Post Orgasmic Illness Syndrome (P.O.I.S.)

POIS Cause/Treatment Discussions => General Alternative Causes and Treatments of POIS => Topic started by: cornelius on September 30, 2011, 01:07:43 PM

Title: wiped.
Post by: cornelius on September 30, 2011, 01:07:43 PM
gone.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: demografx on September 30, 2011, 05:43:06 PM
I clearly have ADD _and_ POIS.

So what?

So do many.

The two disorders are mutually exclusive yet some overlap.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on September 30, 2011, 08:21:55 PM
Cornelius, I'm happy for you. I hope it is real this time. You've tried so much for depression, and tons of things for POIS like symptoms.

We have to, as always, for the rest of us out there, be real careful about taking someone elses cure as a solution for your own case.

I can't relate at all to what you say, but then, what's important is that it works for you.

The other night, after a great day out, for our Chilean 4th of July, came home, had abstained for 5 wks, and my wify was looking real good. Well, did the thing, went to sleep like a baby and practially forgot about POIS, until about 4 in the morning. Woke up with one of the worst cases in a LONG time. So not at all the same at all.

Also, with brain-fog, we may well score poorly in a test for ADHD. Doesn't mean we have it. These days they're giving strong drugs just about to any kid who tend to be a bit distracted. It's almost criminal in some cases.

So I'm glad it worked for you. You may well have just had ADD, and a touch of autism. But without a doctor a simple internet test doesnt tell you anything. Also take the same test out of POIS.

Please we all jump all over the place on the slightest hint. If you feel the need, go for it AGAIN, and AGAIN.

But what we need is professional research. Even if that research tells us we don't have POIS, it will finally take us out of this goose chase misery.

Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Vincent M on October 01, 2011, 02:18:32 PM

 I think that as I restrained myself from sexual activity, that I became more and more stressed. That stress enabled me to push past and control the ADD for long enough to get some things done. That I have always wielded my stress in order to marshal my concentration. What is the absolute bane of stress and tension? You've got it -- and my therapist figured this out really early on, but I wasn't willing to listen to him -- ejaculation. You can't remain stressed after ejaculating. And if I wasn't stressed, I couldn't concentrate. See how this is the POIS model, only turned completely on its head?

If what you say here is true then one could avoid POIS symptoms simply by remaining completely stress free for the days before an orgasm then increasing your stress as soon as you orgasm. However There have been many occasions where I've had no stress before an orgasm and as soon as I orgasm my stress level skyrockets (since anxiety is one of my POIS symptoms) and all my POIS symptoms hit even worse if I am stressed after an orgasm. Orgasm/ejaculation doesn't relax me at all and it never has even when I didn't know that POIS existed.

Also I believe the fact that fenugreek and saw palmetto helped you are very good indicators that you really did have POIS.

I think that the doctors and therapists you've been seeing have taken advantage of your confused state from POIS and the paxil and they brainwashed you into thinking that your symptoms (aspergers/add) were your actual main disorder instead of the POIS that you really have. Just remember it's only been a week and to me it seems like you're not thinking clearly due to your elation at thinking you're cured. It's happened to many of us here before. I just don't want you to hit rock bottom too hard if you find out that you really still do have POIS. Please give it more time (preferably at least 4 or 5 months) before you make any serious decisions based on the fact that you think you're cured. I thought I was cured one time because my symptoms randomly vanished for about 2 months so I went back to college only to have all my symptoms come back and failed all of my classes and now I'm in a load of debt just because I made a stupid and premature decision. Just give it more time before you decide that you really are cured of POIS or even that you never had POIS.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Habibou on October 01, 2011, 06:10:31 PM
I am on CFS also, and I will try Ritaline (used to decrease noradrenaline) soon, which is used for ADD too ! I will see a specialist soon...
It also could why my noradrenaline is sooo high .. !
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: omen on October 02, 2011, 05:06:37 AM
Pois is there...and there's no denying it...and one fine day poiscenter.com will find a cure for it...that also I am sure about...till then live with it...that's the only way...
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on October 02, 2011, 06:26:50 AM
My tendancy is to think that, for whatever the reason that may be, we become short on the building blocks for histamines, which also happen to be the same building blocks used to make "feel normal" neurotransmitters and hormones used in the brain. There's a fair bit of data available to support something like this.

So the body tends to prioritize the histamines and we end up missing the needed balance in the head.

So we get brain fog and become depressed and lose concentration. It would make sense, that if one already has a tendency to depression or ADD or Sexual Exhaustion or CFS, the imbalance caused by POIS would trigger it sooner.

This could explain why some are more congitively sensitive than others. Maybe in many the depressive (or other) tendancy is latent, and not normally present, bordeline so to speak. But along comes POIS, and it tips the scales.

There is no doubt that POIS causes terrible cognitive depression and disorientation, no doubt, and I would even suggest that depending on the case, some of the remedies for the side effect (ADD let's say) may work, at least partially, but until the underlying casue is eliminated or nipped in the bud, the side effects will always remain.

Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Observer on October 02, 2011, 01:16:57 PM
Again, it's not that POIS as I understood it doesn't exist. I still went through all of that suffering, and it seemed to be triggered by orgasm...  but we have never managed to prove anything beyond that.
Fact: There are many people who report that they experience physical and mental suffering shortly after ejaculation/orgasm.

Another fact is that a dry orgasm doesn´t give you any symptoms. And that the leak of pre-seminal fluid give us this symptoms in a mild way.

Do you remember the first time that you feel sick, confused, with brain fog after having an orgasm? Your first POIS episode?
I don´t.

Anyway, i know that this hell began at the age of 18 years. I was deppressed due to i was rejected, and this feeling expanded in the time for some months. I recall feeling with brain-fog, cognitive problems, social anxiety, repetitive and negative thoughts etc. I could remember feeling worse after an Orgasm, but not exactly the first time that i feel like this POIS. I recall leaving behind this social anxiety and overcoming the negative feelings of personal rejection. I remember feeling better *my mind**my body*, and then falling in a cycle of hard brain fog, cognitive problems after every orgasm. I made the connection over the months; at the first time i thought it was an overwhelming feeling of guilt after masturbating, then i stopped masturbating. But then i had the NE, and the problem of POIS surfaced again. It was more difficult to not masturbate while in POIS due to the excitation was the only thing that could distract me from my tortured mind of POIS. The years passed until i discovered that something called POIS exists. This has changed my life. I am not experiencing brain fog anymore due to the niacin, social anxiety has dissappeared, negative thoughts have stopped, and i´m growing confident in every aspect of my life. The battle to fight against POIS has made me to contact some proffesionals in the health world to discover why i suffer this. I´m not anxious anymore to have an orgasm, but if ejaculate when the flush hasn´t dissappeared(or too soon)  i would feel sick-- i have done that---.
I would get that horrible wave spreading on every corner of my body and mind. The same wave that hit my mind and made me recognize that if i was plenty and perfect, this was going to change and the brain fog will appear with intensity in minutes and will last several days. Not anymore. But i would not stop searching the truth. Maybe you have finally find your truth--- Then, congratulations, but i can´t believe that your case is my case. I have a very good friend with Asperger, and i have always recognized the moments when he shows his problem in social situations. I don´t have aspergers and i can say this with 100% certainty, so i think that my search is going to continue. Thanks for sharing your experience with us cornelius :)
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on October 02, 2011, 03:54:46 PM
Thank you Observer for understanding Cornelius's situation, and also expressing well, how we are certain too, that POIS is real.

I understand Cornelius, who probably has been very hampered by his ADD and other cognitive, perhaps depression related in their own right. I have seen a number of us who probably have depressive tendancies as a parallel condition and or axagerated by POIS. I know the situation is VERY complex, and we resist psychological help becasue they don't want to recognize POIS.

But we have said before. Treatments for symptoms CAN help, and should be pursued. But DON'T expect that the treatment will cure you. ONLY a cure for POIS will cure us.

I think niacin has given us a very big clue.

Although we have niacin, and one or two who find great relief with some treatment or other we still MUST pursue the research grant. It's the only thing that will clear the doubt. Perhaps, as Cornelius says, we may ALL be chasing rainbows.

Man I wish that could change!!

Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Willem on October 02, 2011, 06:41:29 PM
Hi Cornelius,

I'm very happy for you.  It's fantastic news that you're feeling and doing better.  Unfortunately sex is one of those things that is so powerful and intertwined with the mind that problems like the one you're describing (thought you had POIS, but probably not) I think are totally possible. 

Please keep us updated on your progress as you are a valuable contributor to this community and I want to hear how this goes over time.  I agree with you that what may be the case for you does not make it the case for others and that's what's so frustrating about this condition.  For example, I don't feel threatened if for you it turns out to be psychosomatic.  If that's the case it would be helpful to know.  Best of luck.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: UnderstandingPois on October 04, 2011, 03:29:09 AM
im sorry to say but, pois suffers are very likely to get diagnosed with ADD i also bet it is the inattentive kind. i also got diagnosed with ADD . and other shit where they try explain and cover up they symptoms of pois.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: MrMoonJr on October 06, 2011, 12:00:50 PM
Taking University courses specifically in critical thinking.. this whole post makes me feel really uneasy. Number one, I cant take anecdotal experiences, it may work for you but that does not mean it will be the case for all pois sufferers. It might be interesting to look into but with the symptoms we have it would be a very hard case to prove in cornelius's favour.

Also, many of us here like said above have a combination of ADD + POIS which would make us automatically subjected to an "a.d.d. test"
This seems very skeptical and im sorry if i sound like an ass, but i like when research has been presented orderly and scientific. Maybe we can look into this? but as it stands very very skeptical
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Starsky on October 06, 2011, 01:13:24 PM
Over so many years we had so many "cured" that i doubt that Cornelius really had POIS.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on October 06, 2011, 03:53:36 PM
Let's hope he didn't have POIS Starsky, and has found his peace.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Egordon on October 08, 2011, 01:15:52 PM
Cornelius,

Congrats man! Whether or not you ever had POIS -- and I think you probably DID and still DO -- it's great that you've finally gotten some of your symptoms under control and are seeing improvements in your life. I, though, absolutely know that I have POIS. Sure, I have trouble concentrating sometimes. But those times are almost exclusively only immediately after orgasm. In fact, since discovering Niacin and ceasing to masturbate I feel like a completely different person -- and people have noticed. Everything in my life is better! I'm able to date more often, i'm doing well in grad school, and have far more friends than ever before. So I have no question that my problems are related to physiological -- not psychological -- problems related to orgasm.

