Post Orgasmic Illness Syndrome (P.O.I.S.)
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May 23, 2018, 08:02:56 AM

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+  Post Orgasmic Illness Syndrome (P.O.I.S.)
|-+  General Category
| |-+  Discussion/Communication Research
| | |-+  Our New RFP ( Request For Proposal) for the new study is out !
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: Our New RFP ( Request For Proposal) for the new study is out !  ( 6756 )
demografx
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« #30 : February 08, 2018, 10:37:17 AM »

POTENTIAL POIS RESEARCHERS/SCIENTISTS RECEIVED THIS EMAIL TODAY - -
Demo

emphasis mine -

NORD Research Grants

*NORD has reopened the call to submit abstracts and letters of intent for the following grants. The deadline is ongoing and all U.S. and international researchers interested in studying these diseases are encouraged to consider applying. For questions related to these grants, email research@rarediseases.org.*

Cat Eye Syndrome – One (1) grant of up to $30,000 for scientific and/or clinical research studies related to Cat Eye Syndrome. Download RFP.

Malonic Aciduria – One (1) grant of up to $50,000 for scientific and/or clinical research studies related to Malonic Aciduria. Download RFP.


Post-Orgasmic Illness Syndrome – One (1) grant of up to $31,000 for scientific and/or clinical research studies related to Post-Orgasmic Illness Syndrome (POIS). Download RFP.
https://rarediseases.org/wp-content/uploads/2014/11/NORD_RFP_POIS.docx


« : February 08, 2018, 01:17:34 PM demografx »

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
demografx
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« #31 : February 08, 2018, 10:43:45 AM »

Everyone: please feel free to send the above to any doctor or organization you feel is qualified. That is how we found our last researcher: WE made the initial contact.

I believe that our chances are improved greatly when the researcher knows who we (POISCenter) are *in advance* of their submitting a proposal to NORD.

Best,
Demo
« : February 08, 2018, 03:19:36 PM demografx »

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
demografx
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« #32 : February 08, 2018, 11:58:04 AM »


Applications will be accepted on a rolling basis until the funding has been awarded.

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
demografx
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« #33 : February 26, 2018, 10:17:43 AM »

IMPORTANT: Finding our POIS Researcher

As you all know,  the NORD award to a POIS research team (up to $31,000 that POISCenter Members donated) has been sluggishly delayed.

Looking back at our historical success in finding someone to research POIS, I believe that our last research project was influenced by our *early* (pre-award) discussions with Dr K.

I think we all played a role in Dr K’s decision to take us on. He was responding to NORD because he *already* knew us and POIS matched his research goals.

So...I think that a PERSONAL MEMBER effort between POISCenter & researchers is invaluable, perhaps even indispensable in our early careers here to annihilate the still misunderstood POIS.

In conclusion, NORD says “it would be wonderful to have [POISCenter] forum members share the RFP information with their doctors and other relevant contacts.”

============================================================
Therefore...*please* send this link below to a doctor you trust and/or to a researcher you can contact who you think would be a good candidate to study POIS:

RFP: (NORD’s Request for Proposal)

https://rarediseases.org/wp-content/uploads/2014/11/NORD_RFP_POIS.docx

Many thanks and best wishes to us all!
demo





« : February 27, 2018, 03:51:13 PM demografx »

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
demografx
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« #34 : February 28, 2018, 12:22:30 AM »

One example (mine) of how we can distribute the NORD Request for Proposal:


On Feb 27, 2018, at 2:13 PM, demografx wrote:

Dear Dr G, [my own large-city university-endocrinologist]

I hope you’re well.

I continue to benefit greatly from your treatment plan that I implemented with you about 8 years ago.

Perhaps you can help us with furthering the research on Post-Orgasmic Illness Syndrome?

I’ve attached a $31,000 grant description which I would hope you can pass along to your colleagues.

Best wishes,

demografx
https://rarediseases.org/wp-content/uploads/2014/11/NORD_RFP_POIS.docx


Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
demografx
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: 3250



« #35 : February 28, 2018, 09:10:45 PM »


Observer made an excellent suggestion:

Dr Goldmeier in London.

I think 1-2 forum members visited him.


« : March 01, 2018, 12:53:07 PM demografx »

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
POISse
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« #36 : March 02, 2018, 09:00:15 PM »

I visited Dr Goldmeier last week. He knows about pois, he has seen some other pois sufferer and he is aware of the current research (he mentioned Dr W, Dr K and the Chinese study). Nevertheless he felt a bit helpless and he suggested that I see an immunologist.
demografx
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« #37 : March 03, 2018, 08:17:33 PM »

Thank you, POISse!

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
demografx
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: 3250



« #38 : March 07, 2018, 03:00:48 PM »

Hi everyone.

Any thoughts about sending out an email to your doc and/or researcher to expedite finding our next POIS consultant?

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
mellivora
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« #39 : March 08, 2018, 03:33:24 PM »

Likewise I have visited Dr Goldmeier some years ago. Very nice chap. We tried a couple of things but in the end he was at a bit of a loss how to move forward I'm afraid.
demografx
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« #40 : March 08, 2018, 06:02:20 PM »

mellivora, thanks for sharing that!

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
Meshal
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« #41 : March 20, 2018, 11:01:05 AM »

I'm not sure but from what I understand is that so far members here have donated 31,000$, btw huge appreciation for you guys for doing this, I just found out really haha, I can't express my gratitude. as soon as I manage my POIS I'll be able to collect my money since It's easy to gather dirty money In my country :P 
 
and RFP means that NORD is looking for a research team of a doctor to research about POIS using the 31,000$ the members have donated. Is that correct?

I already prepared a an email to a lot of doctors in my country based on my though above. am I making sense?
« : March 20, 2018, 11:03:09 AM Meshal »
demografx
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« #42 : April 08, 2018, 10:43:45 AM »


...RFP means that NORD is looking for a research team of a doctor to research about POIS using the $31,000 the members have donated. Is that correct?


Yes!
« : April 08, 2018, 01:41:35 PM demografx »

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
demografx
Administrator
Hero Member
*****
: 3250



« #43 : April 08, 2018, 10:45:54 AM »


I already prepared an email to a lot of doctors in my

country based on my thoughts above. Am I making

sense?


Yes!

Thank you very much, Meshal!!
« : April 08, 2018, 10:48:37 AM demografx »

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
demografx
Administrator
Hero Member
*****
: 3250



« #44 : April 08, 2018, 10:52:18 AM »


...members here have donated $31,000, btw huge appreciation for you guys...I can't express my gratitude.


Thank you, Meshal, I feel the exactly same way! Huge appreciation for all you POISCenter Forum contributors! (Including me :) )
« : April 08, 2018, 01:14:41 PM demografx »

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
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