Author Topic: Lyme Disease  (Read 1575 times)

relaxeverything

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Lyme Disease
« on: January 21, 2015, 04:57:13 PM »
Hi Everyone,

I've had POIS since I'm 20 and recently found out after extensive testing that I have Lyme disease. The tick bite which preceded the onset of symptoms  such as fatigue, insomnia, and digestion issues which I never (and still don't) correlate with POIS also preceded the beginning of my POIS (5 years ago). The reason I don't connect them exclusively is the particular flavor of POIS, which would only happen after an orgasm as opposed to the omnipresence of the aforementioned symptoms. That flavor was/is an intense emotional sensitivity and social anxiety. I'm getting intensive treatment for Lyme from a Lyme specialist at the moment and can still distinguish between the symptoms of Lyme and POIS. As difficult as Lyme is, combined with POIS it's utter hell.

Anyways, it seems like there MIGHT be a connection between them as my POIS started around the same time as Lyme. Curious if anyone here had Lyme disease. Its epidemic in the U.S.A. and has been found all over the world. 300,000 new cases a year in the U.S. and very few of them are diagnosed and even rarer treated properly.

So my dear POISers, let me know!!

Cheers,
RelaxEverything

Going less Crazy

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Re: Lyme Disease
« Reply #1 on: January 21, 2015, 10:46:14 PM »
I have been tested for it, but not the extensive Igenex testing which I will like to have in the near future.  I'm not totally sure of the connection of POIS and lyme disease but recently I read how lyme bugs may use magnesium and zinc within the body for its own purposes and this is why we may feel bad after sex.

Check:  http://www.tiredoflyme.com/11-things-that-can-make-a-person-with-lyme-disease-feel-worse-besides-treatment.html#.VMBx15U3OUk 

In fact that is almost a list of what bothers me.  Especially lack of sleep, sex, food/chemicals, exercise and high stress.

Still I am not totally sure of the connection but I may ask the doctor to go on doxycycline for a couple weeks because of possible lyme and bad back acne.  I don't think it would hurt as long as I supplement with probiotics during/after the treatment.
My POIS 100% managed with modified Paleo Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O and stimulation = neuro POIS from inflammation from the gut. Can O freely. Supplements: currently a gluten digesting enzyme: Tolerase G (testing)

relaxeverything

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Re: Lyme Disease
« Reply #2 on: January 21, 2015, 11:26:22 PM »
Going Less Crazy (hope that pattern continues ;-) )

Doing Doxyciicline for a few weeks would be a waste of time and probably make matters worse bringing the bug out of hiding. If you test positive or are clinically diagnosed by a Lyme Literate Doctor that you trust then go for the whole treatment. Partial treatment (a month or so) won't do anything unless you just got the Lyme bacteria within weeks or months. ILADS refers Lyme literate doctors.

http://ilads.org/ilads_media/physician-referral/

The standard testing (Elisa, western blot etc.) have been show to be highly inaccurate. Like many diseases it is extremely hard to test for and the tests shouldn't be the only data used in the diagnosis.

Going less Crazy

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Re: Lyme Disease
« Reply #3 on: January 28, 2015, 07:10:37 PM »
On second thought, I really do not think that Lyme has anything to do with POIS.  The reaction I get is wayyy more severe than lyme would ever cause on its own.  It just doesn't make any sense for lyme having anything to do with POIS.  Most people with lyme have joint/neurologic issues but no MAIN issues with having an orgasm.  Plus if I wait a week or more without "O", I feel pretty good.  As soon as I "O", back to square one.
My POIS 100% managed with modified Paleo Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O and stimulation = neuro POIS from inflammation from the gut. Can O freely. Supplements: currently a gluten digesting enzyme: Tolerase G (testing)

Hopeoneday

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Re: Lyme Disease
« Reply #4 on: June 12, 2018, 05:07:03 PM »
The days i didnt know about pois, my symptome almost always lead me to lyme deasse. I hawe almost all of thease symptomes.
https://canlyme.com/lyme-basics/symptoms/

Hopeoneday

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Nas

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Re: Lyme Disease
« Reply #6 on: June 13, 2018, 08:22:50 AM »
Hopeoneday,
Interesting article.
What I gathered as very similar with Lyme disease is that inflammation causes both physical and mental symptoms.
A Herxheimer reaction is very similar to a state of POIS which indicates that there's an immune response that is happening in the blood that is similiar to the case of Herxheimer reaction.

Hopeoneday

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Re: Lyme Disease
« Reply #7 on: June 14, 2018, 04:52:38 PM »
I must put this here.
Kurtosis is well konown meber.
He is living prove that his pois is cured by pure luck by ANTIBIOTICS!
All his food intoleranis  is "wanished over night".
That mean that his pois is couse by somekind of bacteria.
He told that he cured SIBO infections and he think that this was it.
Later, helty diet and suplements etc...
Reed and do concluzions by your self:
https://www.reddit.com/r/POIS/comments/35rh8o/kurtosis_explains_to_the_best_of_his_knowledge/