But Cornelius does perhaps raise a good point. Because of how little we know about this constellation of symptoms, it's wise to have your doctor consider all of the possibilities of different disorders that exist out there. You may have POIS AND something else. Or you may just have something else. As helpful as this community is, experimentation and openness to other ideas is pretty important since we know so little about this disorder, so don't be hesitant to consult actual doctors -- no matter how sure you are that you just have POIS.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: B_Daniel on October 30, 2011, 10:54:45 PM
Cornelius, Congratulations on your relief.  Please keep us updated.   
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on November 25, 2011, 10:35:54 AM
I'm happy for you Cornelius. I too am having great success with niacin, there is nothing like feeling normal again after sex. And my case was likely not half as bad as yours.

I'm sure there are some here among us like yourself where depression or ADD play a greater part in the imbalance in their reproductive cycle than anything else.

Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: hurray on November 27, 2011, 05:18:39 AM


Wow, what a well-written and insightful account of your latest breakthrough, cornelius! Congratulations on your successes so far - obviously I'd like to know whether your success will be long-term or not. You've made a brave post, and nobody is going to think any less of you if you let us know that POIS is beginning to creep back into your life - although hopefully it won't  :) It is pretty common for people to build up a tolerance to SSRIs - but let's not think negatively!

I've been well aware for several years that I suffer from clinical depression, but I deliberately avoided the formal diagnosis because I was still able on occasion to do reasonably outstanding things (write good songs, articles etc) and didn't want to mess up my brain with "happy drugs". After I began taking Zoloft I was able to function far better in social situations during time periods when I should have had severe POIS. Moving to a sunny climate also helped considerably.

Quote
I think that my problems with cognition -- my ADD -- was always present. I think that as I restrained myself from sexual activity, that I became more and more stressed. That stress enabled me to push past and control the ADD for long enough to get some things done. That I have always wielded my stress in order to marshal my concentration.
Very interesting indeed. I have often felt exactly the same way about how I am able to function extremely well on occasion - I can do huge amounts of high quality work over a few days especially when a deadline is involved, but I can never sustain that intensity.

I may not agree with your final conclusion (that you don’t have POIS), but the new perspective that you put on your malady is fascinating. Regarding the symptoms that you used to consider to be POIS, what degree would you say these have disappeared to as a result of your efforts? Demo often quotes that he is 80% POIS-free now, for example.

Quote
Ask yourself: is this a common list of symptoms of acute depression?
Over-sleeping, Agoraphobia, clouded thinking, poor short-term memory, irritability
Unless you haven't been reading the same things that I have, you'll have to concede that they are.

Clouded thinking isn’t the same as brain fog for me. I had depression years before my POIS symptoms appeared, and my thoughts were not affected by what most us of think as brain fog – they were just overwhelmingly negative. Also, I have physical symptoms to POIS (extremely dry hair that starts approximately 1 hour after O and continues for days afterwards, and aching joints).

Did you ever have physical symptoms or brain fog with “POIS”? If you had neither, than your conclusion that you never had POIS might well be right.

There’s a lot of other stuff I’d like to write but I’m not a fan of making long forum posts, not that’s there anything wrong with yours   :)
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: hurray on November 27, 2011, 05:59:12 AM
I tried your ADHD tests:

http://www.adders.org/who%20addult%20adhdscreen.pdf

scored 5/6 in the dark boxes for Part A

http://www.adders.org/info7.htm

I have at least 18/20 on this one. Crumbs. Maybe I need to see a doctor!
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Habibou on November 28, 2011, 06:00:46 PM
I tried your ADHD tests:

http://www.adders.org/who%20addult%20adhdscreen.pdf

scored 5/6 in the dark boxes for Part A

http://www.adders.org/info7.htm

I have at least 18/20 on this one. Crumbs. Maybe I need to see a doctor!

If I do the test too, I have very high score, even without POIS ! Perhaps, he found a good thing for "cognitive POIS", who knows !
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on November 28, 2011, 06:51:58 PM
I'd say that if you have the high scores even well out of POIS, you should look at it. Although I think Habibou, that CFS might also give you a high score on ADHD even if you don't have ADHD.

Each disease makes it's symptoms, but the symptoms don't always make the Disease.

We have POIS everyone. If you think you have something else or could have something else in parallel go for it. Take the time out, re-think your strategy, follow the lead and we'll see you back here in a few months. If not, all the better for you.

As we've been trying to say. How many of us have non-stop looked for one cure after another. Maybe it;s this, maybe it's that.  I have symptoms of "God knows what" so I must have "God knows what". Ooops nope, I guess I didn't. Now I have symptoms that look like "Allah knows what", so I must have "Allah knows what", so lets try that cure... Ooops nope well now my symptoms seem like........ on and on and on.

