration and whether can I tolerate it as an HSP. Unfortunately I am from a post-Soviet republic and stimulants are forbidden here. So my doctor decided to go another route: antidepressants. However you can't find SNRI-s here either (which may also help with ADD)... So, I'm currently on a SSRI - Zoloft. To be honest I wasn't expecting any drastic improvement to my condition. Currently I'm on day 4, and was anticipating to feel changes (if any) only after few weeks.

... However some sort of magic happened even on the second day of 25mg Zoloft (Sertraline) (which is not the therapeutic doze even). ADHD is still there. However instead of ADD-PI with loss of energy, it is now more like the hyperactive type. So yeah, at least I have a lot more energy, don't want to sleep all day long etc. Next, the sensitivity is drastically reduced. Even in the current state (with reduced sensitivity) I'll consider myself an HSP, but not the extreme type I mentioned earlier. Smallest emotion remains a relatively small emotion and doesn't immediately escalate to the full power. Conversation with people gives energy; any activity with "more than average" emotional component doesn't immediately drain or overwhelm. Also, (and that's the weirdest part, which proves my theory about the entanglement of emotions and inflammation): the inflammation is dramatically reduced. Much less allergies.

POIS was still there but to way less extent, and the next day I felt more or less normal (very little inflammation, and some restlessness, thanks to the ADHD).

So yeah, some of us may benefit from Sertraline.

So, my current theory (about my subtype) is: POIS seems to somehow activate a mechanism which makes more prone to the inflammation. The mechanism is already present in us (e.g. when experiencing very intense emotions people may experience inflammation. Some of us experience slight emotions as very heightened, so maybe get that inflammation much more easier). And maybe it is not the inflammation because of allergy to the semen itself (after all you always have that sperm in testicles), but instead it just (temporarily) makes your existing allergies worse. + in addition, the dopaminergic symptoms. And those seem not to be related to the previous ones. I suspect, people with ADHD are way more vulnerable to the latter.

I'll make updates on whether and how much Zoloft really helps. After all it could be just a placebo (though I highly doubt that). Also I want to express my gratitude for the existence of the Internet. What would we do without it? These kind of forums are really-really helpful and giving hope (in contrary to the sh*tty instagrams...) .
Title: Re: Personal POIS Summaries and Histories.
Post by: KIA777 on September 01, 2017, 11:16:31 PM
hi everybody i know everybody is talking about what medicine to take but i have to share my experience anyways i had pois for2years but christ changed it for me ihad severe brain fog feeling like i was dieing  insomnia and some times my transition between conscious and asleep state was  odd and therefor i couldnt sleep I had constant sinutitis  and felt like im suffocating so i had to breath deeper i felt like lights are too bright and 3years ago i had none of these and its amazing guys that oraying for healing in the name of jesus healed me i had awet dream yesterday and i didnt even feel 10percent of those symptoms ifeel my brains changed and all i did wasask God to heal me cuz through faith everything is possibe and healing cancers bones skin or even a Devastating disease like pois is no exception just continuously pray for this and believe it  its not a joke although it might seem like one to some But God loves his children and as u can read in the bible says God will gove you anything u ask in the name of jesus Hope somebody tries this and let me know! All glory to God
Title: Re: Personal POIS Summaries and Histories.
Post by: B1 on September 02, 2017, 06:26:10 AM
"Caedite eos. Novit enim Dominus qui sunt eius" .. :o
I from Russia trust in science and good. Everything can be explained and even to pois. There is no god!
Why has god given me the member and pois? He was drunk?acturh

Title: Re: Personal POIS Summaries and Histories.
Post by: Bulbo on September 02, 2017, 06:28:19 AM
hi everybody i know everybody is talking about what medicine to take but i have to share my experience anyways i had pois for2years but christ changed it for me ihad severe brain fog feeling like i was dieing  insomnia and some times my transition between conscious and asleep state was  odd and therefor i couldnt sleep I had constant sinutitis  and felt like im suffocating so i had to breath deeper i felt like lights are too bright and 3years ago i had none of these and its amazing guys that oraying for healing in the name of jesus healed me i had awet dream yesterday and i didnt even feel 10percent of those symptoms ifeel my brains changed and all i did wasask God to heal me cuz through faith everything is possibe and healing cancers bones skin or even a Devastating disease like pois is no exception just continuously pray for this and believe it  its not a joke although it might seem like one to some But God loves his children and as u can read in the bible says God will gove you anything u ask in the name of jesus Hope somebody tries this and let me know! All glory to God
Hello KIA777
Hi..... Sorry to hear about your POIS.... i had Pois from adolescent age....Can u tell us at what age u got pois and how long yr symptoms last
Thanks
Title: Re: Personal POIS Summaries and Histories.
Post by: KIA777 on September 06, 2017, 08:08:35 AM
hi everybody i know everybody is talking about what medicine to take but i have to share my experience anyways i had pois for2years but christ changed it for me ihad severe brain fog feeling like i was dieing  insomnia and some times my transition between conscious and asleep state was  odd and therefor i couldnt sleep I had constant sinutitis  and felt like im suffocating so i had to breath deeper i felt like lights are too bright and 3years ago i had none of these and its amazing guys that oraying for healing in the name of jesus healed me i had awet dream yesterday and i didnt even feel 10percent of those symptoms ifeel my brains changed and all i did wasask God to heal me cuz through faith everything is possibe and healing cancers bones skin or even a Devastating disease like pois is no exception just continuously pray for this and believe it  its not a joke although it might seem like one to some But God loves his children and as u can read in the bible says God will gove you anything u ask in the name of jesus Hope somebody tries this and let me know! All glory to God
Hello KIA777
Hi..... Sorry to hear about your POIS.... i had Pois from adolescent age....Can u tell us at what age u got pois and how long yr symptoms last
Thanks
Title: Re: Personal POIS Summaries and Histories.
Post by: demografx on September 06, 2017, 10:58:04 AM
Welcome, taurusthree!

Title: Re: Personal POIS Summaries and Histories.
Post by: KIA777 on September 09, 2017, 01:49:39 PM
hi everybody i know everybody is talking about what medicine to take but i have to share my experience anyways i had pois for2years but christ changed it for me ihad severe brain fog feeling like i was dieing  insomnia and some times my transition between conscious and asleep state was  odd and therefor i couldnt sleep I had constant sinutitis  and felt like im suffocating so i had to breath deeper i felt like lights are too bright and 3years ago i had none of these and its amazing guys that oraying for healing in the name of jesus healed me i had awet dream yesterday and i didnt even feel 10percent of those symptoms ifeel my brains changed and all i did wasask God to heal me cuz through faith everything is possibe and healing cancers bones skin or even a Devastating disease like pois is no exception just continuously pray for this and believe it  its not a joke although it might seem like one to some But God loves his children and as u can read in the bible says God will gove you anything u ask in the name of jesus Hope somebody tries this and let me know! All glory to God
Hello KIA777
Hi..... Sorry to hear about your POIS.... i had Pois from adolescent age....Can u tell us at what age u got pois and how long yr symptoms last
Thanks

i got this from 15-16yo up until now so its almost 2years and Ive Almost totally abstained from masturbating for 1year and 1-2month maybe But anyways i had wet dreams and They caused Symptoms like light headednes disorientation(when i closed my eyes i felt like i was floating in space or something) And  Almost everyday if i tried to even memorize something for my studies it caused That uncomfortable undescribable feeling  and I my sinuses were tight and i had stuffy nose all day(before pois I almost never had these kind of stuff) And i can tell you (i can feel it) i had a serious change in my brain I mean there was a moment 2 years ago that everything changed the brians way of going to sleep/The way i felt down there /orgasm seemed More like a burning Wiers but still a bit releasing sensation /and When i closed my eyes i felt like although everything is dark But There was kind of a A buzz On that darkness (like a like that rapidly turns on and off it was dark but That Darknes kinda resonated Or something (thats what i meant by a buzz))  all kinds of wierd stuff man And I had to sometimes study plus 15-16hours so... You probably understand how real the problem was and to me it was worse than cancer cuz You can tell no body no body will understand and even if you Find somespecialist thats ever heard of this Theres little chance they can do Anything for you you probably have to deal with it for like decades Or until you die and you know what ? You know what bro? Jesus christ healed me We all have a heavenly father that loves us First of all i was afraid to ask God to heal me I felt like i was too  bad(i still feel im too bad because i really am i am a sinner We are are but I feel like a super super great sinner and if i Quit some of my sins Its just be cause of the lord)
But A few days ago i guess it was 30-31august (so maybe 10days ago) I got up that wierd feeling inside of my head was there(again im telling you Before that i never had any Issues i was almost the healthy normal 15year old teen and I took a Brain MRI and even after Getting pois i had No Brain Problems ) So when i got up that wierd feeling  was there Nothing was new i knew it i knew i wasnt fixed and i knew That This Change is No joke there is Somehing really really really big Wrong with my body somehing definitly doesnt work and its bad enough to kill me anyday and anytime(although our lives are in lords hands ) And for some reason i said no this shouldnt be this way i started reading the bible( i do almost every day i guess so nothing new) But this time i was like Lord i cant take this anymore/or lord im a christian No sickness shall defeat me like this for the bible says no weopen that is formed against thee shall prosper And everytongue that shall rise  againstme in judgment thou shall condemn For this is heritage of the servents of the lord and their rightousness is of me saith the lord(sorry if i got the verse wrong but thats all i can remember you can google it its isaiah 54:17)  and i started reading Bible verses on healing and I dont remember exactly but i read Afew verses Before these From the bible app and I was really beleiving that lord has already healed me And No sickness shallenter me And  I guess when i was reading Healing verses of bible (i dont remmber the exact time but this is What i remember I dont want to give false testimony but thats all i can remember excuse me for that) I felt something changed in my head it had no pain no bad feeling Nothing big ( i dont take Any medications regularly except for some amoxicylin and I guess that day i didnt take nothing And Theres no chance that anything else healed me  ) So From that moment I felt like 2-3years ago It was like I was back to living And i had read Bible healing verses before but this time it was different And After that time I dont feel this at all i still have that stuffy nose and sometimes that Light sensitivity (Mild increased light sensitivity ) but i dont feel uncomfortable At all Plus i had 2-4wet dreams since then and Almost NO symptoms and even that stuffy nose and light sensitivity doesnt bother me much at all Its all back to normal  Guys please beleive this This is no joke and i didnt ask God like this "if you real Then heal me !"  i dont remmeber but i guess somwhere in the bible jesus says:"do not put the lord your God to the test" its luke4:12 i guess   im not a preacher and im not trying to Interpret something from the bible and act like i Know alot about the bible But this is what God did for me And I was not worth it but His Grace healed me And He Is real Shout out to The Guy who said there is No God there is absolutly A Most high-most graceful-Fully rightouss God dont ever deny this No matter what Anybody says Ive Seen Way more than enough to be convinced even before this happened...
So im asking you as the bible says repent from your sins Turn to God beleive in Our lord christ jesus As you savior and that he rose in the third day and that he saved you (again im no preacher for exact words of God you can read the gospel of luke john ...) And beleive all things are possible through God

