Post Orgasmic Illness Syndrome (P.O.I.S.)

General Category => POIS Research => Topic started by: La_pet1te_mort on September 06, 2018, 04:57:11 PM

Title: Please FILL OUT the new POIS Survey (2018)
Post by: La_pet1te_mort on September 06, 2018, 04:57:11 PM
abc
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Quantum on September 07, 2018, 03:29:43 PM
Thanks LPM for the time and efforts you have put on this project!

This will be a great boost for helping POIS research, and I hope all members will fill out your survey!


Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on September 07, 2018, 04:12:28 PM
Thanks LPM for the time and efforts you have put on this project!

This will be a great boost for helping POIS research, and I hope all members will fill out your survey!

Big DITTO!
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: positivethoughts on September 07, 2018, 04:41:37 PM
Done!! I have answered it (and I also did it while it was a Draft)!!!

Thanks so much to "La_pet1te_mort" for doing this, it's a really great project! And also thanks to Quantum and everyone who contributed prevously and who will now! :D

Hope we learn lots of things.
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Scrub on September 07, 2018, 04:55:31 PM
Done.
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Nas on September 07, 2018, 09:45:25 PM
I spent way too much time on this, hope it's worth it in the end and does not just get tossed to internet's virtual dusty shelf.
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: aswinpras06 on September 08, 2018, 01:37:44 AM
A very good survey.  Thanks for the hard work done for bringing it out.
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on September 08, 2018, 03:16:56 PM
Very nice to see the forward movement!
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: b_jim on September 11, 2018, 03:07:19 PM
Good job!
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Observer on September 11, 2018, 03:50:04 PM
Good job!

Thanks everyone for your contribution!
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: mardi on September 12, 2018, 01:45:18 PM
Done! Thank you for making this.
I hope some doctor or researcher one day will be interested in these results.
Or at least that we will find something everybody has in common, and start from there a new research.
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on September 13, 2018, 12:21:38 PM
LPM, your survey is doing nicely!

Demo
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Bombardier on September 19, 2018, 08:53:27 AM
Done and done. Hope it helps, LPM!
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: VictimNoMore on September 19, 2018, 10:36:30 PM
Hi there LPM,
Thanks for the well designed survey, I'm somewhat new to the forum and this was a perfect way for new members to immediately contribute to the forum with a detailed summary of their current POIS journey. I hope the info gets into the right hands and gets us one step closer to relief from this nasty illness!
Also as a tip for anyone filling this survey out, dont hit backspace on your keyboard, you'll have to do the survey again....Learn from other peoples mistakes...
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Quantum on September 23, 2018, 05:06:38 PM
Thanks for the update, LPM !

I am sure we can get more members filling the survey in the coming weeks !
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on September 23, 2018, 09:10:07 PM
Great news on your update, LPM!!

Yes, I agree with you, LPM, let’s continue this Great Effort, so...


Please do FILL IT OUT now. The sooner

the better :)



https://docs.google.com/forms/d/e/1FAIpQLSe0BbwBanIHuOMh3S6zGm8o9YJw635PVDP70qVETKHAl8cjNA/viewform?usp=sf_link



Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Vandemolen on October 01, 2018, 08:56:17 AM
Done!
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Samir on October 08, 2018, 01:03:15 AM
Agh, this requires a google account. :(
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Quantum on October 20, 2018, 11:19:36 AM
Yes, I agree with you, LPM, let’s continue this Great Effort, so...

Please do FILL IT OUT now. The sooner the better :)

https://docs.google.com/forms/d/e/1FAIpQLSe0BbwBanIHuOMh3S6zGm8o9YJw635PVDP70qVETKHAl8cjNA/viewform?usp=sf_link


Again, the link for the survey is:

https://docs.google.com/forms/d/e/1FAIpQLSe0BbwBanIHuOMh3S6zGm8o9YJw635PVDP70qVETKHAl8cjNA/viewform

You register with a Goggle mail address, so you will be able to save and complete later if you do not have time to go through.

Thanks !
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Vandemolen on October 30, 2018, 03:48:24 PM
UPDATE (2018-10-30). I recently realized (thanks to Quantum!) that the questions on how the symptoms end was poorly phrased. To resolve this, I have added 3 new questions to the survey.

If you have already filled out the survey, please go back and answer these three additional questions. Section 8, "POIS details and history". Right after the question "How long do your POIS symptoms typically last, in days? (-1 = not applicable / other)", the first new question is

> Please explain if you responded "not applicable / other".

The next new question:
> Do your POIS symptoms disappear over time on their own, that is, without treatment? If "no", please explain.

This is followed by a question that was there already ("Do your symptoms typically disappear gradually or spontaneously?"). Finally, the last new question:
> Do you have chronic symptoms that remain after a POIS attack is over, that you think are caused by POIS? If so, please describe these symptoms.

You should NOT be filling out a whole new survey. When you log in with the same Google account that you used to fill out the survey, you will see that all of your responses are still there. You only need to respond to the three new questions.

Thank you!
https://docs.google.com/forms/d/e/1FAIpQLSe0BbwBanIHuOMh3S6zGm8o9YJw635PVDP70qVETKHAl8cjNA/viewform
It doesn’t work. When I log in with same account I get a notification that I already filled in the survey. The previous responses are gone.
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: certainlypois2 on December 12, 2018, 07:01:13 PM
Hi guys,

Thank you everyone who responded to the survey and to everyone who is still responding. It has always been my hope that we can do something valuable with this data to address POIS.