When are we going to get off the freaken merry-go-round.

We need research!!! When will we see this. We spend far more trying God knows what than we do in the only thing that's going to finally solve this problem.

Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: hurray on November 29, 2011, 01:15:48 AM
Research is hugely important, but it isn't something that happens quickly. We have had people on these forums attempting suicide, and many more for whom POIS is a large factor in their depression (or vice versa). If a small subset of people with POIS also suffer from depression, it is a link well worth discussing I think. If curing the depression cures the "POIS", then that is in itself a discovery.

If (as I suspect) there turns out to be different types of POIS (say POIS A, POIS B, POIS C), maybe cornelius had POIS C and has discovered the cure (eliminating depression through therapy and medication, controlling ADHD through medication). That frees us up to focus on POIS A and POIS B, making the discovery of some additional universal POIS symptoms more likely.

The fact that we have found so few POIS symptoms that applies to every case certainly suggests that there may be more than one variant of POIS at work here - of course it also suggests that some of us may have misdisgnosed ourselves with POIS.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on November 29, 2011, 07:50:26 AM
I agree particularly with your last statement.

Perhaps I tend to worry myself too much in seeing yet another being redirected into a fruitless attempt to solve POIS and having to come back and start over. We've just seen it too many times. And especially when SSRI become involved, if those are not handled properly, and there are so many doctors willing to prescirbe them at the drop of a hat, one enters into a whole world which could involve, many times, fruitless psychological treatments with doctors that are only inerested in having a long term patient.

I just have to stop worrying about that.

I have also said often here that many times it is necesary to treat parallel illnesses first, get straightened around over all, and THEN get into POIS. But the problem is when we chase one thing, then another then another and we never seem to get off of the merry-go-round.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on November 29, 2011, 07:57:05 AM
And I guess THAT's why I say that research is so important. To give us a real direction, a real definition so we can stop chasing our tail.

We can do what ever we want while the finding for research is in progress and the research finally comes through. But the problem is that once we distract ourselves from the main goal, getting the research, we put the research on the back burner HOPING that we will find something ourselves. We don't focus on the funding, and try to look for temp solutions meantime, we focus on temp soutions full time, and MAYBE think about funding meantime. If something we think that has promise comes along we dump the funding. So in the whole process, the funding takes second and third place when it should take first and second.

Aaargh!
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: hurray on November 29, 2011, 09:52:37 AM
The research fund is extremely important, and there is a decent percentage chance that it will lead to a breakthrough in our understanding of POIS. We need to understand the mechanisms that cause POIS, let us hope that the research when it finally comes will give us the explanations we are desperately looking for. It certainly doesn't hurt to have a plan B in place though.

Discussing POIS theories is a little like discussing politics - there is never likely to be a satisfying conclusion to the debate where everyone agrees that we should vote for candidate X rather than candidate Y. But sometimes the merry-go-round produces some real gems. If we weren't filling Google with our discussions of POIS, victor.kons would likely have never found our forums and shared his Vitamin B3 discovery with hundreds of other fellow sufferers. Not a cure-all, but something that is providing real help to real POIS sufferers right now.

The more we talk, the more likely it is that new members will stumble upon our community and share their own discoveries. People who feel involved in the process are probably more likely to make a financial as well as a thoughtful contribution to the community.

People can discuss POIS and donate at the same time - it's not a question of choosing one or the other, thankfully  :)
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Habibou on November 29, 2011, 04:24:17 PM
Cornelius,
I got POIS (only cognitive symptoms) while I was scared to be aroused because I had a huge pain between legs... I got stressed each time I got excited and it looks like like your story.
You mean your psychotherapy was the key to avoid the cognitive symptoms after a sexual activity? When did it change? Did you find out what locked you (turning point)?
Did you have the feeling of a huge pressure in the brain while on POIS?
I have seen you were under cognitive symptoms most of the time before Strattera, I am either tired mentally or totally out mentally (under POIS).
So by now, you have a totally normal life as if you never got POIS?
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Vincent M on November 29, 2011, 06:47:37 PM
Also, concerning the research fund, I think the more treatments we can find on our own that help reduce POIS sufferers' symptoms right now the more pois sufferers will be feeling better and thus become more effective at their jobs thus earning more money that they can then funnel into the research fund. This is certainly the case in my situation as the treatments that I learned here have gotten me to the point where I have a job and am earning money. Maybe in a year I'll have enough money saved up that I can spare some for the research fund.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on December 03, 2011, 05:01:45 PM
Thanks for your objective and factual post. It could help several of us.

I insist though, it is not at all my case, and likely not that of many, but once again simply taking a dose of niacin has completely blocked my POIS reaction. With all the anxiousness and tension associated with thinking the niacin won't work, or it's too go a dream to be true, even on day "0" I actually forget that I have POIS.

By day 1 it will be all gone.

But if you can help even 1 or 3 or 10 like you've helped yourself, ALL THE BETTER.


Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Habibou on December 04, 2011, 11:34:40 AM
That mainly means that talking to a psychologist was the key for getting out of POIS. So you mean the different pills you got did not really change anything?...
You said you do not have any post O headache, but cognitive brain fog... what is the real difference?
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: sameer7777 on December 05, 2011, 09:52:44 PM
my blood sugar came normal so i took Cipralex !! terrible results !!
my God my diabetes came normal so i took the decision and thought its depression , as i am feeling all social phobia and too much stress ....
i took cipralex and my symptoms get worse , the whole day i felt nausea ...... my stomack trend to constipation , my whole body esp my head is numb , insomnia is terrible i cant sleep ..... this all i feel after O , now with out O i have more worse symptoms ..... now i have to detox the cipralax , kindly help me how to do it quick ...... i cant sleep .... GOD please help me .................
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: hurray on December 08, 2011, 07:15:08 AM
Also, concerning the research fund, I think the more treatments we can find on our own that help reduce POIS sufferers' symptoms right now the more pois sufferers will be feeling better and thus become more effective at their jobs thus earning more money that they can then funnel into the research fund. This is certainly the case in my situation as the treatments that I learned here have gotten me to the point where I have a job and am earning money. Maybe in a year I'll have enough money saved up that I can spare some for the research fund.

That's a very good point Victor - symptom reduction in any form could help many of us to get new/better jobs, allowing us to donate more.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: hurray on December 08, 2011, 08:34:16 AM
Thanks for another excellent post!

Now I know you asked us not to focus on the Strattera - probably because you don't want to seem like you are "pushing" drugs on us, and you want to maintain your main message that eliminating depression is what has worked for you.

However, you did say
Quote
my experience on Strattera(Paxil) was completely negative
- as Strattera and Paxil are different drugs, perhaps you meant Seroxat/Paxil? You go on to say
Quote
I am on one called Strattera, which is really helping me "keep it together" at work.
and
Quote
Please don't focus solely on the Strattera - all that takes care of is the distractibility.

For myself, the ability to keep it together at work is very important - I can deal with a lot of things more easily if I am professionally successful - such as contributing to the POIS research fund  :) I understand that you regard Strattera as helping you treat your ADHD rather than POIS.Thank you for your advice on ADHD - I will see a neurologist about it as soon as money allows.

Quote
It's difficult to comment on the brain-fog/clouded-thinking thing - it's so subjective...  At the time, I thought that I was functioning at 100% on those POIS-free days, but now I see that I was barely coping with extreme stress / depression. Even still, those days felt magical to me -- I was able to think clearly and go out and about, and enjoy life (as much as one can while being sexually abstinent). It felt fantastic, and it was always a battle to resist sexual activity to stay in that state for as long as possible. I am much better on a daily basis now, than I ever was on those abstinence days.

It occurs to me that some of us may suffer from different types of brain fog. My own major cognitive symptoms in order of effect are:

1) Extreme social anxiety - the urge to stay in a darkened room by myself rather than (say) go to work.
2) Lethargy, a great unwillingness to do any kind of productive work
3) Difficulty focussing on any mental activity

Quote
I'm really not sure about other physical symptoms -- I never had post-coitus headaches, or the flu-like effects that many (but far from all) members report. I always felt lethargic, and never wanted to go out or get exercise mainly out of a reluctance "to go through the effort".
My tactile senses change following ejaculation -- perhaps my skin dries out(?). Perhaps that is the same for you; your senses changing rather than your hair?

My dry hair is definitely a real physical effect - if I'm unsure how bad my cognitive symptoms are, I can just run my finger through my hair. If my hair is extremely "straw-like", it's bad news. Bad POIS also makes the skin on my forehead very dry - I tried using moisturiser, which gave me no cognitive relief.

I hope you can maintain your breakthrough - well done!
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Habibou on December 10, 2011, 03:18:29 PM
I think exactly the same as Hurray ! We should try to see why Strattera worked ... even if Cornelius does not want to explain his cure by that !
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: mellivora on December 11, 2011, 08:21:57 AM
I recommend Wiseman's 59 Seconds (http://www.amazon.com/59-Seconds-Richard-Wiseman/dp/023074429X) for improving my outlook - it's possibly the only scientifically-grounded self-help book out there (and it works!).

Cornelius, thank you so much for this recommendation! I ordered this book after I read your post and I am working my way through it. Although I am only part way through it, I hope everyone here reads this book, it really is excellent. Its a bargain. I would like to say to the people here, whether you think you are in need of such a book or not, if you read it and act on it, I would be surprised if you found it anything other than beneficial to you. Its not a cure for POIS but, while it is too early for me to judge the longterm benefits, it appears to be a great catalyst to improving aspects of one's life, so far with very minimal effort! (after that glowing review I almost feel the need to say that I don't know Professor Wiseman and I am not associated with this book in any way other than as a reader!).

Thank you again Cornelius!
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Vincent M on December 11, 2011, 07:55:14 PM
I recommend Wiseman's 59 Seconds (http://www.amazon.com/59-Seconds-Richard-Wiseman/dp/023074429X) for improving my outlook - it's possibly the only scientifically-grounded self-help book out there (and it works!).

Cornelius, thank you so much for this recommendation! I ordered this book after I read your post and I am working my way through it. Although I am only part way through it, I hope everyone here reads this book, it really is excellent.