At last may God forgive me for mistakes i mightve made In what i wrote above And Sorry for being too long but This is to tell You what this life really is about and how merciful our lord is and this is all about God Not me so theres no point of Lieing
All glory to God And God bless yall hope i see all of you fully healed ❤️❤️❤️
Title: Re: Personal POIS Summaries and Histories.
Post by: Going less Crazy on September 10, 2017, 02:12:20 AM
hi everybody i know everybody is talking about what medicine to take but i have to share my experience anyways i had pois for2years but christ changed it for me ihad severe brain fog feeling like i was dieing  insomnia and some times my transition between conscious and asleep state was  odd and therefor i couldnt sleep I had constant sinutitis  and felt like im suffocating so i had to breath deeper i felt like lights are too bright and 3years ago i had none of these and its amazing guys that oraying for healing in the name of jesus healed me i had awet dream yesterday and i didnt even feel 10percent of those symptoms ifeel my brains changed and all i did wasask God to heal me cuz through faith everything is possibe and healing cancers bones skin or even a Devastating disease like pois is no exception just continuously pray for this and believe it  its not a joke although it might seem like one to some But God loves his children and as u can read in the bible says God will gove you anything u ask in the name of jesus Hope somebody tries this and let me know! All glory to God
Hello KIA777
Hi..... Sorry to hear about your POIS.... i had Pois from adolescent age....Can u tell us at what age u got pois and how long yr symptoms last
Thanks

i got this from 15-16yo up until now so its almost 2years and Ive Almost totally abstained from masturbating for 1year and 1-2month maybe But anyways i had wet dreams and They caused Symptoms like light headednes disorientation(when i closed my eyes i felt like i was floating in space or something) And  Almost everyday if i tried to even memorize something for my studies it caused That uncomfortable undescribable feeling  and I my sinuses were tight and i had stuffy nose all day(before pois I almost never had these kind of stuff) And i can tell you (i can feel it) i had a serious change in my brain I mean there was a moment 2 years ago that everything changed the brians way of going to sleep/The way i felt down there /orgasm seemed More like a burning Wiers but still a bit releasing sensation /and When i closed my eyes i felt like although everything is dark But There was kind of a A buzz On that darkness (like a like that rapidly turns on and off it was dark but That Darknes kinda resonated Or something (thats what i meant by a buzz))  all kinds of wierd stuff man And I had to sometimes study plus 15-16hours so... You probably understand how real the problem was and to me it was worse than cancer cuz You can tell no body no body will understand and even if you Find somespecialist thats ever heard of this Theres little chance they can do Anything for you you probably have to deal with it for like decades Or until you die and you know what ? You know what bro? Jesus christ healed me We all have a heavenly father that loves us First of all i was afraid to ask God to heal me I felt like i was too  bad(i still feel im too bad because i really am i am a sinner We are are but I feel like a super super great sinner and if i Quit some of my sins Its just be cause of the lord)
But A few days ago i guess it was 30-31august (so maybe 10days ago) I got up that wierd feeling inside of my head was there(again im telling you Before that i never had any Issues i was almost the healthy normal 15year old teen and I took a Brain MRI and even after Getting pois i had No Brain Problems ) So when i got up that wierd feeling  was there Nothing was new i knew it i knew i wasnt fixed and i knew That This Change is No joke there is Somehing really really really big Wrong with my body somehing definitly doesnt work and its bad enough to kill me anyday and anytime(although our lives are in lords hands ) And for some reason i said no this shouldnt be this way i started reading the bible( i do almost every day i guess so nothing new) But this time i was like Lord i cant take this anymore/or lord im a christian No sickness shall defeat me like this for the bible says no weopen that is formed against thee shall prosper And everytongue that shall rise  againstme in judgment thou shall condemn For this is heritage of the servents of the lord and their rightousness is of me saith the lord(sorry if i got the verse wrong but thats all i can remember you can google it its isaiah 54:17)  and i started reading Bible verses on healing and I dont remember exactly but i read Afew verses Before these From the bible app and I was really beleiving that lord has already healed me And No sickness shallenter me And  I guess when i was reading Healing verses of bible (i dont remmber the exact time but this is What i remember I dont want to give false testimony but thats all i can remember excuse me for that) I felt something changed in my head it had no pain no bad feeling Nothing big ( i dont take Any medications regularly except for some amoxicylin and I guess that day i didnt take nothing And Theres no chance that anything else healed me  ) So From that moment I felt like 2-3years ago It was like I was back to living And i had read Bible healing verses before but this time it was different And After that time I dont feel this at all i still have that stuffy nose and sometimes that Light sensitivity (Mild increased light sensitivity ) but i dont feel uncomfortable At all Plus i had 2-4wet dreams since then and Almost NO symptoms and even that stuffy nose and light sensitivity doesnt bother me much at all Its all back to normal  Guys please beleive this This is no joke and i didnt ask God like this "if you real Then heal me !"  i dont remmeber but i guess somwhere in the bible jesus says:"do not put the lord your God to the test" its luke4:12 i guess   im not a preacher and im not trying to Interpret something from the bible and act like i Know alot about the bible But this is what God did for me And I was not worth it but His Grace healed me And He Is real Shout out to The Guy who said there is No God there is absolutly A Most high-most graceful-Fully rightouss God dont ever deny this No matter what Anybody says Ive Seen Way more than enough to be convinced even before this happened...
So im asking you as the bible says repent from your sins Turn to God beleive in Our lord christ jesus As you savior and that he rose in the third day and that he saved you (again im no preacher for exact words of God you can read the gospel of luke john ...) And beleive all things are possible through God

At last may God forgive me for mistakes i mightve made In what i wrote above And Sorry for being too long but This is to tell You what this life really is about and how merciful our lord is and this is all about God Not me so theres no point of Lieing
All glory to God And God bless yall hope i see all of you fully healed ??????

Okay, time to come back down to reality KIA.  It's great you're religious and you believe it has helped you.  I can't tell you how many times I have prayed when I was younger with no answer.  I realized it was completely upon myself to figure out how to relieve my symptoms.  Diet has truly healed me, not god.  God gave you a brain and the best thing you can do is use it.  Do not expect miracles or else you'll never figure out your POIS.  It is a health problem and although praying might have it's benefits (stress reduction and the like), it's not going to cure your POIS, if you really have it.  It wasn't until I found my diet in which I was TRULY healed and could have sex without consequence.

There are many members on here who had an NE without consequence only to have POIS upon further "experimentation".  Your not really healed until you can have sex everyday without any consequence.

Please don't preach on here.  Your starting to sound like my username.  There are many people here born into various religions, or not religious at all, by chance.  It's great you're religious, just please keep the rants though.  This is more of a scientific forum.
Title: Re: Personal POIS Summaries and Histories.
Post by: Bulbo on September 10, 2017, 06:34:28 AM
hi everybody i know everybody is talking about what medicine to take but i have to share my experience anyways i had pois for2years but christ changed it for me ihad severe brain fog feeling like i was dieing  insomnia and some times my transition between conscious and asleep state was  odd and therefor i couldnt sleep I had constant sinutitis  and felt like im suffocating so i had to breath deeper i felt like lights are too bright and 3years ago i had none of these and its amazing guys that oraying for healing in the name of jesus healed me i had awet dream yesterday and i didnt even feel 10percent of those symptoms ifeel my brains changed and all i did wasask God to heal me cuz through faith everything is possibe and healing cancers bones skin or even a Devastating disease like pois is no exception just continuously pray for this and believe it  its not a joke although it might seem like one to some But God loves his children and as u can read in the bible says God will gove you anything u ask in the name of jesus Hope somebody tries this and let me know! All glory to God
Hello KIA777
Hi..... Sorry to hear about your POIS.... i had Pois from adolescent age....Can u tell us at what age u got pois and how long yr symptoms last
Thanks

i got this from 15-16yo up until now so its almost 2years and Ive Almost totally abstained from masturbating for 1year and 1-2month maybe But anyways i had wet dreams and They caused Symptoms like light headednes disorientation(when i closed my eyes i felt like i was floating in space or something) And  Almost everyday if i tried to even memorize something for my studies it caused That uncomfortable undescribable feeling  and I my sinuses were tight and i had stuffy nose all day(before pois I almost never had these kind of stuff) And i can tell you (i can feel it) i had a serious change in my brain I mean there was a moment 2 years ago that everything changed the brians way of going to sleep/The way i felt down there /orgasm seemed More like a burning Wiers but still a bit releasing sensation /and When i closed my eyes i felt like although everything is dark But There was kind of a A buzz On that darkness (like a like that rapidly turns on and off it was dark but That Darknes kinda resonated Or something (thats what i meant by a buzz))  all kinds of wierd stuff man And I had to sometimes study plus 15-16hours so... You probably understand how real the problem was and to me it was worse than cancer cuz You can tell no body no body will understand and even if you Find somespecialist thats ever heard of this Theres little chance they can do Anything for you you probably have to deal with it for like decades Or until you die and you know what ? You know what bro? Jesus christ healed me We all have a heavenly father that loves us First of all i was afraid to ask God to heal me I felt like i was too  bad(i still feel im too bad because i really am i am a sinner We are are but I feel like a super super great sinner and if i Quit some of my sins Its just be cause of the lord)
But A few days ago i guess it was 30-31august (so maybe 10days ago) I got up that wierd feeling inside of my head was there(again im telling you Before that i never had any Issues i was almost the healthy normal 15year old teen and I took a Brain MRI and even after Getting pois i had No Brain Problems ) So when i got up that wierd feeling  was there Nothing was new i knew it i knew i wasnt fixed and i knew That This Change is No joke there is Somehing really really really big Wrong with my body somehing definitly doesnt work and its bad enough to kill me anyday and anytime(although our lives are in lords hands ) And for some reason i said no this shouldnt be this way i started reading the bible( i do almost every day i guess so nothing new) But this time i was like Lord i cant take this anymore/or lord im a christian No sickness shall defeat me like this for the bible says no weopen that is formed against thee shall prosper And everytongue that shall rise  againstme in judgment thou shall condemn For this is heritage of the servents of the lord and their rightousness is of me saith the lord(sorry if i got the verse wrong but thats all i can remember you can google it its isaiah 54:17)  and i started reading Bible verses on healing and I dont remember exactly but i read Afew verses Before these From the bible app and I was really beleiving that lord has already healed me And No sickness shallenter me And  I guess when i was reading Healing verses of bible (i dont remmber the exact time but this is What i remember I dont want to give false testimony but thats all i can remember excuse me for that) I felt something changed in my head it had no pain no bad feeling Nothing big ( i dont take Any medications regularly except for some amoxicylin and I guess that day i didnt take nothing And Theres no chance that anything else healed me  ) So From that moment I felt like 2-3years ago It was like I was back to living And i had read Bible healing verses before but this time it was different And After that time I dont feel this at all i still have that stuffy nose and sometimes that Light sensitivity (Mild increased light sensitivity ) but i dont feel uncomfortable At all Plus i had 2-4wet dreams since then and Almost NO symptoms and even that stuffy nose and light sensitivity doesnt bother me much at all Its all back to normal  Guys please beleive this This is no joke and i didnt ask God like this "if you real Then heal me !"  i dont remmeber but i guess somwhere in the bible jesus says:"do not put the lord your God to the test" its luke4:12 i guess   im not a preacher and im not trying to Interpret something from the bible and act like i Know alot about the bible But this is what God did for me And I was not worth it but His Grace healed me And He Is real Shout out to The Guy who said there is No God there is absolutly A Most high-most graceful-Fully rightouss God dont ever deny this No matter what Anybody says Ive Seen Way more than enough to be convinced even before this happened...
So im asking you as the bible says repent from your sins Turn to God beleive in Our lord christ jesus As you savior and that he rose in the third day and that he saved you (again im no preacher for exact words of God you can read the gospel of luke john ...) And beleive all things are possible through God

