Author Topic: This may seem like a familiar place.  (Read 356706 times)

demografx

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Re: This may seem like a familiar place.
« Reply #2085 on: May 22, 2018, 08:21:42 PM »




Just to keep up our outreach momentum, I am re-posting our plea to...everyone, please keep sending out our RFP/POIS-researcher document below . In spite of the difficulties of our “low visibility research subject: POIS”, as Quantum articulated so well, we did succeed in years past finding a researcher this way: a combination of BOTH NORD-AND-POISCenter efforts.

We crowd-funded amongst ourselves (POISCenter members): $31,000++ for this project.

Amazing!

So let’s finally get ourselves cured! We can’t do it alone, without competent and POIS-DEDICATED medical research!


Please send out the RFP! Make our $31,500 do MORE!

***** OR...IF YOU PREFER *****

SEND A PRIVATE MESSAGE OF YOUR IDEA OF WHO MIGHT BE AN IDEAL POIS RESEARCHER TO ONE OF US (me, or Quantum, or Observer, or COLM_2)

Please include 3 things: recipient’s name, affiliation and email address

Then one of us admin/mods will send out the NORD RFP/proposal to them, with a cover letter/email


Our NORD RFP/proposal:
https://rarediseases.org/wp-content/uploads/2014/11/NORD_RFP_POIS.docx

Or this shorter link/url:
https://tinyurl.com/y96dnkmq

THANK YOU, EVERYONE!
demo



Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.