What points have you found most helpful in the book? Could you perhaps give us some quotations  of the parts you find to help you the most?
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Vincent M on December 11, 2011, 07:57:04 PM
I think exactly the same as Hurray ! We should try to see why Strattera worked ... even if Cornelius does not want to explain his cure by that !

Personally I think the Strattera is playing a larger role in Cornelius's recovery than he believes. It makes me want to try Strattera myself to see if it'd help improve my brain fog by improving my ability to concentrate and focus.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Habibou on December 16, 2011, 04:57:40 PM
Totally agree Marcus ! I want to try it also but I do not know how to manage with my doctor to ask it... :-X
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Jon on December 17, 2011, 05:26:38 AM
Hey guys, I am also interested in the Strattera. I don't know how many of you guys feel this but let me try my best to explain..

In general I don't feel like I can get up and just live my life to the fullest, I feel like I can't just go about traveling the world or experiencing things without a limit. I always need the aid of foreign ointment (Extra rest and supplements) to make it through my days strong. The feeling is hard to explain but its almost like theres a limit to things always.

Also, It is almost as if in POIS its not that I have anxiety or worry about people, but rather I feel as though I don't have the necessary chemicals to deal with everyday things, and especially people. Anything that you I have to deal with during the day effects me negatively, Like my 'antivirus wall' has been shut down and all the viruses are getting in. There is no natural defense to anything. I don't know if you guys know what I mean, maybe not.. But I have wondered for a few years now if my adrenaline type chemicals (norepinephrine, epinephrine) need a boost due to POIS. That is what Strattera is, A norepinephrine reuptake inhibitor.

Thoughts ?
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: mellivora on January 16, 2012, 07:31:08 AM
I agree, the first chapter in "59 seconds" on happiness and the exercises Cornelius has posted above were very helpful and seemed to work. Its amazing how quickly the exercises seemed to give me a boost of happiness. (by the way, I don't consider myself depressed and have never felt the need to turn to anti-depressants etc but with POIS to deal with who doesn't need some help now and then?!). Its important to note that it has been shown that one needs to actually write the answers to these questions, not just think about the answers for the technique to be effective.

The rest of the book is really fascinating and helpful to varying degrees, no doubt dependent on what you feel you need help with. There are a few occasions where I think Dr Wiseman makes inferences that I don't think can necessarily be made from the research studies he cites but I still thoroughly recommend the book. I told a psychologist that Dr Goldmeier works with that I'd read the book and found it helpful. She knew about the book and also thought it was a good one (although she thought in one or two places Dr Wiseman contradicted himself which is probably true). The chapter on happiness is, as I said, the 'stand-out' chapter for me.

Dr G's psychologist colleague recommended to me another book. It is recent (2011) and authored by a professor from Oxford University. Its called:
"Mindfulness: a practical guide to finding peace in a frantic world" and is by Mark Williams and Danny Penman

I have only just started reading it.

I have not been a big reader of self-help books in the past.  There are probably some  bad self-help books out there. The two above seem to be endorsed by people who should know and based on science.  I think anyone can probably benefit from them. They can only help us.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: superasn on March 29, 2012, 08:04:55 AM
Hi cornelius,

I just read your post and I thank you for sharing it. The more I read it the more sense it makes. I've too been suffering from depression for a very long time (since school maybe) but till date I've always felt that it's nothing I can't fix on my own (tried self-help books, 5HTP, etc). It has helped but very little. Also for a very long time I have felt extremely low (like you put it "running on empty") but I just tried to power through it. I don't know if it makes sense but in my country, seeing a Psychiatrist is still kind of a big deal here :/

Anyway, I started getting the POIS symptoms a few years back myself but here is the part of your post that clicked. Very rarely it has happened that after I masturbate I occasionally forget about it the next day and you know what? When I do forget, I don't get the horrible headaches and other symptoms as well. But as soon as something happens to make me remember it (even faintly), I have had the headaches and other symptoms return out of thin air in just a few hours.

Another thing. One two occasions it has happened that when something really really bothered me I had the same symptoms (headache, nausea, tiredness, irritability, left eye seems it wants to pop, etc) manifest within hours which I couldn't really explain before since I didn't do any sexual activity. So, I ignored it. But this part also fits with your post.

Long story short, I just finally called a Psychiatrist up and made an appointment with him. I give kudos to you for helping me take this action.

Regards,
S.

Update: It been just over one and a half month and condition has gotten better since taking the drugs my Psychiatrist prescribed (Escitalopram - 1yr and Alprazolam - 2 weeks). The symptoms have reduced a lot. Thank you cornelius for bringing it to everyone's attention. I can only wish I had started it sooner but better late than never.. Here is to everyone of us getting better!
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: misread on April 28, 2012, 02:57:45 PM
cornelius, i absolutely agree with your theory..i recently discovered that my POIS is just a part of my underlying depression/add. when you are already depressed you react differently to an orgasm than mental healthy people..for depressed people or add people every dopaminergic disturbance can cause horrible symptoms like anxiety, cognitive problems, fatigue, brain fog..