At last may God forgive me for mistakes i mightve made In what i wrote above And Sorry for being too long but This is to tell You what this life really is about and how merciful our lord is and this is all about God Not me so theres no point of Lieing
All glory to God And God bless yall hope i see all of you fully healed ??????

Hi KIA777
Thank u for ur reply..... continue fighting.... never give up
Title: Re: Personal POIS Summaries and Histories.
Post by: Spartak on September 10, 2017, 06:57:12 PM
Hello guys, long time no see!
 I say that I don't have any good news.
I havedone some experiments with Quercetin, 5Htp, Ginko Bilboa and L-thyrosine, Omega 3
Ginko Bilboa - quit, it was helpful for Pois, mainly for a 1st day, I felt calmer and it had benefis fighting racing thoughs, POIS boringness, dumbness and such, reason for quit was because it increased duration of some Pois symptoms... My Pois usually last 2days, but it makes me feel some anxious, and cause  headaches and minor Pois mood like few more days after POIS is gone.
Querceting, maybe some benefits, but makes me calmless which is horrible during POIS, no effect on 2nd day of Pois.
So I quit.
Omega 3 , not good during Pois, but I take it from time to time, makes me calmer. Also makes me anxious, but I don't care since I live quite isolated life.

L-thyrosine -The one I bought has suger in it, so I meanly felt hiperactivity after it, so I haven experimented more.
Looking to find L-theanine, but hard to find where I live.

Lutein maybe works for brain fog, not sure, but cause bad effect on my mood in general.

5Htp, still experimenting, seems that it works a bit, but I am afraid that it might case similar side effect as ginko bilboa.

I am curently very depressed, I quit any form of social life, no friends, tried to find girlfried, but failed so bad, I try to be alone and loonly as much as possible. I go to the gym and trying  to eat as heathy as possible, those are only positve things in my current life. Even saving became hell of the fun.
Since I quite sugars my libido became much lower and I can avoid O for a month or so... after so many disappointments  and side effects I somewhat lost will to search for relief method.
But always side effects, no sugar diet improved my health and pois symptoms, but boosted self-hate and anxious mood.

Sorry guys if I am too negative, it was not my intenetion to be pessimistic. Just had need to share.
And yea, recently I told to female friend of mine about Pois, but it seems that normal person can not understand our problems.
Best wishes!
Spartak
Title: Re: Personal POIS Summaries and Histories.
Post by: KIA777 on September 12, 2017, 12:53:12 AM
hi everybody i know everybody is talking about what medicine to take but i have to share my experience anyways i had pois for2years but christ changed it for me ihad severe brain fog feeling like i was dieing  insomnia and some times my transition between conscious and asleep state was  odd and therefor i couldnt sleep I had constant sinutitis  and felt like im suffocating so i had to breath deeper i felt like lights are too bright and 3years ago i had none of these and its amazing guys that oraying for healing in the name of jesus healed me i had awet dream yesterday and i didnt even feel 10percent of those symptoms ifeel my brains changed and all i did wasask God to heal me cuz through faith everything is possibe and healing cancers bones skin or even a Devastating disease like pois is no exception just continuously pray for this and believe it  its not a joke although it might seem like one to some But God loves his children and as u can read in the bible says God will gove you anything u ask in the name of jesus Hope somebody tries this and let me know! All glory to God
Hello KIA777
Hi..... Sorry to hear about your POIS.... i had Pois from adolescent age....Can u tell us at what age u got pois and how long yr symptoms last
Thanks

i got this from 15-16yo up until now so its almost 2years and Ive Almost totally abstained from masturbating for 1year and 1-2month maybe But anyways i had wet dreams and They caused Symptoms like light headednes disorientation(when i closed my eyes i felt like i was floating in space or something) And  Almost everyday if i tried to even memorize something for my studies it caused That uncomfortable undescribable feeling  and I my sinuses were tight and i had stuffy nose all day(before pois I almost never had these kind of stuff) And i can tell you (i can feel it) i had a serious change in my brain I mean there was a moment 2 years ago that everything changed the brians way of going to sleep/The way i felt down there /orgasm seemed More like a burning Wiers but still a bit releasing sensation /and When i closed my eyes i felt like although everything is dark But There was kind of a A buzz On that darkness (like a like that rapidly turns on and off it was dark but That Darknes kinda resonated Or something (thats what i meant by a buzz))  all kinds of wierd stuff man And I had to sometimes study plus 15-16hours so... You probably understand how real the problem was and to me it was worse than cancer cuz You can tell no body no body will understand and even if you Find somespecialist thats ever heard of this Theres little chance they can do Anything for you you probably have to deal with it for like decades Or until you die and you know what ? You know what bro? Jesus christ healed me We all have a heavenly father that loves us First of all i was afraid to ask God to heal me I felt like i was too  bad(i still feel im too bad because i really am i am a sinner We are are but I feel like a super super great sinner and if i Quit some of my sins Its just be cause of the lord)
But A few days ago i guess it was 30-31august (so maybe 10days ago) I got up that wierd feeling inside of my head was there(again im telling you Before that i never had any Issues i was almost the healthy normal 15year old teen and I took a Brain MRI and even after Getting pois i had No Brain Problems ) So when i got up that wierd feeling  was there Nothing was new i knew it i knew i wasnt fixed and i knew That This Change is No joke there is Somehing really really really big Wrong with my body somehing definitly doesnt work and its bad enough to kill me anyday and anytime(although our lives are in lords hands ) And for some reason i said no this shouldnt be this way i started reading the bible( i do almost every day i guess so nothing new) But this time i was like Lord i cant take this anymore/or lord im a christian No sickness shall defeat me like this for the bible says no weopen that is formed against thee shall prosper And everytongue that shall rise  againstme in judgment thou shall condemn For this is heritage of the servents of the lord and their rightousness is of me saith the lord(sorry if i got the verse wrong but thats all i can remember you can google it its isaiah 54:17)  and i started reading Bible verses on healing and I dont remember exactly but i read Afew verses Before these From the bible app and I was really beleiving that lord has already healed me And No sickness shallenter me And  I guess when i was reading Healing verses of bible (i dont remmber the exact time but this is What i remember I dont want to give false testimony but thats all i can remember excuse me for that) I felt something changed in my head it had no pain no bad feeling Nothing big ( i dont take Any medications regularly except for some amoxicylin and I guess that day i didnt take nothing And Theres no chance that anything else healed me  ) So From that moment I felt like 2-3years ago It was like I was back to living And i had read Bible healing verses before but this time it was different And After that time I dont feel this at all i still have that stuffy nose and sometimes that Light sensitivity (Mild increased light sensitivity ) but i dont feel uncomfortable At all Plus i had 2-4wet dreams since then and Almost NO symptoms and even that stuffy nose and light sensitivity doesnt bother me much at all Its all back to normal  Guys please beleive this This is no joke and i didnt ask God like this "if you real Then heal me !"  i dont remmeber but i guess somwhere in the bible jesus says:"do not put the lord your God to the test" its luke4:12 i guess   im not a preacher and im not trying to Interpret something from the bible and act like i Know alot about the bible But this is what God did for me And I was not worth it but His Grace healed me And He Is real Shout out to The Guy who said there is No God there is absolutly A Most high-most graceful-Fully rightouss God dont ever deny this No matter what Anybody says Ive Seen Way more than enough to be convinced even before this happened...
So im asking you as the bible says repent from your sins Turn to God beleive in Our lord christ jesus As you savior and that he rose in the third day and that he saved you (again im no preacher for exact words of God you can read the gospel of luke john ...) And beleive all things are possible through God

At last may God forgive me for mistakes i mightve made In what i wrote above And Sorry for being too long but This is to tell You what this life really is about and how merciful our lord is and this is all about God Not me so theres no point of Lieing
All glory to God And God bless yall hope i see all of you fully healed ??????

Okay, time to come back down to reality KIA.  It's great you're religious and you believe it has helped you.  I can't tell you how many times I have prayed when I was younger with no answer.  I realized it was completely upon myself to figure out how to relieve my symptoms.  Diet has truly healed me, not god.  God gave you a brain and the best thing you can do is use it.  Do not expect miracles or else you'll never figure out your POIS.  It is a health problem and although praying might have it's benefits (stress reduction and the like), it's not going to cure your POIS, if you really have it.  It wasn't until I found my diet in which I was TRULY healed and could have sex without consequence.

There are many members on here who had an NE without consequence only to have POIS upon further "experimentation".  Your not really healed until you can have sex everyday without any consequence.