I've written a paper using the survey data and submitted it to a major medical journal. I have received comments from reviewers who are requesting that I make major revisions to the paper. I hope to be able to make these revisions within the next couple of months. I am very busy with other areas of my life, and the revisions are extensive, so it will take time. Publishing this paper is a priority for me, though making the revisions will take some time.

Even after I make the revisions, there is no guarantee that the journal will publish the paper. I hope that they do. If they don't, we'll go from there. I might submit to a different journal. These things take time -- if you've never been involved in scientific publications, it takes longer than you might think.

PLEASE CONTINUE responding to the survey. If you are just responding now, your data will not be included in this first paper. HOWEVER, the survey is extensive. When I created the survey, my idea was to use it for several publications. I can't guarantee anything, though I hope to have more publications -- they will be easier if I can find a good co-author, and that will be easier if I can publish this first paper.

ONCE the first paper is published, I will publicly release the data, so that other researchers as well as the community can analyze it.


Thank you all for your support. Have a great POIS-free day.
Very Nice and Thanks.
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on December 12, 2018, 11:32:04 PM
La_pet1te_mort,

Ditto to certainlypois2!


Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Observer on December 13, 2018, 08:04:46 AM
I have already filled the POIS survey, have you done it?

It's valuable data that will be very useful in the future research.

Thanks everyone for participating in it!
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on December 13, 2018, 09:01:11 AM
Ditto to Observer!
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on December 13, 2018, 10:24:38 AM

I have already filled the POIS survey, have you

done it?


Yes, I did, Observer!



Let’s all drive up the number of Yes’s!!!


Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on December 13, 2018, 11:23:19 AM

Done!



Thank you for filling out the Survey, Vandemolen!!


Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on December 13, 2018, 11:31:01 AM
Agh, this requires a google account. :(

La_pet1te_mort, can you help Samir???


Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Limejuice on December 13, 2018, 04:37:37 PM
Just completed the survey. thx demo
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on December 13, 2018, 08:08:19 PM

Just completed the survey. thx demo


Thank you, Limejuice!
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: LAPOISSE on January 28, 2019, 04:36:48 AM
Hi,

Any result accessible for the community ?

By the way, I meet in 10 days Dr Le Breton in France who published with Pr Amarenco few years ago a study about POIS. Though I could give them some datas.

Let me know

LAPOISSE
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on January 28, 2019, 05:32:21 AM
THANK YOU LAPOISSE!!
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on January 30, 2019, 05:51:25 PM

 I meet in 10 days Dr Le Breton in France who published with Pr Amarenco few years ago a study about POIS. Though I could give them some datas.


Please let us know how the meeting goes!
Demo
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: LAPOISSE on February 06, 2019, 07:52:55 AM
Hello,

I see Dr Le breton tomorow morning ; Any possiblity to get some datas from the 2018 survey ? I believe it can be useful...
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on February 06, 2019, 11:41:26 AM
Best wishes at your appointment, LAPOISSE!
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: LAPOISSE on February 06, 2019, 04:50:18 PM
Thanks Demo, but could you answer my question ? Anybody?
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: demografx on February 06, 2019, 05:17:19 PM
You’ll have to ask La_pet1te_mort
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Disaster on December 17, 2019, 12:59:45 AM
Are there any results from this survey?
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Quantum on December 17, 2019, 10:47:49 AM
Are there any results from this survey?

Yes, La_pet1te_mort published an article about the results:   

https://www.nature.com/articles/s41443-019-0154-7.epdf?author_access_token=AgNs_C4J1a1_m4VR2canOtRgN0jAjWel9jnR3ZoTv0PT0F8rfecvTQu9JhIr8BTgZM-cizBESYqxQbPZMFGlB136dW86NBA133RrvDeeq7yVj_lwCE3sfgcwi-QG9h07rozVaszJ5QF17W_SwG--qA%3D%3D


Moreover, it already had been cited and discussed in a more recent POIS review article , where the author sees as positive the proposition of LPM to do some amendment to Waldinger's criteria :  https://bacandrology.biomedcentral.com/articles/10.1186/s12610-019-0093-7
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: nicelk on May 20, 2021, 01:30:56 PM
Dear Friends

I was suffering from POIS for about six years. No need to list the symptoms.
This how I healled my self:
1 Fasting for 7 days with water
2 Green clay cure for 21 days
3 Control what you eat and avoid industrial food, if possible cook your food your self.
Repeat this process every season change (4 times a year).

I'm POIS free since 3 years and I've never seen a doctor untill today.
You can write to me at nicekisila@yahoo.fr I'm available to help 'cause I know how POIS spoiled my life.

Take care!
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Iwillbeatthis on May 20, 2021, 02:23:58 PM
Long water fasts induces autophagy, cleaning out damaged cells and regenerating new ones, someone suggested me to do one however I'm already very skinny and lose a lot of weight if I miss meals so it could be dangerous for me if I was to do something like seven days.
Title: Re: Please FILL OUT the new POIS Survey (2018)
Post by: Rollo on May 20, 2021, 02:56:29 PM
How about a shorter version or some form of compensation before/afterwards?
You can definitly do a high calory diet with fresh/unprocessed ingredients. Thinking of olive/coconut oil, fatty fishes like salmon or mackerel...etc.
Any messure to improve gut health might help your POIS as small as it might be!