so why do we get better with abstinence? it is logical..abstinence has a strong antidepressant effect because it increases dopamine. (interesting in add case)
why do we get better with garlic? because garlic has also strong antidepressant action (anti-inflammatory, mao-inhibition, directly increases neurotransmitter..)
i do not know if fenugreek also affects the dopaminergic system..it could be possible because it affects libido.

i believe that POIS has something to do with the dopaminergic system..all symptoms are the symptoms of acute dopamine depletion.

i think our symptoms not worsen by an orgasm..rather our symptoms improve by avoiding an orgasm.

we should at least should verify if we have something like add..
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Habibou on May 01, 2012, 05:39:04 PM
I totally agree with you guys about Dopamine depletion !!! I checked mine and it was very low... but now I am in CFS (or intense depression) so I am quite sure cornelius experience sounds exactly like mine ! I started to be in depression when POIS arrived for me.

Cornelius, did you check your dopamine level?
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: sameer7777 on May 08, 2012, 05:19:43 PM
I totally agree with you guys about Dopamine depletion !!! I checked mine and it was very low... but now I am in CFS (or intense depression) so I am quite sure cornelius experience sounds exactly like mine ! I started to be in depression when POIS arrived for me.

Cornelius, did you check your dopamine level?

how to check dopamine level ??? is it a blood test ?????????
if we all are in depression or cornelius is in what type of anti depression we should take ???????????
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: superasn on May 13, 2012, 04:03:25 AM

how to check dopamine level ??? is it a blood test ?????????
if we all are in depression or cornelius is in what type of anti depression we should take ???????????

Instructions

1. Make an appointment for a catecholamines test. Your doctor may draw the blood for these tests on site or he may refer you to another lab.

2. Prepare for the blood test. Stress, exercise and certain foods and medications can interfere with your test results. Your doctor or the lab will let you know what activities, foods and medications to avoid and for how long before your test.

3. Take the test and get the results. Dopamine is linked to epinephrine and the level of epinephrine in the blood is taken as an indication of dopamine measurements. The target number is 20 nanograms per milliliter. Given the varied role dopamine plays in your body, an abnormal test does not clearly correspond to any one specific condition. Your doctor will work with you to develop next steps based on your other symptoms.


Source: http://www.ehow.com/how_5766116_measure-dopamine.html
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on May 21, 2012, 08:54:54 AM
Just making a run through this thread again after quite a while, and wanted to say that there are undoubtedly a handful of us who for one reason or another came to believe they had POIS, when actually their problem was elsewhere based. This is not surprising, symptoms and mechanisms can become so intertwined.

I am glad if we can somehow sort out the knots and find a solution, whatever that solution may be. But as usual, a cure for one likely won't be a cure for all.

For some reason the medical community finds it easier to believe that we are all psychosomatic. I understand that the whole pyscho-neurological cycle is very complex, and that part of the phenomena is that the affected doesn't realize his condition. As such, it is wonderful to see some of you finding relief.

Unfortunately, we will not know the truth until we do our research. Without our research we will always have the doubt. Those here who have found relief, cannot promise us that their treatment will save us, just as I cannot promise that my treatment will save them.

So for now, we accept whatever helps us. You can try niacin, or fenugreek or mindfullness or antidepressive drugs. Sigh, maybe one will work!

Only the cure will give us peace in the end.



Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: demografx on May 21, 2012, 09:27:53 AM
Dave, truer words were never spoken! Thank you!
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: demografx on June 30, 2012, 09:34:40 PM

(http://i858.photobucket.com/albums/ab143/demografx/8eccedd4.jpg)


Please click H E R E now to donate  to The POIS Medical Research Fund (http://www.rarediseases.org/about/support/research-donations/fg_base_view_p3)
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Osssoh on August 13, 2012, 08:26:28 AM
And I guess THAT's why I say that research is so important. To give us a real direction, a real definition so we can stop chasing our tail.

We can do what ever we want while the finding for research is in progress and the research finally comes through. But the problem is that once we distract ourselves from the main goal, getting the research, we put the research on the back burner HOPING that we will find something ourselves. We don't focus on the funding, and try to look for temp solutions meantime, we focus on temp soutions full time, and MAYBE think about funding meantime. If something we think that has promise comes along we dump the funding. So in the whole process, the funding takes second and third place when it should take first and second.

Aaargh!



Who is conducting the research on POIS actually? 
Where is The info Research?
Who of you are participating in it?
What are you dane by now ?
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on August 13, 2012, 08:54:51 AM
And I guess THAT's why I say that research is so important. To give us a real direction, a real definition so we can stop chasing our tail.

We can do what ever we want while the finding for research is in progress and the research finally comes through. But the problem is that once we distract ourselves from the main goal, getting the research, we put the research on the back burner HOPING that we will find something ourselves. We don't focus on the funding, and try to look for temp solutions meantime, we focus on temp soutions full time, and MAYBE think about funding meantime. If something we think that has promise comes along we dump the funding. So in the whole process, the funding takes second and third place when it should take first and second.

Aaargh!



Who is conducting the research on POIS actually? 
Where is The info Research?
Who of you are participating in it?
What are you dane by now ?