Please don't preach on here.  Your starting to sound like my username.  There are many people here born into various religions, or not religious at all, by chance.  It's great you're religious, just please keep the rants though.  This is more of a scientific forum.
First of all thanks For the Respect man I really appreciate that❤️👍🏿
I had 3 consequative days of Wet dreams And Just wanted to tell you the first one was like 3-4 Orgasms in one night and then there was a second and a third one and I didnt have 1percent of what i felt my first "sceintific" advise is Quit Porn and any type of visual inly stimulation and thats what started this For me and there is no christian around me So im no preacher really

And You said i prayed With NO answer I would say pray beleving that God will heal Dont be like "lets see if God heals me" believe that he does fully heal you and be consistent in prayer (read the bible for that (and thats if you believe or wanna believe))  again its not preaching its my experience believe God can heal This devestating thing that can Torture Us for life  like in 5seconds
to me if you think its too  Crazy and this is too big for God to do in less than a second you dont get healed agin its not preaching its Just what i experienced and i have no other Possible reason for it  and Just because its not religious it doesnt mean i have To keep quiet  this is no religous forum yeah thats right but Its no atheist forum either If Im 100% sure that this is not something that happened byitself then why not let people know?we are a community and Definitlynwe should be able to share stuff that is workingfor any of us If something works Then it will totally Change the life of a person and thats what matters
 And speaking of "im not healed yet" man I totally feel the same way before all of this And wet dreams cause reduced symptoms Not almost NO symptoms at all I dont think i ever had that much of a wet dream It was like a brain-stress test(like the benchmarks You run on cpu gpu etc) and Again Plus If i tried to memorize something of tried to do something like studiiing alot I would feel super uncomfortable in the brain and Even The orgasm felt wierd but this Whole thing changed like 1minutes... yeah One minutes And i havent been religous since childhood or somehing but there No sign of those Symptoms that made me wish i could just die
speaking i i really had it: I can exactly pinpoint the Moment i got it and After that Everything was messed up if i masturbated ...3-6hours later i had fully tightened sinuses/Feeling like i need more oxygen breathing deeper just was a minor relief (maybe 5percent better) and my brain didnt shut off properly orgasm feeling was wierd I couldnt concentrate depression feeling like Im dieing and Im definitly not gonna wake up the next day Please man I cant take anybody else Telling me "hey yo You were a totally normal teen(never took drugs never smoked never drank alcohol and never was on any specific drugs even to this day i havent done none of these)  yesterday but today you got severe depression and Are acting like somebody on lsd or sth..." doctors parents and everyone was like yeah youre depressed you gotta take anti depressants and stuff but i didnt take A single medicine cuz day just didnt understand the problem So that was already too much for me Im sure you would categorize it as POIS and these "felt like diein symptoms" got beter with 8-10hours of sleep but after a few hours the symptoms came back mildly so the severe phase lasted for a day and sleep quality was def decreased a 4hour sleep off pois was better than a 12hours sleep on pois and i never had insomnia before that but on pois (the nights of orgasm) i got insomnia ...

So Its pretty safe to say I had this and I was healed in less than a minute (and yeah i know lots of activities reduce pois but its never Fully Treated because its some malfuction in the body that has to be fixed maybe immune system or something not working in the brain or what ever but it doesnt go away you can just reduce symptoms for a few hours kr sth but it will still be there but this is not what i felt the whole chemistery of brain changed In one minute thats what i felt and When i tried to find other reasons for that i came up with none I was just sitting on the bed and praying Thats It (not testing God but praying) )

Speaking of "further experiment" to me when you try to "see if your healed"  thats "what failure comes from" and im not deniing that scientific ways can help Cuz if you have the medications and you dont try to see if they work  Its like you are testing God in a way cuz you can fix the problem but youre seeing if God can Do it so Im not deniing science by ANY means And again on experinmenting : The Almost conplete elimination of all symptoms And feeling this big change ive described above must be a pretty solid Proof for People asking if im healed 
Anyways I hope You get healed soon bro and thanks for keeping this forum running thats what Keeps all of us conected 😉
Title: Re: Personal POIS Summaries and Histories.
Post by: KIA777 on September 12, 2017, 01:04:47 AM
hi everybody i know everybody is talking about what medicine to take but i have to share my experience anyways i had pois for2years but christ changed it for me ihad severe brain fog feeling like i was dieing  insomnia and some times my transition between conscious and asleep state was  odd and therefor i couldnt sleep I had constant sinutitis  and felt like im suffocating so i had to breath deeper i felt like lights are too bright and 3years ago i had none of these and its amazing guys that oraying for healing in the name of jesus healed me i had awet dream yesterday and i didnt even feel 10percent of those symptoms ifeel my brains changed and all i did wasask God to heal me cuz through faith everything is possibe and healing cancers bones skin or even a Devastating disease like pois is no exception just continuously pray for this and believe it  its not a joke although it might seem like one to some But God loves his children and as u can read in the bible says God will gove you anything u ask in the name of jesus Hope somebody tries this and let me know! All glory to God
Hello KIA777
Hi..... Sorry to hear about your POIS.... i had Pois from adolescent age....Can u tell us at what age u got pois and how long yr symptoms last
Thanks

i got this from 15-16yo up until now so its almost 2years and Ive Almost totally abstained from masturbating for 1year and 1-2month maybe But anyways i had wet dreams and They caused Symptoms like light headednes disorientation(when i closed my eyes i felt like i was floating in space or something) And  Almost everyday if i tried to even memorize something for my studies it caused That uncomfortable undescribable feeling  and I my sinuses were tight and i had stuffy nose all day(before pois I almost never had these kind of stuff) And i can tell you (i can feel it) i had a serious change in my brain I mean there was a moment 2 years ago that everything changed the brians way of going to sleep/The way i felt down there /orgasm seemed More like a burning Wiers but still a bit releasing sensation /and When i closed my eyes i felt like although everything is dark But There was kind of a A buzz On that darkness (like a like that rapidly turns on and off it was dark but That Darknes kinda resonated Or something (thats what i meant by a buzz))  all kinds of wierd stuff man And I had to sometimes study plus 15-16hours so... You probably understand how real the problem was and to me it was worse than cancer cuz You can tell no body no body will understand and even if you Find somespecialist thats ever heard of this Theres little chance they can do Anything for you you probably have to deal with it for like decades Or until you die and you know what ? You know what bro? Jesus christ healed me We all have a heavenly father that loves us First of all i was afraid to ask God to heal me I felt like i was too  bad(i still feel im too bad because i really am i am a sinner We are are but I feel like a super super great sinner and if i Quit some of my sins Its just be cause of the lord)
But A few days ago i guess it was 30-31august (so maybe 10days ago) I got up that wierd feeling inside of my head was there(again im telling you Before that i never had any Issues i was almost the healthy normal 15year old teen and I took a Brain MRI and even after Getting pois i had No Brain Problems ) So when i got up that wierd feeling  was there Nothing was new i knew it i knew i wasnt fixed and i knew That This Change is No joke there is Somehing really really really big Wrong with my body somehing definitly doesnt work and its bad enough to kill me anyday and anytime(although our lives are in lords hands ) And for some reason i said no this shouldnt be this way i started reading the bible( i do almost every day i guess so nothing new) But this time i was like Lord i cant take this anymore/or lord im a christian No sickness shall defeat me like this for the bible says no weopen that is formed against thee shall prosper And everytongue that shall rise  againstme in judgment thou shall condemn For this is heritage of the servents of the lord and their rightousness is of me saith the lord(sorry if i got the verse wrong but thats all i can remember you can google it its isaiah 54:17)  and i started reading Bible verses on healing and I dont remember exactly but i read Afew verses Before these From the bible app and I was really beleiving that lord has already healed me And No sickness shallenter me And  I guess when i was reading Healing verses of bible (i dont remmber the exact time but this is What i remember I dont want to give false testimony but thats all i can remember excuse me for that) I felt something changed in my head it had no pain no bad feeling Nothing big ( i dont take Any medications regularly except for some amoxicylin and I guess that day i didnt take nothing And Theres no chance that anything else healed me  ) So From that moment I felt like 2-3years ago It was like I was back to living And i had read Bible healing verses before but this time it was different And After that time I dont feel this at all i still have that stuffy nose and sometimes that Light sensitivity (Mild increased light sensitivity ) but i dont feel uncomfortable At all Plus i had 2-4wet dreams since then and Almost NO symptoms and even that stuffy nose and light sensitivity doesnt bother me much at all Its all back to normal  Guys please beleive this This is no joke and i didnt ask God like this "if you real Then heal me !"  i dont remmeber but i guess somwhere in the bible jesus says:"do not put the lord your God to the test" its luke4:12 i guess   im not a preacher and im not trying to Interpret something from the bible and act like i Know alot about the bible But this is what God did for me And I was not worth it but His Grace healed me And He Is real Shout out to The Guy who said there is No God there is absolutly A Most high-most graceful-Fully rightouss God dont ever deny this No matter what Anybody says Ive Seen Way more than enough to be convinced even before this happened...
So im asking you as the bible says repent from your sins Turn to God beleive in Our lord christ jesus As you savior and that he rose in the third day and that he saved you (again im no preacher for exact words of God you can read the gospel of luke john ...) And beleive all things are possible through God

At last may God forgive me for mistakes i mightve made In what i wrote above And Sorry for being too long but This is to tell You what this life really is about and how merciful our lord is and this is all about God Not me so theres no point of Lieing
All glory to God And God bless yall hope i see all of you fully healed ??????

Hi KIA777
Thank u for ur reply..... continue fighting.... never give up

Your welcome and you too bro keep it up! And although pois is a devestating desease and in my eyes it must be much worse than cancer but it teaches You something: No body will help you if they dont understand you priblem and if they dont understand your problem youre the crazy person and There are lots of problems in life that almost nobody around us understands and  when people are like"what you talkin about?" And you keep telling them hat your problem imdoes exist and they still dont understand it they just leave you they dont even stay with you they cant help anyways but at least they can support  but they dont and i guess this is for alot of us poisers And inguess almost everybody runs into problems in life that nobody understands But God does and He does help You so pois was a lesson for me "
Have a nice day👍🏿😉
Title: Re: Personal POIS Summaries and Histories.
Post by: Going less Crazy on September 12, 2017, 02:14:27 AM
KIA.  In my opinion, POIS is like getting your leg chopped off and... praying to regrow the leg..it ain't going to happen.  Now finding other means can really help you like getting surgery, wheelchair, whatever.

I still pray but nothing has happened.  I still have to remain on a certain diet to be POIS free.  So this is where my opinion stems from.  You are pretty hard to understand, I don't know why you don't use periods.  It's just a big run on sentence lol.  Are you cured?  Can you have sex whenever??
Title: Re: Personal POIS Summaries and Histories.
Post by: Akaliko on October 20, 2018, 10:24:58 PM
Hi all, sending along an update.

After 5 years of POIS symptoms lasting 3-4 days following ejaculation, I'm pleased to have reduced the recovery time to only 24 hours.  It seems that increasing my caloric intake  made the difference.  You could say that, prior to that, I had been restricting my caloric intake for about 9 years.

I'm surprised to see nothing returned when I search the forums for "calories".  Am I the first person to report this as a possible treatment?
Title: Re: Personal POIS Summaries and Histories.
Post by: b_jim on October 21, 2018, 03:54:44 AM
Quote
It seems that increasing my caloric intake  made the difference. 

Hi, do you feel a difference between different class of food ?

For me, sugar and "bad" carbohydrates increase my Pois symptoms.
Especially flu-like symptoms and digestives. I experiment this since 2008 so I'm 100% sure of this

But it seems proteins reduce my Pois.
Since end of 2017, I have gastritis/ulcer and I was forced to reduce proteins like red meat. And I spent first quarter of the year with increased Pois symptoms, especially low energy and poor concentration.

I would say ketogenic diet (or low carb) with a "hyperproteined" intake is the best for Pois.
Hyperproteined is not exactly what I means. But an extra intake in some amino-acids (tyrosine ? tryptophane ?) may help.
1g of proteins for 1kg of bodyweight is "normal"
2g of proteins for 1kg of bodyweight is "extra" (bodybuilding)
Title: Re: Personal POIS Summaries and Histories.
Post by: ShadowG on December 14, 2018, 06:11:17 AM
Hi all,

I suffered effects post ejaculation just 2 days ago, and after googling I came across your forum.

Now I've never suffered such intense effects before, but I have had some dazed effects post ejaculation before.

I went on holiday with my girlfriend and we had sex multiple times over the course of 5 days. On the second to last time, the second I ejaculated I felt extremely dazed like I was on autopilot.  Then I started feeling extreme muscle pains in my arms, back and shoulders.  A fever set in that wouldn't go away without meds (paracetamol).

After a few hours the fever went. That evening, we did it again - and this time the same effects came again but stronger than before.  It's important to note that we were on holiday at a warm destination and I had 3 layers of clothes under a duvet and still shivering.

So factors that affected my experience was multiple sexual encounters in a small time period, high caloric intake (was at an all inclusive resort so having 3 buffets a day), and a sudden change in temperature (I'm from England where it is less than 0 at night, but vacationed where it was 21-25 most days).

Paracetamol helped the fever, and I had to take it regularly for the muscle aches (which is still there).  Also had some lower abdominal cramps which I cannot be sure is linked right now.

2 days later, I'm too anxious to even get an erection, though it has happened and I didn't feel any worse.  I will try and ejaculate in a week or two to see if the effects repeat, or if the symptoms only appear after multiple ejaculations. 

I was wondering if anyone else has had experience with frequent ejaculations? I see some people talking about masturbating daily as a sort of treatment?
Title: Re: Personal POIS Summaries and Histories.
Post by: Nas on December 14, 2018, 08:09:09 AM
Hello shadowG
Glad you found a name for your illness, this is a big step for potentially fixing it.
Since I don't see you mention suffering from cognitive or psychological issues after ejaculation, I am optimistic that you'll find medications that will fix your situation.
When it comes to masturbating daily it can be a form of desensitization, but desensitization is usually done under medical supervision so I wouldn't recommend doing it alone; you can put your self in a serious medical situation.
For now I recommend reading alot in this forum to understand potential theories and treatments. There are alot of good information here including documented treatment that others have had success with.
Anyways good luck and have a POIS free life.
Title: Re: Personal POIS Summaries and Histories.
Post by: Nas on January 09, 2019, 07:31:26 PM
Pois symptoms

Brain fog: Extreme social anxiety , Lethargy, Severe depression, Severe Anhedonia, extremely sugar caffeine Mono-Sodium Glutamate Sensitive, insomnia, Asperger, ADHD, Schizophrenia like symptoms, Bipolar ( hypo mania and mania like symptoms, Schizoaffective like symotoms, Paronia, Delusional
One other thing - when I am suffering from POIS, it physically feels as if my frontal lobe of my brain has almost closed down, and what conscious thoughts I am having are coming from the sides of my brain, which apparently are the temporal lobes.
Wikipedia says
Damage to the frontal lobes can lead to a variety of results:
Mental flexibility and spontaneity are impaired, but IQ is not reduced.
Talking may increase or decrease dramatically.
Perceptions regarding risk taking and rule abiding are impaired.
Socialization can diminish or increase.
Orbital frontal lobe damage can result in peculiar sexual habits.
Dorsolateral frontal lobe damage reduces sexual interest.
Creativity is diminished as well as problem solving skills.
Distraction occurs more frequently
Some of these certainly ring true from my experience of POIS. If I had to guess which area of the brain was most affected by POIS, I would definitely pick the frontal lobes. Plus, the frontal lobes is where most of the dopamine lives, which is possibly one of the things you are interested in measuring.

Physical symptoms: joints pain, itchy eyes, red eyes, Extremely straw hair, Dry skin, loosing saggy face, puffy eyes, Acne, bad breath,

My Treatment:

Chinese wolf berries ( Dried berries) amount 11-12 in the morning cured all my POIS symptoms I'm serious when I say this I have tried many treatments many nootropics none of them help at all

Fenugreek ( methi crushed seed) + Garlic not a cured but it really does help me socialize and get through the day during the severe POIS symptom.
My Fenugreek has all but killed the social anxiety component of POIS I used to suffer from,
This is qoute from Hurray
I had the idea that since oxytocin is heavily involved in the chemistry of orgasms, it might be worth trying to supply my body with the necessary ingredients to produce more oxytocin.
Synthetic oxytocin is difficult to obtain and administer, so I thought I'd give Fenugreek a try, which is praised for its oxytocin-like properties. You can buy it at most heath stores I believe.
I took some of it before and after 2 lots of orgasms, and well ..
Wow!
I had work the next day, which normally would be an excruciating trial socially. Not that day it wasn't. I happily chatted to the boss about some complex issues, and spent a lot of the day chatting and flirting with a couple of my female co-workers .... something that would have been impossible under normal POIS circumstances.
The brain fog had been greatly reduced, while the social anxiety component of POIS had been almost completely eliminated! The following day was more of the same.
I don't want to get too excited too soon, I know drugs and herbs can become less effective as they are used more frequently, and the positive effects might not last forever. Also, maybe I have just had two particularly good days, and it will be back to normal during my next potential POIS episode.
If anybody else is thinking of taking it, it sounds very safe - in fact it is an ingredient in certain foods. Only pregnant women should stay away from Fenugreek. I'll carry on posting here as I continue taking fenugreek, I hope I will continue to have good news!

Alcohol: A few beers before orgasm help relieve a lot of physical symptoms of POIS and brain fog. On unrelated note I have always found out that my pois symptoms were greatly decreased if I have orgasm when I'm extremely drunk.
Interesting article from the BBC on how alcohol can help prevent brain injuries:
http://news.bbc.co.uk/1/hi/health/8262393.stm
"Experts believe the right dose of alcohol, however, stops the cascade of swelling, inflammation and further destruction of brain cells, known as secondary brain injury."
Interesting that they are considering that alcohol can have anti-inflammatory properties! I should confess that I have noticed that having an orgasm after a few beers does seem to alleviate my subsequent POIS symptoms - has anybody else noticed a link between alcohol and POIS?
I'm not encouraging people to go out and get drunk by the way! Although POIS sometimes feels like its driving me to drink ... :)
On an unrelated note, I have always found that my symptoms from POIS were greatly decreased if I got extremely drunk before orgasm. Now for obvious reasons, this can in no way be regarded as a helpful cure due to all the other negative side-effects of such behaviour.
But it is well known that getting drunk weakens the immune system greatly. Which would fit in perfectly with Dr Waldinger's new evidence - if my immune system is unable to "fight" the semen/pre-ejaculate allergy due to me being drunk, then my POIS symptoms become less severe.
Alcohol exposure stimulates the hypothalamus to produce corticotropin?releasing hormone (CRH). This triggers the pituitary gland to secrete adrenal corticotropic hormone (ACTH), which in turn stimulates the adrenal glands to release glucocorticoids. At high levels, glucocorticoids signal white blood cells to alter cytokine production, suppressing inflammatory and immune responses
 

Nicotine: Vaping in the morning 15 minutes help cognitive symptoms of POIS 6mg of nicotine e juice

Ginger Root or Ginger Tea
n on and off meds forever and none of them make me feel like how I used to. I have done COUNTLESS hours of research to the point that me and my doctor have agreed that I have become abit of a hypochondriac... I got really into researching the neurotrasmitters and differant parts of the brain and all that shit. But even after knowing that and accepting that I have NEVER felt the same... I have always told myself its just in my head and I am compleatly normal, but deep down I know I dont feel the same... I have become soooo much more sucessfull than I ever have been when I didnt have Anhedonia, but I still feel sad... I have tried therapy which did help abit, I have done Tons of differant meds, Tried wayyyy to many Nootropics, I exersise more than any other 18 year old I know, I have changed soooo many things with my diet which all of them have helped abit but I STILL feel dead inside. Hell I even gave up all videogames, started meditating, and even dropped 40 lbs! I am in the best shape of my life! Currently at 179lbs! But even after alllll of that I still feel differant... But out of EVERYTHING that I have tried there was one thing that helped me a great deal with all of my brainfog, anhedonia, depression, ect... But it doesnt make sense... Its so fucking simple... I have tried it a few times and it helped everytime... I guess I kindof just forgot about it until today... I am being 100% serious when I say this but the thing that helped me was... GINGER ROOT!!! I dont get it! I really dont! Its so fucking simple! The ONLY reasons I can think of is there is something either wrong with my gut or with brain inflamation! Today I was making some tea and as soom as the tea started to take effect I DEFINATLY felt it! I have ate it plain before even and it has really helped! Can someome PLEASE tell me why this might be!!! I have a pinched nerve in my neck to which when I have ginger root it takes the inflamation away from that to!!! I just want to know what I should be trying to fix! I dont want to have to eat ginger the rest of my life in order to feel great! Also: I have tried NSAIDs for inflamation but it did not give the same effects, but I dont know if that could pass the blood brain barrier... or if it would even effect brain inflamation, which is why I also think something could be wrong with my gut... One more thing: I this also helped me with DPDR! Vision feels better, clear head, memory alot better, faster thought process, things feel alot more real 😄.

Cayenne Pepper: Make me high haha

Niacin: Relieved physical symptoms by 95% but doesn't seem to help cognitive

Viagra

Cialis

Cigarettes: The deservely- reviled cigarettes is my best weapon against POIS nicotine is supposed to raise dopamine level.