Start by reading what we have here.
http://poiscenter.com/forums/index.php?topic=125.msg1065#msg1065

The research will be professionally directed, by people who know rare Disorders. Check out the NORD links. (National Organization for Rare Disorders)

From information on our forums, the advisers will likely get hints as t where to start, But they've seen it all and specialize in the direction of rare disease research

Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: gondal4 on November 30, 2012, 11:02:05 AM
from last few times i dont get brain fog or other symptoms now just abdomen gets severrly weak and i could not travel in car as i feel sommething from my abdomen will ,it becomes so weak and idont know how to explain
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: asdfdoc on April 28, 2013, 12:55:15 PM
cool, what about bipolar?
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: nenexx on April 28, 2013, 05:33:29 PM
Then everyone with depression should got it worsened by orgasm, no?
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on June 01, 2013, 05:52:32 PM
POIS is strange, it seems to accentuate the weaknesses in us.

In my case, I don't have a depressive bone in my body!  :P As otherwise normal as one could be.

But POIS triggers all my physical sensitivities. Joints, nerve pain, etc. etc.

When I wasn't taking niacin, I'd even get (in extreme cases) a couple of days of depression, which is really rare for me.

Perhaps that's why POIS is so different for each one. We each have weak physical / mental areas, and POIS just
tweaks the crap out of whatever it is that we have.

So we each feel it differently. Perhaps those who have anxiety issues are lucky, they can find ways to calm the mind.

I have physical issues, no amount of mental effort can make them better, nothing but time, waiting it out until the freaken "next time"!
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: atamotua on June 04, 2013, 08:11:09 PM
what is the best place to share my symptoms... the place where my info will be taken into account and added to the database of facts? thank you...
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on June 05, 2013, 07:32:39 AM
what is the best place to share my symptoms... the place where my info will be taken into account and added to the database of facts? thank you...

Use this link, and post there, thanks:
http://poiscenter.com/forums/index.php?topic=81.0
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Daveman on June 14, 2013, 02:24:01 PM
yes so someone gets semen injected under his skin by a doctor and develops a red spot known as a allergic reaction and histamine release...

argument please...


For starters, have a look at this:
Brings up some serious doubts and potential dangers of skin-prick testing and desensitization.
http://poiscenter.com/forums/index.php?topic=1036.msg9826#msg9826
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: traderwithpois on July 03, 2013, 05:52:49 PM
After reading through this thread I am definitely convinced there is a lot of truth to what cornelius has discovered.  What a brilliant discovery it is, too!

I think our "POIS" state is more a reflection of our true selves.  It is our underlying state of being, the way we are when you strip away any stress, excess energy, anxiety, etc.  So if we are depressed in that state, then we need to just ACCEPT first that that is who we are, and work to improve our lives around that... improve our social life, jobs, diet, exercise, etc.  Only when we ACCEPT it, can we finally change it. 

I have noticed that my "POIS" was worse a couple of years ago and that was because I had more anxiety and depression and job and social stress than I do today... but my POIS is not completely gone, which means there is more room for improvement.  I have to wonder if I will ever completely rid myself of POIS, especially since semen is sort of "life energy" and one would expect to get drained a little bit afterwards as we get older.  But I see no reason why I shouldn't have sufficient energy the day after, and that is what I will work towards.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: LAPOISSE on July 04, 2013, 03:57:30 AM
Hi traderwith POIS,

I think its wise to look at this direction.

I also feel benefits by trying to calming down my mind. Frankly, it could be 10%, 50% or 100% of the problem ; I just don't know right now. What I know is the mental can cause a lot of physical problem and vice versa.
I know it's not easy for everyone here to do a little bit of mental introspection but it's absolutly necessary..event if it's just help to deal with POIS life.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: FloppyBanana on July 04, 2013, 12:10:44 PM
I agree totally with above two posts. Since practicing Falun Gong (Chinese mind and body practice) my life has been transformed. Always look inside yourself to find out what your thoughts really are, where they come from and are they righteous (not selfish).

In meditation I found that the realms of pain you can endure are endless. The muscle fatigue from POIS can be relieved through this. Since starting practising Falun Gong 13 years ago I have been able to break from 12 years of POIS and continually getting ill. All classes are free. POIS is still something that stops me having a "normal" life though.
FB
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: LAPOISSE on June 09, 2014, 03:08:39 AM
Hey Cornelius,

I'm curious to know if you still feel alright ; Hope you are around sometimes.

Cheers
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: Disaster on June 15, 2014, 04:14:08 AM
There is no way depression is causing POIS. These cognitive and physical symptoms are torture and restrict our lives and so we can get depressed from that just like any sick person.
Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: vinay36 on August 01, 2014, 09:48:15 PM
Hi All,

Thanks for starting these forum.

I completely agree with the symptoms.
For me,
'I feel like I lost Oil, and without Oil the engine can't function normally'.
It takes one week to get to the normal state along with regular exercise at gym.
That means I spend one week to rejuvenate myself.

Could any one please describe what is the Cure.


Title: Re: My cure for POIS, OR: Why I had it completely backwards.
Post by: sameer7777 on August 03, 2014, 02:41:04 AM
UDOM .... U writing my life story lol i am 46 now starts in teen .