Dark Chocolate ( cacao 70% ) improve all POIS symptoms

Chewing Gum ( xylitol ) increase ability to focus and improve concentration

Weed, Cannabis, Marijuana, Ganja: Relieve eyes head pressure during POIS and relieved alot of physical symotoms of POIS help me sleep better and aid digestion but if I smoke weed out of pois my short memory is fine but in POIS my short term memory isn't that good

regular intense exercise, Swimming, Steam, Sauna, massage therapy, singing, cuddle, kissing listening to music,Hot shower, cold shower improve all pois symptoms

Diets: Avoid Chinese foods ( Mono-Sodium Gutamate ) , Low carbs, Low histamine diet,

What to eat during POIS: Salmon fish, Lamb meat, Prawns, Eggs, White rice, Cambodia Spinach, carrot, Garlic cloves, Cayenne Pepper, Chicken, Hamburger, Pizza, Tomato, Onion, All kind of berries, Ginseng soup
Certainly protein-heavy meals help reduce my POIS symptoms, it was the first thing I discovered that significantly helped

What to drink during POIS: Water, Coconut water, Ginger Tea, Green Tea, Passion water, Coffee, Red bull, Cocacola, wine, Beer, Pocaria Sweat, Aqurise, Lemon Tea, Honey Tea, Milk,

Sun: Being somehow in the sun helps me,

If you have more questions you can PM me. but One thing that everyone agrees on is this POIS is awful. Sex is normal just like breathing and eating I have. I have POIS since first ejaculation. My name Oudom Horn. I'm 20 years old now I had pois since I was 12 years old. Enjoy life again. And so charismatic!!! not boastful LOL!! 😂
Great news wolf berry, oxytocin perhaps does have a role in POIS, I remember each time I see a girl I like I get more social and more attentive. Maybe giving your method a try could help.
Title: Re: Personal POIS Summaries and Histories.
Post by: Hopeoneday on May 05, 2019, 12:50:58 PM
I O yesterdey after 30 days of abstinece , today pain under prostate,
heart palpilations,  heart pounding, M Gravis symptomes, breathing problems(shortenes of breath), fatigue, memory problems(ram memory) short memory, migrains in sinus region,
nerve hipersensibility, buzzing under knees(nerves cant fire properly),
facial change, lose facial muscules,
pain in muscules, iritability, tinnitus(buzzing bas sound).

Title: Re: Personal POIS Summaries and Histories.
Post by: uhtred sonof on May 05, 2019, 01:14:04 PM
I O yesterdey after 30 days of abstinece , today pain under prostate,
heart palpilations, bump heart, M Gravis symptomes, breathing problems(shortenes of breath), fatigue, memory problems(ram memory) short memory, migrains in sinus region,
nerve hipersensibility, buzzing under knees(nerves cant fire properly),
facial change, lose facial muscules,
pain in muscules, iritability.

Ram memory? Are you trolling? And what is bump heart supposed to mean?
Title: Re: Personal POIS Summaries and Histories.
Post by: certainlypois2 on May 05, 2019, 01:23:06 PM
I O yesterdey after 30 days of abstinece , today pain under prostate,
heart palpilations, bump heart, M Gravis symptomes, breathing problems(shortenes of breath), fatigue, memory problems(ram memory) short memory, migrains in sinus region,
nerve hipersensibility, buzzing under knees(nerves cant fire properly),
facial change, lose facial muscules,
pain in muscules, iritability.

That sucks how many O's did you do. 
If i wait that long and only do one O my pois is milder.
Title: Re: Personal POIS Summaries and Histories.
Post by: Nas on May 05, 2019, 01:31:45 PM
I O yesterdey after 30 days of abstinece , today pain under prostate,
heart palpilations, bump heart, M Gravis symptomes, breathing problems(shortenes of breath), fatigue, memory problems(ram memory) short memory, migrains in sinus region,
nerve hipersensibility, buzzing under knees(nerves cant fire properly),
facial change, lose facial muscules,
pain in muscules, iritability.
That clearly sounds like an immune flare, but I truly think POIS is special with the neuro-symptoms.
Title: Re: Personal POIS Summaries and Histories.
Post by: Hopeoneday on May 05, 2019, 02:21:37 PM
That sucks how many O's did you do. 
If i wait that long and only do one O my pois is milder.
The same, that second is a killer. My pois is alsou cumulative.
I had two, the one night before, second in morning, to much liquid in
prostate and semen in testicles after long period of abstinence.
That make me to feell unplesent in my body.
Title: Re: Personal POIS Summaries and Histories.
Post by: notadoctor on May 04, 2020, 11:02:52 AM
Hello everyone,

History

Time to tell my story. I am 25 year old male who has suffered from POIS since I am 15/16 year old (can't remember exactly when it started to happen). Since then, I have always been more fatigued and less motivated in everything I do. Grades started to drop and I needed at least 9 hours of sleep to function normally during a day. Over the years, my social skills started to diminish and I became a lot more insecure. I experienced brain frog and my memory worsened. I sometimes preferred to stay nights at home instead of hanging out with friends. I could never explain why I felt that way. Since I was 19/20 years old I started to feel I was losing my friends due to my insecurity, but in reality this was not the case.

Since I am 22 years old, someone from a project group at Uni told me about NoFap and that you could get "superpowers" from it. Purely out of curiosity, I started to try it out. Around 9 days in and I felt the happiest I've been in around 6 years. I had a smile on my face that lasted the whole day. From that point I thought that I've been a porn addict all this time, since I watched porn a lot. I think I watched porn and masturbated on average maybe 1-2 times per day. Sometimes I masturbated 4-6 times a day. I started practicing nofap, but when I relapsed I would always feel the same symptoms again. I just thought it was because of my excessive masturbation history and porn addiction that I would have these symptoms.

One year later, the nofap went with ups and downs. Granted, the amount of masturbation went down immensely. Sometimes I had a streak of 7 days and sometimes of 100 days. But I had always the same symptoms after I orgasmed. I got a girlfriend for the first time and started having sex for the first time. However, the same symptoms after sex started happening again. I was really confused why this happened. After a few weeks I started googling and found out that it was POIS that caused these symptoms. I was happy and devastated at the same time. Happy, because I found out that it was an actual disease and I was not going crazy. Devastated, because it is something that you cannot easily get rid off.

Another year went by. I was still happy in my relationship, but POIS symptoms were still there. I started reading something about breathing techniques and realized I've been a mouth breather all my life. I thought myself to breath through my nose (both in and out). POIS symptoms reduced drastically since then, from a 5-7 day cycle to a 3-4 day cycle. However, I still need at least 10 days to fully recover since then.

Present

One more year passes by. POIS is still present, but I have noticed that symptoms after sex start to diminish. This happened during the last months of my relationship, which ended half a year ago. I haven't had sex since then so I cannot tell if this is still is the case. All my memories of the past years still seem vague. I can't really remember anything from 17-21 years old. But I feel my memory is slowly getting better. I feel at my best when I haven't been working out for a few days and have been abstaining from orgasm for at at least 10 days. When this is the case, my brain functions really good and my memory/focus is 1000x better. I am still practicing nofap, although I relapse every 30-60 days. Often times this is when I'm drunk.  When having a orgasm when drunk, however, symptoms are less intense than when I'm sober. Overall, I feel soooo much better than before doing Nofap, also because I barely watch any porn (1-3 times every 1-2 months) nowadays. I do not dare to think where I would have been now if it weren't for that random guy from my project group who told me about nofap. He might have just saved my life.

Symptoms

My symptoms comprise of fatigue, increased irritability, social distancing (comes in handy nowadays haha), brain fog, depressed feelings, tone in voice becomes worse, increased vulnerability to stress, sense of fight or flight, bad focus, bad memory (especially short-term).

When do symptoms appear

After orgasm. I noticed approx 8 months ago that symptoms after sex started to decrease. I also notice POIS symptoms after working out in the gym, but not as intense after orgasm.




Title: Re: Personal POIS Summaries and Histories.
Post by: Mushnikk on May 05, 2020, 10:43:44 AM
Hello everyone,

History

Time to tell my story. I am 25 year old male who has suffered from POIS since I am 15/16 year old (can't remember exactly when it started to happen). Since then, I have always been more fatigued and less motivated in everything I do. Grades started to drop and I needed at least 9 hours of sleep to function normally during a day. Over the years, my social skills started to diminish and I became a lot more insecure. I experienced brain frog and my memory worsened. I sometimes preferred to stay nights at home instead of hanging out with friends. I could never explain why I felt that way. Since I was 19/20 years old I started to feel I was losing my friends due to my insecurity, but in reality this was not the case.

Since I am 22 years old, someone from a project group at Uni told me about NoFap and that you could get "superpowers" from it. Purely out of curiosity, I started to try it out. Around 9 days in and I felt the happiest I've been in around 6 years. I had a smile on my face that lasted the whole day. From that point I thought that I've been a porn addict all this time, since I watched porn a lot. I think I watched porn and masturbated on average maybe 1-2 times per day. Sometimes I masturbated 4-6 times a day. I started practicing nofap, but when I relapsed I would always feel the same symptoms again. I just thought it was because of my excessive masturbation history and porn addiction that I would have these symptoms.

One year later, the nofap went with ups and downs. Granted, the amount of masturbation went down immensely. Sometimes I had a streak of 7 days and sometimes of 100 days. But I had always the same symptoms after I orgasmed. I got a girlfriend for the first time and started having sex for the first time. However, the same symptoms after sex started happening again. I was really confused why this happened. After a few weeks I started googling and found out that it was POIS that caused these symptoms. I was happy and devastated at the same time. Happy, because I found out that it was an actual disease and I was not going crazy. Devastated, because it is something that you cannot easily get rid off.

Another year went by. I was still happy in my relationship, but POIS symptoms were still there. I started reading something about breathing techniques and realized I've been a mouth breather all my life. I thought myself to breath through my nose (both in and out). POIS symptoms reduced drastically since then, from a 5-7 day cycle to a 3-4 day cycle. However, I still need at least 10 days to fully recover since then.

Present

One more year passes by. POIS is still present, but I have noticed that symptoms after sex start to diminish. This happened during the last months of my relationship, which ended half a year ago. I haven't had sex since then so I cannot tell if this is still is the case. All my memories of the past years still seem vague. I can't really remember anything from 17-21 years old. But I feel my memory is slowly getting better. I feel at my best when I haven't been working out for a few days and have been abstaining from orgasm for at at least 10 days. When this is the case, my brain functions really good and my memory/focus is 1000x better. I am still practicing nofap, although I relapse every 30-60 days. Often times this is when I'm drunk.  When having a orgasm when drunk, however, symptoms are less intense than when I'm sober. Overall, I feel soooo much better than before doing Nofap, also because I barely watch any porn (1-3 times every 1-2 months) nowadays. I do not dare to think where I would have been now if it weren't for that random guy from my project group who told me about nofap. He might have just saved my life.

Symptoms

My symptoms comprise of fatigue, increased irritability, social distancing (comes in handy nowadays haha), brain fog, depressed feelings, tone in voice becomes worse, increased vulnerability to stress, sense of fight or flight, bad focus, bad memory (especially short-term).

When do symptoms appear

After orgasm. I noticed approx 8 months ago that symptoms after sex started to decrease. I also notice POIS symptoms after working out in the gym, but not as intense after orgasm.

Thank you for the write up, interesting that symptoms were reduced with sex as opposed to masturbation. That has been reported by some in this forum, possibly oxytocin or female hormones that inhibit prostaglandins are responsible for this.

Also: alcohol inhibits part of the immune system and may help lower the risk of developing auto immune diseases: https://www.nature.com/articles/s41467-020-15855-z
Title: Re: Personal POIS Summaries and Histories.
Post by: Journey on June 15, 2020, 12:33:04 PM
Hello everyone,

History

Time to tell my story. I am 25 year old male who has suffered from POIS since I am 15/16 year old (can't remember exactly when it started to happen). Since then, I have always been more fatigued and less motivated in everything I do. Grades started to drop and I needed at least 9 hours of sleep to function normally during a day. Over the years, my social skills started to diminish and I became a lot more insecure. I experienced brain frog and my memory worsened. I sometimes preferred to stay nights at home instead of hanging out with friends. I could never explain why I felt that way. Since I was 19/20 years old I started to feel I was losing my friends due to my insecurity, but in reality this was not the case.

Since I am 22 years old, someone from a project group at Uni told me about NoFap and that you could get "superpowers" from it. Purely out of curiosity, I started to try it out. Around 9 days in and I felt the happiest I've been in around 6 years. I had a smile on my face that lasted the whole day. From that point I thought that I've been a porn addict all this time, since I watched porn a lot. I think I watched porn and masturbated on average maybe 1-2 times per day. Sometimes I masturbated 4-6 times a day. I started practicing nofap, but when I relapsed I would always feel the same symptoms again. I just thought it was because of my excessive masturbation history and porn addiction that I would have these symptoms.

One year later, the nofap went with ups and downs. Granted, the amount of masturbation went down immensely. Sometimes I had a streak of 7 days and sometimes of 100 days. But I had always the same symptoms after I orgasmed. I got a girlfriend for the first time and started having sex for the first time. However, the same symptoms after sex started happening again. I was really confused why this happened. After a few weeks I started googling and found out that it was POIS that caused these symptoms. I was happy and devastated at the same time. Happy, because I found out that it was an actual disease and I was not going crazy. Devastated, because it is something that you cannot easily get rid off.

Another year went by. I was still happy in my relationship, but POIS symptoms were still there. I started reading something about breathing techniques and realized I've been a mouth breather all my life. I thought myself to breath through my nose (both in and out). POIS symptoms reduced drastically since then, from a 5-7 day cycle to a 3-4 day cycle. However, I still need at least 10 days to fully recover since then.

Present

One more year passes by. POIS is still present, but I have noticed that symptoms after sex start to diminish. This happened during the last months of my relationship, which ended half a year ago. I haven't had sex since then so I cannot tell if this is still is the case. All my memories of the past years still seem vague. I can't really remember anything from 17-21 years old. But I feel my memory is slowly getting better. I feel at my best when I haven't been working out for a few days and have been abstaining from orgasm for at at least 10 days. When this is the case, my brain functions really good and my memory/focus is 1000x better. I am still practicing nofap, although I relapse every 30-60 days. Often times this is when I'm drunk.  When having a orgasm when drunk, however, symptoms are less intense than when I'm sober. Overall, I feel soooo much better than before doing Nofap, also because I barely watch any porn (1-3 times every 1-2 months) nowadays. I do not dare to think where I would have been now if it weren't for that random guy from my project group who told me about nofap. He might have just saved my life.

Symptoms

My symptoms comprise of fatigue, increased irritability, social distancing (comes in handy nowadays haha), brain fog, depressed feelings, tone in voice becomes worse, increased vulnerability to stress, sense of fight or flight, bad focus, bad memory (especially short-term).

When do symptoms appear

After orgasm. I noticed approx 8 months ago that symptoms after sex started to decrease. I also notice POIS symptoms after working out in the gym, but not as intense after orgasm.

I too found out I got pois after abstaining and getting NE and realizing O gives me symptoms. Have you tried that what has worked for others POIS or anything to stop it? Do you remember if anything was different in life when you got POIS(virus, stress, injury, illness, infection, probiotics/antibiotics, etc.)?
Title: Re: Personal POIS Summaries and Histories.
Post by: Journey on September 06, 2020, 03:29:44 AM
I want to start by saying i cant believe that i actually met people with the same problems that i have i thought i was alone , it sure is helpful to know that the problem has some form of acknowledgment  , I hope you all the best

It all started right after puberty at age 15 , my symptoms are strictly cognitive ,  i remember before pois all my teachers used to say  that am the smartest kid they've seen , i never actually had to study for my exams and have always been the top of my class , i remember the symptoms started at the first year of what you call high school , i managed to get by a B average , which was very hard for me to achieve during my first experience with pois , i am still very depressed , the most valuable asset i had was my IQ , till now i dont really care if i live or die  , i feel that i have nothing to achieve. i have no self esteem .

The symptoms are almost exactly like Cornelius , especially the part about full night sleep would worsen the severity of  pois .

I'm currently 23 ,  i'm afraid to get in a relationship for the obvious reasons, i'm having trouble trying to find a job that suites my condition , am also having problems writing about this in details currently because of pois
I too was sharp b4 it. Mine are mainly neuromuscularcognitive. Ever had cases of POIS disappearing for while?
Title: BoneBroth
Post by: BoneBroth on December 04, 2020, 06:55:47 PM
Hey!

Here's my history, symptoms, thoughts and recommendations. I will continously work with this post. Read it as from a male person standpoint (hormonal approach etcetera) although most things are probably as relevant for women (See IronFeather's case (female, 25 years old) (https://poiscenter.com/forums/index.php?topic=3765.0). If you can't read everything, just jump to the conclutions at the bottom.

History

POIS started sometime at teenage (13-18) during school when I was exposed to heavy stress from bullying which comprimised my social life with about 80 % during 9 years in school and the symptoms continued after. During the time, and since, I've been a reluctantly victim for frequent nocturnal emissions. Then the stress source changed from bullying to echonomical difficulties because of POIS. I'm in my 40:th now and still suffers heavy when I have POIS.

Symptoms and change

These are the symptoms that comes with POIS and go away after about 10 days.

Color code:
Normal text: has been around all the time
Red: Has started during the last 10 years
Green: Has become a little better
Blue: Has become worse

Symptoms only during POIS (and goes away after)

At around my 30:th the headache evolved to a stinging tension headache, often on one side and sometimes it felt like in the center of the head which made sleep impossible and days really bad. Sometimes I sat in a chair all night and sometimes didn't get enough sleep for weeks. Fortunatly that sort of headache is gone now - probably because of my magnesium supplements. It's interesting to notice that all my older brother and dad had male patterend baldness early in thier life and I probably got it latest in life but just me got POIS (beeing the youngest sibling is associated with more stress).

The worst symptoms are still happening after POIS (orgasm) and takes at least 10 days to heal. Here is a list of symptoms that I have more or less constantly and doesn't seem to be directly related to orgasm:

Constant symptoms (When not in POIS)

Symptoms released by other factors than POIS

Do you share any of theese symptoms? Please make a similar list as above on your own post in this thread, which is dedicated fo this.

My POIS theory

POIS root causes

My over 30 years of thinking about POIS is giving me new pieces of the puzzle every year (specially with the help from his forum, thank you!). I believe that the cause of POIS circles around the folloing things that has been going on for an extended time (years):

When one or many of theese things coexist they are pulling the whole hormonal systems out of balance - the production of hormones (specifically cortisol and testosterone but probably also dopamine and other hormones involved with orgasm) and the receptors. Over time theese imbalances cause a wide spectrum of primary and second hand health issues - most are caused by long term inflammation and long term cortisol excess (caused by the inflammation).

Orgasm normally releses both anti-inflammatory and inflammtory hormones, but when there is not enought of anti-inflammatory hormones like cortisol (number one), testosterone and oxytocin, you will have an overload of inflammatory hormones. I?m still not sure of what hormones are directly responsible for the inflammation, but user Nanna1 has made one of the best explanations of the process here (https://poiscenter.com/forums/index.php?topic=2502.msg21497#msg21497), blaming norepinephrine, glutamate and histamine.

To battle the inflammation the body produces cortisol. Cortisol might be hight in the morning but the stores in the adrenals runs out early in the day. When you produce so much cortisol over many years due to stress, the raw materials for other hormones will run out - this is called the cortisol steal (https://www.tanyaborowski.com/blog/myth-busting-adrenal-fatigue-cortisol-steal.html). With decreased cortisol the body cannot cope with the inflammation and this results in a variety of POIS symptoms (because all organs are influenced).

And to make things worse, when the liver break down those inflammatory hormones, the breakdown products are even more toxic. When the livers detoxification pathways are comprimised (because of inflammation and toxic overload), the inflammation will be even worse, in a vicious circle.

A compromised liver cannot produce enough of bile and play its role in the absorbation of fat-soulable vitamins. This also increases the risk of candida and small intestinal bacterial overgrowth (SIBO). The bile and stommach acid are antifungus/antibacterial. Stress lowers the production of stommach acid. Stress shuts all digestional systems of, including the the intestinal movements. All this leads to wrong bacterial flora, gas, candida, leaky gut and a decrease av absorbtion of nutrients, specifically:


(In the Gather and Post Here Your Medical Tests Results (https://poiscenter.com/forums/index.php?topic=2684.msg23787#msg23787) there are users who report deficiencies of B12 and D. And the "niacin cure" works for some users.)

The inflammation is also tagreting the hypothalamus and pitutary, where many important hormones are produced.

Symptoms explanation

The inflammatory substances have a degenerative effects of the whole body. Each organ gives it own symptom when harmed (or in chain reactions). For example:
 
Deficiencies of any theese hormones is a sign of comprimised function in the pitutary and hypothalamus:

Adrenocorticotrophic hormone (ACTH) (targets the Adrenals)
Thyroid-stimulating hormone (TSH) (targets the Thyroid, temperature controlling, heart rate)
Luteinising hormone (LH) (targets the testes)
Follicle-stimulating hormone (FSH) (targets the testes)
Prolactin (PRL)
Growth hormone (GH) (Stimulates growth and repair)
Melanocyte-stimulating hormone (MSH)
Antidiuretic hormone (ADH) (Controls the blood fluid and mineral levels in the body by affecting water retention by the kidneys. This hormone is also known vasopressin or argenine vasopressin (AVP)). Deficiency leads to dryeness, low blood pressure and varicose veins.
Oxytocin (anabolic hormone that heals osteoporosis)
Corticotropin-releasing hormone (helps regulate metabolism and immune response by working with the pituitary gland and adrenal gland to release certain steroids)
Gonadotropin-releasing hormone (instructs the pituitary gland to release more hormones that keep the sexual organs working)
Prolactin-controlling hormones
Thyrotropin-releasing hormone (activates the thyroid, which releases the hormones that regulate metabolism, energy levels, and developmental growth)

Furthermore, a damaged organ can give diffrent symptoms depending on the stage of the degeneration, for example: Adrenal exhustion will first produce symptoms of high cortisol, but long term adrenal exhaustion will have symptoms of low cortisol. And that might even change during the day. The most tangible symptoms are probably coming from a comprimised liver, hypothalamus, adrenals and intestines.

Measures and prospects

Do not despair! I believe the odds for healing partly or totally are pretty good. The body has an amazing capacity to heal itself and there are so many therapies, products and methods that helps with this - you couldn't even try them all in a life time. Get inspiration by reading the testimonials at sites like earthclinic.com (https://www.earthclinic.com/). In my work I've also witnessed how people can cure themself from serious diseases and strengthen their immue systems with good nutrition and changing their diet. This will always make your body stronger, more resistant and heal some of the pois caused injuries. It should be included in the pois protocol. However, in the case of POIS this approach is not enough.

Since there are more factors involved than only nutrition/diet the critical point is to be determined and tenaciously following a protocol for an extended time, often at least a year. The best shot is of course to find a true holistic hormonal expert that can analyse and adjust your hormonal status. However it is not easy to find an expert that has the sufficient knowledge. There's a big risk that your not getting any hormonal treatment at all or getting a wrong hormonal treatment that supresses your own ability to heal. The only true expert I know is dr Thierry Hertoghes clinic in Belgium. However that treatment is very expensive. Also remember that even if you manage to "hide" one symptom or block one viscious pathway (stop inflammation with paracetamol or curcumin), if you dont reverse the underlying cause, your body will continue to degenerate "behind the scenes" and you will probably be subjected to even worse diseases in the future.

Fixing the main cause of POIS (the "cure").

For short-term relief use one of the POIS-packs described in this forum and for accute relief after orgasm, read up on my "Actions to take after orgasm (post-packs (https://poiscenter.com/forums/index.php?topic=3578.msg37452#msg37452))" thread here. But this is important: While there seems to be single supplements and pharmaceuticals that easy your symptoms (testosterone patches / niacine / quercitine or drugs-with-strange-names etcetera) they don't cure POIS and should not be relied on as a long termed sollution. Thats why a potential future POIS-drug will never be a sollution (a drug is not a "sollution" for any disease). The real sollution lies in avoiding the cause and restoring the body. No pill will ever do that, period. Of cource there might be cases where your body has been so harmed that it is incapable to produce certain substances/hormones or manage detoxification and you will be dependant on a certain substance, but that is not considered as a "cure". However I dont belive that is the case for at least 90% of all POIS:ers.

Focus areas for restoring damaged organs:

How's it working for me?

2021 first half year update: Some of the above measues and theories are quite new discoveries for me and I'm still struggeling to incorporate the things above into my life. I'm on a one year SIBO-protocol since a year ago and its beginning to give some results now, but I cant say if its the SIBO diet or other things on the list above that gives effect - I'm doing all the things at the same time, its more like a lifestyle change. There is still bloating/constipation but after taking a magnesiumoxide supplement (https://www.wearenordbo.se/nordbomage-60-kap) at least I managed to constipation (now I have diarrhea if I only take two pills instead of one). During this time I have experienced two periods (about 1-2 months) with almost zero POIS symptoms and I could almost have 2-3 O with no symptomns. I havnt feel this good for a very long time but I cant put the finger on what I'm doing that is making this change. Maybe the improvements come succesive and when I feel good I start to do and eat things that is making it worse again. But at least this has made me believe that its possible to feel almost 100% better. I just have to stay to the "improvement plan".

A new discovery is that my present gut situation and sleep pattern has way more impact on the POIS symptoms then i thought, even if I have no NE/O at all. I think my small intestine is in a poor condition (due to years of inflammation) and everytime I eat starchy food, sugar and some fodmaps I get a POIS-like outbreak (even with no NE/O) with redness on mucous membranes, bad smelling gas, headach, neck pain, skin rash, varicose veins etcetera.

I have also found that if I take 5-20 drops of orenano oil (mixed with another oil) and garlic capsules, after eating something that normally triggers the POIS-symptoms, I will have much less symptoms in the coming days since it kills the bad bacteria that would have otherwise gone wild on the starch/sugar/fodmaps. Bad bacteria might be one of the weakest points right now and this will have a negative impact on nutritional intake and hormonal balance. I'm experimenting with diffrent brand probiotic, but the "killing off" effect seems to give much better result than just repopulating. A combination might be the best.

The post-packs have some effects and staying away from orgasm, going to bed early and not watching action movies or the computer at least one hour before sleep, going for walks in the sun early after breakfast (to raise the cortisol) makes life better. Nocturnal emissions are a constant pitfall so the post pack measures are invaluable. But now and then I seem to come out of the NE pretty well too, but only if I'm good at doing the other things for a lengt of time (at least 2 weeks). I havnt got control over the "heights" yet but it seems that its very possible since I have days when the pois is almost gone completely even after O. I think avoiding nocturnal emission, cut down the O to once a month, daily exercise and improving sleep is is making the biggest diffrence. Its pretty hard not to forget doing one or two things on the list at a daily basis though.

Analyzes

Become an analysis freak! Do any analysis you can afford. Self-analysis is very important. Keep documentation of your body (even take photos) and check your puls, heart rate, temperature and write down every results from analyses and diagnosis from healthcare and therapists. Keep a diary and note your health status on a daily or weekly basis. Specify all your health issues on a document, and estimate how big they are and how they changes. Figure out what works and what doesn't.

Recomended tests
Lactulase SIBO test ($200)
DNA stool test (about $400)
Hair mineral analysis ($200)
Full blood spectrum analysis ($150-$400)
Dutch complete hormonal test ($600)

Because of the brain fog involved in POIS it is nessecary to write down things because your memory could fail you. When I started to do this I got a feeling that I was going somewhare. That was a mental support especially when your feeling down.

Frequency analysis techniques (like QRMA and Bioresonance) has been invaluable in the evaluation of my body's condition and treatment. What makes it so interesting is that one analyses has confirmed the other and the result confirms my symptoms.

Metodology
When you update your personal research on a daily basis you are much more likely to control your health then if you only just do it when you feel bad.

Create the following folders on your computer:
- Analyses (external and self analyses)
- Diary (daily observations)
- My protocol (daily plan, supplements and measures, write start and end/update date and save old protocols)
- Plan. Whats your next step? (therapists, doctors to visit)
- NO/YES list. Write down things that work for you and things that should absolutely be avoided. We tend to forget those things and relapse.

Make routines for going to bed, the morning and the day. Make lists of daily routines that improve your POIS and life (exercise, supplements what to eat and what not to eat) and adjust those lists when you have new information. The lists becomes your best friend when you have a setback.

At the doctors office

Since its both difficult and embarrassing to explain your POIS symptoms to your doctor here is a list of things you can download and bring/send to your doctor (https://poiscenter.com/forums/index.php?topic=3585.msg37488#msg37488) that explaines POIS in a more scientific way. That might get the doctors attention without dismissing you that easy.

How can you help others?

Eye openers

Things that had the most influence on my researth and important sources of information.
Visiting a chineese doctor.
Cortisol Deficiency: Frequent, Life-Impairing, and How to Give Patients Their Lives Back By Correcting It (https://www.townsendletter.com/article/cortisol-deficiency-frequent-life-impairing-and-how-to-give-patients-their-lives-back-by-correcting-it/)
Cause of my POIS? - Investigation & update (post orgasmic illness syndrome) (Youtube video) (https://www.youtube.com/watch?v=hbzwe1EMaRI)
Dr Axe: What is colllagen? (https://draxe.com/nutrition/what-is-collagen/)
SIBO expert Dr. Allison Siebecker (https://www.siboinfo.com/)
Success Story: Curing My Patient?s Lupus, Leaky Gut, Depression, Brain Fog?.Starting at the Gut  (https://www.furtherfood.com/my-patient-had-worsening-lupus-symptoms-but-i-found-the-true-cause-was-her-poor-gut-health/)
Lifestyle Diary and POIS Summaries, specifically (https://poiscenter.com/forums/index.php?board=12.0)
IronFeather's case (https://poiscenter.com/forums/index.php?topic=3765.0) (female, 25 years old)
Nanna1's POIS treatment: theory & supplement stack (https://poiscenter.com/forums/index.php?topic=2502.0)
Chart of POIS Types (ongoing project) (https://poiscenter.com/forums/index.php?topic=2338.0)
Gather and Post Here Your Medical Tests Results (https://poiscenter.com/forums/index.php?topic=2684.msg23787#msg23787)
Gather and Post Here Your Medical Tests Results - Discussion Thread (https://poiscenter.com/forums/index.php?topic=2695.0)

My compillations and contributions to this forum
How to increase testosterone naturally (https://poiscenter.com/forums/index.php?topic=3572.msg37380#msg37380)
Low cortisole (https://poiscenter.com/forums/index.php?topic=3011.msg29612#msg29612)
How to increase low blood pressure (https://poiscenter.com/forums/index.php?topic=3583.msg37482#msg37482)
Actions to take after orgasm (post-packs) (https://poiscenter.com/forums/index.php?topic=3578.msg37452#msg37452)
How to increase testosterone naturally (https://poiscenter.com/forums/index.php?topic=3572.msg37380#msg37380)

Some words of encouragement

POIS is a horrible battle, but giving up is not an option. What's the alternative? Your responsible for your own health and what you are doing for yourself is giving you the most results. Take total controll over the situation, but constantly seek help from others. Organise your efforts. Make plans fo the next step.

When you have a setback, or if you feel guily over something you did to yourself remember this: There is only a moment of now and you can only affect the present and the future, it's impossible to change the past so don't be sorry over what has happened. I dont think anyone is making an ever growing list of your past mistakes, on the contrary, your family, friends, and the "universe", or whatever you like to call it, are certainly more interested in watching you climbing up the pit, rather than burden you with old sins - whats the point of that? Always turn over a new leaf, every day if you have to.

There is just a rest-of-your life. We seem to forget bad things and remember the good things. We miss that family vacation to the wilderness but forget the rain or mosquitoes that ruined the trip. When you get POIS, look at it as an opportunity to give yourself more clues. Document your health in the morning, day and evening, before food, after food. What happens when you fast? Does it makes it better? What happens when you take a walk? When you drink alot of water? What supplements help? Take notes, analyse it after the POIS period and improve your protocol so your more prepared next time.

When your steering towards improving your life in a intentional and persistant way you will be given opportunities, new solloutions, new people and new ideas. Be open for alternative explanations and dont blindly trust the "ortodox" scientific establishment and doctors - they are permeated by research fraud and incompetence. There are far more sources of information and therapies out there than you think. Noone has "tryed them all" in a lifetime. I can assure you that your body has a greater ability of healing itself then you might think.

Conclutions

I belive most POISers can be cured or almost cured by:

1. Stop fapping
2. Stop orgasm for a year
3. Get out of mental addictions
4. Fix your gut (clean, repopulate)
5. Fix your diet
6. Remove stress
7. Exercise
8. Sleep well
(9. Hormonal replacement therapy might be needed for some people)

The most difficult of theese steps might be to fixing the gut and removing stress. Removing bad bacteria from your gut might be as tough as escaping from a stressful relation.